Dr. Oz Show - What a waste

Discussion in 'Fibromyalgia Main Forum' started by tgeewiz, Oct 23, 2009.

  1. tgeewiz

    tgeewiz Member

    I just watched the Dr. Oz Show with Dr. T. It was a waste and did little to explain CFIDS.

    He stated how so many people are exhausted (mainly women) due to the stresses in their lives and mentioned a few supplements. He seemed to think that thyroid problems were the root problem for most of us.

    Dr. T barely barely got a word in during the 10-15 minute segment.

  2. Spacey

    Spacey Member

    It went by so fast, I didn't get anything out of it, It was a bit of a joke. A waste of time. Nothing! LOL spacey
  3. TigerLilea

    TigerLilea Active Member

    I sent the following email to the Dr. Oz show. I didn't even bother watching the rest of the show because I figure if he got CFS so wrong, what else does he get wrong also??

    >>>Your show was NOT even remotely about CFS. You were discussing "chronic fatigue" which is a symptom, not an illness. It was obvious to anyone who suffers from CFS, like myself, that neither Dr. Oz nor Dr. T have any understanding of what CFS really is.

    This illness is NOT about being over-worked, stressed, or not getting enough sleep. Not once did Dr. Oz ever mention that the majority of people who come down with CFS do so after having a viral infection that just never quite goes away.

    Not once did he mention "post exertional malaise". If you don't have PEM, you don't have CFS.

    There are a lot of people with CFS who DO sleep reasonably well at night, however, we wake up feeling very "unrefreshed". No amount of sleep gets rid of the constant exhaustion that we suffer with.

    I was very disappointed that Dr. Oz didn't bother getting in any researchers who study CFS (ie Dr. Nancy Klimas). Dr. T is NOT considered an expert by the CFS community, and many of us question whether he ever had CFS. He might have had fatigue, but it is very obvious that he does not understand true CFS. I thought Dr. Oz was all about bringing in the "best". He certainly failed this time.

    We have a hard enough time with doctors, family members, and friends believing that we are truly ill. After today's show, these same people are now left with the impression that if we simple have some spinach and d-ribose, all will be well again. That simply is not true.

    Dr. Oz owes the CFS community an apology for his very poor representation of our illness. It makes me now question everything else that I have heard him say over the past five years. How much of that has he gotten wrong, also?<<<
  4. LindaJones

    LindaJones New Member

    It is important to increase awareness of CFS with the CORRECT information.
  5. susanmarie1

    susanmarie1 New Member

    I sent Dr. Oz an email stating that the brief segment that he spent speaking of exhaustion, along with Dr. T, set the CFIDS community back about 25+ years. What an insult to those of us that have been suffering with this dreaded disease, (many of us with FMS to boot), for so many years. He covered everything such as those with anemia and a young mother of 4 children who drank soda and had a poor diet causing fatigue. The comparison between these subjects and CFIDS was like comparing apples and oranges. Dr. T, in my humble opinion is a sell-out. Why he was even on the show was a mystery, but upon further research, he is considered one of a "group of experts joining Dr. Oz's panel from across the country, representing different medical disciplines, genders, and opinions. Together, they're creating a center for health and wellness information where no topic is off limits." This quote was taken from Dr. Oz's website. The show today spent more time talking about a woman's "G" spot and how to find it, rather than going into any depth whatsoever about CFIDS.
    [This Message was Edited on 10/25/2009]
  6. jam225

    jam225 New Member

    I wrote a longer more detailed post and got time zapped, now it is lost. I am too sick and exhausted to recompose it again.

    Suffice it to say the show segment was bitterly disappointing. It misinforms the public, family members, and employers. It hurts and has created lots of distress in the CFS community. I have been stressing over this for the past 4 hours trying to figure out what we can do. I am too sick to deal with this, but researched where to write and plan to follow through. I hope others will write as well. We owe it to ourselves and each other. Dr. Oz owes the CFS/ME community an apology and a legitmately well researched and properly presented show on CFS/ME. A full show and not just a misinformed "drive by" segment like that presented today.

    Here is how to contact him to let him know your concerns:

    Mehmet Oz, M.D.
    New York Presbyterian Hospital
    Cardiovascular Institute & Complementary Medicine Program
    622 W 168th St
    New York, NY 10032
    (212) 305-2500



    Wed Oct 28 Dr Oz will be an in person guest throughout the day on KCRA Channel 3 in Sacramento, CA. The station is asking viewers to send in email questions for Dr. Oz:
  7. gb66

    gb66 Well-Known Member

    I was wondering if you take the Armour for just the thyroid or also for CFS and FM. Do you have both CFS and FM or just one of them. I am curious about supplements. GB66
    [This Message was Edited on 10/23/2009]
  8. gb66

    gb66 Well-Known Member

    Thanks for all the info. I am not one to take a lot of pres. medicine, mainly because I've had so many bad reactions to them. I don't take any supplements, just vit.B-6. I'm only on med. for blood pressure and also a diuretic.

    I see a lot of folks on here take supplements and some have very good results. I really wouldn't know where to start. I've been diagnosed (by process of elimination) with CFS and definitely with FM, also MCS and OA.

    I want to do something to feel better. I'm 95% housebound now but not bedridden. I only go out for doc. appointments anymore. I'm 69 y.o. and have been ill for 31 years following a bad hospital experience. You seem to feel pretty well for the most part. You don't have CFS, is that right? Wish I didn't. It's brutal. Maybe there's new hope in the wind with this XMRV discovery though. GB66
  9. greatgran

    greatgran Member

    I didn't get to see it sorry to hear it was a waste.

    What do we have to do to get these darn shows to take us seriously and Not just say we are tired. There is so much More to this illness.. SO Many Symptoms if one show would just take an interest and let the world know how we suffer..

    Maybe Montel??

    Going to write them all may not do any good but sure can't hurt.

  10. Yes what a waste, and poor Dr T hardly got to say a word and probably wondered why he was there. And your right they talked longer about looking for your G spot. Who the heck cares!

    But what other than synthroid did they mention, I couldn't make it out! I think 2 supplements.?
  11. Empower

    Empower New Member

    you are right! What a waste! That was PATHETIC!

    I have to write to the show. He made it sound like CFS was just being overly tired. He should know better.

    I was an extremely POOR segment.

    And Teitlebaum??? Geeez!!!
  12. munch1958

    munch1958 Member

    Not that I want it ...

    But who among us really needs "Medu-Tainment"?

    We've already got "The Doctors" TV show. What could be worse than that?

    I love how we patients all get trashed by the doctors for looking up medical things online. Like they have the time to explain a condition in the 10 minutes we are alloted for our appointment and being one of 6 - 10 patients that they see in an hour.

    When we start going in for appointments and saying "I saw it on Dr Oz" or "I saw it on The Doctors" they are going to have such a nice big fat laugh at our expense. This is when they start calling us "Cyber-condriacs".

    Remember when Grandma or Mom used to say "consider the source?" well this is one of those cases where she was right.
  13. TigerLilea

    TigerLilea Active Member

    >>>"consider the source?" well this is one of those cases where she was right.<<<

    If Dr. Oz is discussing anything "cardiac" related then I will pay attention as he is a cardiologist and is considered one of the tops in his field. I will be less inclined to pay attention to any other information after watching the "CFS" disaster.

    I've only watched "The Doctors" a few times and definitely was not impressed with that show. Dr. Travis, I think his name is, went off on an audience member one time, and the female doctor claims that women can't go into perimenopause before the age of 40 which just isn't true. I've even see her disagree with specialists that they bring onto the show. I think the thing that annoys me most about the show is that it is very much the "Dr Phil and family" show. Jay's wife and triplet sisters have been on there several times, or Phil and family are waiting in the wings with big sappy grins on their faces, waving at the camera. I just can't take that show seriously.
  14. tgeewiz

    tgeewiz Member


    The 2 supplements that they mentioned were cordyceps and d-ribose. Cordyceps did nothing for me, however; d-ribose gives me a small amount of energy.

  15. gb66

    gb66 Well-Known Member

    I've never been diagnosed with a thyroid problem. I don't think anyone in my family has either. No doctor has ever mentioned it beyond the standard thyroid blood test. GB66
  16. SGR

    SGR New Member

    I think that it was a first for our community in that this is the first time in prime time that someone acknowledged that this is a disease. Poor Dr. T, whose book has sustained me through many a dark hour when no one would acknowledge that what I had was an illness, not a case of depression - gag - did not get much of an opportunity to speak, but he did say that the difference between being exhausted and having CFIDs was with CFIDs it doesn't matter how tired you are, you can't sleep - which he said was the product of the HPA axis dysfunction. Which is to say there is a physical and systemic problem, it's not that we're just too busy and stressed to rest. Unfortunately, I think Dr. Oz was speaking over him which made it hard to hear this. And I think that Dr. Oz took a big gamble in putting this out there and I can understand with all the potential for backlash that he would make this segment very fast - and I can even understand why he put it in the context of general fatigue, because that's what everyone thinks is wrong with us, which of course is silly, but to me it gently leads the unbelievers down the path to our pathetic reality via their ignorant suppositions. And kudoes to him for putting it on first, when everyone is still paying attention. So, while we haven't been given the attention and credibility we deserve, I thought it was very brave of him to do it at all.
  17. UsedtobePerkyTina

    UsedtobePerkyTina New Member

    I think that this was an ok segment, given it was taped before the XMRV announcement. Dr. T. did have something right, stress is a factor. Mikovitz said cortisol, which is higher in times of stress, can "turn on" the virus.

    Dr. Oz is basically warning people to start taking care of themselves so they don't develop CFS. Since cortisol is a possible trigger, then after we get the virus, stress may be the thing that activates the virus into CFS (XAND- to use the new term). How many people out there have XMRV in a dormant state. If they avoid unnecessary stressful lives (and manage to avoid catching another virus that turns on XMRV), then maybe they can remain in the 4% that have the virus but do not get sick.

    And, since the problems are seen in immune system, hormones and neurological, it is logical that the hypothalamus is involved.

    You have to understand also, Dr. Oz is a show. You will notice that he had other segments too, including the smoking and alcohol drinking lady and a question and answer part. So he was providing a variety. This is because he must keep viewers, and like the T.V. News, he can't go too in depth or he will lose viewers. Touch on it, give some info, tell what the viewer can do, then move to the next topic.

    So if you are someone who is sick with our illness, then it was a waste of time. But if you are someone who has the weakness (genetic or XMRV-induced) and you are living a high stress life, then his segment may be a little bit of a warning for you.

    Has anyone here thought about contacting "20/20" about doing a whole hour on the government spending problems (and misappropriation of funds) connected to the XMRV announcement? It might fit into a "60 Minutes" segment also.


    [This Message was Edited on 10/24/2009]
  18. zeowa

    zeowa New Member

    While Dr. T did not annoy me as I thought he might, it was mostly because he barely was able to do anything but smile for the 3 minutes he was on camera.

    Dr. Oz screwed up with this segment. If he wanted to do a show on exhaustion, that is what he should have done. There is a need for it and there are treatments for anemia, hypothyroidism, poor adrenal function, etc. I don't see what this has to do with CFS/ME though.

    He really picked about the worst time I can think of to misinform about CFS/ME. Even a month ago, many would have been tickled that he would air this show. A few weeks after several NYT pieces, many major papers, NIH, Cleveland Clinic, and WPI news, this is just bad reporting. Inexcusable if we expect a show with "experts" to cover serious disease and pathology.

    This resembles what Hillary Johnson said in her NYT's op-ed piece, basically, that putting out misinformation is worse for CFS/ME than doing nothing at all.

    At the very least, I think Dr. Oz could have talked about physiological findings in CFS/ME patients like SPECT scan and MRI abnormalities, NK cell deficiencies, abnormal EKGs, echo's, etc. which there is a good pool of evidence on--and which would have been just a Dr. speaking about lab tests in patients (as he does with so many, if not all, of his other topics). This would have been very informative for patients and the general public, and it wouldn't have needed to be tied in to the controversy attached to CFS/ME.
  19. hannahfaid

    hannahfaid New Member

    I missed it the other day and I was really upset about it... glad I didn;t go out of my way now! the description for the dr oz show was exhaustion and the g-spot...LOL can ya think of polar opposites?? LOL
  20. thanks Tim for the 2 supplements!

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