Extra heart beat

Discussion in 'Fibromyalgia Main Forum' started by MusicTeacher, Aug 6, 2005.

  1. MusicTeacher

    MusicTeacher New Member

    I have been having problems with palpitations but all the tests several different docs have carried out show nothing to be abnormal - the only thing they can find is that I do have an extra beat in my heart at times although the pulse rate itself doesn't change abnormally.

    Anyone else with FMS have this problem and how do you get rid of it if so. It's driving me nuts and the docs just say "nothing to worry about"! Well, that's fine and, of course,I'm glad for that but I would like it to stop or at least calm down a little.

    Any ideas you excellent people?

    Many thanks
    Music Teacher (UK)

  2. mtnfla

    mtnfla New Member

    I was born with a heart murmur and I also have Mitral Valve Prolaspe and I can usually tell if I have too much caffenine(not suppose to have any at all) I can feel the palpations,that usually when I lay off the caffenine for a few days and it goes away. Take care..Marianne
  3. nanswajo

    nanswajo New Member


    Sometimes my heart will throw in what feels like extra beats. I've been checked and have been told its OK--won't hurt me. What happens with me is that my heart will delay a very short time (seconds, I suppose) before its next beat and then the following beat is quicker and feels like an "extra" beat.

    I think they called it preventricular contractions. Sometimes it will happen many times in a row. Sometimes it will happen more frequently and then I'll go for months without it. I think it can be connected to anxiety.

    Sometimes it makes me feel a little funny, but I have been checked multiple times and been told it is OK, so I mostly ignore it.

    Hope this helps a little.

  4. Eva2005

    Eva2005 New Member

    I had that real bad in 1990. I was being tested and they told me about the mitral valve prolapse problem. I did find the culprit for it being to painful though. I was taking sudafed for seasonal allergies. It was raising my blood pressure. This would make it more noticeable. I am now with the tricuspid leaking so I try to have, like you. NO CAFFEINE but that is hard when you are addicted to Chocolate... moderation is what they say.....Love Eva
  5. urge2soar

    urge2soar New Member

    and was told not to worry about it. Now, that was in my 30's...and I am having more and more of them lately.

    I really hate try and find another doctor here, but should probably do it to make sure. We'll see...

    Have you tried taking slow, deep belly breaths to calm your center? It helps a bit for me.


  6. fibromaster

    fibromaster New Member

    I've had heart palpitations for twentyfive years. Taking the armour thyroid has settled mine down. Doctors always told me to avoid caffeine and that never solved the problem.

    If you are experiencing heart palpitations, heart pounding, dizziness, sleeplessness, or panic attacks, and there doesn't appear to be an explanation for it, you may have mitral valve prolapse syndrome, or MVP syndrome. Recent medical research has found that the prevalence of mitral valve prolapse is substantially greater in patients with autoimmune thyroid disorders such as Graves' Disease and Hashimoto's Thyroiditis. One medical reference that supports this finding includes the research reported in the journal Cardiology.

    Major Symptoms of MVP include:
    Pounding, fast heartbeat
    Low tolerance for exercise
    Chest pain
    Panic attacks
    Headaches, migraines
    Dizziness, fainting
    Intestinal problems
    Shortness of breath

    While the relationship between autoimmune thyroid disease and MVP is established, the reason behind this is not readily explained, and there doesn't appear to be substantial research on the subject to date. We do know, however, that autoimmune thyroid disease predisposes you to either have or develop MVP syndrome, so it's worth checking into if you have symptoms that are not resolved by being euthyroid (having a normal TSH.)

    According to the Heart Surgery Forum, MVP is the most common heart valve abnormality, with estimates ranging from 2 million or more Americans diagnosed with this condition, and most are women (about 80%). MVP syndrome also has a strong hereditary tendency, although the exact cause is unknown.


    There are many risk factors and symptoms that point the increased possibility of low thyroid. Risk factors include: females, age over 30, a family history of low thyroid or auto immune disease, post-partum depression, infertility, multiple miscarriages, pms, weakness, problems with skin or hair, lethargy, sensation of cold, impaired memory or mood, constipation, weight gain or loss, muscle/joint pain, emotional instability, swelling around eyes, face or legs, nervousness, depression, heart palpitations, fullness in the throat area or difficulty swallowing, and many more.


    Many things can cause palpitations. Some causes of heart palpitations include the following:

    Heart-related causes. People with an irregular heartbeat or arrhythmia may also have palpitations. (Arrhythmia is a change in the rhythm of your heartbeat.) Most of the time, palpitations and irregular heartbeats are harmless. However, sometimes the break in your heart's normal rhythm can be a serious problem. You also may have palpitations if you have problems with the valves in your heart. Valves help move blood through the heart.
    Non-heart-related causes. Certain medicines, herbal supplements and illegal street drugs can make your heart beat faster. Medicines that can cause palpitations include asthma inhalers and decongestants. Caffeine (found in coffee, tea and soda), alcohol and tobacco can also cause palpitations. People who have panic disorder feel their heart pounding when they are fearful of something or having a panic attack. Some medical conditions, such as thyroid disease and anemia, also can cause palpitations.
  7. Gelsey

    Gelsey New Member

    Well, I had Graves disease (treated with radioactive iodine, and I have all the MVP symptoms, but if you throw in stiffness, muscle pains and fog, it blends right into the Fibro (I think?). I had the doctor check my heart out last visit, and she said there was a slight murmur (class 1?). The other doctor (who pretty much diagnosed Fibro) listened and said "hmmmmmmmmm". I dont know what "hmmmmmmm" means.
  8. proteinlady

    proteinlady New Member

    In the majority of people, premature ventricular contractions (PVC - felt as skipped beats) are usually benign. The normal standard of care when patients report them is to due 24 hr monitoring in a holter monitor. If PVCs are present on a regular basis throughout the 24 hr monitoring period, a stress echo is done to make sure that the heart is functioning properly during exercise. If the PVC are interferring with the normal working of the heart it is picked up at this stage. Most benign PVC are treated with beta blockers. The beta blockers do 2 things: it slows down the heart and decreases the force of comtraction. Slowing down the heart decreases the number of PVCs that occur and decreasing the force of the contraction makes them less noticeable when they do happen.

    I've been doing PVC since last July. I'm on a low dose of beta blockers and it does help. For what ever reason I'm really sensitive to beta blockers and I can only tolerate half of the lowest dose or my heart rate goes down to 45. The majority of people do not have this problem and can take enough of the beta blocker to totally suppress the PVC.
  9. MusicTeacher

    MusicTeacher New Member

    Many thanks to everyone who responded so far.

    It's a real comfort to me to know I'm not alone!

    My doc says "don't worry" - we don't need to give you any treatment. But, I do worry!

    I guess I'll get used to it eventually.......

    Fibro hugs to all
    Music Teacher (UK)
  10. marzrox

    marzrox New Member

    Just out of curiosity. have they checked for wholf parkinson white syndrome? there are variations of the spelling. I suffer from tachicardia, have for years in bouts. thought my son had the same thing and an ecg diagnosed him with the above.

    He has had high frequency ablation done twice in the past 2 yrs, and is now looking to have recoverd from it.

    just worth checking
  11. Seeseaisme

    Seeseaisme New Member

    I have WPW (Wolfe-Parkinson-White),which is caused by an extra conductor that makes the heart beat faster. I get a double whammy with palpatations.

    This is a very serious condition. Something I was born with, basically. I have to watch the caffeine, no herbs.

    I had a catheter ablation in 2000, only to end up in the hospital 3 mo later with cardiac arrythmia (heart goes out of rhythm).

    I am on medication 3 X a day now and have recently had problems again, and the cardiologist is recommended another ablation.

    Again, this is a very SERIOUS problem, do not ignore palpitations. If you're not seeing a cardiologist, you need to. I was first diagnosed about 18 yrs ago.
  12. lightkeeperkathy

    lightkeeperkathy New Member

    I just want to say that I have had the same problem for ten years and have seen five doctors and they all say the same thing Don't worry about it. I stopped thinking about it and I don't really notice it anymore. I have RA and fibro and love music very much. Music keeps me up! If I feel bad that day I just put on my head phones and go for a walk blasting my music. My son plays the drums and has a band. He has played for five years and is very good if I say so myself. I wish you good health and don't worry to much.Your friend in California Kathy
    [This Message was Edited on 08/07/2005]
  13. Prunella

    Prunella New Member

    I had them a lot 27 yrs ago during my first pregnancy. I got them a lot right before my period. Now, I have them more than ever going thru menopause. They are obviously related to my hormones. I too, was told not to worry about them, but they sure can scare you.

    About a year or two ago, Oprah Winfrey had a show about menopause. Then she talked about how she was getting irregular heart beats and went to all kinds of specialist to find out what was wrong. She saw heart specialists and more. They could find nothing wrong, but she said she thought she was dying. She was really scared, but didn't talk about it. Finally, after seeing many, many doctors, she found out that it was a symptom of perimenopause and menopause. She was so relieved. She improved her diet and exercise and that seemed to take care of the problem. She was upset that none of the docs ever mentioned menopause. Which just goes to show you that even Oprah Winfrey has to struggle to get good medical care.

    I know she had some info on this on her website back then. I don't know if it is still there now. Her site is oprah.com.
  14. MusicTeacher

    MusicTeacher New Member

    for all your thoughts. Plenty of information here for me to share with my doc when I next see her.

    However, strange but true, the episodes have now completely stopped after being really active for two weeks.

    Oh well, that's the mystery of this DD I guess!

    Take care all

    Love and hugs across the Atlantic
    Music Teacher (UK)

  15. another_painful_day

    another_painful_day New Member

    I wore a halter monitor for 24 hours and everything. feels like my heart jiggles like jello sometimes and it takes my breath away for a minute and I get real lightheaded. Doc said I have ectopic heart beats. I noticed that under stress and anxiety its much worse. I have been getting them alot lately. I had one episode where I was in the store with my daughter and step-daughter and out of the blue my heart sped up so fast that I felt like I was going to black out. You could actually feel it pound thru my neck pulse. My heart felt like someone was holding it in their hand and shaking it like jello. It was scary and odd and I couldnt wait for it to pass. I think thats the worse episaode I ever had.
    Anyway, Cardiologist told me a few years back he could treat my ectopic beats with Beta Blockers but I was young and they would wear me out so stall taking them for as long as possible.(hold off for as many years as possible). SO I just deal when they come thats all. He said they wouldnt kill me so Im ok with that. I often have troubles with Tachycardia(fast heart rate)out of no where which I think must be hereditary becuase my Dad has it REAL bad (but he is too stubborn to take meds). This is something new I developed over the past year or so but I havent seen a cardiologist for it. Im sick and tired of Docs so if it dont land me in the Hospital I aint gonna worry 'bout it.
    Although when I had surgery 6 weeks ago, it landed me in recovery for 6 and half hours becuase my heart rate wouldnt drop yet my pulse was low. So who knows...maybe it is a problem. Again, Ill wait until it lands me in the Hospital for sure.

  16. jill5050

    jill5050 New Member

    Music Teacher,
    I had Wofl-Parkinson-White symdrome. It is an extra electical shock, we all have a natural "pace maker"- an electical shock, I had an extra one. Well, it can spin your heartbeat out of control. Sometimes it stops on its own and other times you have to go the ER to have them stop it. It's what a lot of the atheletes had that just drop dead on the court/field.

    A lot of the time it isn't symtomactic. I wasn't DX until I was 38! I was never good at edurance sports my heatrate would skyrocket right away. I just took it as being out of shape or as a personal defect.

    I do not have the condition anymore however those of us that have WPW, we have a predispositon to an extra heartbeat here and there. That is what would set off the spinning heartbeat, a long with the extra electrical impulse. So, now that the electrical impulse has been removed, I still have the extra heatbeats.

    The doctor said that everyone that is aware of their heart problem, or had surgery, will always be hypersensitive about feeling their heartbeat. So I am very aware of when this happens to me now.

    I hope this all made sense. WPW shows up on an EKG and a stress echo. If you have these and it didn't show up, then you are in the clear!

  17. Mikie

    Mikie Moderator

    For any symptoms of heart problems. Also, if it's been a while since seeing a cardio, make an appt. Cardios are not taking heart problems more seriously in women than they used to. Mine told me that what used to not seem that important is now viewed differently. Seems heart disease manifests itself differently in women than in men.

    For years, all research was only done on me. Now, with heart disease being the leading cause of death in women, science is taking a whole new look at it.

    Not trying to scare anyone but I think it's important to deal with cardios and keep up to date with checkups.

    Love, Mikie
  18. stlouisgal

    stlouisgal New Member

    my rheumy put me on provigil 400 mg a day to help me w/my fatigue. i have tried going off of it completely because i started experiencing very hard heart beat like a boom-boom feel and it hurts around that area and my blood pressure did go up, i have always had low blood pressure 110/60 then it went up to 120/79 they said that i was borderline but nothing to worry about, i felt like that was a significant rise for ME so i have been slowly taking myself off the provigil. my dealing w/my fatigue is better than feeling these heart things that scare me, i have been reading about the mvp and am going to bring that up to my rheumy next week when i see him again. good luck to you -donna-

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