Dr. Oz Show to be on Fibromyalgia - July 23, 2013

Discussion in 'Fibromyalgia Main Forum' started by Holly-Admin, Jul 22, 2013.

  1. Holly-Admin

    Holly-Admin Administrator

    On Tuesday, July 23, 2013, the Dr. Oz Show, is scheduled to feature a segment about fibromyalgia.

    The title of the program is “The Disease Doctors Miss Most: Fibromyalgia” and the description of the episode says, “Are you always exhausted and in constant pain? Learn about the latest treatments and discoveries that could heal you.”

    Guests for the fibromyalgia portion of the program are Dr. Jennifer Caudle, a Family Medicine physician, and Dr. Sean Mackey, a pain specialist.

    You can watch a brief promotional video for the show HERE.
  2. Mikie

    Mikie Moderator

    Holly, thanks for the heads up. I'll make sure to catch it.

    Love, Mikie
  3. Mikie

    Mikie Moderator

    Good News, Bad News...Oz has a limited amount of time to address each subject. Unfortunately, instead of devoting his entire show to FMS, he made it a short subject. He did a good job of bringing FMS to the attention of many people who may have it and wonder what it is. For them, their condition may finally have a name and for those who have been diagnosed, Oz confirmed that it is a real medical condition. He did a good job of explaining how our pain levels are turned up in the brain. So far, so good.

    What he didn't do was use the tender points as a diagnostic tool. Tender points aren't infallible but they can be very handy in diagnosing FMS. What horrified me was the osteopathic manipulation that Oz recommends. For most of us, going through this manipulation would be painful enough to make us cry. Early on, I had this and it put me in bed in pain for several weeks and the manipulation itself nearly did me in.

    Many rheumies are good at diagnosing but usually don't have much to offer in the way of treatments. There are so many things available now which help one cope with FMS and he didn't mention any of them besides the manipulation. There are specialists and specialty clinics which use a combination of treatments to help patients with FMS. Good specialists aren't easy to find but I have found two.

    The woman, Judy, who told her story was right--it is up to the patient to do the research on FMS and find things which help. That is why this forum and website is so valuable. I've often mentioned that almost everything which has helped me is something I first learned of from our wonderful and generous members here.

    In the end, I found this show disappointing but really wasn't expecting much considering how Oz usually dispenses his "wisdom." My advice is the same as Judy's: Come here to learn from our members; utilize the wonderful library here; do other online research but watch out for the snake oil salespeople; and, finally, try to find a really good doc.

    Love, Mikie
  4. TigerLilea

    TigerLilea Active Member

    Dr Oz always does short sound bites, but nothing that I ever find really helpful. He would be better off devoting an entire hour to a single subject.
  5. sunflowergirl

    sunflowergirl Well-Known Member

    I waited eagerly, however nothing I didn't know, but I'm sure he's helped a lot of others who are just starting this FM junk, and are feeling hopeless and helpless. The good thing is there are those who watched who don't have this BUT may know someone and it might open their eyes to what their friends/relatives go thru. I've had this at least 20 years and I remember how many, many doctors I saw who poo pooed that I was sick. Most of them years ago hinted that I was a hypochondriac.

    Mikie, I have cervical/spinal stenosis and recently went thru PT for about 14 sessions. They of course KNEW about it from the MRIs but what about those with pain in their necks that can mimic FM? I also cringed when I saw the osteo working on that lady.
  6. greatgran

    greatgran Member

    So much more to be said.. At least he recognized fibro but sure wish some treatments would have been mentioned.
  7. MicheleK

    MicheleK Member

    I didn't watch the show but it's nice to hear FM brought up and declared a real condition on a show that has such a worldwide audience.

    We have to keep in mind that The Dr. Oz show is a for profit TV show and therefore it has producers who most likely tell Dr. Oz exactly how much time he can spend on any one subject. Programmers decide these things according to sponsers and the subject matters appeal to a broad audience.

    It's a step in the right direction. FM has come a long way in the last decade, mostly due to big pharma coming up with profitable drugs to help ease symptoms. In this world unless their is money attached to a condition, it rarely gets TV coverage.
  8. Willow77

    Willow77 Active Member

    I was glad to see that he said that we are not hypochondriacs and that it is a real illness. Maybe some who have family that doesn't believe them will take notice and believe us now. I am fortunate enough to have family that believes me but so many don't.
  9. Mikie

    Mikie Moderator

    One of the best things which has happened is the development of Lyrica and the nonstop ads on TV for it to treat FMS. Somehow, in people's minds, once there is a drug for a condition, it gives legitimacy to the condition. I don't take Lyrica but I was glad to see the ads. That, alone, may make friends and family give more respect to the illness and those who suffer.

    Like I said, the good news is that Oz had patients and docs who told people that FMS is real and a pain sensation disorder. Again, that may help persuade friends and family that people with FMS are in real pain and suffer from other symptoms. In the years I've been here, one of the biggest complaints from members is how they are mistreated by those who should be more understanding and offer support.

    If nothing else, the Oz program may help some to seek diagnoses and do some research on FMS. Another good thing is that the one doc said FMS often appears with other disorders. That muddies the waters when it comes to diagnosing. So many of us went years before finding out what was wrong. Many of us have more than one condition.

    The show was, to me, a starting point. Any honest discussion on FMS can only help. It sure beats Dr. Weil's comment that treating autoimmune and immune illnesses is so much fun. He went on to say that his best treatment advice is to "fall in love." Yikes! We don't need that. FMS is not caused by not falling in love.

    Love, Mikie
  10. hermitlady

    hermitlady Member

    I was very disappointed, too many repetitive comments and filler. He has the opportunity to really educate people, but his show is really just a joke IMO. Too bad, I know 100x more about FM than the show explained.
    bct likes this.
  11. Windytalker

    Windytalker Member

    I watched the program videos (not the actual program). Yes, there wasn't much new information. But, the one thing that did impress me was the DO doing the treatment on the woman with FM.

    I was in terrible pain and it felt like a heart attack. I'd been referred to heart specialists and nothing was ever found. I suffered for years...then I moved and started seeing a DO (I live rural and they aren't many MD's here). He did (basically) the same maneuvers as the DO on Dr. Oz, but I was standing. After a few "hugs/crunches", about 20 minutes later, my pain was gone!!! It felt so good to be free of one less problem.

    He said I had costrochrondritis...which are pinched nerves. In my case, in my chest wall. Read up on this condition...it may apply to you.
  12. Mikie

    Mikie Moderator

    Hi, Windy,

    I'm glad the manipulation cleared up your costo. I've had it following bronchitis but chose to get steroid injections between the affected ribs. That cleared it up immediately. The problem with manipulations is that it can increase the pain in FMS patients. In your case, it was helpful and I'm glad. In my case, when I had it done, it put me in bed in horrible pain. Also, the manipulation itself was extremely painful. I had him stop before he was done.

    Many here do suffer costo and don't realize what it is. I can mimic a heart attack, especially if it is on the left side and the pain radiates down the left arm. The pain can also radiate to the back where it feels like it's shooting out the shoulder blade. It won't go away unless the inflammation is reduced. Again, I'm glad the manipulation stopped the nerve pain and inflammation involved.

    As an FMS treatment, however, I do not think manipulation is effective and, as in my case, may increase pain.

    Love, Mikie