Fatigue and FMS

Discussion in 'Fibromyalgia Main Forum' started by LauraC, Apr 12, 2003.

  1. LauraC

    LauraC New Member

    I am 56 years old and have suffered from FMS since long before they knew that it existed. I was first diagnosed in 1987, a doctor who was practicing as a primary care physician, but who had a specialty in epidemiology diagnosed me with "fibrositis." This after many visits to specialist after specialist, and test after test with "normal" results. When I read posts from fellow FMS sufferers explaining how tired they are, my heart goes out to them. Many of us finally just go to bed and give up. I want to encourage those who do so to fight that urge and get up out of bed. Take as few meds as possible - take only those which help kick the depression and anxiety if necessary, and other meds which treat other illnesses, but docs are so quick to give us drugs...and there are so few drugs that do any good (if any). Start mild exercising - just walking. Don't try strenuous exercising, you will only get discouraged, because our muscles rebound very slowly. But start with a simple walk around the house, then go around the block, then two blocks, and so on. But do something every day. I am a high school math teacher and live a very fulfilling life, few people even know that I have FMS, but I live my life to the fullest and cherish each day. I take what I can of the joy, and accommodate for myself when I need to. I don't expect any one else to do it for me, and feel no guilt when I do it for myself. Mine was a slow road back to where I am, but I am making it better and better every day.
  2. kar1953

    kar1953 New Member

    Laura, Thanks for posting your thoughts. I have been in a real funk all day long. Put a load of clothes in the washer early this morn. & remembered them about 9 PM. So here I was at 9 pm drying a load of clothes because my brain doesn't work half the time. Tried to work in my garden, that didn't go well but I did it anyway, then paid the price. Later, my husband needed help fixing the tractor & doing some fence work. Then I had to get dinner ready, we did more fence work, had to run my dad's truck back to him & on the way home I just lost it. I used to be able to do all this & much, much more in a day. I love physical work & miss it. I hate when I start crying in front of my hubby. He feels so bad & there's nothing either one of us can do. I'm stuck with this DD & having a hard time dealing with it. I want to be able to do what I used to do.

    I sure hope & pray I can get on that same slow road back (slow is ok - just so I get back) that you did & get on with my life. You mention that you take as few meds as possible. Does that include herbal supplements? What about for pain? On a day like today I can't get through the day without pain meds.

    Well, it's late & I'm dog tired. Again thanks for posting your uplifting story. It does give me hope for a better tomorrow.

    Good health......Kathi
  3. LauraC

    LauraC New Member

    A big step forward for me was the work Dr. St Armand did with Guaifenesin. I have too much trouble taking the guai, the pain is too much. But avoiding salicylates helps a lot.
  4. kar1953

    kar1953 New Member

    I have no idea what Guai is. I have seen people talk about it on theis board but don't know what they are talking about. Also, to make me feel double dumb, I don't know what you mean by salicylates either - is that products containing asprin? I'm new at this fibro thing & don't understand alot of what is talked about on this board.

    Can you help me get a clue? :)

    Thanks........Kathi
  5. Mikie

    Mikie Moderator

    Welcome to the board. I'm glad you are getting better. Many here do not believe it possible and I am always glad to hear from someone who is improving.

    Kathi, don't feel bad about no knowing what the Guai treatment is. If you do a web search on Guaifenesin, it will bring up a lot of websites, including Dr. St. Amand's. His book, "What Your Doctor May Not Tell You About FIBROMYALGIA," explains the entire theory and protocol. It also explains the importance of sals (too much to go into here).

    You can also do a search here to find all the posts about it. Do your search here on Guai.

    Love, Mikie
  6. JP

    JP New Member

    Hello Laura,

    Thank you for your encouraging post. I am fighting to get back to the world of work. I am 42 years old and am on state disability for my spine, since 12/01. I also have FMS, Hashimoto's, widespread arthritis, positive ANA, and blah blah blah posted on my forehead. I have a true passion for life and I do want to get back into it! I have moved mountains in my lifetime and worked through many obstacles...this is a tough one for me. I admire your tenacity and hope to follow in your footsteps.

    take care,
    Jan
  7. kar1953

    kar1953 New Member

    I'll do the search & see if it's the thing for me. I'm willing to try whatever to feel mor like my old self again.

    Good health.....Kathi