Drs in Syracuse NY area?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by ConcernedFriend, Jan 10, 2005.

  1. ConcernedFriend

    ConcernedFriend New Member

    Is anyone aware of any good doctors in Syracuse NY area specifically for CFS?

    Thank you
    Concerned Friend
  2. tandy

    tandy New Member


    Dr. Janardan in east Syracuse is suppose to very good.
    Although I don't think she specializes in CF or FM,..I just know a few of us here go there and are at least treated like the disease is real~ and given appropriate pain relief meds if needed. More than I can say for many other drs.!!
    I know a few others in the area of central NY if your interested in other citys nearby.
    Let me know,.. I'll be checking back.
    Hope this helps.

    The dr. mentioned is on Erie Blvd east.
    I think I have the phone # somewhere.

    Hope this helps
    Hugs
    Tandy
  3. sybd

    sybd New Member

    I live in the Johnstown area one hour west from Albany. Are there any doctors around here treating fm?

    syb

    [This Message was Edited on 01/10/2005]
  4. ConcernedFriend

    ConcernedFriend New Member

    Thank you for your input. Any and all names would be appreciated.
  5. foxglove9922

    foxglove9922 New Member

    I'm looking too,,,,,the name Amy Milton keeps coming up at my CFS/FM support group. Some are happy and some aren't.

    Also got the name Thomas LaClair yesterday. Doesn't specialize in CFS but is compassionate.

    Really I don't think there is a sole in Syracuse NY that has a clue regarding CFS. I travel to NYC for care but would like a physician in the area who at least 1) has heard of CFS 2) has clue about treatment and 3) is compassionate and knows how to work with disability companies.
    [This Message was Edited on 01/13/2005]
    [This Message was Edited on 01/13/2005]
  6. redsox10

    redsox10 New Member

    Dr. David Bell is in Lyndonville, N.Y. Lyndonville is about 2 1/2 hours from Syracuse. Dr. Bell is a specialist on CFS. You could do a search on him.

    Hope this helps.
  7. foxglove9922

    foxglove9922 New Member

    is not taking new patients
  8. dreamharp

    dreamharp New Member

    Dr. Sherry Rodgers M.D.-she has written many books. I
    have met some people that she treated for CFS, Fibro,and
    other untreatable conditions. That was years ago before
    I knew I had fibro/CFS. I now live on the west coast. I
    do not know now how good she is. However, back in the
    early 90s people travelled all over the world to be treated by her. Her name would be in the phone book. Back then, she
    did not take insurance-but perhaps that is different now.





    [This Message was Edited on 01/14/2005]
  9. dreamharp

    dreamharp New Member


    It is possible she moved. Her office was at 2800
    W. Genesse St. Syracuse, NY 13219 (315) 488-2856


    Also, she wrote many books-Tired or Toxic is one of them.
    I would think you could google her name on the internet and find out more about her.
  10. dreamharp

    dreamharp New Member

    If you google Prestige Publishing it has all the books
    Dr. Rodgers wrote. One of them is called: Detox Or Die.
    I get this feeling she may be retired-not sure though.

    Dreamharp
  11. kgangel

    kgangel New Member

    Hi I am from Syracuse too, isn't it a small world? I have not heard of a doctor around here that specializes in FM either. The doctor I go to is Dr. John Smucny. he is on 475 Irving ave. I have also been to Arthritis Health Assoc 310 s crouse ave. I have also been refered to a Chronic Pain Doctor In Liverpool NY They are at NY Pain Center. They have all been helpful. The NY pain Center is at 7209 Buckly Road Suite 2R 452-2055. I have also been to a support group that meets every 2nd weds of the month in Canastota at the Castota Libray at 6 pm. They gave me a couple places to go to for therapy. The Healing Center for Cranial Sacral Therapy @701-1350 and Therapy for Myofascial Release at 682-7323. God Bless and take care, hope this will help you.
    Kristin
    [This Message was Edited on 01/16/2005]
  12. kgangel

    kgangel New Member

    I found this doctor S. A. Rogers, MD she is at 2800 W. Genesee Street in Syracuse her number is #488-2856. I will be calling tomorrow to see if she is seeing new patients too, good luck to you. Kgangel
  13. ConcernedFriend

    ConcernedFriend New Member

    Thanks everyone for input regarding doctors in Syracuse. Also I had heard of the Canastota support group, but was not sure how helpful it would be. Its good to hear from someone who attends.

    God Bless to everyone
    Concerned Friend
  14. foxglove9922

    foxglove9922 New Member

    I too attend the Canastota Support Group the second Wednesday of each month. Too bad with a city the size of Syracuse there is nothing here for us. Bad winter weather makes it quite a travel thing to go to Canastota.
  15. maddswan

    maddswan New Member

    doctors that treat rhum. arthritis also treat FM/

    i went to dr. ricardi years ago. i just got tired of trying pills, pill not working and going back to see him every 3 months. so after 2 years i just stopped going.

    other people i know go to him and like him. good luck.
  16. junal

    junal New Member

    I was diagnosed by Dr. George Mtanos... rheumatology...I have only met him one time so far. Am seeing him next week. He is on S. Crouse Ave in Syracuse.
  17. foxglove9922

    foxglove9922 New Member

    My daughter will being seeing this rhuemy next week at 310 South Crouse. She suffers from CFS.
  18. suttles

    suttles New Member

    After I read Tired or Toxic I thought this must be it.

    I live in the south and so going to NY was not an easy thing for me to do but after thinking about it.

    I called and to see about an appointment. I had to send a 100.00 deposit first then they would let me know when I could have an appointment. It was about 5 months.

    After I got there all she did was allergy testing for a week and I only found out that I was allergic to banannas, which I cannot tell if I do eat one.
    I knew I would have to pay out of pocket and send the bill to my insurance that is primary ( through my husbands job)
    Well I have medicare as secondary and when she found that out she would not do any other tests.
    I told her I knew I would be paying and she still would not do some of the tests like giving me any mold plates to take home.
    She wanted to know where my physical was and I did not know I needed one and she did not like it because I had not had one before seeing her.
    I think it was one of the biggest waste of money I ever spent.
    I think her books are good but I would never go there.
    I did get the allergy shots but inorder to renew the refills I had to go back to NY, she would not do phone appt because of the medicare even though it was secondary and never was even billed to them.
    I have been told that what she learned about cancer was from DR Gonzazlas (don't know about spelling his name) that is in
    NY.
    For me it cost over between $2500-3500.00 to fly up there and stay in a motel a week. NEVER again. That was probably around 10 years ago.

    Sandy
    [This Message was Edited on 01/24/2005]
  19. dreamharp

    dreamharp New Member



    Thank you for your post about Dr. Sherry Rodgers. I
    always wondered about her. I got sick in 1988 after I
    delivered triplets in upstate New York. I almost went
    to her but she didn't accept any insurance. The cost out
    of pocket was unbelieveable! I thought that charging
    sick patients such an enormous amount of money seemed
    like a red flag so I never saw her.


    I saw in a previous post of yours that you have lyme disease
    am I correct? I'm just curious are you getting better
    and did the allergy shots work for you?

    Thanks again for your reply.

    Dreamharp
  20. suttles

    suttles New Member

    I could only take one round of shots, because I could not reorder without making another appt.

    I live in TN and this was not something that I could do.

    I never had a bad allergy problem anyway. It's just that after I got there that is what she did.
    One reason it was such a waste because I thought she would test for chemical exposures like formahalide (can't spell) but you know she wrote a lot about it mimmicking hormones. I didn't need the allergy tests all that much.
    Her office would not answer questions when I would call and like I said I paid out of pocket and medicare is my secondary and for what ever reason she would not do anything after she found that out.
    It was on the first day and she said so you have insurance and I said yes and medicare is secondary and then she started marking out things and said you cannot have this this and this.
    I said but I will be paying and it didn't matter. Someone here in my town goes to see DR Gonzalas in NY and they said she learned what she knows about cancer from him.

    On the Lyme I only found out a couple of weeks ago that I have it. It showed up on a western blot from IGENEX labs.

    I am going to take samento for a while instead of antibiotics. I have been sick since 1987 with flue like weakness and sleepy/spacyiness. There is more but those have been very sevier for me.

    I had the tests from HEMEX that a lot of people on this group have tested with and mine were positive.
    Some of the people here have done heparin. I have been using bromelain for a few months. I need to see how the heparin is working for them because my Dr thinks I should do it.
    I was the first person he did that test on and now some of his other patients have done the test and they are doing the heparin and getting better.

    Take Care,
    Sandy