Equality For Us Younger People

Discussion in 'Fibromyalgia Main Forum' started by kmelodyg, Apr 19, 2003.

  1. kmelodyg

    kmelodyg New Member

    I have a pretty big beef. Last night I wrote a post describing my problems with not getting sufficient pain meds that will control my pain. Someone wrote back stating that my doctor was right in cutting my dosages because I was so young and that I will become addicted to them. I am 25, not 12!! My pain is just as bad as someone in their 40's or 50's. Yes, I do not believe that pain meds will cure me. But they have given me somewhat of a quality-of-life back. I'm not writhing in pain or throwing up because I can't stand it anymore. I am not looking to get high, I am looking for relief!! I understand the risks. I am not stupid. It is hard enough trying to prove to my doctor and the rest of the world that I am in so much pain, let alone a fellow peer from this board. I wish to God that I did not have to take these meds. They are horrible. But I do not have a choice. I am doing everything I can to get better. Please everyone, give us young-uns a break!! We are all in the same boat. We don't need to hear any discrimination from the people that we are looking to for guidance. Thank you.

    Kathryn
  2. Shirl

    Shirl New Member

    So sorry you were upset about a reply, but sometimes some of us are just trying to be helpful, but it can come across as being insulting. I am sure no one meant to be dictating to you as to what you should be taking for your pain.

    We have many members here who need meds to simply have some quality of life, and there are others like myself that are unable to take pain meds. But I don't tell anyone not to do what is best for them.

    Please understand we are all sick here as well as you, and sometimes some may get a little too motherly to younger members.

    Take care, and have a goodevening.............


    Shalom, Shirl

  3. kmelodyg

    kmelodyg New Member

    I do know that when people give their input it can sometimes be received in a negative way. I know that that person meant well. I guess that I am just having a hard time with all of this. I am not mad really, just frustrated with the world. I just want to be treated the same as everyone else. I know that if I walked into a doctor's office with FM versus a 40 year old woman with it, I would have a harder time getting heard. I know that all of us to some degree have had a hard time having people listen to us. FMS/CFS are difficult to prove. I just get upset when people mention ages when it comes to these issues. Age does not matter.

    Love,
    Kathryn
  4. evileva

    evileva New Member

    First of all, I would like to say that pain knows no age. I believe that you have the right to be as pain free as possible and if that means taking pain meds then so be it. If you are not satisfied with your doctor then I would look for a new one. I have read that if you are in pain and take narcotic pain meds your body may become dependent upon the meds, but that does NOT mean that you are addicted. That is something else entirely. My doctor has me on Vicodin and Oxycontin and if it were not for these pain medicines I wouldn't be able to function so stand up for your right to be pain free. Good luck.
    Eva
  5. kmelodyg

    kmelodyg New Member

    Hi! I don't know if you are going to read this. First of all, thank you for your reply. I know that you can relate because we are just about the same age. I used to be ONLY on Ultram too. I had to fight hard to get the meds that I have now. ANd the fight is not over. But I am getting there little by little. Unfortunatly I have been on Ultram for about 4 years. ANd they are basically useless at this point. I remember the days when a half of one was all I needed!! Second of all, I know this is going to sound wierd but, I just looked at your bio and your picture. You look EXACTLY like me!!! It is spooky! Every single feature except that I have brown eyes!! I wish that I had a way to send you a picture of myself!! I am going to have to show my boyfriend this, he is going to freak!! Sorry, I know it's wierd. Are you sure that you are not my long lost twin?? I also have endometriosis, and am worried about not being able to have kids. and have had symptoms since my teen years. We should e-mail each other! My e-mail address is in my bio. I hope to hear from you soon long lost sister!! Take care hon and thanks again!!

    Love,
    Kathryn
    [This Message was Edited on 04/19/2003]
  6. kmelodyg

    kmelodyg New Member

    Sorry, I thought my e-mail address was in there. I wrote down yours so that I can write to you. And I added mine into my profile. I will be writing you tonight just to make sure that I do not lose it (as I tend to do!) Anyone else can write to me if they want too. I love having lots of penpals!!

    Love,
    Kathryn
  7. sofy

    sofy New Member

    A dozen years ago in a flick of a switch I came down with pmr arthritis that caused me so much pain and lack of mobility I went from very active to bedridden in one day. After 6 months they finally decided it was pmr and said prednisone and nasids were the only treatment. In 3 days the pain was no longer the biggest thing in my life and I was able to get into a bathtub again and touch my knees. I was so greatful to be out of pain and doing things I never even thought about long term price of the treatment. I am now dealing with my thinning bones due to 2 years on prednisone. This was before the computer and I had no where to go for help but the Dr. If this happened now I would not do anything that would give me hell at 40 so I could have short term relief at 20 without trying everything I could benign first. Take pain medication if you have to but please dont quit trying to look for alternatives.
    I have feet problems too and have found how to manage them and can even take short walks without feeling like all the tissue on the bottom of my feet are tearing apart. It was all trial and error. I no longer let fashion dictate my footwear but proper support and feel good are my guides. I hope you can find a way to get a little control too.
  8. pam_d

    pam_d New Member

    I didn't read your original post, but I agree with you, this DD has no age boundaries! There are some here who are your age and may have had this since early childhood, so are twenty-year veterans.....then there are those like me (I'm 47) who have only been struggling with this for a few short years. Age shouldn't matter....I don't use prescription meds because my gut feeling is that my particular "brand" of FM goes back to years of underlying food allergies & leaky gut issues which have trashed my immune system, and eating a clean diet (no allergenic foods) and taking enzymes, probiotics & other supplements is the only way for me to ever get any better----and I figure it will probably take years. But I have never, and would never, make judgements about the medication choices people here make, no matter what their age is.......because I absolutely agree that some kind of quality of life is what we are all seeking! And we are all going to arrive at that place where our body feels well enough to enjoy quality of life via a slightly different path. I cheer for anyone here who has found that right combination of meds, or supplements, or both, that makes their life worth living again.

    Hugs,
    Pam
  9. wolflake46

    wolflake46 New Member

    Kathryn,

    You are right, this DD has no age discrimination. I have only had FM for about 5 years and I would hate to think of what I would be like if I would have gotten it at a younger age. I'm 47 now, and these past 5 years have been a living hell. I too can not get sufficient pain medication, that's why I am in search of a new rheumy, who knows more about FM and will give me something stronger. Good luck to you!

    Diane
  10. RedB

    RedB New Member

    I've been diagnosed with FM for 6 years now. I've had NO pain meds until about a month ago, and I can't imagine starting out as young as you and not having something in all those years to at least cut the edge of my pain like this is doing.

    It has allowed me to exercise more, and I am actually lifting light weights with BOTH arms!! My left arm is always in so much pain, that I've always been able to exercise everything but that. WITH the medicine, I'm now able to give it a bit of exercise.

    I hate to see you get involved with any of the heavy meds at your age, but if it's necessary to keep you moving, then so be it! Just make sure you use it to your body's advantage.

    Kathy
  11. Mikie

    Mikie Moderator

    I don't think I saw your original post either, but I want you to know that you ARE entitled to relief from your pain. Less than one percent of people with chronic pain become addicted to pain meds.

    What can happen is developin a tolerance and having to take higher and higher doses of the pain med. I always think it's best to think of the pain meds as temporary to use while investigating other methods of pain relief. The Guai treatment has helped many of us. Physical therapy which stretches the muscles and flexes them helps keep the pain down and also helps with maintaining flexibility.

    Magnesium is very good for muscle repair. The ZMA is very good for this and also helps with sleep. It is during sleep that our muscles are repaired.

    I have to take Klonopin in order to sleep and for anxiety and sensory overload. Many believe that this drug interrupts pain signals in the brain. I do think it also helps with pain. Klonopin is a benzo and long-term use of it does concern me, but I simply cannot function without it. One does not seem to build a tolerance to it as easily as to pain meds. One does, however, build a physical dependence on it and must be slowly weaned off it quitting the drug is ever attempted.

    Good luck to you in finding a doc who will take your needs seriously. I used a pain specialist who prescribed Morphine for my pain. It was what enabled me to get into other treatment to reduce the pain. I almost never need the Morphine anymore.

    Love, Mikie
  12. pinkquartz

    pinkquartz New Member

    i am sorry you can not get your needed pain relief.
    i have been ill over 20 years so i was in my 20's then and i was treated better by most doctors then, then i am now !!!!!
    so i guess it depends on other factors.

    i believe you should get the pain relief you need . this belief is stronger in me now than before because having been ill and in pain for so long i think why should you spend your life in suffering more than is necessary.
    yes you will be addicted, but you can deal with that later, what matters Now is the quality of your life Now.
    Well i am now addicted to a painkiller and thats something i will deal with but i have to live and no one can stand to live constantly in terrible pain.

    i hope i am not too ramberling but i felt you need to know that there are plenty of the "older" ones who agree with you.

    pinkquartz
  13. kmelodyg

    kmelodyg New Member

    Thank you to everyone who responded. I know that no matter what age we are, many of us (too many) are dealing with problems convincing our doctors of our symptoms. I am really not happy with the fact that I HAVE TO take these drugs. Sometimes they leave me feeling dizzy and lathargic. And other times, I can get on top of the pain AND be able to function. It is so random, and I am very tired of it. I can't plan anything in advance. I pray everyday for this pain to go away. I desperatly want my life back. I am in the beginning of my diagnosis. So, I know that it takes some time to get used to my body patterns and get into a helpful drug/supplement regimine. I have been resting all week, barely been able to get out of bed. I really wanted to go to my boyfriend's mother's house for Easter dinner today. But it was just not possible. I am trading my energy and clarity for pain relief. Sometimes I wonder which is better? I know that when I am in pain with no or little pain meds, I am suffering horribly. I HATE THIS, I HATE THIS, I HATE THIS!!!! I know that you all can relate. So many dreams and goals, pushed to the side... so sad. I just have to keep my head up and keep the faith. And I need to keep coming back here. You are all so loving and supportive. I really would not be able to do this without you. Thank you so much!!

    All my love,
    Kathryn
  14. sofy

    sofy New Member

    \the hardest part for me has been accepting I am not in control of how I will feel tomorrow. I have, after many months, accepted that as a fact. I can controll with what I do today, no matter how I feel, with what I do today. I'm a list maker and planner so now I have lists of bad day, good days and ok days. This has given me back an element of control over those things I cannot control and somehow that has made it more bearable to accept that I can have quality of life without being able to control the predictability of the morrow. I have also allowed myself to be entitled to have days that I call recharge the battery days.
  15. gottalottalove

    gottalottalove New Member

    I am in my 30's and so feel your frustration. I have been so discouraged and too am only new to this. It SUCKS but can be managed if you have the right pain control. I worry that Im going crazy and now thank God I have found this very supportive and InForMational high way. Ive only for a week and already have such a different outlook. I now know that people can live successfully with this fms for many years. I thought for sure I was doomed because so many symptoms and so unpredictable. What ever you need in moderation to get you out of bed and into the sunshine is worth maintaining at this point. I too have problems getting pain control from doc, so we are so in debt from going to E.R. because of this awful sickness. Keep up your spirit and reach out. The support is here! Happy Easter Tina