Dr. says lyrica helps 90 per cent of his fibro patients....

Discussion in 'Fibromyalgia Main Forum' started by fibrobutterfly, Jul 17, 2008.

  1. 90 percent! I found that hard to believe after seeing the results on lyrica on the board here. But he says they are almost pain free and can lead almost normal lives with little pain![This Message was Edited on 07/26/2008]
  2. jaba520

    jaba520 New Member

  3. Empower

    Empower New Member

    I find that VERY hard to believe
  4. Khalyal

    Khalyal New Member

    Well, my experience has been that at first, Lyrica gave me a huge improvement. (I would NOT go so far as to say that it enabled me to live a "normal" life!) Over time, the side effects started sweeping in and everytime I complained about them, my doctor would blame the side effects on the disease itself and up my dosage. After every upped dosage, of course the side effects got worse.

    My personal opinion is that this is a dangerous drug for many of us. There are those that do well on it, but many more that don't.

    I think doctors want to believe it's the end-all be-all, because then they don't have to deal with us anymore. But even in the most helpful of circumstances I feel that it is just masking symptoms, not fixing the problem.
    [This Message was Edited on 07/17/2008]
  5. englishteacher

    englishteacher New Member

    I just commented under your other post on pain. It's been working phenomenal for me!
  6. lucindalouise

    lucindalouise New Member

    I have been on Lyrica for 4 or 5 months now. I am pleased with the results. If nothing else, the restless legs have disappeared along with the driving pain in them.
    Nervous yes about the long term effects, but then again, I wouldn't take any meds if I believed everything published.
  7. Iam1ShadyLady

    Iam1ShadyLady New Member

    I've been on Lyrica for three months now, 150mg 2xday, and it hasn't done a blasted thing for me!!! I am happy for those it did help but I am not impressed!!!

  8. lucky

    lucky New Member

    my doctor when he highly recommended Lyrica for pain telling how successful this med was for most of his patients after reading the results on this board. Well, it certainly did not do anything for me, and I stopped it after taking it for 10 days.

    After trying Cymbalta, Strattera, Lyrica and now Neurontin, I only had bad side effects and no relief of pain. What is the next step? May be somebody knows of a 'magic' pill. What surprises me that none of these meds brought any relief, the opposite, I had more pain with them than without.

    [This Message was Edited on 07/17/2008]
  9. mrlondon

    mrlondon Member

    In a previous message you mentioned that a sleep study showed that you possibly had Upper Airway Resistance Syndrome. Were you ever treated for it? Perhaps that is why meds don't help with your fibromyalgia. I knew someone who said getting treated for UARS via oral appliances helped to reduce their fibromyalgia pain.

    When people don't respond to the usual meds for fibromyalgia, my theory is it's because they have another undiagnosed problem that isn't being treated, like a sleep disorder, hypothyroidism, celiac disease, magnesium deficiency, etc., etc. - Mark
  10. gapsych

    gapsych New Member

    I think when I first opened the container, I started getting side effects. But some people swear by Lyrica.

    Unfortunately, it appears "some people" means few people.

    Maybe your doctor is taking lyrica and is so dizzy from it that he meant nine. LOL!!

    Take care.

  11. Denamay

    Denamay New Member

    This med worked great for me at first.

    I stopped because of water retention and weight gain.

    Now I use it now and again as a sleeping pill, that seems to be ok for me.
  12. JohnThreeSixteen

    JohnThreeSixteen New Member

    because of the side effect of weight gain.

    I hear alot of good things about Ixel (Minalcipran). It has been used in other countries since the 90's and will soon be approved by the FDA for use in treating FMS in Oct '08.
  13. dragon06

    dragon06 New Member

    I don't know about the percentage of people that are helped by a medication.

    All I know is that I have been on Lyrica for over 2 years and is has worked great for me. I had side effects but they went away after my body got used to the med. It can also take up to 4 weeks to have it take effect as well.

    Unfortunately there is no accurate way for us to decide how many this is helping and how many it is not. It is proven that people who have bad experiences are more likely to report that than people who are satisfied (that is because the bad experience makes you angry) so I think our numbers may be flawed.

    I am not saying Lyrica should work for everyone, it doesn't. My mom tried it and it didn't work for her. I just don't think it is the horrible pill that some people make it out to be...all drugs have risks and side effects and will affect everyone differently...this is why it is so hard to find something that works for us.
  14. bikrgrl

    bikrgrl New Member

    Considering in the clinical trials it only helped 30 % of people, i'd say that doctor is full of it.
  15. What I duh forgot to add this is what he said AFTER he took me off it, I had increased it to 150 3 x a day and other than sleeping well, I gained 10 lbs, was unsteady and had blurred vision. He was concerned about the weight gain. He told me first 10 lb weight gain, next mo maybe 5 lbs, then 10, then 100 lb gain over a yr! OMG why would he put me on it, I am already overweight too much. So he gave me a script for cymbalta and I take only 150 mg of lyrica until I see him in 2 mo.

    It did help me sleep with the severe pain I had, now last night I tossed and turned from 1 am on

    I can't believe that so many are getting such good results after seeing the posts here.
    [This Message was Edited on 07/18/2008]
  16. englishteacher

    englishteacher New Member

    It's seems like the weight gain is the major side-effect that people keep bringing up about Lyrica. My question is... for the people who tried it and were gaining weight... were you working out to counter-act the possible weight gain?

    Does the pill increase the appetite which caused the weight gain or was it all water retention???

    I'd like to know since I've only been on it about 4 weeks.

    And as far as why anyone would take it after reading all the unhappy experiences others have had...

    What wouldn't you try if you were in debilitating pain????
  17. balletdancer74

    balletdancer74 New Member


    I was actually one of the first "guinea pigs" to try Lyrica, than called Pregabalin, and at 25 mg (very low dose) it immediately started to worsen my already existing head pain. It didn't touch my nerve, muscle or joint pain nor did it help w/ my sleep.

    Nevertheless, everyone is different, and it might be worth it to try at the lowest dose first...

    Let us know the results if you try it. When it works, it can be great...we're all so different and hypersensitive to meds, herbs, foods, etc.

    All the best,
    Leeza (Behar) Glatzer (LBG33)
  18. michael514

    michael514 New Member

    Hi butterfly, the research I have read on Lyrica indicates that it gives significant results for about 30% of those that try it. Improvement of 25% or more is considered to be significant. I am glad for those that it works for, but they are very few. Good luck!

    chiro in Kansas
    Not suffering from FM, or anything else, just wanting to help.
  19. FMBonnie

    FMBonnie New Member

    Needless to say - the bad outweighed the good for Lyrica! I didn't get any marked relief, and my weight gain was outrageous!

  20. PVLady

    PVLady New Member

    I have read larger statistical surveys that indicate less than 50% of people are helped, who knows???

    Personally, I tried Lyrica and had more pain. I definitely think people should try Lyrica because it does help some. Everything is trial and error.

    Lyrica has side effects also you need to be careful with drug interactions. There is a interesting website about Lyrica side effects and interactions.


    With all drugs, you really can't judge unless you try it yourself, every's system is different.