Famvir Status Report Week Sixteen

Discussion in 'Fibromyalgia Main Forum' started by Slayadragon, Mar 2, 2007.

  1. Slayadragon

    Slayadragon New Member

    Tuesday-Friday, February 27-March 2
    Famvir--Day 113-116

    Days 1-6: 250 mg
    Days 7-13: 500 mg
    Day 14: No Drug
    Day 15-20: 500 mg
    Day 21-22: No Drug
    Day 23-27: 500 mg
    Day 28-29: 250 mg
    Day 30-36: No drug
    Day 37-50: 250 mg
    Day 51-57: 500 mg
    Day 58-63: 250 mg
    Day 64-65: 500 mg
    Day 66: 250 mg
    Day 67-87: 500 mg
    Day 88-98: 250 mg
    Day 99-116: 500 mg

    I decided last weekend to give a try to ramping up my progress. The Chinese herbs seem to be holding my body together fairly well, and so my hope was that it wouldn't be destructive.

    I've been at this for a long time, and being stuck in the middle of a dark tunnel with no end in sight was making me discouraged.

    I also would like to make as much progress as I can with the Famvir (and adjunct treatments) as I can, so that I can minimize my time on the Valcyte.

    I started by taking 200 mg (the maximum recommended on the Pure Encapsulations website) of nattokinase per day. This is supposed to decrease fibrin in the blood, so that the antiviral can better get at the viruses that have been hiding in it.

    i got a lot of feverish feelings during that time, which seems to be a reliable sign of viral killing for me. I was extremely tired for a day or two, and found that lying in bed doing nothing (not even watching movies or reading) helped a lot.

    The response did not seem to me to be an unhealthy one (in the way that I have sometimes felt since starting the Famvir). Again, the support of the Chinese herbs seems to have been really helpful.

    The severe reaction to the natto lasted for about two days. I have since continued to be tired (more so than before I started the natto), but not more tired than I have been during most of the time I have been on Famvir.

    The second thing that my doctor recommended that I add was transfer factor. I decided to choose undifferentiated transfer factor (4Life Advanced Transfer Factor) to start.

    I did not seem to get any negative reaction from this. If anything, it made me feel a bit better. (This could have been because the natto effect was dying off though.)

    I came to the conclusion that my body was able to easily handle the undifferentiated TF. (This could be wrong though. Today I read that someone started herxing after three weeks on undifferentiated transfer factor. I always thought that effects were felt immediately, but apparently was wrong.)

    By yesterday, I was feeling pretty good mentally and starting to think about things that I wanted to do. Unfortunately, my body was too tired to stand up for more than a few minutes. I find it interesting that throughout my illness, my mental symptoms have been as strong as my physical fatigue. This felt more like physical fatigue. Conceivably that could be because the main viral killing was going on in the blood, although I don't really know.

    Anyway, I was feeling good enough this morning that I decided to push things even further by using a capsule of the Transfer Factor C that I had just purchased. (TF C is targeted to address HHV6 a and be, Epstein-Barr, CMV, chlamydia pneumoniae and some other stuff that I don't think I have.)

    This did hit me pretty hard. I slept for a lot of the day and have had a mild headache. Oddly, my muscles have felt a little stiff, which is very rare for me. My cognitive functioning has felt quite off. I feel a little bit of the "bad tired" that I don't like.

    So I think I will wait for a little while before I try this Transfer Factor again. I'm surprised at how potent it is, considering the fact that the only time I ever tried it before (years ago) I got no response at all. I think that it and the antiviral work synergistically, and therefore that going slowly is important. Perhaps next time I will try only 1/2 of one of those little capsules.

    I'm thinking that I would like to try that methyl block protocol that's supposed to allow better utilization of glutathione, but I don't know if I will have time before I see the doctor in three weeks. This is especially the case if I continue on the Transfer Factor C (which it seems like indeed may be helpful in moving me along faster). I definitely will talk about the methyl block protocol with my doctor though.

    It's still amazing to me that I've herxed so much from the Famvir, but it may be a good thing. Perhaps whatever viruses (or viral strains) I have are targeted really well by what's in it. If so, perhaps by the time I'm done getting as much as I can out of it, I'll be in much improved shape (either overtly or at least in terms of my immune system/viral counts). Again, I do think less Valcyte would be good if I can get away with it.

    **

    As I noted before, I will continue to post these status reports for informational purposes, but would like to ask that those reading it refrain from offering advice or concern.

    In particular, worries about my well-being and exhortations that I do whatever in order to prevent some particular horrible event from happening would be especially hard on me. Criticisms of my asking for the omission of these kinds of comments also would be extremely destructive. I thus implore that these not be added to the thread.

    Thanks very much for your kindness in honoring my needs with regard to this request!


    [This Message was Edited on 03/02/2007]
  2. ask2266

    ask2266 Member

    I have been taking 1000mg of Famvir 2x per day and 5000 units of heparin 2x per day for almost 5 weeks. My cfids symptoms have definitely improved since week 3. However, I caught influenza 4 days ago, and it has set me back. What's funny though is the symptoms I feel are mainly flu symptoms and not CFIDS symptoms as much. I guess in another week I'll have a better idea as to whether my cfids is really getting better or last week was just a fluke week.

    Lisa, I hope you don't mind me sharing your thread. I know everyone reads it, so I just thought this would be a good place to put my progress on Famvir too.
  3. Slayadragon

    Slayadragon New Member

    I'd be delighted if you would share my thread.

    What are the symptoms of your influenza?

    I ask this because both Forebearance (who's using the enzyme product Virastop) and I both got viral infections that were extremely similar, and I'm wondering if you might be going through the same thing.

    It really was just a bad cold.....the worst cold I've ever had in my life. The congestion was terrible, my lips got dry and swollen, I became totally worn out. None of my usual remedies helped at all.

    This knocked me for a loop so much that I didn't get past it, and kept sliding downhill for a couple of weeks afterwards. Only after I reduced my Famvir dosage for about 10 days (and started supporting my body with the Chinese herbs) did I recover my strength.

    The other interesting things were a) I haven't gotten a cold or flu for years and years (and have had only one since the "killer flu" that began my CFS and b) no one around me got this virus (either before me or after me).

    Forebearance said that no one around her got the virus either, and that she could slow down the symptoms by taking less of the Virastop. (Since she went slowly, it lasted for about 2-3 months.)

    We developed a hypothesis that maybe this wasn't a regular "cold," but rather some deep-seated infection that we'd had for a long time. Perhaps if the AV's were able to knock off a bit of that kind of infection, our bodies pitched in and helped do the rest.

    I'm going to ask my doctor about it when I see him.

    This doesn't sound like what you have, does it?

    And in any case, if the cold/flu/whatever has you really down, be careful to do what you have to in order to retain your strength. For instance, I think if I'd reduced the AV dosage while I had the cold, I'd have been in a lot better shape for viral killing once I recovered from it.

    Anyway, I hope you get over whatever it is that you have soon.

    Best, Lisa

  4. ask2266

    ask2266 Member

    Mine is actually influenza because I caught it from my cousin and her baby and then passed it on to my son, my mom and my dad. A doctor swabbed my cousin and said it was influenza. I got the flu shot, so my symptoms have not been as severe as when I've had the flu in the past.

    Also, the symptoms of this flu are different that my cfids symptoms (when I herx my cfids symptoms get worse). My main cfids issues are no sleep, brain fog and fatigue/wired/yuck feeling. I've actually slept great this week, and I haven't had much wired feelings. My brain fog has gotten worse this week, however. This may be EBV or flu herxing. I'm also on a prophylactic antibiotic to keep from catching pneumonia, since my lungs are still compromised from last year (see below).

    I actually got influenza last year too (Feb. 2006), which led to flesh-eating bacteria pneumonia, septic shock and being in a coma for 2 weeks. I had gotten the flu shot last year also, but the doctors told me that last year's flu shot wasn't close enough to the real flu to give anyone any immunity because the virus had mutated so much from the previous season. I got chronic fatigue syndrome after I recovered and tried to go back to work full time in May 2006.
  5. Forebearance

    Forebearance Member

    Oh my gosh, ask, that's horrible!

    I'm glad you're still updating us, Lisa.

    Love,
    Forebearance
  6. Slayadragon

    Slayadragon New Member

    I didn't realize that you had had CFS only for a year or so until I went back and read your bio. So sorry. The only good thing to say is that there are a lot of advances being made, and so I doubt you're going to be stuck with it anywhere near as long as I have been (11 years).

    I never heard of a flesh-eating bacteria until I was talking to a woman in the waiting room at my doctor's office one day. She said she acquired one during a hospital stay and that after 9 months of seeing various specialists, it was as bad as ever. She said that my doctor had cured it right away. Unfortunately, I didn't get a chance to ask her what he did. Anyway, there is some scary stuff out there.

    I wish somebody had told me when I first got sick (head injury) that people should rest when they feel bad. Instead I decided to push myself harder (including a try at pregnancy) and then imploded. The American Work Ethic (i.e. pushing yourself no matter how sick you area) is not a terribly good idea. Hopefully I will at least remember that if/when I get better.

    In the next post is a recipe for "Voodoo Tea" that dncnfngrs kindly shared with me when I was sick. I found it to be quite helpful....much more so than anything else I tried for that cold. (Upon reflection, I almost think that if I drank this stuff every day for a year, my CFS might be totally cured just from that. An exaggeration, but it really is potent stuff.)

    I used every single one of the cited ingredients (including the honey) and suspect they're all useful.

    I hope you feel better soon!!

    Best, Lisa

  7. Slayadragon

    Slayadragon New Member

    Voodoo Tea

    (Thanks to dncnfngrs and stormyskye for the recipe.)

    Easiest made in a drip coffee maker.

    Part one
    In the pot, per mug of water used:
    1 peeled rough sliced garlic clove
    pinch of cinnamon

    Add water by the mug however much you're making, one mug for just you, two if hubby wants some. Brew. Let water/garlic/cinn sit on coffee maker heating element for 10 mins. If desired, for congestion, add 1 green tea bag for the last 2-3 mins while it all "steeps."

    Part two
    Put in mug:
    1 tablespoon apple cider vinegar (with mother if you have it, regular if you don't)
    honey to sweeten (or whatever you have, desperation rules here)

    Drink hot. You'll know it's working because you'll get very sleepy. If you don't, try another mug in a couple hours. Microwaving the water isn't the same. If made using boiled water, bring water just to a boil, pour over all except ACV and honey, and cover the cup, then follow the above.

    Yeti Tea

    This is the "will it put hair on my chest?" version that Stormy and I came up with. Aka "Advanced Voodoo Tea for the Truly Desperate Who Have Nothing to Lose Tea."

    Ditto the above except:

    Use a filter
    Add 1 licorice tea to filter
    Add a generous shake of cayenne pepper atop the licorice tea bag (don't go crazy, too much and you have to restart)
    Add a pinch of sea salt to the carafe

    For some reason, this one is more easily drunk without the honey, but if you overdid the cayenne, a little extra honey helps.

    The cayenne pepper WILL open your head, so have plenty of tissues handy.

    Rinse and repeat as necessary.

    *

    Note from Lisa: I like the honey in both versions (especially since honey is a good germ-killer).

  8. Slayadragon

    Slayadragon New Member

    Saturday-Sunday, March 3-4
    Famvir--Day 117-118

    Days 1-6: 250 mg
    Days 7-13: 500 mg
    Day 14: No Drug
    Day 15-20: 500 mg
    Day 21-22: No Drug
    Day 23-27: 500 mg
    Day 28-29: 250 mg
    Day 30-36: No drug
    Day 37-50: 250 mg
    Day 51-57: 500 mg
    Day 58-63: 250 mg
    Day 64-65: 500 mg
    Day 66: 250 mg
    Day 67-87: 500 mg
    Day 88-98: 250 mg
    Day 99-118: 500 mg

    The Transfer Factor C (from ProHealth) that I took on Friday morning continued to have a very big effect on me all day Friday and Saturday. It is surprising how powerful that stuff is, perhaps especially in combination with the Famvir.

    I am continuing to take 200 mg of nattokinase per day. I think I am herxing mildly from it (with waves of feverish feelings), but not nearly as much as I thought that I would.

    I read somewhere on the board about how some sort of supplement was making someone sleepy and how they felt better afterwards. It occurred to me that the transfer factor had made me feel bad in a "non-sleepy" sort of way, and that perhaps something that would give me that drowsy sleepy feeling would be good for me.

    So I decided to take some arabinogalactan (the main ingredient in Ambrotose), which I think acts both as a detoxifier and as an immune system stimulant. I got my usual reaction series: a couple hours of sound sleep, a few more hours of feelings of sleepiness, a sudden tremendous thirst, and then a more relaxed feeling. My head feels a bit clearer now than it has for a while.

    My feeling with the arabinogalactan is that it's probably just giving me a short-term effect. (I could be wrong.) Sometimes a short-term effect is a good thing though.

    I am continuing to take the supplements mentioned on that "methyl block" post. (I'm taking all of them except the one marked "helpful," since its cost was something like $145.) That protocol seems pretty innocuous and wasn't very expensive, and so I figure that the worst that can happen is nothing. If I do seem to be getting an effect in a couple of weeks when I go to see the doctor, I will get him to do the testing suggested in that article. I also will mention the protocol to him when I see him.

    I also am continuing to take the non-differentiated 4Life Advanced Transfer Factor. It's possible it might be having a good effect, and does not seem to be having a bad one (or at least not yet). A "normal" friend who nonetheless gets colds every few weeks has agreed to try it for a while as an experiment, and so I will be interested to see if it has any positive effect in that situation. It may just be that my system has so many bigger fish to fry (e.g. the herpes family viruses) that getting rid of more pedestrian bugs isn't making a noticeable difference.

    The targeted Transfer Factor C obviously is really effective on my viruses, so much so that I'm a little afraid of it. I think tomorrow I will finish paying bills (to make sure they get done) and then try taking maybe 1/3 of one of those little capsules.

    It's so hard, after 11 years, to imagine feeling really well for more than a day or two. I wonder what it would be like.
  9. Slayadragon

    Slayadragon New Member

    Sometimes I feel a bit narcissistic having this thread, but people seem to be reading it. It also will be a good history if by chance I really do get better and write that book Dr. Guyer suggested.

    I actually wish that _everyone_ on the board who is trying new protocols would write on their own threads about their experiences. I would learn a lot more from reading people's ongoing histories with treatments rather than the scattered bits and pieces I find when they happen to come up.

    Thanks for keeping up your own "anti-viral enzymes" thread anyway. Following your journey has been very interesting and enlightening.

    Best, Lisa

    [This Message was Edited on 03/04/2007]
  10. Slayadragon

    Slayadragon New Member

    Monday, March 5
    Famvir--Day 119

    Days 1-6: 250 mg
    Days 7-13: 500 mg
    Day 14: No Drug
    Day 15-20: 500 mg
    Day 21-22: No Drug
    Day 23-27: 500 mg
    Day 28-29: 250 mg
    Day 30-36: No drug
    Day 37-50: 250 mg
    Day 51-57: 500 mg
    Day 58-63: 250 mg
    Day 64-65: 500 mg
    Day 66: 250 mg
    Day 67-87: 500 mg
    Day 88-98: 250 mg
    Day 99-119: 500 mg

    I have been feeling really weird today and am wondering if that methyl block protocol really is doing something for me. A title search for the phrase below should bring up the article (which I posted last week):

    methyl block

    It is impossible for me to say with any confidence whatsoever that this is the case yet, and so I'm certainly not going to post on any of the main threads. i did think I'd write down here (mostly for my own reference) what's been happening.

    The methyl block protocol looks so innocuous that it's hard to imagine it would do anything at all, which is why I threw it casually into my current mix rather than using a one-at-a-time scientific design. All I am using are the following:

    1) 1/4 tablet (200 micrograms) Folapro

    Folapro is 5-methyl tetrahydrofolate, an active form of folate, which is sold by Metagenics with a license from Merck, which holds the patent on synthesis.

    2) 1/4 tablet Intrinsic B12/folate

    This includes 200 micrograms of folate as a combination of folic acid, 5-methyl tetrahydrofolate, and 5-formyl tetrahydrofolate, aka folinic acid or leucovoricin (another active form of folate), 125 micrograms of vitamin B12 as cyancobalamin, 22.5 milligrams of calcium, 17.25 milligrams of phosphorus, and 5 milligrams of intrinsic factor

    3) 1 softgel capsule Phosphatidyl Serine Complex

    This includes the phospholipids and some fatty acids

    4) 1 sublingual lozenge Perque B12

    2,000 micrograms hydroxocobalmin with some mannitol, sucanat, magnesium and cherry extract

    5) 200 mg SAMe (S-adenosylmethionine)

    NOTE: The protocol also includes the items at the bottom at the post. The vitamins were on the expensive side, and so I'm just taking (as I always do) my regular multivitamin/mineral supplement with about 500 mg of magnesium added. The optional supplement was really expensive (about $150) so I decided to skip it. All the stuff above is available through a company called holisticheal.

    I started taking this on Saturday morning. I didn't anticipate an effect and attributed any symptoms to other stuff.

    This morning I was not in a good mood, and the idea of cutting those first two supplements into quarters felt like a lot of work. (I do have a pill cutter, but they're very hard pills.) So I just took 1/2 of each. Again, they seemed pretty innocuous.

    It's turned out to be a weird day though, starting a couple of hours after I took the methyl block supplements. My mind feels full of gunk. I've been really sleepy, but in a restless sort of way. I've had overwhelming thirst, and drank about 80 ounces of water in about three hours. I've also been getting waves of feverish feelings.

    The first three symptoms above seem reliably associated with detox. The last has been strongly associated with viral killing.

    I'm doing too many things for me to attribute this to the methyl block stuff though. I thought I'd list everything that's even slightly new (e.g. post-Famvir) here, just to get my arms around it.

    * Continuing Famvir, 500 mg. This has never prompted detox. I seem accustomed to this dose though.

    * Chinese herbs. Never have prompted any of these symptoms, except a pleasant sleepiness at the beginning.

    * 4Life Advanced Transfer Factor. This is an undifferentiated transfer factor. I have been taking two capsules per day for a week. It's possible I could be getting a cumulative effect, but I wouldn't think any transfer factor would prompt detox.

    * Transfer Factor C. This targets viruses/bacteria I know I have (including HHV6, EBV, CMV and chlamydia pneumoniae). I took one capsule on Friday morning and felt pretty bad for a couple of days afterwards. I thought I was getting past it though.

    * Arabinogalactan. This is larch bark, and it seems to prompt detox and viral killing. I took two capsules yesterday morning. However, I've tried this in the past, and all effects have always gone away within 6-8 hours. That seemed to be the case yesterday as well--all effects seemed to be gone by evening.

    * Nattokinase. I started experimenting with this two weeks ago, and have been taking 200 mg per day for a week. It has prompted waves of feverish feelings, quite strong at first. The feverish feelings from today still could be prompted by them though.

    * Kyolic garlic. I've been taking this for two months without any noticeable effect.

    In looking at this list, I'm not sure why else I'd be getting these weird toxic feelings. (I've not done any juicing or had anything unusual to eat/drink for a while.) I'm still finding it hard to imagine that this apparently innocuous protocol would be doing anything noticeable to me, but these symptoms are consistent with the ones that Rich van Koynenberg said would be expected if the protocol was working, and that deliarose said she had experienced.

    (deliarose has not been on the board for a few days, but she still seemed to be cautiously crediting the methyl block protocol for substantial improvements in her last post.)

    The idea that this might be doing something is interesting. I can't believe it's _the_ answer (how could it be so simple?), but it could be part of the puzzle.

    We shall see. I will continue with this (at no more than the recommended dose) for a little while longer and see what happens. I think I would rather do this first and then go back to the Transfer Factor C. I'm a little afraid of the latter stuff.

    I've been trying to figure out an analogy for the methyl block. Obvioiusly glutathione works for detoxification. To my knowledge, I've never had any major exposure to toxins, and so I've not thought it to be crucial.

    However, maybe not being able to use glutathione very well is like never changing the engine oil in your car (just topping it off when the level gets low). Pretty soon the whole system gets filled up with crud (which gets into the oil/engine just through ordinary exposure to the elements as well as wear-and-tear). A car will keep running with dirty oil for a while, but it certainly doesn't run very well.

    I still think this is a primarily viral illness, at least for me. The signs (my immune system testing, the fact that it began with the "killer flu," my absurdly strong herxing from the Famvir) makes that clear.

    But maybe there's something to this too. CFS is an extremely bizarre illness with apparently an infinite number of underlying problems. I'm thus willing to explore even totally unproven avenues, as long as they're apparently harmless and not too expensive.

    There are some tests you're supposed to do to see if this "simplified protocol" is really working, and I will ask my doctor for them when I see him in a couple of weeks. Even if I've given up on the simplified version, it will be interesting to discuss it with him. (I've actually already done a lot of the stuff that the more "complex" version suggests, and so the fact that this could be working despite the fact that I've been ill for a long time is not that unexpected.)

    We shall see.

    **

    These are the supplements mentioned by Rich van Koynenberg that I am not taking:

    1) Complete vitamin and ultra-antioxidant from Holistic Health Consultants

    This is a multivitamin, multimineral supplement with some additional ingredients. It does not contain iron or copper, and it has a high ratio of magnesium to calcium. It contains antioxidants, some trimethylglycine, some nucleotides, and several supplements to support the sulfur metabolism. Start with 1/4 tablet and work up to 2 tablets as tolerated.

    2) 1/3 dropper, 2X/day Methylation Support Nutriswitch Formula

    This is an RNA mixture designed to help the methylation cycle. It is not essential, but is reported to be helpful.


    [This Message was Edited on 03/05/2007]
  11. Forebearance

    Forebearance Member

    Hi, Lisa!

    I know what you mean! I feel a bit narcissistic writing my anti-viral enzymes thread, too. But really, my own experiences are the main thing I have to contribute to this forum. And just in case I get well, I won't have to answer questions about how exactly I did it. I can just say "read my threads!"

    I'm enjoying following your journey, too!

    Thank for the lovely thought of buying my unused undenatured whey powder. In order to do that, we would have to meet in an empty chat room sometime and exchange e-mail addresses. I'm in the same time zone as you, if you want to suggest a time. But if you don't want to, that's perfectly fine too.

    Now, your weird feelings on the methyl donor supplements are exciting! I can't help but be a bit enthused about that. I ordered the first two supplements on the list and they should be here in a week. Now I have to decide what I want to try next!

    If a person takes 10,000 things that each "help" a little bit, wouldn't you think that would add up to something like getting better?????

    I hope you read the article I found and posted the link to in the methyl donor thread. It helped me a lot.

    Today I drank a bottle of the Gerber equivalent of pedialyte, and it made me really sleepy too. Geez, I never know what's going to affect me and how much! I should keep it in mind for future sleepless nights.

    Please tell me how your weird feeling is doing tomorrow. I'm glad you paid your bills.

    I find that an X-acto knife works very well for cutting up pills. I prefer it to my pill-splitter, because I can be more accurate with tiny pills.

    Love,
    Forebearance
  12. Slayadragon

    Slayadragon New Member

    Tuesday, March 6
    Famvir--Day 120

    Days 1-6: 250 mg
    Days 7-13: 500 mg
    Day 14: No Drug
    Day 15-20: 500 mg
    Day 21-22: No Drug
    Day 23-27: 500 mg
    Day 28-29: 250 mg
    Day 30-36: No drug
    Day 37-50: 250 mg
    Day 51-57: 500 mg
    Day 58-63: 250 mg
    Day 64-65: 500 mg
    Day 66: 250 mg
    Day 67-87: 500 mg
    Day 88-98: 250 mg
    Day 99-120: 500 mg

    After drinking about 150 ounces of water during the day and then spending a good bit of time in our steam shower last night, I ended up feeling quite good.

    However, I've felt toxic again all day today. Extreme thirst, headache, icky feeling, periodically sick feeling in my stomach. (The latter can be associated with detoxing. I had that happen once after a colonic, and deliarose said that she had it happen to her after she started the methyl block supplements. It is extremely rare for me to feel sick to my stomach otherwise.)

    I skipped both the methyl block supplements and the Transfer Factor C today. (Of the stuff mentioned in my last status report, I did take the Famvir, nattokinase, 4Life Advanced Transfer Factor, Chinese herbs and kyolic garlic.)

    I periodically had waves of feeling feverish today too. I think this was from the nattokinase though. Those generally subside within 6-8 hours of taking that supplement (which they did today).

    Despite this icky weirdness, I was in relatively okay shape today. It's like my brain was functioning better than usual, but from behind a cloud of gunk. I've been only moderately tired.

    I am becoming increasingly convinced that the methyl block supplements might be the cause. In the past, I would have doubted that I could still be experiencing detox from something I took yesterday morning. However, after reading various people's experiences on the board (deliarose's after taking most of a bottle of liposomal glutathione, dncnfngrs after overdoing it on the licorice tea), it's become obvious to me that detox reactions can sometimes go on for days and days. And Rich van K does say in his paper that the biggest challenge with this protocol is the potential for really rapid detox.

    So my current plan is to just keep taking what I did today until this weird apparent detox reaction stops. Then I will take some of the methyl block stuff again, to see if it comes back.

    If it doesn't stop reasonably soon, I guess I will have to suspect the Transfer Factor or natto.

    This is by no means an unacceptable level of detoxing to do consistently over an extended period of time, if I thought it were going to be helpful. It would be good to know what's causing it though.

    I'm going to use the steam shower again tonight and see if that makes any difference.

    [This Message was Edited on 03/06/2007]
  13. Slayadragon

    Slayadragon New Member

    I've gotten preoccupied with reading about methyl blocks and thus haven't focused on responding to a few board posts. I will get back to them, though.

    Best, Lisa

  14. pocahontas606

    pocahontas606 New Member

    just wanted to say that i have been keeping up with your threads and to keep your chin up. you have made a lot of progess and it's hard to do i am sure. so keep going strong even if somedays you don't feel so great. i think it's a huge deal when you start to have thoughts of wanting to do things and participate. your body must be healing and now giving your mind a chance to have different thoughts, how awesome is that! i know when i have thoughts of doing things or getting involved in life, i know then that something i am doing is working.

    have a great day.

  15. cherylsue

    cherylsue Member

    Check with Mikie, but I thought from her experience she couldn't combine the antivirals with the Transfer Factors. One at a time, but not both at once.

    Just a thought.

    Don't you visit Dr. Guyer soon? I hope he has some good news for you.

    Good luck.

    CherylSue
    [This Message was Edited on 03/07/2007]
  16. Slayadragon

    Slayadragon New Member

    Wednesday, March 7
    Famvir--Day 121

    Days 1-6: 250 mg
    Days 7-13: 500 mg
    Day 14: No Drug
    Day 15-20: 500 mg
    Day 21-22: No Drug
    Day 23-27: 500 mg
    Day 28-29: 250 mg
    Day 30-36: No drug
    Day 37-50: 250 mg
    Day 51-57: 500 mg
    Day 58-63: 250 mg
    Day 64-65: 500 mg
    Day 66: 250 mg
    Day 67-87: 500 mg
    Day 88-98: 250 mg
    Day 99-121: 500 mg

    Today turned out to be a very good day. I had only mild feverish feelings after taking the nattokinase. None of the detox symptoms from the past couple of days appeared. I went out to dinner and the theatre tonight, and felt okay throughout and after I got home.

    My energy and cognitive functioning were moderately okay, and my mood was good. I'm not back to where I was before I started the Famvir (or when I decreased the dosage in early January for a week to go to the doctor), but I'm getting a lot closer.

    I took the same drugs/supplements today that I did yesterday.

    I'm now feeling increasingly confident that the methyl block supplements had a big detoxification effect on me. If the detox effect comes back when I restart them, I will be even more convinced.

    I seem to be tolerating 500 mg of Famvir plus 200 mg of nattokinase pretty well now. I thus as right on schedule with where my doctor predicted I will be. I have an appointment to see him the week after next.

    I would like to talk to my doctor about the methyl block stuff when I see him, and so am going to resume the supplements tonight and see what happens. Hopefully I'll have a bit more understanding of what's happening if I continue experimenting with the supplements over the next couple of weeks.

    This means that I am going to have to put aside the Transfer Factor C for a bit. I can't say that fact makes me too unhappy. I believe the TF C will be very helpful, but it did knock the stuffing out of me.

    Frankly, I'm kind of tired of killing viruses. The process (for me) goes on and on and on, with no reward in sight.

    I know that some people have very bad experiences with too-rapid detox, but this week's experience for me was much more tolerable than viral killing. It's possible that the detoxing may even have given me a little bump up today in terms of feeling well.

    I'm thus inclined to do a bit more of it before torturing myself more with the viruses. This is especially the case since if the theory's correct, the viruses will be way easier to kill once the glutathione is working properly.

    I will go back to very gradually working my way up on the TF C, of course. It obviously will be very useful, since its potency is (at least in combination with the Famvir) very high.

    A bit of a "rest" beforehand feels like a good thing though. It would be nice to get my house straightened up too.

  17. Slayadragon

    Slayadragon New Member

    These status reports are taking on the spirit of a detective novel, now that I'm pursuing multiple suspects at the same time. I've decided I'm really glad I'm writing it down. It would be far more difficult to get sorted out if it were all just in my head.

    The two paragraphs on autism that you posted in response to swedeboy's question about the glutathione/methyl cycle block were a good summary of the topic, Forebearance. Thanks for finding them.

    During my last appointment, I gave Dr. Guyer a "meeting agenda." Included on it was a list of the supplements that I could think of that might help my progress with the Famvir. The ones he suggested I pursue were nattokinase, transfer factor, and Nexavir.

    The transfer factor did pack quite a punch, and I think the combo with the Famvir is what did it. Based on what I know of how the two substances work, there's no obvious theoretical reason not to take them together except for the efficiency of the viral killing. That in itself is plenty of reason to go slow though.

    Thank you to everyone for your encouraging comments. I really appreciate them!

    **

    CherylSue: The play I saw tonight was "The Great and Terrible Wizard of Oz," which turned out to be terrific. The theatre troupe that did it is House Theater of Chicago, which I would like to seek out again. This show was exported from the city to the theater two minutes from my house, which certainly was convenient. It only plays through the weekend, though.

    [This Message was Edited on 03/07/2007]
  18. Slayadragon

    Slayadragon New Member

    After reading your post, I did a little searching on the Web about potassium.

    It seems that a lot of produce has potassium in it, but that often it is lost in the water when it is cooked. My guess would be that this is why bananas and oranges are most often recommended for potassium supplementation, since they're eaten raw.

    I didn't read this specifically, but it seems that consuming produce as soup or fresh juice would supply a good amount of potassium. Baked potatoes (or even french fries) also are rich in it, I read.

    I've been taking 6-8 packets of EmergenC per day. I looked on the box and noted that it contains 200 mg of potassium per packet (the same amount as in half a banana).

    I told my doctor once that I had been able to consume 22 packets (totaly 22,000 mg) in one day. (He had recommended that I take as much as I could without getting diarrhea.) He noted that I take a bit of sea salt with it, which I now guess was to balance the potassium.

    Anyway, i don't intend to detox as quickly as I did when I was overly casual about those folate supplements the other day. If I do, maybe I will increase the EmergenC a bit and make sure I'm consuming some salt.

    I haven't read enough to have concluded whether detoxifying achieved with other substances has the same effect as using these. Do you know if they're supposed to increase glutathione usage?

    I'm not sure what you wanted to accomplish with the arabinogalactan, but I tasted a bit of one of the capsules from the Ambrotose bottle I have open. I expected it to be sweet, but it was more like salty. i wouldn't say that it tasted good, but it wasn't really bad, and the flavor faded away really quickly.

    I have some plain arabinogalactan from Pure Encapsulations, but I haven't opened the bottle yet.

    Or was there some other info that you wanted from this experiment? My body is in a state of flux at the moment, and so I doubt I'll be able to tell what kind of effect a little bit of the stuff has on me.

    I'm definitely feeling detox symptoms today, and so now I'm pretty sure that it's the methy cycle block supplements that are causing them. Whether they will have a positive effect on me, I don't know.

    Best, Lisa

  19. cherylsue

    cherylsue Member

    I'm glad you had the opportunity and energy to go out to an enjoyable play! What a pleasure lift. It's healthy to do things you really enjoy.

    I haven't heard of that particular play, but I will keep an eye open. I even like the plays done at the college or high school level. I like to see fresh young adult talent. Sometimes, their acting is better than the mature adult.

    Plays can be more enjoyable than seeing a motion picture in a movie theater. It's more realistic to me and draws you in.

    Hang in there,
    CherylSue
  20. Slayadragon

    Slayadragon New Member

    My experience with larch bark is that it seems to detoxify quite well on its own.

    I have the same reaction each time I take it. A few hours after the dose, I fall dead asleep for an hour or two. I wake up extremely thirsty and drink a whole lot of water. I feel a little icky with a very mild headache. I remain feeling sleepy for several hours afterwards. Then the effect goes away.

    Throughout, I get the feverish feelings that I associate with killing viruses.

    I'm not sure this would be a good thing to combine with some other detoxifier, although the mechanism here is quite unknown. What do you think?

    Best, Lisa