Dr says its myalgia

Discussion in 'Fibromyalgia Main Forum' started by addictedtobrew, May 17, 2006.

  1. addictedtobrew

    addictedtobrew New Member

    Does this mean that it is fibromyalgia? I am so confused. I had one doctor tell me that fibromyalgia was just depression in the joints and wasnt a true diagnosis. I am so frustrated.
  2. usanagirl

    usanagirl New Member

    Fibromyalgia
    or Chronic Fatigue

    View Related Case Studies

    Fibromyalgia/chronic fatigue is a disease of exclusion. In other words, these patients have an array of symptoms and complaints, which mimic many illnesses. Physicians usually do very extensive workups only to find that everything appears pretty much normal.

    This disease used to be called "psychosomatic rheumatism." I fear that many physicians still believe this disease is simply in the patient's head. More and more doctors, however, are beginning to realize the seriousness of this disease and its tremendous affect on patients’ lives. Statistics estimate there are over 8 million people in the United States alone suffering with this disease. Eight out of nine are women.
    Fibromyalgia and chronic fatigue are considered by many to be different expressions of the same disease. All of these patients suffer from overwhelming and usually disabling fatigue. Fibromyalgia patients experience total body pain, unrestful sleep, and a myriad of other symptoms. Patients with chronic fatigue, on the other hand, have more swollen glands, recurrent fevers, and frequent infections.

    Fibromyalgia is diagnosed by excluding other possible diseases and then by doing tender point testing. By eliciting tenderness in at least 11 of 18 predetermined spots, a physician is able to diagnose the disease. Essentially all laboratory tests, X-rays, biopsies, and MRI's will come out negative.

    Chronic fatigue patients are diagnosed by eliminating all other possible causes of fatigue. Anyone who has suffered for more than six months with disabling fatigue essentially has chronic fatigue. The sad truth is that it usually takes approximately 6 to 8 years for these patients to finally be diagnosed by their physician with one of these diseases.

    Traditional medicine has no specific treatment for these diseases. With fibromyalgia, physicians typically place patients on a non-steroidal anti-inflammatory for pain, amitriptyline for sleep, perhaps a muscle relaxant and anti-depressant and then they tell the patient to find a support group and learn to live with it. What is even more concerning is the frequency with which these patients are being treated with narcotic pain medication. Now, they not only have a horrible disease but are also hooked on narcotic pain medication.

    When people exercise moderately the body is able to handle the amount of free radicals produced. However, in cases of excessive exercise as in the training of professional athletes, the amount of free radicals goes up exponentially. It struck me that these athletes with over-training syndrome had the same symptoms as patients with fibromyalgia and chronic fatigue syndrome. I was baffled and wondered, Could it be possible that the root cause of fibromyalgia /chronic fatigue is oxidative stress?

    As we learn more and more about how oxidative stress can cause degenerative diseases, one has to wonder if this is the cause of the fibromyalgia/chronic fatigue syndromes. These syndromes are not high on the totem pole for research dollars. I have been unable to find any significant studies that have considered this as a possibility. I am hopeful more funds will be allocated toward these disabling diseases in the future.

    For the past six years, I have been evaluating and treating a group of patients with the belief that the underlying cause is oxidative stress. Since these diseases are able to mimic many other diseases, I must first rule all other possibilities out. I then place these patients on a complete and balanced nutritional supplement program.

    I have observed a fairly consistent pattern of improvement in my patients. The most common response I get at the two-month follow-up exam is their thinking and focus is significantly improved. They feel they have come out of a mental fog. At the four-month exam, they are usually sleeping better and noticing some improvement in their energy level. The last things to improve are the pain, fever, and frequent infections. The decrease of infections and fevers is evidence that one’s immune system is definitely improving. Many of my patients comment, “I actually have my life back!”

    I have now been involved with over 500 patients with fibromyalgia and chronic fatigue and have been able to achieve good to excellent results in over 70 to 75% of these patients. By bringing oxidative stress back under control, their disease has been captured.

    The majority will have significant improvement while using high-quality, complete and balanced nutritional supplements along with necessary optimizers. I have found that the optimizers must be varied or increased depending on the initial response of the patient or the severity of one’s disease. It often takes six months for these patients to be convinced of their improvement and they may still not be fully recovered at that point—but they know they are on the right track.

    Once I see a significant clinical response, I keep my patients at that level of optimizer (in this case, Grape Seed Extract) for another two to three months. I then slowly start to back off the level of grape seed extract until the patient reaches what I call a maintenance level. If she becomes worse for any reason while pulling back the amount, I move her to a higher level again until she begins improving. Economically, it’s best to use the least amount of grape seed extract necessary in maintaining the patient's improvement. Patients usually continue to improve even at lower levels once oxidative stress has been brought back under control.

    Patients with fibromyalgia /chronic fatigue have flare-ups and remissions. Therefore, I advise my patients who have had a great response and are now on a maintenance nutritional program that they will have flare-ups and some difficult days. When this happens, I simply have them increase the amount of antioxidants and grape seed extract they are taking. They may need to stay at this increased level of antioxidants for 10 to 14 days or until they are feeling better, and then they slowly drop back to the maintenance level again.

    Everyone needs to review the web page on "Oxidative Stress" to learn what factors increase the amount of free radicals produced by the body. Patients do best who’ve learned to anticipate situations that cause more oxidative stress. This may include a highly stressful situation, a vigorous work out, or even exposure to an increased amount of toxins which otherwise cannot be avoided. By increasing the amount of antioxidants before a potential setback, it allows the patient a jumpstart and the possibility of even avoid the setback altogether.

    This is from Dr. Ray Strand that has helped hundreds of patients, myself included.

    Take Care.
  3. addictedtobrew

    addictedtobrew New Member

    I suffer from extreme fatigue, muscle weakness,and that all over flu like feeling. This has been going on for about 3-4 months now. He just put me on a anti inflammitory med. My markers for c reactive protein and rheumatoid factor came back slightly elevated which he said showed that I have some inflammation in the joints.
  4. mevy

    mevy New Member

    I was told myalgia for a long time to but as things only continued to get worse and worse--and worse then I was diagnosed with fibromyalgia. Referred to rheumatologist who confirmed the fibromyalgia/cfs on 1st visit. With 18/18
    trigger points. This is not a fun thing to have. Was you diagnosed by a family dr. or by a specialist? Sorry you need to deal with this, but you are at a good place on this board. Lots of helpful information and great people. Take care of yourself and wishing you well.

    mevy
    [This Message was Edited on 05/18/2006]
  5. addictedtobrew

    addictedtobrew New Member

    I was diagnosed with the myalgia through a family doctor. He has not referred me to a rheumatologist.