ER yesterday VERY SCARED

Discussion in 'Fibromyalgia Main Forum' started by CHefPaula1965, Aug 21, 2006.

  1. CHefPaula1965

    CHefPaula1965 New Member

    Good morning all!!!
    I was in the ER yesterday for me!!
    After Sunday School we were going to worship service...
    Instead of taking the elevator I climbed the 1 flight of stairs to the sanctuary!!!
    BIG MISTAKE!!!my legs started wabbling very badly and would not hold me up anymore............ it burned like fire!!!!
    DH brought us home and I rested........... by 2 PM it was getting to be too much... could not even get up by myself to go potty!!
    Called on call dr who ordered flexeral............ got the RX....by 430 no improvement AT ALL!!!
    DH sent kids to neighbor/friends house and took me to ER....
    They checked me out..... the dr asked me to "arm restle" him...no strength there.............no KIDDING I COULD HAVE TOLD YOU THAT BOZO!!!
    He gave me oxicodone and sent me home telling me I need to see a neurologist ASAP... gave me a name and phone number and sent me home.. Mind you I still can't walk!!!!!!!!!!!!!!!! he ran some blood test and said that
    everything was "perfect"............. that's it..........no dealing with my issues............ nothing!!!!!!!!!!!!!!!!! AND HE TOLD DH THAT FIBROMYALGIA
    is a catch all DX.......... they just have a name for something they dont understand!!!! (best of all DH agreed with him!!!!)
    I dont feel that I got the help I needed........... and I have GREAT INSURANCE!!! (not that the treatment should depend on that)
    Called neurologist today and they can't see new patients until 09/16 !!!!
    What the ................ ???????????
    I feel better this morning though VERY foggy with the RX....... I can walk.... legs still
    a little shaky............. I am scared to DEATH!!! What if this happens while I am driving???
    what if this happens again?????
    Please pray for me and have some suggestions PLEASE!!
    Thanks
    PAULA
    is this "normal" fibromyalgia stuff... haven't had anything this bad for all the time (8 years) that I have had FM!!!!
    [This Message was Edited on 08/21/2006]
  2. NyroFan

    NyroFan New Member

    Paula my dear,

    So sorry! It is amazing what we go through, especially with doctors who do not care. I had one doctor who told me that all I needed was a good multivitamin and I would be better.

    My suggestion: call every *^&$%^ neurologist in the yellow pages and lay it on hard and heavy how sick you are.

    I have problems walking due to the FM and have extreme leg pain where I have to sit down, but never an ER visit where I could not eventually get up.

    It is not a 'catch all disease' that the doctor said to you.
    You know that.

    Please let us know the results of this terrible experience and yes, you have my prayers.

    nyrofan
    [This Message was Edited on 08/21/2006]
  3. kirschbaum26

    kirschbaum26 New Member

    Dear Paula:

    So sorry you had so much trouble...and if the ER Doctor was a jerk, you just have to find a good one.

    Since the ER doctor told you to see a neurologist asap, you should call the neuro he suggested back, and tell them that you were seen in the ER and that Dr. X says you should see the neuro ASAP. If that does not get you an earlier appointment, I would call the ER back and explain your situation. Perhaps they have another neuro you could go to.

    Good luck.

    Ingrid
  4. JewelRA

    JewelRA New Member

    {{{hugs}}} and prayers being sent your way. I know exactly how you feel. It is terrifying. Friday I went to the doctor (almost went to ER, but doctor said to come into his office) thinking I was having a heart attack. It was terrifying. My blood work and EKG showed "everything was normal" too.

    I hope you feel better soon. Please take it easy and try to get more rest. Try to read or concentrate on something that lifts your spirits. Reduce all unnecessary stress.

    Did you make the neuro appt.? I am considering seeing one too.
  5. KateMac329

    KateMac329 New Member

    Hello,

    I am so sorry that this happened to you!!! It is scary and I am sorry! I am just glad that your husband listened to you and took you to the ER.

    I am in Alabama too!

    Hang in there!

    ((HUGS))

    kate
  6. NyroFan

    NyroFan New Member

    chefpaula:

    I just edited my reponse. I meant to say 'neurologist', not 'dentist'. My mistake. I hope you did not read it and say...Gee, that Nyrofan is a real dummy!'

    Take it slow, take it easy, eliminate nothing until you know for sure.

    nyrofan
  7. lenasvn

    lenasvn New Member

    From http://www.healthatoz.com/healthatoz/Atoz/ency/paralysis.jsp
    Paralysis

    Definition

    Paralysis is defined as complete loss of strength in an affected limb or muscle group.

    Description

    The chain of nerve cells that runs from the brain through the spinal cord out to the muscle is called the motor pathway. Normal muscle function requires intact connections all along this motor pathway. Damage at any point reduces the brain's ability to control the muscle's movements. This reduced efficiency causes weakness, also called paresis. Complete loss of communication prevents any willed movement at all. This lack of control is called paralysis. Certain inherited abnormalities in muscle cause periodic paralysis, in which the weakness comes and goes.

    The line between weakness and paralysis is not absolute. A condition causing weakness may progress to paralysis. On the other hand, strength may be restored to a paralyzed limb. Nerve regeneration or regrowth is one way in which strength can return to a paralyzed muscle. Paralysis almost always causes a change in muscle tone. Paralyzed muscle may be flaccid, flabby, and without appreciable tone, or it may be spastic, tight, and with abnormally high tone that increases when the muscle is moved.

    Paralysis may affect an individual muscle, but it usually affects an entire body region. The distribution of weakness is an important clue to the location of the nerve damage that is causing the paralysis. Words describing the distribution of paralysis use the suffix "-plegia," from the Greek word for "stroke." The types of paralysis are classified by region:


    monoplegia, affecting only one limb


    diplegia, affecting the same body region on both sides of the body (both arms, for example, or both sides of the face)


    hemiplegia, affecting one side of the body


    paraplegia, affecting both legs and the trunk


    quadriplegia, affecting all four limbs and the trunk

    Causes and symptoms

    Causes

    The nerve damage that causes paralysis may be in the brain or spinal cord (the central nervous system) or it may be in the nerves outside the spinal cord (the peripheral nervous system). The most common causes of damage to the brain are:


    stroke


    tumor


    trauma (caused by a fall or a blow)


    Multiple sclerosis (a disease that destroys the protective sheath covering nerve cells)


    cerebral palsy (a condition caused by a defect or injury to the brain that occurs at or shortly after birth)


    metabolic disorder (a disorder that interferes with the body's ability to maintain itself)

    Damage to the spinal cord is most often caused by trauma, such as a fall or a car crash. Other conditions that may damage nerves within or immediately adjacent to the spine include:


    tumor


    herniated disk (also called a ruptured or slipped disk)


    spondylosis (a disease that causes stiffness in the joints of the spine)


    rheumatoid arthritis of the spine


    neurodegenerative disease (a disease that damages nerve cells)


    multiple sclerosis

    Damage to peripheral nerves may be caused by:


    trauma


    compression or entrapment (such as carpal tunnel syndrome)


    Guillain-Barré syndrome (a disease of the nerves that sometimes follows fever caused by a viral infection or immunization)


    chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) (a condition that causes pain and swelling in the protective sheath covering nerve cells)


    radiation


    inherited demyelinating disease (a condition that destroys the protective sheath around the nerve cell)


    toxins or poisons

    Symptoms

    The distribution of paralysis offers important clues to the site of nerve damage. Hemiplegia is almost always caused by brain damage on the side opposite the paralysis, often from a stroke. Paraplegia occurs after injury to the lower spinal cord, and quadriplegia occurs after damage to the upper spinal cord at the level of the shoulders or higher (the nerves controlling the arms leave the spine at that level). Diplegia usually indicates brain damage, most often from cerebral palsy. Monoplegia may be caused by isolated damage to either the central or the peripheral nervous system. Weakness or paralysis that occurs only in the arms and legs may indicate demyelinating disease. Fluctuating symptoms in different parts of the body may be caused by multiple sclerosis.

    Sudden paralysis is most often caused by injury or stroke. Spreading paralysis may indicate degenerative disease, inflammatory disease such as Guillain-Barré syndrome or CIDP, metabolic disorders, or inherited demyelinating disease.

    Other symptoms often accompany paralysis from any cause. These symptoms may include numbness and tingling, pain, changes in vision, difficulties with speech, or problems with balance. Spinal cord injury often causes loss of function in the bladder, bowel, and sexual organs. High spinal cord injuries may cause difficulties in breathing.

    Diagnosis

    Careful attention should be paid to any events in the patient's history that might reveal the cause of the paralysis. The examiner should look for incidents such as falls or other traumas, exposure to toxins, recent infections or surgery, unexplained headache, preexisting metabolic disease, and family history of weakness or other neurologic conditions. A neurologic examination tests strength, reflexes, and sensation in the affected area and normal areas.

    Imaging studies, including computed tomography scans (CT scans), magnetic resonance imaging (MRI) scans, or myelography may reveal the site of the injury. Electromyography and nerve conduction velocity tests are performed to test the function of the muscles and peripheral nerves.



  8. lenasvn

    lenasvn New Member

    Look at the Diagnosis part of the article!! The neuro didn't do one iota.

    Any new symptoms should be investigated-even for Fibro patients! If he misses something because of neglect he is doing malpractice.
    [This Message was Edited on 08/21/2006]
  9. CHefPaula1965

    CHefPaula1965 New Member

    Thank you all for your kind responses....
    last week, all week I had an extreme head ache with a
    "bulging nerve" kind of felling that went down the left side of my neck to my shoulder
    (for those of you who have migraines it's kinda like the throbbing we get at our temples, only worse)...
    I totally agree with you that the dr should have run more tests..............
    now, to make matters worse... my PCP ofice STILL has not called me back from when I called this morning stating that I had been in the er not being able to use my legs at all).....
  10. lenasvn

    lenasvn New Member

    Don't you wish you had an advocate to come with when we see our doctors/ call them?

    Not that we can't be vocal,but it's harder to pull the "just FM"- crap to an outsider if you know what I mean!! Not a family member, but an advocate.

    Hugs, keep calling that doc, be a pain in the rear!

  11. CHefPaula1965

    CHefPaula1965 New Member

    I finally go hold of my PCP..
    we will be calling a neuro for me!!
    YEAh!!!!
    hopefully I can get in soon!!!
    Hugs to all you wonderful supporters!!
    Paula
  12. lenasvn

    lenasvn New Member

    Amazing, good for you! Sometimes it pays of being a pest! LOL!
  13. AbbeyMae

    AbbeyMae New Member

    Chef paula:

    Last year I ended up in the ER for horrible abdominal pains.
    I did not take any meds for most of the day because I was hurting all week-end and Sunday no meds in case they were eating a hole in my stomach.

    At least that was one of my thoughts. I was about screaming in pain in the waiting room. Hospital is brand new and not too busy but they had a Pt. pass away. Things were hectic, so to say.

    They got me in and when the Doc got around to see me he pressed on my stomach and it hurt everywhere, not one side more than the other. I remember the pressure being unbearable.

    This particular visit, the Doc was not negative on the fibro. They asked me if I ever had a reaction to the dye in a cat scan. I only had one prior. I said no, but did not think to tell him about my sensitivities to red dye because my PCP and I was not real sure of it. I had a problem with an orange colored Oxycodone 5mg, but the generic Ethex was also in question.

    Anyway I had the cat scan and finally a shot of morphine. then I had an emergency appendectomy. They performed a laparoscopic surgery and removed my appendix. Recovery room went well and up to my room that early morning.

    That day was ok until the anesthetic wore off. they did not give me any medication that was stronger than I was already taking. Then ready for bedtime, approx. 7-8 hours after surgery no flexeril and I took 2--10mg at bedtime. and where was my Klonopin? I was up and cried all night.

    I was partially paralyzed. I had to pick my legs up with my hands and arms to get them on the bed. Absolutely no muscle control. I could not lift my legs themselves. Scary, then my legs swelled, you could not see my knees.

    All I wanted to do is get out of there and said nothing, but the Pt. Care Tech. knew I was in terrible pain and had no sleep.

    I called my roommate at 4am and told him to bring my purse as soon as visiting hours began--8am, for my meds.

    They goofed on the Klonopin. One upon waking, duh! By that time, it did not even help me dose off or take a nap. I was suppose to have it at bedtime. Plus I took two a day--2 1/2 of tablet as needed and 1 tab at bedtime.

    My roommate stayed there until they released me, at 4m--too late to pick up my script at PCP, which was due that day.

    Went home and luckily I has some pain pills left over until I could get the script the next day. Well when at home I still could not lift my legs on their own. I could walk but had to pick up my legs with my hands to put them on couch and bed, and they were still swollen.

    Took a couple days before they came back to normal w/ the swelling to go down. When I saw my PCP I told him all about it.

    My next scheduled cat scan on intestines, he had ordered "no dye, contrast". So was it the dye? Was it the gas stuff that they use to inflate abdominal area for laparoscopy?

    I had just had a vaginal hysterectomy w/ bladder suspension 4 months ago and did not have any reaction to the anesthetic. Still do not really know. I just knew that that hospital did not have it together, will never go there again.

    And prior to this ER visit, I had an experience with a female ER physician at an earlier date about her asinine opinion of fibro. I cut my self w/ a knife piercing a potato and needed stitches.

    That ER Doc said the exact phrase "Catch All". Pi###d me off. My mobility was and is most of time impaired. I am so careful now and ask for help from roommate when I use a knife. I have almost cut my fingers off from slicing and dicing.

    What is the deal w/ these ER Docs. Good thing that you have an appt. w/ Dr. I hope everything goes well for you.
    Even if it goes back to normal like mine did, it still would be nice to know of why you were that way in the first place.

    Love and hugs,

    AbbeyMae
  14. PVLady

    PVLady New Member

    If you are having a problem walking it might be coming from your spine. Maybe you need a MRI of your spine to see if your nerves are pinched.

    With good insurance I would keep calling until I got into a good doctor. Normally your primary care doctor can get you in right away to a specialist. Why don't you ask them to help you get a appt. sooner.

    When my husband needed a back surgeon, the doctor called and he was seen the same day. Also MRI was done that same afternoon. It can be done if someone would care. Be persistent..

    If there a teaching hospital close you might call a specialist there..

    Good Luck...
  15. CHefPaula1965

    CHefPaula1965 New Member

    Good morning!!
    I am home again today... my daughter is sick... but I am still in pain..............
    My whole back bone is killing me... feels like someone is grinding it!!!!
    AbbeyMae, it sounds like your hospital experience was from h*ll!! I am sorry you had to go th rough that...
    In the mean time I will be calling the hospital patient care relations and giving them a what for!!
    Cyber hugs to all
    Paula
  16. Cromwell

    Cromwell New Member

    It does sound very much like this dd and "normal" although it is always worth geting checked out.

    Neuro's are hard to get to. The wait luist here in Upstate NY is 5 months minimum, just to see family doctor it is usually 3 weeks.

    Mad, isn't it.

    Hope you feel better soon.

    Love Anne Cromwell