exercise? when I hurt so bad it is hard to function

Discussion in 'Fibromyalgia Main Forum' started by faithinlove, May 23, 2009.

  1. faithinlove

    faithinlove New Member

    How can the doc tell me to exercise when I hurt so bad. Brisk walking, cardio workouts, when it is hard for me to clean house and keep up with what my responsibilities at home. She gave me Talwin, cannot take, up restless,cannot sleep, so there that goes down the drain.
    OMG I do not know what they expect of me? I am trying so hard to fight this stuff with all of my being.
    Can't they see I am in incredible pain with this and cannot find anything to help me as far as the pain? I do not want to be on meds but if it can help me function and feel better then I feel it would better my quality of life as well as those around me.
    I am sorry to be talking like this but you are the only people that seem to understand me and what I feel!! I cannot stop crying.
    I want me back, the old me, the strong,energetic and independent woman that I was? How do I find me in this pain that I feel and some people do not think it is even real and the ones that do sometime I think they do not really even know what to do for me. All of them seem different.
    I am so sorry that I am talking this way, I just had to get it out and cannot stand to be a burden when I once was the strong one.
    I just want to know if anyone understands my words on the of rambling this post? What do some of you take for the awful pain of this?
    I love you guys, I am just sad right now.
    [This Message was Edited on 05/24/2009]
    [This Message was Edited on 05/24/2009]
    [This Message was Edited on 05/24/2009]
  2. Debra49659

    Debra49659 New Member

    I understand everything you have written...I too was the go getter, the strong one, type A person and always on the go.

    Its hard to be reduced to this person that I don't even recognize.

    I also have been on the roller-coaster of medication. I take Lyrica and Talwin for the pain. Talwin I take just a very low dose as it's been shown to help some of us with FM. So far it hasn't helped me except in the sleep department. I am finally getting better sleep.

    I was so upset when my PCP kept on about the exercise. I couldn't believe that she couldn't understand how much pain I was in. I talked to my specialist about it and he talked to me about it in terms I could deal with...like walking in place, or on a treadmill for 10 minutes a day or more if I can, and light stretching movement. I found a yoga book on E-Bay that is for people with fibromyalgia and those poses can be done in a chair.

    Those things I could do...and I do think they have helped by keeping my muscles a little loser and not so tight. I do them whenever I can...I set the pace.

    The rest of it...the pain, the sadness, the overwhelming sense of loss, I can't control it. I deal with it as best I can. Some of the best therapy is here though isn't it with people that can understand what we deal with everyday. Yes Faith I do understand, and I am here to help whenever I can:)

    Gentle Hugs (((((Faith))))),
  3. Janalynn

    Janalynn New Member

    I understand, we all do. Exercising..that's my goal- to at least take a walk in the evenings WHEN I CAN. There are some days that there's no way. By the time I get home from work, I'm on the couch. The days I have off, I'm on the couch.

    I don't know what Talwin is. Is it pain medication? Are you on any pain medication? If not you'll probably find some immediate relief if you can take some. For those of us who are on it - it does help to some degree - I'm at the point that not much helps. I think I've built up a tolerance and I'm not going any higher at this point. My doctor told him (and my rheumy) that I'll most likely have to take something for the rest of my life.

    Can you go to a pain mgmt clinic? I could NEVER make it through the day if I didn't have something to help control the pain.

    Lately, I've had my worst days so far and in the same week, I only needed my meds in the morning, then before bed. There is no rhyme or reason to why I feel better on some days and worse on others- except for this crappy weather right now is killing me.

    Bottom line- you're not alone. Sounds like what you're taking isn't cutting it and you need some quality of life!!!
    Nobody WANTS to be on meds. - or at least that was never my hope, dream or expectation, but you deal with things as they come. I never imagined my life would be like this. You do the best you can, each day, one day at a time.

    If your dr. won't help, find a referral.
  4. caroleye

    caroleye New Member

    Having to give up exercise was the hardest thing for me as well. I even let my very rewarding career go easier.

    I've been dealing with this for 30+ years, and now I'm nearly 70 & can't even pick a flower as the bending throws me into pain. Did it yesterday & suffered all night.

    All pain meds make me sick to my stomach, so I alternate with homeopathics which help a little. At night with dinner I have potato vodka which eases the pain & M.J. that I've been prescribed.

    Sleeping is when the pain really kicks in. My body is covered with magnetic wraps; pads on my hips for my bursitis and take Klonopin, Calms Forte & Dalmane for sleep. Klonopin helps the pain as well.

    Yesterday, just found a topical spray that was the best I've ever found. It's called StopPain & it's got MSM, Chondroitin, & herbs. Very new product out there. I can't tolerate it orally, so grateful they've put it into both a roll-on and a spray.

    Just know that some people are able to do some exercising. I was riding horses until I was 60; fell off & now am in much more pain. So Docs who recommend exercise are not in tune with your body. We all know what helps & what makes us worse. We have to listen to our bodies or pay the price.

    Not the life I thought I'd live either............from independent to dependent. Sucks!!

    Feel for you...............carole
  5. dannybex

    dannybex Member

    I don't know if you'll see this, or if it will make a difference, but I couldn't help notice your mention of potato vodka!

    Please take this with a huge grain of salt, but I'm wondering if not only the vodka, but perhaps even more important, if you might be intolerant of potatoes and other 'nightshade' vegetables?

    For some people, when they cut out nightshades -- potatoes, tomatoes, eggplants and bell peppers -- they find surprising relief over a few weeks to months, from severe crippling pain.

    You might try googling "nightshades" and "pain" and see what information you find.

    Best regards,

  6. Pansygirl

    Pansygirl New Member

    I hear what you are saying.

    Exercise for me is walking and that depends on the day~ might make it to the mailbox
    one day or 5 minutes the next. And the walking I do is "slow" walking even with my dogs I set
    the pace! smile

    I've been getting discouraged to and am trying not to get depressed and down about
    the "new" me that I don't want. I too want the "old" me back , I want to wake up from this

    I was very active and able to run circles around the new me and this just isn't fair.

    Which pain meds have your tried?

    I am on tramadol and that helps enough that it helps me to be able to function but I still have
    my share of bad days . I treasure the good days as lately they have been few and far between .

    There is no rhyme or reason to why I might get a good day either.

    My doctor told me to exercise to but what he recommended was the walking or swimming (which I call floating) , he said it was important to move but only at the pace that you can do it.

    So I'm wondering if you might want to find a different doctor that understands fibro better.

    My doctor is a GP doctor.

    Hope your feeling better, keep us posted okay.

    very gentle hugs for you, Susan

  7. gb66

    gb66 Well-Known Member

    I was reading your post and can identify with some of the things you said about yourself. I will be 69 in a couple of months and have had this for 31 years. It doesn't get any easier as we get older does it?

    If you're like me, you had looked forward to retirement years and years after the kids leave home. All my plans are down the drain.

    I cannot take pain meds either and just cope by not moving around too much or standing on my feet too long. Yes, it is a bad way to live. I feel for the younger ones who are missing out on motherhood and careers also. There is just not a good time in life to get sick with this, is there. GB66
  8. faithinlove

    faithinlove New Member

    I do take darvocet two times daily. I guess this may help me, I really do not know. It does not feel like it.
    I have recently been given Talwin which I could not tolerate.
    God bless this board.
    I will post under this thread when I start to feel some better. I am trying to do memorial day cooking.
    again, you do not know how much it means to me to hear about how you feel.
    God bless and I will be back on when I can.
    Love hope and Faith for all of us.
  9. fibromickster

    fibromickster New Member

    I too was very active 4 years ago (before this DD). I played on 3 softball teams, coached my daughter's team, etc..... and then it all went downhill after i fell down a flight of stairs.

    Anyway, i too cannot do major exercise, however, no matter how i am feeling or how much pain i am (and if it is not raining) I make myself walk every evening with my dog (sometimes a short walk sometimes long one 2 miles). I know i have to do this for my health and my heart. When i get back sometimes i have to go lay down right away, other times I it really makes me feel great. I just know i have to do something every day to keep going.

    Good luck and you are in my prayers

    Oh yeah, like jam said below, stretching is very very good for us fibromites. That is the first thing i do when i get up in the morning and before I walk at night. I really does help and you can lay down and do it too. So even if you can't walk at least please stretch at least once a day.
    [This Message was Edited on 05/26/2009]