Connecting with others with this DD creates alot of stress period! People can't often "see" the disease, and unfortunately I don't often admit my health issues to people in general, especially people I don't consider close friends or family. I think alot of the problems would be solved if people in general would feel like I do..that to invite yourself to anything, including someone's home, even if you happen to be in the area, is not polite. I'm sure if I looked up in an etiquette book that drop in guests, especially without calling, is impolite... but last minute notices can be stressful even for people who aren't dealing with a chronic illness. It does help to look at these situations as just people who care about you and want to see you but sometimes I think there are other motivations. Why is it that my kids who are in a NY apt. are getting so many out of town guests?? They never had them in other towns they lived. Unfortunately our children are afflicted also with this DD. We are fortunate to have a summer place in a vacation spot. We thought we could just sit and be sick and relax. Now overnite we are always getting hints from casual friends and also family that they want to visit us there. I feel as if I'm forced now to have to explain we are too sick and I find this to be extremely stressful I don't want to have to explain this DD to anyone. especially I have to wonder....is it really they want to see us, or enjoy the many recreations etc. the area offers. These people never ask to visit in our other home, and now that I think of it they never ask to visit the our summer place with the area is off-season. I'm also starting to wonder if I come off with this DD as a pushover! I apologize for venting, but I am sure well people have these issues all the time with people and they can shrug if off easy. Like the other posts reveal, these situations can PWC'a stressed and alot sicker.