Dr. Chia appt today

Discussion in 'Fibromyalgia Main Forum' started by PVLady, Jan 9, 2007.

  1. PVLady

    PVLady New Member

    I finally had my appt with Dr. John Chia - infectious disease specialist researching CFS, stealth viruses, enterviruses etc. for over 10 years.

    I have alot of digestive problems, very sensitive stomach. Based on my blood work and his exam, and my history - he says I have Coxsackie enterovirus in my digestive system and stomach. (He is sure).

    He is obtaining the biopsy from when I had my endoscopy to have it tested also.

    Recommended treatment includes gamma globulin, interferon and a chinese herb extract called Matrine.

    Gamm globulin is $3,000 for one months supply. Interferon around $10,000. My insurance does not cover. (belive it or not, some insurances do cover this).

    I am going to try the Matrine. (less that $50.) I ordered it via internet from a lab in Irvine CA. he recommended.

    Dr Chia is currently running a three month trial with 70 patients on Matrine. Apparently there is a 92% cure ratio for ridding the virus from your stomach, digestive system.

    If this helps me it will be a miracle. When I return from a trip next week, I will try the Gama globulin treatment. the interferon is too much at this time.

  2. Cobi

    Cobi New Member

    Hi PVLady,

    If I hit reply twice, I apologize.
    What are the symptoms of Coxsackie enterovirus in the digestive system?
    I have a very sensitive GI system, with most supplements irritating it. I wonder if maybe I have that.
    Please keep us posted on Matrine, if you tolerate it and if it helps.

    Thanks and good luck,

  3. Theresa

    Theresa New Member

    I saw Dr. Chia a few years ago but did not test positive for the enterovirus. I was hoping that would be the answer for me.

    I'm glad that you found some answers. So, did you test positive for it by the blood test? Or do you have to do the biopsy for conclusive results?

    Did you have any other viruses according to your blood work?And did Dr. Chia test you for anything else?

    I've been thinking about going to see him again.
    Thanks, Theresa
  4. ulala

    ulala New Member

    found the place in Irvine that sells Matrine?

    I hope you get good results with this! I have had gamma globulin shots and I felt better after having them but I didn't have them consistently.

    Does Dr. Chia take any types of insurance?

  5. IntuneJune

    IntuneJune New Member

    Gamma globulin.....will this be administered intravenously?

  6. PVLady

    PVLady New Member

    I think the website to order Matrine is BeVigour Inc.

    I ordered the
    AGASCOLI (Matrine 100 mg/Capsule)

    Contributes to a healthy gastrointestinal system

    This product is good for gastroenteritis, gastroesophageal reflux disease (GERD), ulcer, chronic colitis and Crohn's disease.

  7. PVLady

    PVLady New Member

    If I have gamaglobulin I suppose it is intravenously. Did you already try it. I am not sure my insurance will cover. One treatment is 3,000.

    I am anxious to try the Matrine. This doctor is dynamic and on fire to help the patients. He has 70 patients on a three month trial of Matrine who are having very good results so far.
  8. ulala

    ulala New Member

    where you ordered the Matrine from. I'll check it out in the morning.

    I'm glad you got to see Dr. Chia. Keep us posted on your progress!

    Best wishes!
  9. wrthster

    wrthster New Member

    Hi PV Lady,

    A lot of insurance companies will not pay for it, I do not know about the interferon you should check with the doctor regarding the criteria. For example, with IV Gamma Globulin: The Doctor needs to measure what's called your IGG subclasses (an Immunoglobulin G subclass Panel): which consist of subclasses 1,2,3 and 4, and you show deficiency in two of the subclasses, maybe even one, that is half the battle. Then he must do another test called a pneumococcal IGG antibody panel. Depending on how you react to that test coupled with the subclass panel you would now be considered by all standards to have what is called and Immunodeficiency which would make it extremely difficult for any insurance provider to deny. If they do, after those tests are run, and if they show you have a true immunodeficiency, I would take this to the state insurance commission, your local congressman and retain a Personal Injury Attorney who only charges upon collection. I know this is a lot, but Gamma Globulin is very expensive, one treatment is not enough. SO @ $3000 per month, that can add up very quickly. Almost none of the insurance companies will pay for what is called "off label use", like a diagnosis of CFS. However, I would bet that many of you can show a true Immunodeficency which is considered a 100% recognized use of gamma globulin. I hope this is helpful and sorry for it being so long. Best of luck to all!!!
  10. IntuneJune

    IntuneJune New Member

    My doctor MAY start IVIG's. I have done a little better this past 12 months over the last, so it's wait a little and see.

    I had not heard of Matrine though.....

  11. PVLady

    PVLady New Member

    Whthstr- Thank you for the good information!!! I sincerely appreciate all the responses.

    I received the Matrine in the mail yesterday and am afraid to take it. I may get up the courage next week.
  12. cristine04

    cristine04 New Member

    How does Dr. Chia test for the enterovirus?

    Does he have a long waiting list?

    Thanks guys!

  13. PVLady

    PVLady New Member

    I don't know how he tests... they do blood tests if that is what you are asking. Also he is going to check the DNA of a biopsy of my stomach done on a endoscopy a while back.

    At least I think that is what he said. He is very into research of this illness.

    It takes about three months to get in to him. Your doctor must make a referral and send records to him before you can make the first appt. He then contacts you before you see him, to go for certain blood tests.

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