Dr Kevorkian

Discussion in 'Fibromyalgia Main Forum' started by GeneticDefect, Jul 10, 2003.

  1. GeneticDefect

    GeneticDefect New Member

    Dx'd 2 wks ago. I may still be in denial or somethng is really wrong with me and they haven't found it!?! Anyone have Dr. Kevorkian phone number?

    More CFIDS, mild FM (I think).
    [This Message was Edited on 07/10/2003]
  2. Jen F

    Jen F New Member

    But I know how you feel.

    Try to get on top of your pain and fatigue and things might get a lot better.

    There are ways to do these things, so if you are up to a little research you will find info here and in CFS/FM books.
  3. Jen F

    Jen F New Member

    What do you take for depression and what do you take to help you get more refreshing sleep?

  4. GeneticDefect

    GeneticDefect New Member

    I take Elavil 50mg to sleep. I hate it...my boobs are too big already and it makes me eat. Moo-moo
  5. Jen F

    Jen F New Member

    Maybe you would like another drug better. There ARE options.

    What else have you thought about trying?
  6. GeneticDefect

    GeneticDefect New Member

    Honestly I dont want to take anything. I just wanna be normal again. denial?
  7. Iggy_RN

    Iggy_RN New Member

    d*** way. I was just Dx'd about two months ago, and it seems like my whole freakin' world has turned upside down.. and the ABX makes me feel sooooooooooooooo much freakin'''' worse, I want the number as well!!!!! I try to make some humor of this or I'll go crazy. I go to see movies, and force myself out no matter how I have to walk or wince in pain, I will not let this cr** change my life... I think denial was a much better way for me before I got Dxd. I am going through the same emotions right now, what if I really have something else wrong? I smoked for twenty years.. c'mon, it would be a miracle if I did not have cancer... although I do believe in miracles, guess that is why we all need to try to keep perspective, And pray that this is all we have. As an RN in training, I do believe in covering all bases. whenever one would feel any doubt, get everything checked out. I might just see a pulmonary specialist to make sure. If I pass that test I know I'm home free w/fibro only............ Geneticdefect,(that should be my name!) like the other posts said, get some meds or supplements to help you, this illness can not be tasked alone..... Blessings, Iggy
  8. Jen F

    Jen F New Member

    You wrote:

    "Honestly I dont want to take anything. I just wanna be normal again. denial? "

    Well, NONE of us [that I know of] LIKE to take all sorts of medicine. Of course we want to function normally all on our own without any effort.

    But, I think you will find, that with a bit of effort into investigating your options, you will probably be able to improve your functioning a little and therefore improve your mood, which will then be well worth it.

    If you are not getting much good quality sleep, you're gonna be cranky and maybe in more pain.

    If you are in severe pain [like I have been] it's not surprising to get very depressed, fed up and maybe even suicidal. What a difference pain meds have made to my ability to cope with all my other problems without my sending for the book on what drugs to take to do a good job of sending me into the next world.

    If you do not feel full of energy and are not happy with the way you look, that's going to get you down too.

    but, there are things to try, when you are ready, including other sleep meds and antidepressants.

    Drink lots of filtered water and eat healthy food, low in carbos, high in veggies as a good basic start.

    Don't give up without a fight first.

    Maybe take out some of that anger on stupid doctors.

    I'm fed up with them.

    Or better yet, with the med schools that are not teaching docs well on how to treat us.
  9. GeneticDefect

    GeneticDefect New Member

    My comments about calling Dr. Kervorkian is simply humor. I may be ill but never lost my humor.

    Thanks for all the suggestions but I don't know where to start. My Rheumie Dx'd me and said bye bye see ya in a month. I cannot tell you if my EBV, CMV, HHP-6 are high. She didn't run enough tests. She ran a protein electrophoreis serum and sjogren syndrome titer test. I get the results tomorrow.

    Personally I think I have a mycoplamsa infection.

    After reading what some people have been through I feel fortunate. I also can't help myself from being cynical and I blame that on the medical profession.

    I will not give in to this syndrome.
    [This Message was Edited on 07/10/2003]
  10. rozchuv

    rozchuv New Member

    Sorry you are feeling so bad. I't's good you keep your sense of humor. I do not look for too much help on CFIDS from the medical profession. Although the reseach is promising and some things do help, no one has the answer yet. I have a wonderful and compassionate Dr. who believes what I say and is willing to try anything that i think might work for me. But, what is known about CFIDS is limited. I get more real help from a good nutritionist who understands the disease, a holistic chiropractor, a tai chi master, a yoga teacher, a spiritual director, and other people struggling with this disease than from the medical profession. i also read or watch something funny every day. Usually Peanuts, Dilbert, Calvin & Hobbs Seinfeld & Curb your Enthsiasim. Hang on. It's quite a ride with many hidden blessings even though it's hard to realize at times.
  11. Plantscaper

    Plantscaper New Member

    maybe, trying the OLE would be a good option..I only herxed on it for about 1-2 weeks...After the initial herxing period, it is smooth sailing from there, with a lot of potential positive symptom improvement..See PatPalmer's article on the same and I have some suggestions from what I have learned..If any of you are interested, could bump those posts..
  12. GeneticDefect

    GeneticDefect New Member

    Are you reading my mind? I keep hearing about OLE and said to myself "OLE will be one of the first things I'll try"