Dr Chia Information Specialist for CFS/FMS

Discussion in 'Fibromyalgia Main Forum' started by PVLady, Jul 13, 2006.

  1. PVLady

    PVLady New Member

    I found out more about Dr. Chia, (in Torrance, CA) today. My allergist knows him quite well and says he has researched CFS/FMS for years.

    He believes it is caused by Epstein Barr and Coxsackie (not sure of spelling) Virus. His treatment (among others) is intravenous treatment with antibodies.

    According to my allergist he does help people. In order to get an appointment your doctor has to send your lab work and referral. They will not make a appointment from you phone call. It takes a few months to get in to him.

    My allergist is handling getting me in. (I told her to go ahead and make the appointment and I will be there).

    I discussed Dr. Chia with someone here and I forgot who it was, so I am posting this follow-up.
  2. 69mach1

    69mach1 New Member

    for you..i have kaiser...everyday i keep thinking onhow i need to change my medicare plan stuff...

    jodie
  3. PVLady

    PVLady New Member

    I don't even know if my Blue Cross will cover the treatments. Dr. Chia is a infectious disease specialist. He has a excellent reputation in our area. Many doctors go to him.

    Anyway, I will give it a try, even if I have to pay cash. I don't see myself suffering like this the rest of my life.

    If my illness is caused by a viruses, I am very motivated to be treated. Apparently he has many articles published in medical journals.
    [This Message was Edited on 07/14/2006]
  4. Theresa

    Theresa New Member

    Hi pvlady,
    I've seen Dr. Chia. He is very knowledgeable and an extremely nice man. I only saw him about twice. He did some testing for viruses but I did not test positive for the virus he believes causes CFS (can't recall the name).
    I did have a bad case of mono in my twenties but my blood test showed no current activity, only antibodies from past
    infection. I also had a terrible case of adult chicken pox in my twenties and wondered if that w/ the HHV6 could be causing a problem. I had a trial of Valtrex for 6 weeks and felt miserable. It made me feel much worse. Since then I haven't seen him. But I would recommend him.


    Please let me know how your visit goes.

    Take care, Theresa

    One thing I forgot. Dr. Chia was very thorough in his explanations. Sometimes a little too detailed and medical for my foggy brain to handle. I had to let him know. I wonder what he thinks about this latest research involving the parainfluenza virus?[This Message was Edited on 07/14/2006]
  5. deliarose

    deliarose New Member

    can u tell us more about Dr. chia's anitbody treatment?

    Does he also use anti-virals, and if so, which ones?

    Thanks
    Delia
  6. deliarose

    deliarose New Member

    How much Valtrex did Dr. Chia have u on, and what other treatments did he recommend?

    Thanks
    Delia
  7. PVLady

    PVLady New Member

    I really know nothing about his treatments except what my allergist said. You can only get an appt with him by your doctor first sending lab work results, etc.

    When I called they said I could not get in until October. Well, I want to go anyway, if he can help me I will try.

    I know very little about the treatments they are using, sorry I can't help.....

    Actually Dr. Chia has published several papers, if you do a web search you may find one. I will also look...

    OK, I think I found something Dr. Chia published. It is VERY technical... see below.

    This is from a message board:

    Posted: June 27 2006 Post subject: coxsackie/CFS

    --------------------------------------------------------------------------------

    there is a in CA named Dr John Chia. he is an infectious disease DR that believes a portion of CFS patients suffer from a chronic coxsackie viral infection.

    there is a family of viruses called enterovirus which include coxsackie, echo and polio viruses among others.

    he believes that some viruses in this family are chonicly activated in CFS and he apparently treats some patients with interferons (which is an antiviral produced by our own bodies).

    if you do a google for "chia, enterovirus, cfs" you will find many papers on his theories. if you want his contact info let me know.

    thanks
    bill



    This I found on the net...

    Diverse Etiologies for Chronic Fatigue Syndrome

    John K. S. Chia and Andrew Chia

    I D Med, Torrance, California




    Financial support: The laboratory work for this study was supported by the Chu-Lee Tu memorial research fund.
    Reprints or correspondence: Dr. John K. S. Chia, I D Med, 23560 Crenshaw Blvd. #101, Torrance, CA 90505 (Chiasann@pol.net).


    --------------------------------------------------------------------------------

    SIRKoelle et al. [1] recently studied 22 pairs of identical twins discordant for chronic fatigue syndrome and concluded that there was no major contribution for viral infections in the perpetuation of chronic fatigue syndrome (CFS). The authors should be commended for their methodology and the use of well-matched control subjects. However, the study raised several issues.

    First, similar to previous studies, the approach of Koelle et al. [1] was to look for statistical differences among the well-matched pairs with respect to the presence of viral antibodies and, more specifically, the presence of DNA of the viruses studied. Although these viruses were no more prevalent among the patients with CFS than among their healthy twins, one cannot conclude that these viruses are not the cause of CFS in a small subset of patients. CFS has been described in a small number of patients who had had well-documented acute Epstein-Barr virus (EBV), cytomegalovirus (CMV), and parvovirus B19 infections [24], and many of the patients responded to specific antiviral therapy. Of the first 200 patients with CFS who we evaluated for viral etiologies (table 1), only 10% had etiologies that were attributed to the viruses studied by Koelle et al. [1]. Chlamydia pneumoniae infection, an uncommon, although treatable, cause of CFS, was also dismissed in a previous, smaller study [5].

    Table 1. Probable causes of chronic fatigue syndrome in 200 patients.

    Second, latent EBV DNA and EBV viruses were often found in the blood and saliva, respectively, of asymptomatic, seropositive individuals [6, 7], and, therefore, by themselves, are not ideal markers of active viral infection or the resultant symptoms of CFS. Would detection of virus-specific mRNA be more indicative of smoldering infection in the PBMCs, and would a positive response to antiviral therapy increase the specificity of the finding? Third, the tissue localization and persistence of viruses may be responsible for the symptoms of CFS, and viruses may not be detected by viral assay of PBMCs or plasma. We have seen 2 patients with CFS who, after acute viral infection, had urine samples positive for EBV DNA and urine cultures persistently positive for CMV growth during a period of 6 months, but whose blood samples tested negative for EBV DNA and CMV DNA, respectively. Both patients improved after receiving intravenous cidofovir therapy.

    About one-half of our first 200 patients with CFS had significantly elevated levels of neutralizing antibodies to coxsackievirus B and echoviruses, compared with control subjects from the community. On repeat testing, 39% of the patients tested positive for enteroviral RNA in PBMCs, as documented by 3 different PCR techniques [8, 9]. These results are similar to those reported by some investigators [10, 11]. Furthermore, results of a recent animal study and cell culture experiments clearly demonstrated the mechanism of enteroviral persistence [12, 13]. Although no less controversial, it would be interesting to test the twins who participated in the study of Koelle et al. [1] for the presence of enteroviral RNA and neutralizing antibody to enteroviruses.

    After 2 decades of extensive research, it is clear that no single virus is responsible for this elusive syndrome. Perhaps we should approach the causes of CFS in the same way that we approach the causes of fever of unknown origin. Many diseases, infectious or noninfectious, can cause fever of unknown origin. There is no single diagnostic test for the entire spectrum of diseases, and the final etiology for each patient can only be ascertained after the meticulous use of reliable tests to eliminate known diseases as causes. We agree with Koelle and colleagues that early evaluation of patients for acute infectious etiology may help document or eliminate common viral infections as causes, perhaps when the fatigue persists for >3 months. Defining the spectrum of infectious and noninfectious causes of this disorder and the relative frequency of various diseases is important since no single treatment strategy will be uniformly effective for diverse infectious etiologies.


    [This Message was Edited on 07/14/2006]
  8. Theresa

    Theresa New Member

    My internist at the time recommended Dr. Chia and she is the one who referred me. I think I had to wait a few months also.

    Now that you mention the interferon treatments it's all coming back to me. And he tested me twice for that enterovirus and it was negative. I pushed for the antiviral just to see if it would help. I don't recall how much Valtrex he gave me but it was a high dose and it is very expensive. Luckily, my insurance paid most.

    Pvlady, who is your allergist? Do you get allergy shots?
    Take care, Theresa

  9. winsomme

    winsomme New Member

    i am due to see Dr Chia in august.

    there is a long wait for appt's (couple of months), but once you schedule an appt, you can call in regularly to see if they have had any cancellations.

    they don't keep a waiting list, so you have to keep calling to see if they have received any openings.

    kind of a pain to keep calling, but maybe worth it.

    thanks
    bill
  10. PVLady

    PVLady New Member

    My allergist is Dr Ziegner in Redondo Beach (village). She is fabulous.
    I am not having allergy shots , she is not doing testing until we handle other problems I have.
    Eventually I will have the test but I'm not sure about having shots. I do know my IGE lab result for allergies was 7X normal!
    I am glad Bill is seeing Dr Chia. Hope he lets us know how appt went.
    My doctor said heis so good he is the one other doctors go to.
    I hope I can see him also.
  11. Theresa

    Theresa New Member

    Pvlady,
    I saw an Ear, Nose and Throat doctor a few months back because I have constant sore throats which I think are caused by post nasal drip but not sure. He looked down my throat and said there was no infection. He recommended I try the NeilMed sinus rinse which has helped some.

    He also gave me the card of an allergist who he says is excellent. I just checked the card and it is Dr Ziegner in Redondo Beach. What a coincidence! I think I will make an appt. soon. I'm just so tired of going to doctors. And I did get allergy shots in the past and am not sure if I want to go that route again.

    I think many of our symptoms may be caused by sensitivities versus true allergies. It turns out I am allergic to all dairy based on the IgE tests but not much else.

    Good luck with Dr. Chia.
    Take care, Theresa
  12. PVLady

    PVLady New Member

    I think I saw that NeilMed Sinus Rinse in Dr. Ziegner's office. She is so nice and really saved me. I took her a huge bouquet of flowers last week.

    You won't be disappointed with her.