Ear Problems and Dizzy Spells

Discussion in 'Fibromyalgia Main Forum' started by Esoteric, Jul 20, 2008.

  1. Esoteric

    Esoteric New Member

    Good Day,

    I'm wondering if anyone with Fibro also experiences recurring ear pain and dizzy spells? For me, this has been going on for years... I'm wondering if there is any connection?

  2. amyrae12

    amyrae12 New Member

    In fact, ear pain and dizziness was the start of my journey. I was eventually diagnosed with Meniere's disease, then TMJ, and now most likely fibro. There is a strong link b/w fibro and TMJ, you should do some research there and see if it fits.
  3. harmony21

    harmony21 New Member

    I too have been having problems with my ears, not so much the pain but deafness and excess wax

    This topic has appeared before and I think there are quite a few who have these problems so I think it maybe associated with FM, luck us hey?????

    angel hugs and blessings

  4. star273

    star273 New Member

    Yes, I have it too. That was one of my first things I had before I was dx with FM. I hate it when I get dizzy, but there is nothing I can do, so I just go with it. This is funny, but I get dizzy when I am sitting on the toilet and I picture myself falling off with my pants down. What a great picture huh? LOL I guess all we can do it laugh. I take a small amount of Xanax when I get like that and for some weird reason it seems to help. I dont get it. ???? My ears are plugged all the time too and I get ringing in my ears.
  5. greatgran

    greatgran Member

    My ears was the beginning of my cfs/fm or whatever I have. I so doubt my Dx all the time.

    I had been feeling fullness/pressure in my ears, I was still working at the time. One night I awoke with a horrible vertigo attack, had never experienced one. It lasted about 5 hrs.

    The next day I drug myself to the doc and was Dx with a middle ear problem. Well, my ears haven't been right since.

    I too, experience the dizziness, vertigo but not as bad , sinus/allergy problems. Also the ear fullness and ringing 24/7, off balance, anxiety/depression.

    Have been to several doctors they say my ears look fine, they have never made the connection with cfs/fm but I do think there is one. I am usually given an antibiotic for a sinus infection.

    After my first bout and vertigo attack with the ears I returned to work and worked one day haven't been able to work since, but that was the beginning of my body falling apart and couldn't find out what was going on with me. Finally got the Dx of CFS/FM.

    Haven't been the same since.

    God Bless,

  6. Pansygirl

    Pansygirl New Member

    I've had hearing issues for years including the ringing in my ears. My ear pain was the first pain I had and origianlly thought I had an ear infection but now I don't think that was the case at all.

    It seems like I have new pains every week.

    Gentls hugs, Susan
  7. MsBrandywine

    MsBrandywine Member

    Sometimes if Im busy and working in my kitchen or.. doing anything really.. I turn and get dizzy and have to hold something until the feeling passes.. Terrible feeling.. then my balance is affected too..
  8. Missizzy

    Missizzy New Member

    Hi all--I've responded to this question numerous times but it's always good to get a fresh conversation going about different symptoms. My onset was severe vertigo and a sudden and permanent loss of hearing. My hearing left me in a sudden whoosh and never came back. I was 49 at the time--four years ago this summer. I had MRIs, caloric testing, brain stem tests and even went to the Mayo Clinic (it's all in my profile). I was diagnosed with either spinocerebellar ataxia or a vestibular "assault" with permanent damage. The doctors are unsure of a diagnosis but not too optimistic about a cure.

    I am dizzy 100% of my life now and can only walk for short distances (2-3 feet) without holding on to something. I use a cane and a walker in the house and a wheelchair on rare outings. I also suffer from slurred speech, tremor, myoclonus, and audiogenic seizures (sensitivity to noise).

    I have no sinus pain at all but my head feels consistently "swooshy", as if it were full of water sloshing around. I also have had since the day of onset, an odd, sharp shooting pain in both ears--not just the one effected by the hearing loss. The pains last only a second or two and are gone by the time I grab my ear. They are deep down in the ear canal. My ears also itch deep inside. The doctors have no answers for this even though I never experienced this sensation before my onset.

    Who knows if the ears, the dizziness and the horrible fatigue are all connected. I still think that there must be sub-sets of us!!

    I'm so sorry you all have ear pain and/or dizziness. It's no fun.


  9. spmom

    spmom New Member

    Yes to ear problems and dizziness. If you are loosing hearing, have your thyroid checked. This is not one of the typical symptoms, but I lost about half of my hearing before I was diagnosed with hypothyroid. After treatment, my hearing returned.
  10. PVLady

    PVLady New Member

    Check out "Benign Positional Vertigo" on the web. There is a doctor at UCLA - Dr. Robert Balow who has researched this condition for years.

    He actually treated and cured my husband. If you by chance have this condition. the cause is calcium particles in the deep inner ear. When these particles move it stimulates the cochlia (not sure spelled right) and causes extreme dizziness.

    My husband has it so bad when he had spells he was also extremely nauseated.

    Oh, the cure is special movements Dr Balow does that dislodges the particles, then you sleep upright for a couple of nights and it never comes back.

    My husband had suffered for over a year before we found Dr. Balow. Many doctors know the procedure to help, and I believe it is on the internet.

    See below

    Benign Positional Vertigo Overview
    Benign positional vertigo (BPV)—or simply vertigo—is a disorder of the inner ear. You feel a sudden sensation of movement or spinning when you move your head or hold it in a certain position.

    The inner ear is located within your skull and consists of the cochlea, a chamber shaped like a snail shell, where sound is transformed to nerve signals for the brain, and 3 semi-circular canals that function like a gyroscope, relaying information about head position and movement to the brain.

    The semicircular canals contain fluid and special sensors that, when disturbed, inform the brain of a change in head position. It is thought that when you have BPV small particles become dislodged within the inner ear and then bounce around when your head moves, triggering faulty signals that your head is still moving even after it stops. This sensation of movement or imbalance when you are not moving is called vertigo, the primary symptom of benign positional vertigo.

    Benign Positional Vertigo Causes
    It is seldom possible to determine the cause of BPV. It is unclear why small particles become dislodged within the inner ear in the first place. Some possible reasons include the following:

    Head injuries

    Viral infections (labyrinthitis)

    Nerve inflammation

    Inner ear surgery (more common in older people and women)

    Similar symptoms can be caused by other disorders. A doctor would have to check for them specifically if there is doubt.

    You may experience the symptoms of BPV if you take too much aspirin or phenytoin (Dilantin) or are intoxicated with alcohol.

    Benign Positional Vertigo Symptoms
    Symptoms are the same ones you experience when you spin around in a revolving chair or on an amusement park ride and then suddenly stop.

    Vertigo - A sensation of spinning or movement when you are still

    Nausea or vomiting - Due to motion sickness caused by the vertigo

    Nystagmus - Involuntary eye movements or twitches accompanying the vertigo

    When to Seek Medical Care
    Call your doctor any time you experience vertigo and nausea for unclear reasons. The doctor will want to ask some questions and either see you in the office or have you go to your hospital's emergency department.

    Go to a hospital if your doctor cannot see you in the office and you have vertigo that is causing repeated vomiting such that you may become dehydrated or cannot take your medications.

    Because driving yourself would be unsafe, you should have a friend or family member take you.

    Other symptoms that should prompt you to go to an emergency department would be the following:

    Headache or ear pain


    Stiff neck

    Sensitivity of your eyes to light

    Ringing or rushing noises in your ear

    Speech difficulties

    Weakness or numbness on 1 side of your body or face

    Hearing loss


    Exams and Tests
    The doctor will ask questions that should help determine the cause of your vertigo and whether any tests are necessary.

    No specific laboratory or x-ray tests are available for BPV.

    The doctor will want to examine your ears and nervous system as part of a physical exam. The doctor also may perform some maneuvers with your head in order to provoke the symptoms and observe any abnormal eye movements that occur.

    If the doctor suspects a more serious cause of your vertigo other than BPV, additional tests may be performed, such as a CT scan, MRI, or various blood tests.

    The doctor may consult a neurologist who is a doctor specializing in brain diseases.

    Benign Positional Vertigo Treatment

    Self-Care at Home

    Lie down and rest. Take precautions to prevent falls.

    Do not drive, work at heights, or operate dangerous machinery in case you get an attack of vertigo.

    Avoid sudden head movements and body position changes, especially looking up.

    You may try some home therapy exercises that are meant to disburse the inner ear particles that are causing the trouble or desensitize the inner ear nerves that are being stimulated.

    The following are called the positional exercises of Brandt and Daroff. You will feel vertigo while doing these, but with each repetition, the severity and duration should decrease.

    Sit on the edge of the bed near the middle, with legs hanging down.

    Turn head 45° to right side.

    Quickly lie down on left side, with head still turned, and touch the bed with portion of the head behind the ear.

    Maintain this position and every subsequent position for about 30 seconds.

    Sit up again.

    Quickly lie down to right side after turning head 45° toward the left side.

    Sit up again.

    Do 6-10 repetitions, 3 times per day.

    Medical Treatment
    Some doctors know how to perform certain maneuvers of your head and torso that often relieve or cure the problem without medication.

    These maneuvers are called canalith repositioning procedures, or "the Epley maneuver," and require special knowledge and skill.

    Their goal is to move the loose particles out of the semicircular canals of the inner ear to where they will no longer cause trouble.

    After they are performed, you may need to keep your head upright for 24 hours.

    This may require that you wear a soft neck collar for support and sleep sitting up in a chair for a night.

    Several medications, including common motion sickness remedies, may relieve your symptoms of benign positional vertigo (BPV):

    Meclizine (Antivert)

    Diazepam (Valium)

    Dimenhydrinate (Dramamine)

    Promethazine (Phenergan)

    Scopolamine (Isopto, Scopace)

    Next Steps


    Avoid activities and situations during which vertigo could be dangerous, such as driving or operating dangerous machinery.

    Take medication as directed.

    Drink enough liquids to prevent dehydration, even if you are somewhat nauseated.

    Avoid alcohol.

    Most cases of BPV do not have a known cause. Therefore, no prevention is possible.

    The preventable causes of BPV are head injury and alcohol or medication overdose.

    Always wear a helmet during sporting activities where head injury can occur.

    Avoid excess consumption of alcohol or aspirin.

    Benign positional vertigo usually clears up on its own within a few weeks or months, even without any specific treatment.

    The Epley maneuver may cure the problem right away.

    The Brandt/Daroff exercises at home may resolve the problem within a few days.

    Medications should help control the severity of symptoms otherwise.

    For some people the disease comes back months or years later.

    Rarely is BPV a problem that won't go away. If it continues, a specialist such as an otolaryngologist, head and neck surgeon (ENT), or a neurologist needs to be involved.

    Synonyms and Keywords
    benign paroxysmal positional vertigo, cupulolithiasis, canalolithiasis, vertigo, labyrinthitis, Meniere disease, BPV, benign positional vertigo

    [This Message was Edited on 07/21/2008]
  11. JoFMS

    JoFMS New Member


    I don't get what I would call ear pain as such but I do sometimes feel I have a build up of wax and my ears get kind of itchy and irritable inside and I have to wiggle my finger in my ear a bit for some relief!

    I use ear candles and find this relieves them a bit as well as may help clean the tubes to some degree, it's also quite relaxing.

    You can usually buy these at health shops if you don't already use them but if you have an ear problem then I guess you should check first.
  12. hi all,

    i have ear problems and dizzy spells.

    ive been a psoriasis sufferer for most of my life,but it is very much gone now,while im drinking cranberry juice.

    i do have a very tiny patch on my right knee,but its nothing much.and i do have it in both ears.

    im wondering if its a reaction to the shampoo im using.

    anyway ive been having major dizzy spells in the past,and it seemed to come to me after id eaten pumpkin seeds for about nine weeks.

    id never had this sort of dizzyness before eating those.

    im not eating them now,but was thinking i might drink the juice.

    im still unsure of them right now,but they eased the ear and nails psoriasis for sure.

    it came back when i stopped the pumpkin seeds though.

    anyway i started getting ear pain a few weeks ago,and was troubled by the dizzyness outdoors,greatly.

    my son had complained of having compacted ear wax himself,and he bought some earex ear drops,that helps to clear out ear wax.

    you apply 4 drops into the ear using a dropper,repeat morning and night for up to 4 days,until the wax is softened.

    i did this and do you know what?

    id got loads of psoriasis inside of my ears,and wax had compacted.

    when the earex had worked on the ears i was able to gently remove the psoriasis from my ear with a cotton bud.

    never poke it into the ear though,just near the ear hole.

    my dizzyness went away for a week,but seems to be returning again.

    im going to buy a plastic dropper and apply olive oil into my ears on occasions,to see if i can keep the psoriasis scares from building up again.

    i didnt see any blood in there thank goodness,and the droning noise went away.

    i do suspect that a crunching sound in my neck also triggers off dizzyness at times.

    my daughter,sister and mum had this too.

    its only myself and my daughter who have the psoriasis though,and its off dads side of the family.

    take care all,love fran

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