EVERYbody post!!!

Discussion in 'Fibromyalgia Main Forum' started by EgyptStarr, Nov 8, 2005.

  1. EgyptStarr

    EgyptStarr New Member

    I don't know when the last time was that anyone did this, but I just returned to the boards here last night, so I'm going to initiate one now. These are so interesting, I think!
    Everyone please tell what you have (specifically) and any symptoms you experience. Thanks!

    Here's mine:

    CFS and Fibro. Since many symptoms are the same for both illnesses, I'm just lumping them together here:

    -Extreme daily fatigue

    -Strong but usually dull pain in neck, shoulders, upper back

    -Headaches that seem to be triggered by something in my neck

    -Severe Psoriasis all over scalp

    -Eczema on the backs of fingers


    -Memory problems

    -Frequent dizziness

    -Concentration problems

    -Sacroilliitis (inflammation of the ligaments connecting the tail bone to the hip bone... VERY sharp pain when this hits!)

    -Loose joints in toes and sometimes fingers that allow them to dislocate themselves when muscle spasms in these areas occur

    -Brain fog

    -Low immune system; get sick very easily and illnesses last twice as long as they seem to for "normals" (Also, injuries, even something as tiny as a scratch, take a LONG time to heal!)

    -High tolerance to meds; many don't work at all, and those that do require double doses and then gradually stop working altogether

    -All-over/generalized body weakness

    -Allergies (mostly seasonal/hay fever)

    -Respiratory problems (asthma as a child... now frequent bronchitis)

    -Irritable Bowel Syndrome (constipation)

    -Strong sensitivity to temperature changes; I usually feel colder than everyone else, but being outside in the summer heat is torture for me! I rarely go outside in the summer. I hate the heat and am very susceptible to heat exhaustion.

    -Herpes simplex (fever blisters)

    That's all I can remember for right now.


  2. goaska29

    goaska29 New Member

    Well considering the current time on the East Coast (2.45am) I think #1 should be:

    -Insomnia (disturbed sleep--almost no deep (delta?) sleep
    -Brain Fog (so I may forget a few symptoms..heehee)
    -Fatigue (not entirely bed-ridden, but enough to make me constantly need to lie down)
    -Low blood pressure
    -Neurally Mediated Hypotension (dizzy rush when first stand)
    -Low body temp (almost never above 97 degrees)
    -Allergies (many food and seasonal--and now simple mosquito bites become huge welts???)
    -Frequent Dizziness
    -Occasional sharp lower back/hip pain (lasts several days then disappears for awhile?)
    -Very low estradiol levels
    -Swollen lymph nodes
    -Frequent Ear Infections and/or Strep Throat
    -Frequent headaches

    Whoa...I sound like I'm 95. I think that's it though...for now.

  3. EgyptStarr

    EgyptStarr New Member

    Thanks for reminding me, goaska29!

    I also have low body temp (rarely reaches 98), and anxiety.

  4. Fudge43

    Fudge43 New Member

    ... I have never asked my doctor about the low body temp issue .. mine was usually around 97 .. but no one had ever made a comment about it and I didn't think to ask .. now I'm wondering .. but since I have been on Synthroid for some time may be it is normal now ?
    Thanks for bringing that up again !
    Fudge : )
  5. Bambi

    Bambi New Member

    my symptoms. It seems like it has touched every part of my life and body.
    Neck and upper back pain
    Lower back and hip pain
    Pain in shins, ankles and feet
    Wrist and hand pain
    Upper arm pain
    Allergies to everything
    Too sensitive emotionally
    Low body temperature
    No tolerance for heat
    Brittle nails
    Thinning hair, all T's normal
    Major sleep problems before Trazedone
    Head aches
    Minor injuries cause severe pain
    Bruise easily
    Swollen lymph glands, sore throats
    Red throat
    Lack of stamina
    Low threshold for anger
    Rashes from stress, skin erruptions
    Worst: all over body pain, flu like
    Every day is a new day with some things that hurt daily and some that come and go or move. No tolerance for stress anymore.
    Nausea at times.
    IBS (constipation--life long)
    There's more but I can't think yet, too early.

  6. Braingonebad

    Braingonebad New Member

    I'm newly dx'd - and not sure fms is the correct dx. I'll post, and some are the same as a lot of yours, some are not at all similar.

    Chronic migraine/daily headache
    Neck, upper back/shoulder blades - pain and spasms
    Vertigo since Feb.
    Fall down for no reason
    Burning - from sunburn to *I'm on fire!* - bottom of feet, thighs, lower back

    Travelling pain

    Feeling like bugs are crawling on me or stinging me - moves around

    Muscle twitches - right eye is constant, arm muscles on and off bad enough to make me throw my fork or water bottle.

    Lost use of left hand for 4 days due to weakness and pain - nearly normal EMG on that.

    Low BP

    Low body temp.

    Raynaud's syndrome & livedo riticularis (cold hands and feet with skin discoloration) Comes and goes

    Never get sick - no cold or flu, etc, in over 10 years.

    Cold sensitivity - more pain and fatigue

    Heat sensitivity - blurry vision and worse vertigo. more *buggy* sensations and feels like water is being splashed on my legs

    Arms/hands go numb if I lift too much

    crushing bands of pain in fore arms, now in upper arms - had ESI's for this, think it's spine-related

    Can't feel hot/cold in finger tips
  7. tamsyn

    tamsyn Member

    Well, here's the stuff I can think of at this moment:
    chronic severe insomnia
    pain that moves all around my body
    extreme fatigue and weakness
    no stamina
    breathless, dizzy on exertion
    burning fever feeling (not dependent on external temp)
    hypothermia chilled feeling (not dependent on externals)
    headaches that last for 36 hours straight
    numness, tingling
    burning hands and feet
    heat and cold insensitivity
    hyper-sensitive to noise and light and motion
    ringing in ears
    feeling like insects are crawling on skin
    low tolerance for stress
    disordered hormones
    chest pain
    blurred vision on exertion
    seizure-like brainwave and muscle activity at night
    brain fog, poor concentration
    hit extra hard by colds/flu
    lose weight very easily and am thin
    irritable bladder
    shortened knotted muscles
    And, thanks to all of above, I've lost 2 jobs plus a 9-year relationship in the last seven months. I have no medical coverage and spent 25% of my total (very low) income on medical expenses last year.
  8. beth0818

    beth0818 New Member

    CFS .....

    never rested after sleep
    brain fog
    bone aches
    extreme thirst
    upset stomach
    no short term memory
    sometimes extreme fatigue
  9. Angel6801

    Angel6801 New Member

    Here is my symptoms...

    Dizziness (lighthead and veritgo)
    Heart raced
    nerve pains in legs, arms (included hands) and back
    Frequent UTIS
    tingling in face,arms, legs, and back
    joint achy in fingers and sometimes in my knee
    Dry eyes
    tired all the times
    sensitive to cold*hard to keep myself warm*
    problem with focus
    Senstive emotions
    Ear ringing
    Feel like losing balance

    Everything comes back normal. I had been taking EMG, blood works, mri for my brain, eeg, and everything comes back normal except for high level of EBV, two cysts in my thyroid, one cyst in my left side of face (not sure where the location is but it caused me a lot of stuffy nose), I have two small lesions in my brain but not enough evidence for MS. OH I already took tilt test which I passed out so I can't stand in one position for more than 30 minutes.
  10. wangotango

    wangotango New Member

    fatigue on a daily basis
    headaches i would almost kill my self over (take oxycontin)
    joint pain
    sleep from 5am until 10 am if at all
    shortness of breath upon doing anything
    low self esteem
    thanks all i can think of for now
  11. Bailey-smom

    Bailey-smom New Member

    Some of the symptoms I have are –
    - “sometimers”, some times I remember, some times I don’t
    - headaches
    - constipation
    - pain in arms, neck, chest, upper & lower back, hips, legs & feet
    - depression/anxiety
    - difficult time getting to sleep & do not sleep well once I do get to sleep
    - extremely moody
    - extreme fatigue