Sunday, January 28 Famvir--Day 83 Days 1-6: 250 mg Days 7-13: 500 mg Day 14: No Drug Day 15-20: 500 mg Day 21-22: No Drug Day 23-27: 500 mg Day 28-29: 250 mg Day 30-36: No drug Day 37-50: 250 mg Day 51-57: 500 mg Day 58-63: 250 mg Day 64-65: 500 mg Day 66: 250 mg Day 67-83: 500 mg My cold from last week seems to be over--just a little residual congestion left over. I was still feeling sort of weak in the morning, which (I dimly recall from over a decade ago when I still got colds) actually is not unusual for a generally healthy person when recovering from a very bad cold. So I think I'm doing okay. It occurred to me today that perhaps I haven't gotten any colds during my illness because every time a cold virus attempted to enter my body, my immune system surrendered and let it go ahead and come in. (Apparently my immune system has much bigger fish to fry than the common cold.) If that's the case though, that would mean that I would likely have a total of at least 22 cold viruses to get rid of. (Adults average two colds per year, and I've been sick for 11 years.) If each lasted one week, and they came right on top of one another, that would be approximately five months' worth of colds. Argh! Although now that I think about it, Forebearance has managed to have cold symptoms all the time for three months now. I wonder if she's getting rid of many colds rather than just one. Meanwhile, the fact that I am still herxing on just a low dose of Famvir is very perplexing. I haven't even added natto or transfer factor yet. Apparently I have more viruses than anyone else on the planet. (Except maybe Jolie. If she goes back on a Valtrex/Famvir drug at a moderate level (500 mg Famvir=1300 mg Valtrex) , I wonder how long it would be before she stopped herxing. It would be an interesting contest.) Meanwhile, I continue to be perplexed by the number of people rushing to go on to Valcyte without taking care of what I see as the fundamentals of CFS (endocrine system, yeast/gut, food allergies, sleep, nutrition). It's not like info about these topics is not commonly available either. I tend to think they're setting themselves up for a disappointment and perhaps making it seem like Valcyte has less potential than it actually does. I tried taking 1 gram of ribose last night and 1 gram this morning. I can't recall how much other people on the board say they take. I don't know whether it's been any help (recovering from my cold is a confounding variable), but it doesn't seem to have caused any problems. I will continue to pursue for a bit longer, therefore. For the last two nights, I've taken a bottle of that frozen adrenal/mesanchyme/thymus gland stuff. (This one is Molecular CF, but from what I can tell Atrium/Douglas has a number of similar products that go by different names.) It may help. At $10 a bottle it's on the expensive side though. Still, especially since I'm getting the antivirals for next to nothing through insurance, it's worth putting money into things that will help me get through the process. I'm not sure about the Nexavir stuff though. For those who are interested, here are the key words to google a person with a blog who is giving Valcyte a try. I will be interested in keeping up with her progress, since I haven't read case stories of many people who have taken the drug yet. That should change tremendously over the next six months, of course. "learning to live with cfs" "sue jackson"