everyone needs to READ THIS ....GREAT NEWS.......

Discussion in 'Fibromyalgia Main Forum' started by carebelle, Aug 30, 2006.

  1. carebelle

    carebelle New Member

    This is great news for all of us they do believe and will help educate about CFS .(Thank God!)
    Your thoughts Please............

    AAPA Joins Partnership to Build Awareness
    Of Chronic Fatigue Syndrome

    By BOB MCNELLIS, PA-C
    AAPA (American Academy of Physician Assistants)
    is working with the Chronic
    Fatigue and Immune Dysfunction Syndrome
    (CFIDS) Association of America
    and the Centers for Disease Control
    and Prevention (CDC) to create public
    awareness about chronic fatigue syndrome
    (CFS).

    New research is changing the way
    the public views CFS and the way
    health care professionals diagnose and
    treat it. To help educate PAs and other
    health care professionals, CDC and
    CFIDS have created a CFS Toolkit.
    More information is available on the
    CDC (www.cdc.gov/cfs/) and CFIDS
    (www.cfids.org/default.asp) Web sites.
    On the CFIDS site, there is a link to a
    Web-based continuing education program
    where PAs can obtain two hours
    of free CME credit upon completion.

    According to CDC, there are several
    reasons PAs should be knowledgeable
    about CFS. At least one million
    Americans have CFS. Fewer than 20
    percent of Americans with CFS have
    been diagnosed. The low rate of diagnosis
    supports a need for increased CFS
    awareness among individuals experiencing
    the symptoms of the illness and
    among providers throughout the health
    care system.

    CFS can be debilitating. By definition,
    all CFS patients are functionally
    impaired. While symptom severity varies
    from patient to patient, CDC studies
    show that CFS can be as disabling as
    multiple sclerosis, lupus, rheumatoid
    arthritis, heart disease, end-stage renal
    disease, chronic obstructive pulmonary
    disease, and similar chronic conditions.

    CFS also has a severe economic impact.
    The economic impact of chronic fatigue
    syndrome in the United States is estimated
    to be $9.1 billion annually in
    lost productivity, not including medical
    costs or disability benefits.

    In several recent research studies
    funded by CDC, common barriers to
    diagnosing and treating CFS were identified
    among primary care practitioners,
    including family practice physicians,
    internists, nurse practitioners, and physician
    assistants. Overcoming these
    obstacles can increase diagnostic rates
    and improve therapeutic outcomes for
    CFS patients. The most common obstacles
    identified were

    • Uncertainty about whether CFS is
    real. After more than 3,000 research
    studies, there is now abundant scientific
    evidence that CFS is a real physiological
    illness. It is not a form of
    depression or hypochondriasis.

    • Uncertainty about how to diagnose
    CFS. Although there is no laboratory
    test or marker to identify CFS, there
    is an international case definition for
    chronic fatigue syndrome that provides
    a reliable diagnostic algorithm.

    • Uncertainty or hesitancy about making
    a diagnosis that may contribute to
    the illness. Validating a patient's illness
    experience may have therapeutic
    value and reduce the cycle of frustration
    between patients and their health
    care teams.

    • Uncertainty about how to treat CFS.
    Although managing CFS can be
    challenging, there are a number of
    therapeutic strategies that health professionals
    can use to tailor a multidimensional
    treatment program.

    CFS is challenging to diagnose and
    treat properly, but it is important for
    physician assistants to have the correct
    information to help educate patients and
    provide the highest quality of care.
    [This Message was Edited on 08/30/2006]
    [This Message was Edited on 08/31/2006]
    [This Message was Edited on 08/31/2006]
    [This Message was Edited on 08/31/2006]
    [This Message was Edited on 09/03/2006]
  2. carebelle

    carebelle New Member

  3. Pianowoman

    Pianowoman New Member

    Thanks for posting this, Carebelle. This is an exciting step forward in educating health care professionals about our illnesses. May it continue!!

    Kathy
  4. carebelle

    carebelle New Member

    so people get this great news
  5. carebelle

    carebelle New Member

  6. angiecw71

    angiecw71 New Member

    Wow carebelle, thanks so much for the info.I am glad to know that PA's are going to be more aware of CFS and the seriousness of it. Being educated about CFS is the best tool a PA could have. Wow, I was also surprised at the amount of money that was being spent on it when that didn't even cover disability benefits etc.

    Thanks,
    Angie
  7. carebelle

    carebelle New Member

    I learn something everyday about this terrible DD.

    This was a good thing to learn .Help me keep it bumped
  8. tata1580

    tata1580 New Member

    bumping for carebelle!!!
  9. Marta608

    Marta608 Member

    Good. Now I wonder how fast they can get the word out?

    Isn't it interesting? We're as anxious for respect as we are for a cure.

    Thanks, Carebelle.

    Marta
  10. spacee

    spacee Member


    We need to all know about this.

    Hugs,

    Spacee
  11. carebelle

    carebelle New Member

    Im not sure how to do that
  12. retrogirl

    retrogirl New Member

    A few years ago I was forced by my health plan through Medicaid to pick a primary health provider.I picked a Physicians Assistant who was recommended through a empathetic OB/GYN in the same facility.I realized after a while that the PA had no idea about CFIDS/Fibro or Chemical Sensitivies and seemed unwilling to learn.I sent her some info with her permission and in spite of that she would say the same things each time she saw me"I don't know anyone else that has CFIDS" or " I don't know what to do for you".She always treated me like she didn't believe I was really sick,but never said it.I finally switched Drs.,but it took a while because I couldn't find anyone thru my health plan that even knew what I was talking about.The doctor I have now is at least familiar with my illnes (his brother is a chiropractor)Altho he can't really treat me for Cfids,etc at least if I need him for something else I don't feel totally humiliated.I just hope that some of these people will be open to being educated.
    Thanks for the article.
  13. carebelle

    carebelle New Member

    That was one PA and Its like the Doctors many of us run into .I'm sorry you had a bad experience with one. Just do not judge them all for one persons failings.

    This is wonderful news that a whole group of people in the medical profession are willing to learn more and try to help us. Maybe they were humble enough to admit they did not know enough about CFS and now they are willing to learn .CME classes are continuing educational classes they will need to keep their licence renewed.So everyone wins with this approach.

    you never know maybe he PA you had requested more information on it after you stop going.Life is strange like that :)
  14. carebelle

    carebelle New Member

  15. jole

    jole Member

    I go to a PA, and she is more willing to listen to me than any MD has been. BUT is uninformed. She asked me also to help inform her. She is very interested, but of course, they have to be backed by a MD and hers IS NOT interested. SOOOOOO there are a lot of interesting combinations out there.

    It is all a catch 22 and we're still stuck in the middle. The info is great, and will make a difference down the road. In the meantime...we keep on going on.
  16. carebelle

    carebelle New Member

    Give the above information to your PA and pass on how PROUD we are of them .She can get more information thu AAPA and she can take the corse for Education.She seems like a more careing person then the Doctor she works for.

    This problem with her Doctor is probably EGO he might have to admit hes been wrong by not being aware of this DD being real.

    We may find educated PA's more valuable then even our Doctors concerning CFS.They will also be learning from people like us who know we have it and can give them our experience with what we have been liveing with for years.

    I am very excided and think that they may be our KEYS to linking the causes of this DD.Thank GOD someone is finely and publicly trying to help us
  17. carebelle

    carebelle New Member

  18. Leaknits

    Leaknits New Member

    Great news, indeed!! This isn't just great, it's terrific.

    I do wish, though, that there had been some way to involve our drs in this CFS education.

    My current dr (I don't think he has a PA) also doesn't have the first clue about the d'd. He told me, when I came right out and asked him, that he has "several" patients who have CFS...so why in the world does he keep trying to treat me like a person with mental problems, and seems to think that's all there is to CFS??

    I'm fwd'ing your post to e-mail friends who get CFS treatment through PAs.

    Thank you!
    Lea.
  19. kholmes

    kholmes New Member

    Thanks for posting this. I didn't know what the AAPA was before your post, but good for them.

    Marta: "We are as anxious for respect as we are for a cure."
    Well put, and isn't THAT the truth.

    Kholmes
    [This Message was Edited on 09/01/2006]
  20. carebelle

    carebelle New Member

    Tell your Doctor he needs to get a PA to work for him. :)