Famvir anyone?

Discussion in 'Fibromyalgia Main Forum' started by cherylsue, Jul 11, 2006.

  1. cherylsue

    cherylsue Member

    Help! I'm having a relapse - slight fever, malaise, burning sensations. I'm supposed to go on vacation in three weeks.

    My CFS doc put me on the antiviral Famvir 500 mg 3x daily for 5 days. I've just completed my first day, and am still feeling sick.

    My CFS considers my remitting/relapsing CFS a Herpes related problem (Epstein Barr, CMV, or HHV6). I've been in remission for 11 months (90-95%) and now relapse!

    This is my third episode of CFS in 6 years. God help me. It hasn't gone into a brain infection yet, but I sure feel the malaise.

    Anyone here (including Mikie) who can share their experiences with Famvir, please do. How long were you on it? the dose? effectiveness?

    And why do my relapses always happen in the summer? Does the sun trigger it? the warmer weather? Do Herpes viruses like the summer months? What's with this? I don't even work in the summertime.

    Forgive my wailing and gnashing of teeth. I thought I had this CFS under control, but I guess not. It's so capricious. I sure hope they come up with more and better treatments soon.

    CherylSue
  2. cherylsue

    cherylsue Member

  3. WhyMe2192

    WhyMe2192 New Member

    I was given Famvir when I started to get shingles. This helped me a lot. I was also given Zovirax and this was great for releaving the burning feeling pain.

    Hope this heps you!
    WhyMe
  4. Mikie

    Mikie Moderator

    I'm sorry you are having such a bad time. I've been in a relapse and last year, at this time, I was in one. You may be onto something when you talk about this possibly being seasonal.

    Famvir is a very good drug but if it were me, after this treatment, I would think about the transfer factors. I took the Famvir for quite a few months before pulsing it off and on. I can't even remember the pulse schedule. Most anti-critter meds work better when pulsed.

    The TF's, in my opinion, work better than AV's. They elicit such a strong immune response and Herxing that they have to be doing a better job. I did Herx with the Famvir but not nearly so much as with the TF's. I still Herx when I pulse them every 6 weeks. I used the TF C and TF 200 to cover all my Herpes-Family bases, at least, the usual culprits you mentioned.

    I pray that you are feeling better. Let us know how the Famvir is working for you.

    Love, Mikie
  5. cherylsue

    cherylsue Member

    Thanks for your replies. I'm so nervous about this relapse I'm not sleeping well. I feel like I'm letting everyone down - friends, family. My friends had planned a vacation for me, a trip of a lifetime, and we were to depart in 3 weeks.

    I have an appointment with an Integrative Medicine doctor on July 20th. He's appeared in an article in ProHealth here, so maybe he is acquainted with the Transfer factors and can guide me through them.

    My temperature is going down, but I still have the burning, and that tells me I still have the virus in me.

    God bless you,
    CherylSue
  6. pawprints

    pawprints New Member

    HI:

    For antivirals, you may ask about Immunovir or Isoprinosine...same drug, with 2 different names from Cananda. Perhaps your new doctor will know. By the way, who are you planning on seeing?

    Good luck.
  7. dlark

    dlark New Member

    Famvir was suggested for me due to constant canker sores and mouth blisters. Another dr switched it to Valtrex. None helped me but, being a realist, I hope I don't put you off by saying that CFS is a chronic condition and relapse/remission is the normal cycle. You may find that your symptoms are the one common to your relapses. Mine are (many) but also include burning, malaise, feverish, etc..
    Apparently Epstein Barr is common in the normal population. If you have a test for a herpes (usually a specialist) maybe the dr can target the famvir for that.
  8. cherylsue

    cherylsue Member

    Thank you all for your replies.

    I am going to see an integrative medicine doctor from Loyola Univ. in Chicagoland. We don't have any FFC's in the area.

    CherylSue
  9. spmary

    spmary New Member

    I'm so sorry you are having this problem. I don't know anything about it but had a friend many years ago (about 1960,maybe). She had the sores in her mouth,didn't say what caused them but she ended up taking small chicken pox vaccines for it and they cleared up..don't know how long it took,an internist treated her. Good luck and hope your trip is great! Love, spmary
  10. cherylsue

    cherylsue Member

    Eeooww! I'm on my 3rd day of Famvir. My fevers are down, but the burning, malaise, and lethargy have really kicked in. Does this mean my virus is overcoming the medicine? or am I herxing?

    I pray it is a good thing, although I feel really awful right now. The doctor put me on it for 5 days only. I wonder if that will be enough.

    CherylSue
  11. cherylsue

    cherylsue Member

    Other than drinking lots of water and rest/pacing, what else can I do?