Dr Oz Promo Video for XMRV TV Special Dec 3rd

Discussion in 'Fibromyalgia Main Forum' started by Elisa, Nov 30, 2009.

  1. Elisa

    Elisa Member

    Hi all,

    I found this promotional video regarding Dr Oz's upcoming show on Dec 3rd on XMRV and ME/CFS.

    I thought the promo video - which addresses the topic half way through is somewhat alarming - in terms of misinformation. Ugh....His references to us "not being able to get going", things we can do to fight off the virus and exercise - double ughhhhh.


    Anyway, maybe I'm over reacting - but I just want the info to get out the RIGHT way - not more laziness-spin.

    God Bless,

    [This Message was Edited on 12/01/2009]
    [This Message was Edited on 12/01/2009]
  2. chrissy12

    chrissy12 New Member

    Has he ever met anyone with me/cfs?? It doesn't appear so. I have been doing stretch exercises for 2 years and my immune system isn't anywhere near moving in the right direction. Also, he doesn't get that it isn't just fatigue, it's being sick....

    I appreciate that he is trying, but so far it isn't working.
  3. onset1990

    onset1990 Member

    It sounds like he has picked small bits from fibro and CFS and doesn't have a grip on the whole picture. Not to mention his repeating the F word (fatigue) too many times. There are things you can do to get the body going again with viruses? Oh really? How'd that do with the HIV virus?

  4. TigerLilea

    TigerLilea Active Member

    Thanks for the headsup, Elisabeth. It doesn't look too promising, does it?! He makes it sound like it is so easy to reverse CFS. Hopefully the show will be better than the promo.
  5. Elisa

    Elisa Member

    It's good to know you all see it the same as I do...

    My hope, in this case, is - any publicity is better than none - or something like that!

    I am hoping with all of you that the show is much better than the promo...

    God Bless,

  6. Juloo

    Juloo Member

    Sorry -- well, not really -- I just clicked over and watched the video you referenced.

    Are we sure this guy's a doctor? I mean, really...he even interchanged HIV and AIDS.

    Unfortunately, instead of educating, he seems to be dumbing himself down...if, indeed, he is actually trying to speak in what passes for man-on-the-street vernacular instead of not knowing the difference.

    And that female anchor -- she hears about a retrovirus that causes (among many symptoms) 'fatigue' and jokes that she must have it.

    And exercise -- 'we have all sorts of things to bring people back' from this virus? *WE* do? Are *WE* sure?

    Sorry. Heavy sarcasm increases with an increase in willful stupidity. And this makes it worse because he is supposedly a professional. Wouldn't a 'professional' make sure he had more than a sound byte worth of knowledge before he went explaining it to an entire country?

    Thank goodness I'll be at my son's orthodontist appointment during that airing. I've got enough stress without inviting more.
  7. UsedtobePerkyTina

    UsedtobePerkyTina New Member

    Well, guys, I had no problem with it. Stretching is good, when compared to laying in bed for weeks and not doing anything. He didn't say aerobics, he said even stretching.

    I think his term of "get body going again" was referring to getting the body systems going again.

    I do think the anchor's comment is unfortunate and reflects ignorance. But Oz corrected her, telling her she is energetic and she likely doesn't have it.

    I hope they show the range of sickness. While I hope someone severely ill is on there to show people how truly debilitating it can be, I also hope they show someone not so severely ill so people will think, "Hey, that's me" and go get help before they do more damage by pushing themselves.

    Most of us on this board are so sick we can't work. But some are working and just notice they have to rest every day when they come home, spend the weekend around the house, in and out of bed, and occasionally miss a work day. Many of those moderately ill people have been told they have depression.

    In my view, the best result that could come from Dr. Oz's show is not for the severely ill, only research and a cure will help us (and funding for such). So the show is for the rest of the people.

    Maybe it will validate the illness and educate our family and friends who just can't believe we are sick because of the way we look on the occasion that we leave the house. I understand they will have a patient on there who has tested positive to the virus. This is likely someone who was severely ill since they have already had the test. So that will be good.

    I like the way he mentioned that 10 million may have the virus but only 5 million (est.) are sick. I think that shows it is more of a public health concern than just us CFS folks. Maybe that will mean more government money. (pie in the sky dream)

  8. AllWXRider

    AllWXRider New Member

    He was not familiar with CFS, but I also showed him my Lyme disease results. The previous fatigue doc was on track but I'm now in financial trouble.

    This newer doc is covered by insurance with a small copay. He was willing to refill all my hormone and Lyme meds. He if referring me to a infections disease specialist.

    Funny that at the end of the physical, he commented that I appear otherwise very healthy.

    I can work 2-6 hours a day, it depends on how I am that day. I did some easy, no rush remodeling work for a lady. She looked very healthy....but...I saw a TENS machine in the bedroom, thyroid meds, hormone meds. A get well card. All indirect signs of FM. Sure fooled me. She did have a short temper, sorry, I do work slow. Anger and depression are just more symptoms of this stuff.
  9. bakeman

    bakeman New Member

    shows the xmrv program is scheduled for Thursday the 3rd, i am assuming the website is correct.

  10. TigerLilea

    TigerLilea Active Member

    Hi Elisabeth - I didn't notice the first time I read your message that you have the wrong month. It should say December 3, not November 3 :)
  11. Elisa

    Elisa Member

    Thank goodness you saw that error - its corrected now! Thanks again!

    Interesting viewpoints from all...

    God Bless,

  12. AuntTammie

    AuntTammie New Member

    where he got the "10 million may have the virus but only 5 million (est.) are sick" estimate.....it doesn't fit at all w/ the %ages that WPI's tests show
  13. dvdav2000

    dvdav2000 New Member

    Teitrelbaum will be in the background sipping D Ribose, and folding balloons for the audience... all in good fun... go OZ ! ! ! please be fair...
  14. simonedb

    simonedb Member

    I sure hope his special is better than the preview I watchd at youtube today on some morning show
    I agree some of it was good but my concern is that he won't make it clear that some people don't seem to respond to gupta and vitamins and its not their fault or lack of trying
  15. TigerLilea

    TigerLilea Active Member

    Dr. Oz would have been in elementary school in 1972 so I'm guessing he's read a few medical books since that time. He graduated from medical school in 1986.

    The problem is Dr Oz's producers are trying to squeeze CFS into a 12 minute segment. They would be better off doing a "special" and devoting the entire hour to CFS instead of just the one segment.
    [This Message was Edited on 12/02/2009]
  16. Juloo

    Juloo Member

    I appreciate the need to present a balanced opinion. But I think it is fair to point out that having been *taught* medicine in the mid-'80s, he was *taught* that CFS is psychological in origin. Since med school, his specialty has been cardiac in nature, and he is a surgeon. I can appreciate that he has taken complementary care into surgery with him -- so I'll cut him some slack in general.

    Being taught one thing and representing the oppposite, no matter how many years later, is only possible if he has *learned* (not just read) from experience. Medicine is such a quickly-moving field. My profession (construction industry) is back in the Iron Age compared to it. When I do continuing education, gravity is still a constant. The changes in Western medicine, and especially in the range of knowledge of chronic fatigue syndrome/fibromyalgia have been turned upside down. To truly understand this, and understand what patients face on a daily basis, requires either experience on a clinical level, experience on a research level, or experience in having CFS/FM.

    My fear is that Dr. Oz will try to present the potential 'upside' of recent developments in order to give people -- whatever group(s) he considers his audience -- a positive, optimistic spin. It's a fine line between doing that and unleashing the unwanted "you just have to EXERCISE" calls no doubt many of us will be receiving following the show.

    I really was irritated with his breezy presentation of the topic as he was discussing it with the morning show hosts. I did not get the feeling that he represented my experience, my feelings, or my interests in not presenting this topic in a more serious light, even if it was just a slightly-longer blurb than a normal commercial. Those things, that attitude, those high points -- those are the way people without this DD develop their viewpoint of of those of us who deal with this every day.

    I wish that he had taken a second or two to repond to the host's comment about her 'fatigue' with a serious face, and just mentioned, "Now just take that fatigue, multiply by 100, add body aches, a 50%+ reduction in cognitive ability, and throw in family, friends, and even physicians that think someone you are lying for attention...this new, important development may help make that very real burden a bit lighter..."

    And I completely detested the use of the 'royal *we*' in his statement. But that's just a life-long bias on my part.
  17. teller7

    teller7 New Member

    I swear if Dr. Oz trivializes Chronic Fatigue Syndrome I will have to buy a new tv because I will throw something at it. I'd better watch the show on my OLD tv. :)). Seriously though this show tomorrow is really important I think. It will either help us in the eyes of others or we will have to never say we have CFS again. I've started telling people when they see me walking in stores like a drunk, slurring my words, not being able to remember what I went into the store for, that 7 years ago I had a really bad virus and it affected my brain and central nervous system. If I do say I have CFS I get the blank stare. If I say the other I get hugs saying they're so sorry this happened to me but I look good. They don't understand at all what I said but it sounds alot more serious to them than CFS. Know what I mean? So tomorrow we are all either going to be glad, confused, or really really MAD. And I agree that they won't have time to do the segment justice. They need a whole show to just begin to touch on the subject.