Dr.'s diagnosis re fibro/weight

Discussion in 'Fibromyalgia Main Forum' started by midda, Jan 13, 2006.

  1. midda

    midda New Member

    Am putting this out there to see how many of us have been told that weight is the reason for fibro.....seems that whenever there is someting wrong and no name for it is because of weight or is called fibro[This Message was Edited on 01/13/2006]
  2. 69mach1

    69mach1 New Member

    that is a good thing because i would punch the person that told me that or just plain start crying...

    it can cause weight gain because our blood cells and hormones are wacky and the pain cause me at least to exercise less...

    since shingles last year not really at all...

    jodie and the medications do wonder for my weight gain..

    so i was always tip top shape until they put me on anti-depressants, and i did swimsuit modeling when i had this along, sports in school...weightlifting and cardio with this...

    this is depressing for me right now because i need some foot surgery on both feet...

    jodie
  3. elsa

    elsa New Member

    Midda, I sure hope you have not been told your fibro will "go away" if you'd just lose weight. That would be grossly inaccurate and demeaning ... not to mention wrong.

    I am 5'11", slightly built, weight just under 130lbs and wear a size 4. No way in heck anyone could attribute my fibro to being overweight. If this has happened to you then I am more sorry then I can say.

    Please find another source of treatment. While it is true that some patients can gain weight for serveral reasons, ie. dysfunctioning hpa axis, side effect to medications, etc, the weight did not cause the illness.

    I wish you well in finding an educated treatment team.

    Take care,

    Elsa
  4. Lolalee

    Lolalee New Member

    I am curious about how many people for FMS are overweight. I have never heard that excess weight is the cause for FMS. I have had a difficult time losing weight. I don't eat much, but I still can't lose weight. I'm wondering if FMS screws up your metabolism. I cannot exercise..have tried different types/levels of exercise and my symptoms get worse and I don'tlose weight.
  5. schaken

    schaken New Member

    Midda,
    When I developed this DD I weighed 130 lbs at 5 ft 10 in. I have gone as high as 180 and now am back to 145.

    I think that it all depends on your metabolism, ability to move (ha, ha) and what drugs the docs put us on.

    I agree with the others. I hope that they (the docs don't think this is the reason we have fibro) Oh, I am now 54 years young. I started with this in my late 20s early 30s.

    Leslie
  6. jakeg

    jakeg New Member

    This is just another bad doc. My old doc said my FM was caused beause I smoke and drink what a joke. I know smoking is not good for you but it is one of the pleasures that I can still do, most of the things I used to do I can no longer do, as far drinking goes I drink maybe 2 or 3 beers a day( good for your kindneys helps to keep them clean, there are others that do the same thing cranbery juice is 1(I was told this by the doc that removed 1/3 of my left kidney when I was 19))Due to trama). Please seek out another doc who knows what FM is and how to treat for it instead of his/her unfounded opinions.

    Jake
  7. elsa

    elsa New Member

    It absolutely effects our metabolism. The thyroid and adrenal glands get disrupted badly ... The HPA axis stands for hypothylamus-pituitary-adrenal glands axis. It has been known since the mid-eighties that this endocrine loop falls out of wack in CFS/FMS patients ... causing alot of our symptoms. Weight gain being one of them .... Many of the medications rx'ed for fibro also have weight gain as a side effect.

    E.
  8. Lolalee

    Lolalee New Member

    I didn't know about the thyroid/adrenal connection. I've wondered why it is so difficult for me to lose weight, especially since I eat well and small quantities.

    Wish there was a way to get the metabolism going again.
  9. JLH

    JLH New Member

    I haven't been told this "yet." And ... if anyone does, he/she will hear an earful!!!!! LOL

    If you are overweight, everything in the world that is wrong with you is "due to your weight." I hate any doctor that puts the blame on weight--unless it is justified. I know it's true sometimes, though.

    But I don't think fibro has anything to do with a person's weight. Just look at how varied all of our sizes are. And ... I had fibro when I was 6 years old and I'm now almost 55. I'm sure my weight at age 6 didn't make a difference!!

    Weight is an extremely touchy subject for me, and I'm going to my only doc who brings it up all of the time on Tuesday. He always tells me that I would feel better if I would lose weight, and that I need to start exercising--that would help the fibro. DUH!!!!

    I'm going to exit before I get really steamed!!! LOL

    Hugs,
    Janet
  10. suzetal

    suzetal New Member

    I am now 168 in 2 yrs hate it.

    Talked to my doctor about it and with the meds and no exercise. The only way to increase your metabolism is to eat 8 very small meals a day.

    This gets it going .I am trying it and not gaining anymore weight also not loosing any yet.I will not give up hope.

    This DD has ruined my life.

    Sue
  11. russiankids3

    russiankids3 New Member

    Went to a rheumatologist to rule out Rheumatoid arthritis--he did a bunch of tests then told me my problem was that I was getting too fat and lazy!! He went on to say that he thinks FM is just an excuse used by lazy people !!! I told him off!! At the time I saw him I was 5'8" and 145 lbs. He should see me now --I'm on prednisone therapy for my kidney disease and have gained 20 pounds due to it and edema. What a jerk!!! He's around 50 and bragged what great shape he and his wife were in due to weight lifting and running. I told him I hope he gets a doc just like himself someday when he's not so healthy so he can realize what an insensitive jerk he was.

    I'm an R.N. and you wouldn't believe how many docs I've known who think they are "GOD" instead of just mere mortals with their own prejudice views.

    Sue
  12. ellikers

    ellikers New Member

    Well, I don't fit the diagnostic criteria for fibro (but I'm close to it) and I do have CFIDS and other chronic health issues .... but I'm 5'1" and only recently broke 100 pounds. Now I'm about 105-110. So weight is definitely not a factor in MY getting a chronic illness!!

    However, I was told by a doctor that "becoming a couch potato" wouldn't help me get any better. This was in response to my explaining that I can hardly exercise due to pain and health problems flaring up after I would exercise.

    I think there are some pretty big misconceptions out their in doctorland about chronic illnesses. And it seems that their first reaction is just to blame whatever we're doing in our lives as the cause of our health problems.

    I'm so sorry that you were told that midda. Poo on that Dr! :)
  13. PVLady

    PVLady New Member

    I have lost over 50 lbs in the last year and it did not make my fibro go away. I do feel better however. I can see that the extra weight did make me feel worse but how can you diet and exercise when you are hurting all the time?

    I lost weight was because my doctor started me on MS Contin and it made me sick - I could not eat - that is not a great way to lose weight, but it worked.

    I will add, once my pain was under control with MS Contin I became active again. I had been in so much pain for so long, I was practically housebound.

    Within a week from starting the MS Contin, I was getting out and walking each day. I started at a low dose of 15 mg and wound up at 30 mg to avoid breakthrough pain. I can still remember, even going to the movies for the first time in five years.

    Unfortunately, my digestive system could not tolerate me taking opiates and after nine months I had to stop them.

    My wonderful doctor truly felt MS Contin was the best med for me, but I just could not take it. He put me on Subutex to get me off the MS Contin and I am now on a maintenance dose of Subutex for pain and using Ultram and Tylenol. That keeps me at a "2" on my pain scale.

    I am now down to a size 10-12 and plan to stay that way. I don't thing losing weight cures fibro but I do feel it can aggravate the condition. When I weighed more I really was sedentary and it was much harder to get around.



  14. PVLady

    PVLady New Member

    I read what you said about doctors acting like they are Gods. I have a GP who is exactly that way. It is because of him I wound up taking MS Contin. A couple of years ago when I asked him for help, I wanted Soma - he just laughed and said Soma was like Valium He gave me nothing.

    I then found a doctor who put me on MS Contin. It certainly helped the pain but I suffered while taking it - (it is even traumatic for me to remember the experience).

    I do not trust this doctor and refuse to tell him anything. He is not my pain doctor, in fact he dislikes my pain doctor - he does not believe in pain specialists I guess.
  15. sjogrens

    sjogrens New Member


    I have had fibro for a long time and have always been a normal weight for my height. However five years ago I gained 50 pounds. I hit some major flare ups one after anothe. My metaboism was screwed up and the medications my doctors put me on also contributed to some weight gain. Luckily my doctor helped me loose the weight 2 years ago and I have kept it off. I am a couple of pounds under weight. I think my pain hurts more in some area's when I am thin like my back. I think its because my bones have less flesh around them. My legs hurt more when I gained the weight and my spine hurts more now. My overall body pain never changes. Its everywhere feet, legs,hands,arms,back,shooting burning pain. It's been there through all my weight changes since I was 12.

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