Experiences with Dr. Cheney

Discussion in 'Fibromyalgia Main Forum' started by LongStruggle, Feb 6, 2007.

  1. LongStruggle

    LongStruggle Guest

    I'm wondering what people's experiences have been who see Dr. Cheney. What kinds of testing does he do? Has your experience been good? Is his treatment recommendations working?
  2. Catseye

    Catseye Member

    I have never met him but I went through his protocol online in great detail and I'm using almost all the suppelments he recommends. They're working beautifully, I think he's a genius. I had been going to doctors for 3 years and they have been able to do nothing. It's because even when I can't move and I am so weak I honeslty believe I'm dying, I have normal blood levels of everything.

    So I found Cheney's and Teitelbaum's treatment protocols online, and a few other pertinent articles, and I went through them and started taking all the supplements at one time. I have used almost of of them before at one time or other, but never all at the same time. That was why it finally worked. I was so mad and bedridden, I had absolutely had it with everything. I was so fed up, I got really angry and decided the shotgun approach was necessary. And it worked!

    Here are the articles I consider most important to my own ongoing recovery:

    Teitelbaum's protocol:

    http://www.immunesupport.com/library/showarticle.cfm/ID/3346/T/CFIDS_FM/searchtext/teitelbaum%20protocol

    Cheney's protocol:

    http://membres.lycos.fr/chrisdel2/association/cheney/cheneyII3.html

    Heart Disease Secondary to Mitochondrial Malfunction (about energy, ATP):

    http://www.cfids-cab.org/MESA/DrMyhill-373.pdf

    These got me out of bed and got half my life back so far, and I'm still improving. But I got so bad, it's going to take awhile.

    good luck!

    karen
    [This Message was Edited on 02/16/2007]
  3. LongStruggle

    LongStruggle Guest

    I too use a lot of the recommendations by Teitlebaum and Cheney. However, some of the recommendations by body doesn't seem to want as concluded by my kinesiologist i.e. acetyl L-carnitine. You posted this message before and I found those websites. Thank you they were very helpful.

    What I'm really wanting to know are people's direct experiences with Cheney and his current treatment recommendations especially for thyroid and heart.
  4. LongStruggle

    LongStruggle Guest

    Is there nobody whose actually seeing Dr. Cheney? Is he too far for some of you or do you not agree with his theories/models?
  5. LongStruggle

    LongStruggle Guest

  6. mcondon

    mcondon New Member

    I have posted on here recently about my experiences, so you can do a search on my username to read those posts.

    My general experience has been quite positive, especially in comparison to other doctors I have seen for CFIDS. However, he is very expensive and his approach does not work for everyone. (I know this because he says that a lot of his patients are disabled, which obviously means he has not been able to help them that much.) Also, his basic protocol has not changed that much in recent years. (He is really focused on cardiac issues these days, but has not found a universally successful treatment protocol for this.)

    If you can find a local doctor who is open to using most of the elements in his protocol, you will probably get most of the benefits Cheney has to offer at less cost. In my case, I could not find such a doctor locally. I think that is because I live in New York, and most doctors in this area don't seem to want to take marching orders from someone else and are also worried about getting slapped on the wrist by the State licensing board for prescribing medications like high-dose B12, intramuscular magnesium, Klonopin, etc.

    If Cheney is just too expensive and no local doctor is helping you, I would recommend Dr. Larry Sharp in Fort Worth. He follows the Cheney protocol fairly closely, and is also a very compassionate doctor.


  7. LongStruggle

    LongStruggle Guest

    Thank you for your response. Do you know if Dr. Cheney or Dr. Sharp help with getting disability?
  8. LongStruggle

    LongStruggle Guest

    Thank you for your response. Do you know if Dr. Cheney or Dr. Sharp help with getting disability?
  9. LongStruggle

    LongStruggle Guest

    Thank you for your response. Do you know if Dr. Cheney or Dr. Sharp help with getting disability?
  10. mcondon

    mcondon New Member

    I know that Cheney and his staff are pretty diligent about helping his patients file for disability if that is necessary. (I know when I first saw him in 2001, he said he could recommend disability attorneys and would provide the medical documentation and testimony as needed to get disability if I needed it.) If you need to go on disability and stay on it, I tend to think Cheney would be a great advocate since so much of his testing is geared toward getting hard evidence of the underlying pathophysiology of CFIDS. However, he is still expensive, so you would have to figure out if Cheney is the economical choice. (For what its worth, Susan Levine in New York is also supposed to be quite good at filing the paperwork and winning disability claims for her patients.)

    I don't really know how helpful Larry Sharp would be, since I never talked to him about it when I saw him while Cheney was on medical leave in 2003. I would call his office and ask to speak to someone there to find out how helpful he would be in winning a disability claim.
  11. LongStruggle

    LongStruggle Guest

    Thank you very much for your feedback.
  12. LouiseK

    LouiseK New Member

    I noticed that some of you asked questions about doctors filling out papers for disability. What exactly do the doctors have to fill out? I am just starting this process and I know they want to see the doctors records but I haven't seen anything about forms.

    Any information would be very appreciated. I will also go look at the SS website again as I didn't see anything about that there either.

    Thanks!

  13. LongStruggle

    LongStruggle Guest

    Usually the issue is not forms. It's whether the doctor will back up on paper what he/she may tell you orally. So, its what the doctor will put in the medical record. Sometimes, Social Security will ask for forms, and then they will provide them to you or to the doctor. Sometimes attorneys get a hold of SSDI forms and will request that your doctor fill them out.
  14. LouiseK

    LouiseK New Member

    Thanks for the response. It is soooo true that these doctors pussy-foot around any sort of diagnosis. Some of mine write things like "consistent with" and "I informed patient that I could not rule-out..." I think they are just always thinking of what will save them the most time, extra work and hassle (i.e. not getting involved from the beginning)

    Best wishes.
  15. ladude

    ladude New Member

    this reply was in response to a post that was very negative regarding Dr. Cheney and what he charges for his services. That post was deleted and without that post this seems out of place in this thread,
    (just in case anyone ever looks through this archive in the year 2525 wonders...)

    Is Cheney a SOB or someone devoted to finding cure for my illness?

    The wait list to see Cheney is over one year.
    What does that tell you?

    1. People are waiting in line to see him.
    2. People keep going back to see him.
    3. He is worth what he charges.

    The equipment he purchases is very expensive, have your purchased any medical equipment lately?

    People are paid what they are worth. Money is a motivating factor. Why study and work hard to make low wages?

    I know plenty of doctors who charge less, but don't produce results, take your pick which do you want, a doctor who changes less and produces less or one who eats, drinks and sleeps CFIDS and stays up at night and weekends thinking about solving the CIFDS problem and produces results?

    In a free country products are rationed by price,ie supply and demand 101. (Socialism produces shortages and poor quality, wait till we all get free health care and free vitamins)

    If he charged 10.00 per hour the waiting list would be 20 years and I bet his motivation would be much less just a hunch, I know my motivation for doing a GREAT job at 10.00 is far less than if I was paid $100.00. Tell me you will pay me 100.00 an hour and every day I will be on time and smelling great!

    When I worked I worked for the money. When wages in my industry fell, I changed jobs for one that paid more as I was not interested in giving my time/life away, if I wanted to do that I would go into social work.

    For 20 years LA has had a shortage of cops, every mayor promises to break the 10,000 level yet no one has, why?
    The pay is not enough. Pay them a higher salary, say $100,000 or $200,000 yearly and presto the shortage is over and LA would be a lot safer. We could have 50,000 cops instead of 8,000 and a lot more people would be alive.

    You get what you pay for. That's why good cars cost more than cheap cars.

    I would love to see Cheney but I can't afford him, but I can't divorce myself from logic and complain simply because I did not study hard enough or work hard enough to get ahead, or chose the wrong field to go into. If one makes wrong choices in life should another be penalized for my mistakes?

    Hey, where's my beautiful house, if everyone on this board sends me just a $1000.00 it would sure help.

    For those who never made bad choices but are victims well sometimes life is not fair. Some are born into wealthy families, some are born into Asian/Jewish families who stress education and get ahead, is it fair that my parents did not push me to study harder, no it's not fair.

    Please tell me where I go to complain about my parents?

    LAdude

    Also, Cheney does seem to go out of his way GIVE AWAY his findings and protocol so we can all try his treatments on our own FOR FREEEE, so perhaps he has a heart after all.
  16. LongStruggle

    LongStruggle Guest

    After trying for 2 weeks to get answers from support staff at Dr. Cheney's office, I finally got the answers. There is a 1-2 year wait list to see Dr. Cheney. He will see you for 2 days and charge you $6,000-9,000 of which they want up front. Why couldn't the girl tell me this the first time I called. Instead, she led me on thinking that he triages patients and he charges $600 an hour. Some people I guess just don't think about the consequences of their actions on others.