epstein barr results = chronic active

Discussion in 'Fibromyalgia Main Forum' started by young_gran44, Aug 4, 2005.

  1. young_gran44

    young_gran44 New Member

    i have had ebv symptoms for approx 12 years with some periods of constructive livelyhood. i push myself all the time and now am exhausted and feel i must give in. when i first had it, it was after a trip to spain and many trips to many doctors who looked at me like i had three heads and no neck. i spent approx 3 months in bed with 2 children crying because they were convinced i was dying. almost lost my job, but bounced back very slowly. recently was diagnosed with pneumonia and doc ordered ebv titers and came back chronic active along with the virus that causes walking pneumonia. what does chronic active mean, i was usually in the convalescent stage when i had tests done
  2. Mikie

    Mikie Moderator

    Usually lie dormant in the body but can reactivate whenever we get run down. They never leave once one has been infected.

    These viruses can reactivate and the infection becomes chronic. They can operate below the immune system's radar for years.

    More and more CFIDS specialists are using antiviral drugs and getting good results.

    Best of luck to you.

    Love, Mikie
  3. revlcb

    revlcb New Member

    Just today my PCP, said the same words, "chronic active EBV". In my understanding of EBV, as any other virus, it never leaves your body. It may lie dormant for every or it could flare (active). Yours and mine are chronically flaring (always active).

    I've been on an antiviral for 3 months now and remain so. It has worked a bit, such as less exhausted and much less tremors. PCP said that antivirals are a long road...so I keep on trucking.
  4. moxiepup

    moxiepup New Member

    Hi ladies, I also have CEBV I have been on Valtrex an ani-viral for over a yr off and on. I was suppose to stay on it all the time, I took like a 2-3mo. break from it and I got sick as a dog everything came back full force just when I thought I was getting a little bit better.

    I have FMS/CFIDS/CEBV I gave them in order that they came : ). I def would stay on those anti-virals if I was you guys, who knows what else might pop out!

    take care,

    gail
  5. Mikie

    Mikie Moderator

    TF's can train the immune system to recognize the EBV and go after it. I think a good way to go is to take the AV's and get the viral load down and also give the immune system a rest. Then, the TF's for three months. After that, one can pulse the TF's for several days every 4-6 weeks.

    TF's help increase the Natural Killer Cells in the immune system.

    Love, Mikie
  6. Dee50

    Dee50 New Member

    I feel for you. I remember crying and taking care of my 2 young kids. Sooooo hard. And many times over the years I too thought I was dying. I pray you have help with your kids. It is so hard to be the caretaker when you need some one caring for you because you are so sick and exhausted it is a circle I know well. You deserve a medal!
    I just started taking 4210 Viral Isode Combination. I'm with an D.O. Doctor.
    Dee 50
  7. bpmwriter

    bpmwriter New Member


    do you think it's overkill to take the anti-virals and the transfer factor at the same time? the ffc prescribes AVs and transfer factor to be taken together. do you see a conflict in this apporach??

    eddie
  8. young_gran44

    young_gran44 New Member

    what do you mean my d.o. doctor? i think i should probably start thinking about getting some of this documented more than it already is as far as doctors go. my neuro doc must not recognize cfs because he has put me through every single test there is from scans to nerve studies.

    my arms "spasm" every once in a while. it is like they weigh about 100 pounds and i cannot control motor movement. cannot write, pick up coins, etc. is that what you call tremors?

    please let me know
    [This Message was Edited on 08/05/2005]
  9. Dee50

    Dee50 New Member

    A D.O. Doctor is an osteopatic physician.They are fully quailified physicians licensed to perform surgery and prescribe medication. D.O.s receive extra training in the musculoskeletal system-your body's interconnected system of nerves, muscles and bones that make up two-thirds of its body mass.
    Hope that explains a D.O. Doctor
    Dee50