Dr. Jacob Teitelbaum Joins FFC

Discussion in 'Fibromyalgia Main Forum' started by TwinMa, Jun 12, 2006.

  1. TwinMa

    TwinMa New Member

    I found this on the FFC (Fibromyalgia & Fatigue Centers) website. There was no date, so I'm not sure when it happened. Interesting.


    Dr. Teitelbaum Joins FFC

    Fibromyalgia & Fatigue Centers, Inc. (FFC) proudly announces that Dr. Jacob Teitelbaum has joined the national “Centers of Excellence” as their Medical Director. Dr. Teitelbaum is a renowned thought-leader, author, lecturer, and clinician in the field of effective treatment for Fibromyalgia and Chronic Fatigue Syndrome (CFIDS).

    He will assist Fibromyalgia & Fatigue Centers, Inc. to expand upon their cutting-edge therapies ensuring that patients continue to experience sustained positive clinical outcomes. FFC’s proven 6-Step Treatment Approach, together with Dr. Teitelbaum’s research and training expertise will ensure continued growth of FFC’s core clinical model and bring unsurpassed quality patient care to their patients.

  2. 69mach1

    69mach1 New Member

    i just wished they took medi-care and insurance for all of us to be able to afford to heal ourselves...and a sliding scale for the lower-income...

    wouldn't that be a posisitive for everyone...i know there are several people here w/o any insurance at all...and can't afford to meds and pay for office visits....

    jodie
  3. Empower

    Empower New Member

    Wow, that is amazing news!
  4. TwinMa

    TwinMa New Member

    I like the idea of two big powerhouses teaming up to help fight these DD's. They will be able to learn from each other and ultimately help us all with the increased patient database. Who knows where this will lead?

    For those who can't afford FFC, many people have posted in great detail about their experiences at FFC. You can take this knowledge and apply it however you can using your own resources. Take the ideas to your own doctor. Find the same supplements on the internet for a lower price. There are many things you can do without having to go to the FFC itself.

    Thank you to all the generous people who have taken time to post their experiences with the FFC--this includes the good, the bad and the ugly. We need to hear it all.

    FFC isn't the only route to fight these DD's by a long shot, but many people have posted how it helped them.

    Sharing ideas is what this board is all about. We all want to feel better.
  5. HppeandMe

    HppeandMe New Member

    I am shocked!! I saw Dr. T for quite about 1 year & a half but had to stop because he was so expensive. His first visit was like $2800 and that was almost 3 years ago and every visit thereafter was around $750 (including supplements). Unfortunately, Dr. T couldn't help me. I was sure that he could as I had read his book and just new he would be able to help. I was willing to spend anything at that time to get relief. When I first went he told me that my adrenal levels were almost at my death point. The last time I saw him he told me perhaps it is hyperthyroidism although he had me on the past on hypothyrodism meds as did the Fibro & Fatigue centers.

    My endo. said that I had very low levels of TSH but normal levels of T3 & T4. He gave me medication for this and I tried it for about 2 weeks to a month and it did not work. Furthermore, I had way to many symptoms above and beyond hyperthyroidism.

    When I went to the Fibro. & Fatigue centers I had to travel 3 1/2 hours each way. Most of the time I would have to book a hotel room due to my exhaustion. As most of you know they are not cheap either. They already used the majority if not all of Dr. T's theories as well. I went there for about a year and learned about Mitochondria Ignite for energy. Which was great but lasts for about 3 months and I also learned about Xyrem for sleep which also wears off after a while. I also had no improvement with them.

    I hope that the Fibro. & Fatigue clinc's prices don't go up b/c Dr. T is partnering with them. I pray that with the two of them they will come up with something but I wouldn't bet on that.

    I won't say that Dr. T or the Fibro & Fatigue clinics won't help some. I just urge you to be careful before getting to excited. On the positive note Dr. T does not hesitate to prescribe as much as needed for the conditions. For sleep, etc...

    Now there is also this new Gilbert Clinic in DC who claims a 91% success rate although they have only been open since November. Where do we go and whom are we to believe?

    Take good care!
  6. TwinMa

    TwinMa New Member

    bumping for more thoughts
  7. 2YUNG

    2YUNG New Member

  8. Mikie

    Mikie Moderator

    Dr. T has been running workshops for physicians to teach them how to practice without waiting for insurance payments. His ads for these workshops were a bit crass and it turned me off to him a bit. Still, if there are people who can afford to pay cash up front and there is a market for this kind of service, there is nothing wrong with it.

    If the FFC's have good results, this treatment may well trickle down and become more mainstream, helping people who have to rely on their ins. An article Dr. T. wrote about treating mycoplasma infections empirically without the expensive PCR DNA testing was very helpful in getting my own doc to prescribe them.

    Perhaps those who started the FFC's attended Dr. T's workshops.

    Love, Mikie
  9. Kay31

    Kay31 Member

    Guess I'm really jaded....I saw him in Hartford (free lecture but boy was he peddling his books, treatments, etc.

    Saw Dr. Charles Lapp in North Carolina a few years back. He is very knowledgeable; works with Dr. Cheney on research, etc. The trip cost me a fortune. I was disenchanted when I phoned him a few weeks later to ask him a question. Didn't realize that he would charge me $100 bucks more for the phone bill. None of this was covered by insurance.

    Aren't there any more medics left who CARE about the patient's finances?
  10. JolieLuLu

    JolieLuLu New Member

    Hi everyone-
    This is my first posting here but I have been reading and learning for some time. I had my first visit at The FCC clinic 6 days ago and the Dr there told me ( i mentioned that i was already taking Dr T's supplements) Dr. T will replace Dr Ken H( the current medical director) and Dr Ken will now devote his time to research. Soooooo....I mentioned to him i was quite bothered about the costs of Dr T services!!! Who can afford that? It is simply a sin to take advantage of vulnerable people who are experiencing horrific daily lives!! His response was a brush off of sorts.
    Ill keep you posted as I venture in to the FCC treatment plan.
  11. TwinMa

    TwinMa New Member

    Wow, I had no idea people had such poor opinions of Dr. Teitelbaum.

    Is he truly just all about making $$$ and doesn't care about the patients?

    Is he just a modern day snake oil salesman or does he have some redeeming qualities?
  12. Mikie

    Mikie Moderator

    Maybe all of them, care about their patients. I think a lot of them have suffered the same monetary problems as other docs due to managed care. They have figured out there is a market for their services and they can make a lot of money. I don't think that necessarily makes them bad guys. I did mention that Dr. T's article was helpful to me and my doc.

    Dr. Cheney does charge a lot of money but he and his former partner, Dr. Peterson, almost went bankrupt trying to fight for recognition for, and research into, our illnesses. Dr. Cheney is one of my heros. He has contributed so much to our understanding of how these illnesses affect us and has some good suggestions for treatment.

    I can understand people's anger at the idea of docs' profiting from our illnesses, but medicine is a business today--big business. Gone are the days of docs like my stepdad who helped everyone and got paid sometimes and didn't if people couldn't afford it. He still helped them all. If he did that today, he would likely end up in the poor house.

    I don't think compassion and profit are mutually exclusive. We each have to evaluate our docs based on whether they are helping us. As I've posted here many times, I've only met one person who felt one of these expensive clinics/docs actually healed her. I've had high hopes for the FFC's because they seem to be so thorough and aggressive. Still, they are basically using the same treatments I've been using and I'm not well yet either. I am better. Progress is slow with these illnesses.

    Love, Mikie
  13. TwinMa

    TwinMa New Member

    I appreciate everyone's input.

    Mikie - You are always so eloquent in how you express yourself. I agree that making money and caring about patients do NOT have to be mutually exclusive.

    I guess it is just discouraging for me to see so many responses related to how Teitlebaum is judged by the fact that he is a doctor for the rich only. That his motives are somehow less than noble because he charges a lot of money.

    Of course I don't think people should make money off the suffering of others, but it happens all the time. If what he is selling works, then people will have to pay for his services and knowledge. It would be great if it were affordable for all those who are sick, but it is what it is. If what he is selling doesn't work, well, then it's yet another case of paying for hope, and shame on him.

    I look at how much money I have wasted on "treatments" that went nowhere. Sheesh!

    I do own the book "Fatigued to Fantastic" and think it has some good information.

    It seems like there are only a handful of docs and researchers out there who are willing (or have the financial resources) to actually dig deeper into these DD's and find out what is going on.

    Mikie, I hope you are right and that if these FFC/Teitlebaum type treatments are found to have merit, that they will trickle down into "mainstream" medicine. Wouldn't it be nice if some day you could go to any primary care doc, describe your symptoms and they say: "You have FM or CFS and here is the treatment. You will be feeling better within a few months and completely recovered within a year. And it will cost you approximately $100." Rose colored glasses? Probably.


  14. Mikie

    Mikie Moderator

    With the latest discoveries in our genetic abnormalities, there is likely to be a cure or, at least, more effective treatments down the road. I believe these will start to emerge within the next five years.

    In the meantime, what we can do is treat any chronic infections, improve our sleep and diets, and try to exercise even if it's only the kind I did when I was bedridden. I still do them and they have kept my body from atrophy. They have also kept the muscles toned and strong.

    I think if we believe that there is a cure coming, we will be more likely to try to keep ourselves in the best shape we can so that we will be ready to get well. Just believing that we can achieve a degree of healing with what is available right now can have a big impact on us. If you look at what Tansy has been able to achieve in a very hostile environment, it becomes clear that we are not helpless.

    Everything my docs and I did was done empirically. I'm reading "Project Day Lily" and in the beginning, that is how the Nicolsons were getting results before the protocol was established.

    We are not helpless and it isn't hopeless. We don't need the big bucks for the expensive clinics. If someone can afford it, great! For everyone else, finding the right doc is key. My first doc knew nothing about our illnesses but he was willing to learn and respected my research results. Doing it this way is a lot of work and takes time but the results are worth it.

    I think we, as a society, are used to going to a doc, having tests, and being prescribed pills which cure the problem. These illnesses are an enigma for most docs. The symptoms are so many and so varied that it is difficult to know where to begin. It has taken me five years to progress to where I am and I'm not well--yet. Right now, I'm down with bronchial problems which I can't seem to get rid of but so is my healthy neighbor. I have to look back and look at the big picture to know just how far I've come.

    It's easy to get discouraged. Some don't have the money to obtain medical care and they don't qualify for Medicaid. Some are so sick that just thinking about doing everything which I have done is overwhelming. For most of us, though, there is always something new to be tried. There is no magic pill. It takes as many treatments as we have symptoms and associated conditions. That's why I always say to start with the worst symptom and treat it first and then go on to the second worst and so on. Once one gets several things under control, improvement increases beyond what one would expect from these treatments taken individually.

    Sorry to go on so, but I do think encouragement is important.

    Love, Mikie
  15. TwinMa

    TwinMa New Member

    I think your encouraging words were exactly what I needed to hear this morning. I am feeling kind of down and needing a new direction, and words of hope are welcome.

    I feel like I'm stuck where I am, and many days I feel like I'm sliding backward rather than going forward or even holding my ground.

    I wish I had a good doc that would work with me. I don't. The closest I've come is FFC, but I have some issues with them, not to mention they are so darn expensive!

    I have some decisions to make about "what next?". Did you ever watch X-Files? There is a poster behind Mulder's desk that says "I WANT TO BELIEVE". That's me. I'm just not sure WHAT to believe. (NOT talking about aliens, though!)

    Thank you again for your support, Mikie. I hope you recover soon from your bronchial ailment. Those can really knock you down. Feel better.

    Katy
  16. Mikie

    Mikie Moderator

    I took my garbage and recycle material down to our dumpster area and mailed some things and it wore me out. I didn't realize just how sick I feel. On the way back, a neighbor from another bldg. stopped me to tell me our carport is coming apart. Sure enough, one of the slats along the top on the side was hanging by one screw. Wind has evidently loosened the screws until they stripped out the holes.

    I asked the guy parked beneath that area to move his car so it wouldn't get scratched. He was sooooo sweet. He came down and fixed it for me. Sometimes, God sends us some earth angels when we really need them. I came in dripping sweat. I'll be putting my jammies back on and doing my best impression of a potato on the couch for the rest of the day.

    Best of luck with whatever you decide to do with your treatments.

    Love, Mikie
  17. LdyM

    LdyM New Member

    I for one want you to "go on" with the encouragement. I NEEDED it today!

    A big THANK YOU MIKIE for getting me over the hump of self pity and discouragement this afternoon.

    Love, **LdyM
  18. JolieLuLu

    JolieLuLu New Member

    Im hoping you are having a better day!! I seem to be right on track with your feelings about our disease process. As i venture into the FFC clinic im just not sure how to describe the feelings i am having. I am a Nurse and my Hubby is an OBGyn physician so we have a certain level of knowledge in traditional medicine. I guess this is unknown territory and we have both been humbled by my illness.
    Could you tell me what your issues are with the FFC? Just might be helpful for me-maybe the same feelings of sorts.:)
    Thanks,
    Jody
  19. TXFMmom

    TXFMmom New Member

    First of all, many of these doctors are looked upon with a leary eye by the establishment. They are considered to be out there in their testing and treatments, and as such, many are not compensated by the insurance companies.

    However, in the cases where they DO NOT TAKE INSURANCE, then they don't have the argument that they are undercompensated by insurance companies and have to deal with so much paper crap. THEY GET CASH ON THE BARREL HEAD, FOLKS.

    I can see charging twenty percent over the usual and customary, or even fifty percent. HOWEVER, BY BEING PAID CASH ON THE BARREL HEAD, ANYTHING MORE THAN THAT AND THEY ARE GOUGING, AND A POPULATION WHICH IS, IN MANY CASES, DESPERATE, AND POOR, FROM THIS ILLNESS AND THE EVENTS WHICH FOLLOW IT.

    In many ways, we are like terminal cancer patients, who have been told there is nothing else to be offered them by traditional medicine and they are willing to pay anything to someone who holds out a hope for them.

    Mind you, as a medical professional myself, now disabled, I can tell you there are severe problems in the traditional medical system. I have seen patients told that their condition is inoperable, just because the surgeon or that institution lacks someone treating or operating on a condition, only to learn that there are a few individuals who are treating it, and achieving a degree of success.

    Take myself. I was seeing a Baylor top neurologist, and he had ordered thousands of dollars of tests, and told me I had myastenia gravis, but he wouldn't give me the numbers of the tests he had ordered which indicated I had it, etc. His attitude was "how dare you want specifics." He had patients coming to him, from around the world, even royalty.

    Bah. I wanted a second opinion. He wouldn't release the tests and I had to get an attorney to tell him I was going to go to court to get a court order for them, before they were finally released. I had gone back to the labs and the facilities where the tests and scans and things were done and they told me THEY WERE TO RELEASE THE RESULTS TO NONE OF THE PATIENTS DIRECTLY - UPON THIS DOCTOR'S ORDERS.

    I got the results, made copies where the facility and the names were blanked out, and saw another top Neurologist at a competing University, and he was astounded, said none of the tests suggested myastenia, and when I told him who, he said, I should have known. Said he saw an average of ten patients a month with outlandish diagnosis from this goon.

    However, I do think that certain individuals are enriching themselves at our expense.

    Many of the specialists who do the best research and work, such as Bennett and the folks in San Antonio DO NOT CHARGE OUTLANDISH FEES AND PAYMENTS. They take insurance, as well.

    That tells you something.

    If I have researched something and the doctor can give me legitimate reasoning behind something which insurance will not pay for, then I try to work out a payment system, negotiate a cash discount and work on it.

    The supplements which were sold by FFC BOTHERED ME. They wanted to give me IV's and I wanted to know what was in the IV's, not the amounts, etc. JUST WHAT WAS IN THEM. ANY MEDICAL PROFESSIONAL OR ADVOCATE WILL TELL YOU, YOU DON'T LET ANYONE, DOCTOR, NURSE, ETC. PUT SOMETHING IN YOUR BODY WITHOUT KNOWING WHAT IT IS. WHAT IF YOU HAVE A REACTION LATER?

    At any rate, they became snippy about my refusal, AND THAT SHOULD NEVER, EVER HAPPEN.

    That made me very, very uncomfortable with them and their program, frankly.
  20. oholland

    oholland New Member

    I went to the FFC for a short time and, well, it just didn't work for me and was too expensive for the results I was getting.

    I took the good things I got out of my time at the FFC (some of the supplements were great and I was able to find them for a fraction of the cost at other places) and added that to the information I was getting from Mikie and Stormysky on this board. I also took all that info to my DO (doctor) who has an open mind and together we've worked out a plan for me that is helping me to slowly battle FMS/CFS.

    I don't know what I would have done without this board. And I don't regret going to the FFC. I think everyone should try everything within their power to help themselves combat these illnesses.

    Personally, I still think it's a shame that a lot of the doctors and clinics don't take insurance or medicare.

    And I know there are one million and one reasons why they don't and another one million and one reasons why they should but then I'm one of those liberal pinko socialist freaks who thinks everyone should get free medical care anyway.

    But perhaps with all the money they are making they'll do some really wonderful research and discover a real cure but I'll really afraid there is no one cure so.... Oh well! I just hope they cure lots of the people that go to them.

    Olivia