Embarrassing - but I am DESPERATE for relief from fungal infectio

Discussion in 'Fibromyalgia Main Forum' started by pepper, Nov 30, 2002.

  1. pepper

    pepper New Member

    It has taken me months to get up the nerve to post this topic because it is so embarrassing. However, the problem it getting progressively worse and I am in need of new ideas!

    I have had a fungal infection in the "peri-anal" area for almost a year. It steadily got worse until my CFS doc gave me an anti-fungal cream for it. It helped a little. I was also on acidopholus, garlic capsules and Diflucan.

    Then it got worse and worse so that it interferes with what little sleep I get from these DD's. The itch is unbearable. I wake up in the morning with blood all over the sheets.

    I had to go off the Diflucan because of liver problems so of course it became even worse. I am on Fungizone to replace the Diflucan but I don't know if it is any good at all. Still on garlic capsules and probiotics and I am eating some garlic as well.

    I went to a nearby clinic so I could see a female doctor and she said it was the worst fungal infection she had ever seen. She prescribed Clotrimaderm 10mg/gm for 2 wks. I applied it several times a day. No better.

    She next prescribed Lamisil at least 2 times a day. It is not getting any better.

    She told me the last time that she had one more cream to try - Nizoral and after that if the Nizoral didn't clear it up, I would have to see a dermatologist. That would be so embarrassing!!

    I will see her on Wed. to get the Nizoral and hope it works. Meanwhile, does anyone out there know of anything else I could be doing? I did try a garlic paste the other night after reading about it on this board. It nearly burned my skin off - it is so red and inflamed the garlic was hot to the touch after being on my skin!

    Any suggestions would be most welcome. Thank you. Pepper
  2. pepper

    pepper New Member

    It has taken me months to get up the nerve to post this topic because it is so embarrassing. However, the problem it getting progressively worse and I am in need of new ideas!

    I have had a fungal infection in the "peri-anal" area for almost a year. It steadily got worse until my CFS doc gave me an anti-fungal cream for it. It helped a little. I was also on acidopholus, garlic capsules and Diflucan.

    Then it got worse and worse so that it interferes with what little sleep I get from these DD's. The itch is unbearable. I wake up in the morning with blood all over the sheets.

    I had to go off the Diflucan because of liver problems so of course it became even worse. I am on Fungizone to replace the Diflucan but I don't know if it is any good at all. Still on garlic capsules and probiotics and I am eating some garlic as well.

    I went to a nearby clinic so I could see a female doctor and she said it was the worst fungal infection she had ever seen. She prescribed Clotrimaderm 10mg/gm for 2 wks. I applied it several times a day. No better.

    She next prescribed Lamisil at least 2 times a day. It is not getting any better.

    She told me the last time that she had one more cream to try - Nizoral and after that if the Nizoral didn't clear it up, I would have to see a dermatologist. That would be so embarrassing!!

    I will see her on Wed. to get the Nizoral and hope it works. Meanwhile, does anyone out there know of anything else I could be doing? I did try a garlic paste the other night after reading about it on this board. It nearly burned my skin off - it is so red and inflamed the garlic was hot to the touch after being on my skin!

    Any suggestions would be most welcome. Thank you. Pepper
  3. karen2002

    karen2002 New Member

    Yeast overgrowths are very common, especially those of a vaginal nature.

    I suffered from years--due to antibiotic therapy. The one product that seemed to work for me was monistat, which can be obtained at the pharmacy with out an RX. My vaginal infections would also spread to the peri-anal area. You can use this creme topically as well as vaginally. I don't know if possibly this is one you have taken, as I am not familiar to all those you have named above.

    As of late--I have quit ALL antibiotic therapy--even my prophylaxic dose for my kidneys. Mt entire body was candida ridden. I tried the nystatin route---the side effects were too great. My doc has me on berberine, since my first appointment with him. (The nystatin was my idea, to hurry things along---bad idea, lol). I am continuing on the berberdine (over 2 months now) My IBS (due largley to yeast infection is subsiding), and I have not had any vaginal yeast infections---which almost always would have incurred during this time frame. My white, patchy tongue, is looking better, too:) Darn little yeast buggers.
    Hey keep up with the probiotics---they are so important in keeping yeast overgrowth at bay!
    Hope you feel better soon---I know this is miserable.
    Karen
    P.S. You didn't mention whether they have swabbed, and grown a culture to see what is actually present. I think this would be a great idea, due to the longevity of this. They can do a culture to see what will treatments will work the best for you, and what it is resistant to.
    I had that done---and was a time saver-- where you are randomly trying things....just gives the fungus more time to get the upper hand.
    [This Message was Edited on 11/30/2002]
  4. granmama

    granmama New Member

    HI PEPPER,

    >DID YOU SEE A FEMALE GYN?
    >HAS ANY DOCTOR TAKEN A SWAB SAMPLE AND EXAMINED IT UNDER A MICROSCOPE?
    >WAS A CULTURE PERFORMED ON THE SAMPLE?
    >DO THEY KNOW WHAT BACTERIA THEY ARE TREATING?

    I KNOW GOING TO A DERMATOLOGIST FOR THIS PROBLEM WOULD BE EMBARRASSING! I WOULD OPT FOR A GYN IF YOU HAVEN'T ALREADY.

    I DON'T HAVE ANY SUGGESTIONS FOR SPECIFIC TREATMENT. I'M SURE IT IS HARD TO KEEP THE AREA DRY AND FUNGUS BREEDS ON MOISTURE.

    YOU MUST BE SO MISERABLE AND I AM SO SORRY.
    WHEN I WAS A YOUNG WOMAN, I HAD A TERRIFIC YEAST INFECTION AND I SCRATCHED MYSELF RAW TO BLEEDING. I REMEMBER THE DOC GIVING ME AN ORAL SULFA DRUG. THAT IS WHEN I FOUND OUT I WAS ALLERGIC TO SULFA AND MY BOTTOM BROKE OUT INTO WELPS AND BUMPS...AS IF SITTING WASN'T HARD ENOUGH ALREADY!

    I DON'T KNOW IF I HAVE HELPED IN ANY WAY BUT I WILL HOPE FOR YOU TO HAVE A QUICK HEALING PROCESS.

    granmama hugs,
    granmama
  5. Claypot

    Claypot New Member

    I agree with u Karen.. although I have not had any fungul infections in years as far as vaginal I do constantly suffer with a fungal infection between my breasts... which are also itchy I have learned to try and keep it as dry as I can and that seems to help though... Karen is right in suggesting a culture to be done I am a nurse and that is truely the best way to go at this time esp. since u have already tried so many things. Hoping this clears up very VERY soon I will say a prayer for You! Love Claypot
  6. pepper

    pepper New Member

    No, they have not taken any swabs for a culture. I think that is what the dermatologist would do - he did it for a stubborn fungal infection I had on my foot and that told him what to give me. Yes, it worked. I was just so hoping to avoid going to the dermatologist!

    I made an appointment with my female gynecologist. I can't get an appointment until Feb. 15! I think I will call on Mon. and see if they keep a waiting list. I cannot wait that long! I really didn't know if she would treat a fungal infection there - I am going to see her about severe groin pain that has sent me to the ER lately and my family doctor cannot find anything wrong.

    I did try monistat and all the over the counter fungal creams I could find before ever mentioning it to my doctor!

    I have never heard of berberine. If it is for candida or IBS, I could probably use it.

    Thank you for your input, Karen, Granmama and Claypot!
    Pepper
  7. kadywill

    kadywill New Member

    any doctor, P.A. or nurse practitioner can do a culture and sensitivity for you. It doesn't have to be done by a specialist and it is just a simple swab! It takes a few days to "grow out" and then you'll know which treatment is necessary to treat the growth. Don't stress over this; just ask for a C&S immediately. You'll feel so much better!!! I saw this in my patients at the nursing facility a lot and it was a persistent little bugger until the right treatment/med was found. Bacteria/fungi thrives in warm, moist environments and it sounds like yours is thriving well....I am so sorry! Be sure to keep the area as dry as possible and keep the skin from touching skin by using a cotton material between the skin folds at all times. Lots of people get these irritations from abdominal folds/breasts/thighs overlapping skin causing a warm, moist place for growth.
    Take care of yourself....don't be embarrassed~~this is quite common and nothing to feel sensitive about! (no pun intended!)
    Love,
    Kady
  8. JaciBart

    JaciBart Member

    Probiotics


    I think they sell them on this site.

    Works miracles.

    Good luck,
    JAci
  9. ssMarilyn

    ssMarilyn New Member

    Okay, I'm trying to figure out exactly what area you're talking about. Am I right to guess it's not a vaginal itch? If it's an anal itch and you can't cure it with creams, then I'm going to suggest something you aren't going to care for.... I'm a country girl, and have had tons of cattle, horses, pigs, dogs, cats, etc... When they would get that horrible itch that drove them nuts, it was some sort of internal parasite infection. We had to give them worming medication. I would think this would work the same way in a human being? I hear tell from other gals on this site that parasites are common in us humans. Let us know!!

    Marilyn :)
  10. karen2002

    karen2002 New Member

    When vaginal infections go uncured for a long period of time the perineum, from the labia, as far back as the anus can be infected.
    There are so many folds, as Kady mentioned that this is prime proliferating grounds for the fungus to grow and reproduce. The symptoms include horrendous itching, and deep redness, often times the skin can be broken due to irritation and scratching.

    Pepper--as Kady stated you needn't see a dermatologist. Get in to the quickest appointment that you can with an MD., Physicians Assistant, Nurse Practictioner---all can do swabs, to find out what organism in particular is causing you this distress, and they will order a culture to find out what product will work--and treat your vaginitis effectively.

    My vocation was a vet tech throughout my adulthood, and a country girl too...most of my experience was with racehorses, but I had to suffer through the rest of the livestock (cows, goats sheep), as well as small animal practice. Parasites, do not cause vaginal itching.

    Karen
  11. JP

    JP New Member

    Hello Pepper...so sorry to hear about your infection. A culture is the way to go. It sounds like the docs are shooting blanks. If you know the strain, it can be treated with the correct medication. Do you have access to an urgent care facility? You might try this route for immediate care. Be sure to request a culture. These bugs are really tricky when the war is on. They can mutate and build resistance in their effort to survive.

    You mentioned groin pain. I get really severe groin pain. In fact, I began an investigation into this pain a few years back and discovered more than I care to know. An arthritic hip and low back complications cause my groin pain. I have had x-rays, CT's, MRI's and 3 specialists. I still live with the pain and I can help it by stretching my hip and back muscles several times a day. Sometimes it gets so bad that I have a knot the size of an orange in my groin. I can usually prevent this through my daily efforts to control the pain.

    I hope you find help soon...take care, jan
  12. genevieve

    genevieve New Member

    Have you thought of trying some of the herbal antibiotics/antifungals internally like garlic supplements, olive leaf supplements, oregano oil internally and on the skin itself colloidal silver I,ve read is very good at getting rid of skin infections. These herbs should also boost your immune system a bit.I've taken all of these except colloidal silver for infections and they definintely work.

    With best wishes,

    Genevieve
  13. klutzo

    klutzo New Member

    You've gotten some very good advice here but I want to just add a couple of things. I have vulvar vestibulitis, which often goes with FMS, and I had a fungus under my breasts for a long while.

    When you go in to get that C & S, ask also for a deep tissue scraping. They can look at it under a microscope right there and tell you what gives. In mine the doc found mutated yeasts living deep down in my perianal tissues.

    Also, Magnolia is correct about using a fan, and my GYN told me to go even further and wear skirts or very loose cotton pants and no panties at all.

    Probiotics should become a permanent part of your daily regime, and there are two natural yeast killers you have not yet mentioned...caprylic acid and grapefruit seed extract. Might be worth a try.

    Lastly,and most importatnly, all sugars have to go. That is the only thing that ever really helped me over the long term. I had Nysatin and Diflucan too, but only eliminating sugars really made a significant dent in it. Of course, this won't apply if it turns out to be bacterial, not fungual.


    For Claypot - I had fungus under my breasts, but now I put a thin film of Tinactin creme under there after I dry off after each shower, and as long as I do that, the fungus is no more. Don't make the mistake of trying to dry out the area with cornstarch...that will feed the fungus and make it worse! I learned this the hard way.

    In empathy,
    Klutzo
  14. ssMarilyn

    ssMarilyn New Member

    No, parasites do not cause vaginal itching, but do cause rectal itching. I'm sorry if I was not more clear on this!

    And the gals are absolutely right on the "wear no undies" at all if possible. We need to let our bodies breathe.
    Marilyn :)
    [This Message was Edited on 12/01/2002]
  15. pepper

    pepper New Member

    We do not have Nurse Practioners or Physician Assistants here in Canada. At least I have never heard of them. The female doctor at the clinic was the one who told me I would have to see a dermatologist to get a culture done. If it is that simple I wonder why she couldn't do it.

    I do not want to see my family doc about this. He knows me and all my family so well that he gets embarrassed to do things like this. And of course that makes me even more embarrassed!

    Do you have any suggestions for what kind of cotton to put in between the folds? The clinic doc told me to do that too. I have tried jumbo cotton balls and tissues folded up several times. But they both get hard and hurt the area.

    Thanks again. Pepper
  16. pepper

    pepper New Member

    I already take acidopholus. Are there other probiotics I should be taking?

    Thanks for your help. Pepper
  17. pepper

    pepper New Member

    The itch is not in the vaginal area but farther back. However, I find that I need to use a vaginal anti-fungal cream too or the itch farther back gets worse.

    It has been several years since I have done a parasite cleanse. I wonder if I should do one again. I want to stay away from the drugs for parasites - I hear they are pretty potent. Do you know anything about parasite cleanses?

    No undies. Okay, I guess I ought to do that. The clinic doc did ask me if I live alone so I could let everything "air out".

    Thank you. Pepper
  18. pepper

    pepper New Member

    You are so right! It is incredibly itchy and deep red and the skin is broken and so very sore!

    Do you think that the doctor at the clinic should be able to do the swabs? She told me I would have to see a dermatologist for that - I really do not want to. My family doctor is too much of a friend to do this too.

    If that female doctor at the clinic can't do it, perhaps if I went to another clinic someone would be able to do it there? It seems from the replies that this is not such a complicated thing to do. However, there are no nurse practioners or physician assistants here is Canada. It's a doctor or nothing.

    Your input is greatly appreciated. Pepper
  19. pepper

    pepper New Member

    The clinic doctor did tell me to walk around naked as much as possible. My 18 yr old son and his friends would probably not appreciate it!

    However, I am going to concentrate on airing the area as much as possible. When I have been lying on the bed letting everything "air" (Now isn't that a pretty sight?) I thought I should get my little fan out and try cooling it off. Well, now I am going to do it.

    Thank you for the suggestion. I will let you know how it works. Pepper
  20. pepper

    pepper New Member

    I agree with you. The doctors are shooting blanks here. Would the clinic down the street be an urgent care facility? That is where we go in Canada if we can't get in to see our family doctor and it is not an emergency requiring hospital treatment.

    Do you think that the doctor at a clinic like this should be able to do a culture? I am sure that is what needs to be done but the doctor I have been seeing doesn't seem to be able to do it for some reason.

    Thank you for your input. Pepper