I have been diagnosed with HHV-6, with suspected LD. I have been on Valcyte for 20 months without any improvement. I am actually worse now than I was before I started taking Valcyte. I had a herxheimer reaction when I started but it never really stopped, I have been having kind of a 20 month herx. I wanted to know of anyone who has gotten well on Valcyte with some detail on how your treatment went, and also people who have been treated by Dr. Lerner for CFS. Has anyone felt this much worse for this long on AntiVirals and gotten better?