ErikLake Tahoe Connection?

Discussion in 'Fibromyalgia Main Forum' started by jmcdelaney, Feb 22, 2007.

  1. jmcdelaney

    jmcdelaney New Member

    Hi again Erik,

    I read your bio and yet again intrigued because my symptoms all started a couple years ago after a visit to Donner (in Tahoe; you know, the canibal party) followed by traveling to Reno.

    Can you tell me more about this?

    Thanks again, Joann

  2. jmcdelaney

    jmcdelaney New Member

    Ok...next trip to Denise's cabin there will be no hiking, no jet skiing, no swimming, yada yada yada...I'm haning out at the bar!

    Thanks again for the info, Joann
  3. mrdad

    mrdad New Member


    I just came across this Post and have had a great inter-
    est in the subject matter as I (Although) a native San
    Franciscan, lived in Plumas county from 1973 to 1982.
    I have CFS that within the past few years has manifested
    itself. Likewise I have a genetic blood disorder that
    displays very similar symptons.

    It is difficult, but I'm possibly leaning toward a poss-
    ible theory that it very may well be related to "ticks"
    and a lyme like disease. Both my Children were born in
    the Mountains and although we moved down to the Valley
    in '83, my Daughter has been unexplainably diagnosed with
    Lyme about 12 years ago. I took ticks off my animals
    and at least on one ocassion, off of myself at one time.
    I am going to have the Ignex test done in Palo Alto very
    soon as I understand the disease can remain "dormant" for
    years only to appear later.

    I believe, but you know better than I, that there was a
    similar outbreak of "yuppie flu" on the Eastern Seaboard
    (the Carolina's?). Another area with heavy "tick"populat-
    ions. The reference you make to Mosquitos is likewise an
    interesting thought! Did the CDC ever make any connection
    to "ticks" or other insect borne possiblities?

    Luckily, my Daughter was treated with heavy doses of anti-
    biotics from one of the foremost research Docs on the
    Lyme problem. She is in Grad school and is doing well
    but still is effected by the malady.

    I will make a point to read the Book on the occurance in
    Tahoe! I've been to that Alder site more than once as
    I lived only about 25 mins. West of it. T.V. had a great
    Documentary on the subject and you are correct about the
    Donner's and the two camps apparently had little contact.
    The standard joke was that every Spring the Forest Serv.
    would go back to the Alder Creek Camp and "re-do the Wagon
    ruts" for the Summer tourists! There are lots of descend-
    ants that meet for a reunion of sorts I believe yearly.
    Lots of "Vegan" food I understand?

    Thanks, Erik, so much for your input on this matter!
    JOE

  4. rockyjs

    rockyjs Member

    Erik, it's interesting that you mention the mosquitoes. When I got West Nile Virus in 2003 in Colorado those of us who got sickest were healthy adults, average age 40-60, bikers, hikers, campers, gardeners, etc. Very few couch potatoes...

    One of the theories now is that for those of us who developed severe neurological symptoms it was our own immune system that did us in, and yet 1/3 of us tested negative for IgM antibodies for up to 3 months. It's a very similar story to the outbreak around you.

    The CDC had a research lab in northern Colorado where they got the brunt of the cases and they had been studying West Nile Virus in mosquitoes. I talked to someone who worked in the lab and found out they had mosquitoes from all over the world with different strains of WNV...when I asked how they could be positive that none of them could escape and begin breeding they said there were safeguards in place and they were very careful, but there is no absolute guarantee.

    Like you said, who knows what weird type of viral or even stealth bacterial infection may have been communicated through mosquitoes in Nevada. CFS often starts with meningitis or encephalitis in some form, often with flu-like symptoms just like we had with West Nile.

    Research seems to indicate that there was a common genetic component in those of us who got neuroinvasive West Nile, and oddly enough that same genetic "defect" makes us resistant to HIV infection.

    Jan
  5. pirtpain

    pirtpain New Member

    I was shocked to read this. I had read along time ago that this whole thing began in Tahoe but am blown away by your story. My sister has a condo in Kings Beach. She did not have it when I developed FM but the discription of both of our " traits/personalities " is right on the money. I also have friends in Truckee, but no link there. Thanks so much for the story, it is something to keep in mind.

    Pirt