Endoscopy Followup Dr. Visit

Discussion in 'Fibromyalgia Main Forum' started by Mikie, Oct 11, 2006.

  1. Mikie

    Mikie Moderator

    Just an update as I saw the nurse practitioner for a followup to my endoscopy. The biopsy of the inflammed lesions in my esophogus showed nothing. They were healing when the doc saw them. I am scheduled for a nuclear medicine procedure called a hepatobiliary scan. It is supposed to show how the gallbladder is functioning. The ultrasound was normal but the symptoms are more like gallbladder than acid reflux.

    As long as I'm on the doxycycline, I am fine, no symptoms and no fever. As soon as I go off the doxy, the fever returns along with feeling sick and having pain.

    I can eat all the foods which are supposed to aggravate GERD with no problem. They are a bit flummoxed as to what this is. She did say that long-term use of ABX can cause these kinds of problems but again, that doesn't fit with what is going on with me. The doxy stops the irritation.

    I really don't want to have to have surgery but if it would get rid of this, it would be worth it. If it isn't the gb, I don't know what I'm going to do. The nurse said about all I can do is to see an infectious disease doc if this test doesn't do it.

    As I see it, most of us with these illnesses don't fit neatly into the little medical boxes that docs like to put us into. It just keeps getting curiouser and curiouser.

    Thank you all for your good wishes for the endoscopy. Just wanted to let y'all know what I found out or, more accurately, didn't find out. My next followup visit after the scan is the 31st. I told them that would be OK as long as I don't have to show up in costume. I'll let y'all know what happens after that visit.

    About the only good news is that I stopped at a sale and got things on sale for 50-70 percent off and than an added 40 percent off of that. Got a nice white short terry wrap robe for $5.04; it had been $27.99. These are great for the pool or after a shower. Got some $30.00 leather sandals for $8.99. I got a few other good deals too. I needed a little "retail therapy." It's even more effective when I don't have to pay retail prices :)

    Love, Mikie

  2. pam_d

    pam_d New Member

    ...if it is gallbladder, my sister just had hers removed early in the summer, and it was an easy laparoscopic surgery, with no further repercussions. In her case, she had NO symptoms; her gb disease was discovered in an x-ray she had for something completely different. Her doctor recommended removing it before it became symptomatic; he'd had a patient die from previously undiscovered gb disease that suddenly got worse (rare), and believed in being pro-active.

    Anyway, I think gallbladder surgery, like so many things, has improved a lot in the past few years. I do hope if it isn't that, they can at least zero in on the cause of your symptoms so that you can get some relief!

    [This Message was Edited on 10/11/2006]
  3. darude

    darude New Member

    Yes I heard GB surgery is much easier on you now. I had mine done 20 years ago with an exploratory. Have scar from below breast to navel and it's about half inch wide all way down NOT FUN. I had many stones and they kept telling me it was just indigestion. YUP. Also had appendix out and they told me before that it was just constipation. I was in a bay way both times when they found out what it really was. mmmmmmmm maybe thats why I have a major problem with these dd's and docs. Good luck
  4. Mikie

    Mikie Moderator

    I appreciate your support. I don't want surgery but it sure would be nice to know what it is and be able to get it out if if it is the gb.

    There is no food which causes problems as long as I'm on the Doxy. I haven't been eating greasy or fried foods but I did give in and have a cheeseburger with bacon this week and it didn't cause a problem.

    The pain and symptoms are more consistent with gb than with acid reflux although there was some inflammation and healing lesions in my esophogus. I suppose the belching caused by a sick gb could cause that.

    The one elevated liver enzyme is also consistent with gb. I guess I'll just have to wait until I get the test. If it isn't the gb, honestly, I don't know what to do. The followup visit isn't til the 31st. I would hope if the gb is sick, they would call the doc's office following the test. It cold get a lot worse by the 31st.

    Thanks again for your help.

    Love, Mikie
  5. Cromwell

    Cromwell New Member

    Glad to hear this. I hope they can sus it out. I wonder if you are having diffuse esophageal spasms. I used to get these, but I do have reflux too.

    Let us know.

    Love Anne -just posted another reply to you on my sed rate query too. Off to see another doc later on today as I do not want to be travelling and under stress till I see one.
  6. Mikie

    Mikie Moderator

    It may turn out to be some weird kind of gastric problem for which there is no easy answer (like most everything else we suffer with).

    One thing I know for sure is that I will never take another time release medication like Nexium or Aciphex. Both made my lower gut area burn, bloat and hurt soooo bad. Something in the Aciphex caused my Klonopin not to work last night so there I lay in horrible pain with racing brain and my pulse hammering like I was gonna blow up until 1:00 a.m. Heck Tums work better than anything the docs have given me.

    I'm going low fat to see whether this will help if it's the gb. I'm so bloated, I look as though I'm a pregnant old lady. Yikes!

    Love, Mikie
  7. Mikie

    Mikie Moderator

    That's exactly how they explained the way a sick gb will try to work, but it just goes into spasms. I've had what feels like a charley horse in the gb area and the pain is quite horrible. I hope if the gb is sick, it will do its thing when they scan it. They watch it for an hour, so if it's sick, it ought to do it.

    I hope you gb never acts up again. Thanks for the hugs.

    Love, Mikie
  8. Cromwell

    Cromwell New Member

    Have to agree with you on the Aciphes and other med. However, I have found that an OTC Prilosec, broken in half(perfectly ok to do this) just the half pill first thing in am, before food, is just fine and keep the acid at bay too. You can get OTC Prilosec on scrip too, I do.

    Everything else gives me terrible stomach problems.

    Love Anne
  9. Dee50

    Dee50 New Member

    I'm sorry you are having so much trouble and pain. I've done that GB scan and my GB was fine. They shoot some stuff thru a IV in your arm and it rates the level your GB pushes right? For me it was a very painful scan and I was sick for some days after it and it cost alot! I hope your GB is ok. If you can get someone to drive you there and drive you home after the scan. I asked for help here at this board and folks told me to eat beets. I did 3 or 4 times a day (canned red ones) and it helped me with the pain ect. I was to sick to get fresh beets. I'll be thinking about you.
    Love, Dee50
  10. Mikie

    Mikie Moderator

    I just read the fine print on the Aciphex and it is contraindicated if one is on an antibiotic. Both docs who gave me these samples knew that I was taking Doxy. It's amazing our docs don't kill us.

    Love, Mikie
  11. Mikie

    Mikie Moderator

    We must have been posting at the same time. The nuclear medicine office is very close to where I live. I've been injected with the radioactive isotope before for a stress test and scan and it didn't make me sick. If anything does, it will likely be the stuff they give you to make the gb pump. If it does spasm, it will likely be painful and you have to lie still.

    I will just be glad to get it over with and know whether it is a sick gb which is making me fell so lousy. I'm eating low fat these days and it seems to help. The foods which are supposed to make GERD worse have no effect on me. I suppose it could be some kind of gastritis. I'll let y'all know if I find out anything next week. Otherwise, it'll be the 31st.

    Thanks again.

    Love, Mikie
  12. First off, ty both (Anne? also) for mentioning Aciphex, and...I'm on (worthless/generic) Klonopin, for jerking & twitching, & shaking...great to know the Aciphex may affect it...I don't like the aciphex $$$ and I still have (possibly slightly *increased!* reflux..)

    2nd--RE: this gb test coming up, when they did mine (ejection fraction type thingy--) not only did I have spasms, but, I began to get soo nauseated, (and was pinned down by an X-ray machine that was just maybe* 2 inches above me!) I thought I was going to vomit--then choke on it, and I also began sweating profusely, then crying because I felt so terribly crummy, and it was also very very painful on my terrible back & S I joints... a nurse sat beside me, and asked me to describe everything I felt going on, as I'd been sick for 6 months already, my mother knew, and helped me tell her, that I was extremely sick to my stomach, sweaty, and having spasm pain. (I also ran a low grade fever, but, that continued for a long time after I had GB removed....)

    My gallbladder too, was perfectly healthy looking, but, the ? ejection fraction, or function level, was at 23% ? and normal should be at 30%...they took it out, only because I was vomiting all* the time, and had lost over 22 lbs, etc... the surgeon even told me, he was only 70% convinced this might help my problems, the other option, though, was to "treat you symptomatically".

    I was sooo sick I could not imagine doing that, they'd already gone through their "arsenal of drugs" on me, my 2nd gastro told me (I've now seen 3 here, and 3 others in Indianapolis for my pancreas scopes/ultrasound).

    Something that sent up a flag---you said tums helps better than anything---that is the only* thing that stops my duodenal/pancreas spasms (not always, but usually works.. NOTHING ELSE did, pancreatic enzymes did for a period of time, then stopped. Tums has been most effective (and those darned enzymes were $250-$315 a month, depending on which brand I was on!)

    I have erosive gastritis, duodenitis, and "some sort of pancreas dysfunction" that has in the past been treated like pancreatitis (I think it IS, because the pain began approximately 7-10 days after gallbladder surgery, and I began vomiting even more violently)

    I hope you can find the cause/cure/treatment for this, and I agree about the proton pump inhibitors, Protonix blew me up so badly I had gas type pains all the way up into my *Chest*.... none seem to work, and they are $$$$ they say now, on our local news recently, they can also be a bad thing, too little stomach acid, can cause cancer...

    Anyways, I wanted to say, the pancreas/duodenal spasms I have, *can* be quite similar to the gb pain, just over to the left ever so slightly. I also have liver probs sometimes, but, my bet would be gastritis/duodenitis--but the endoscopy should've shown gastritis, duodenitis sometimes has to be seen from a scope of ----the other end.. then* maybe check pancreas, but, yours should be healthy..... I was born with a divided (partially fused) pancreas, and like I said, trouble only started after GB surgery with the pancreas..

    Take care, hang in there, I know the pain etc is *awful* and wish you the best, and quick easy answers...

  13. findmind

    findmind New Member

    I'm sure you know Dr. Bell claims we actually have too little acid, not too much, and this prevents the sphincter between the stomach and small intestine from opening...ergo, acid in the esophagus!

    I just finished reading a MedPage report about Omega-3s that is fascinating...also went to a connected link that says they prevent pancreatitis! That's very important, and it can be fatal, I've heard.

    The lecture I read was pushing pharmaceutical grade, rx'd omega-3s; I am sure the pharmas want in on the billions to be made from supplements, and we'll be hearing of more and more "pure"/rx'd supplements soon! They did find very, very impressive reductions in sudden deaths caused by arrhythmias.

    Hope you get this issue resolved, know you must be feeling rotten with it! Prevacid cured my gerd and I don't have it anymore.

    Best to you on the 31st.

    There's always hope!
  14. Mikie

    Mikie Moderator

    I really appreciate your good wishes and info. It's very helpful. I should know by tomorrow if the gb is in really bad condition unless they won't tell me that. Otherwise, I'll have to assume it's not that bad and wait until the 31st for my followup.

    I'm doing better on the low-fat diet but even eating roasted skinless lean turkey breast bothers me.

    Again, thanks for your help. I'll update y'all as soon as I know anything.

    Love, Mikie
  15. carebelle

    carebelle New Member

    I had gullstones and had my gullblatter removed .
    My mom use to have some of the same symtoms as me but they said her gullblatter was just not funtioning,she did not have gullstones ,But we both had the same pains.
  16. Not only was my gallbladder "healthy, no stones, no sign of disease" etc (they took it out due to decreased function, 23%? and supposed to be 30% and they couldn't find any reason for the continual gagging & vomiting..)

    But, on ultrasound, or when it was taken out (don't remember, think it was ultrasound) found out my gallbladder was backwards....or upsidedown....some odd thing. LOL Oh boy, cuckoo, cuckoo...

    I reckon that goes right along with being born with a right ear deformity (the top folded over severely, had one surgery to correct it, with cartilage, needs another surgery to be "perfect" but, who cares about perfect? ;-)

    Also having basically 1 and a 1/2 pancreas'--or somethin'! LOL. I never knew that in the 13th week of gestation our *pancreas(es?)* fuse(s) together(WHAT!???) and mine didn't completely, I have pancreas divisum, or, a divided pancreas. The gastro specialist told me that at IU Medical Center. 7-10% of the population has this, and it can cause pain of an unknown etiology at any age, from *2 months* to 99+ years of age, and some people never have trouble, and they find the divisum, post-mortem at autopsy.

    Anyone else odd like me? LOL....I KNOW my brain is upsidedown & backwards too, :p

    Sending you well-wishes again Mikie, best of luck, & we'll all be here for the results post..

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