Hi everyone, I'm awaiting a decision about SSI and am on state disability till then. Meanwhile, I have had a summer job for several years that I love and was planning on going back to this year, even though I am experiencing more pain, walking problems and brain fog. The job and person I work for is fairly flexible, so I thought that we could work it out for me to continue working with some more modifications. I.e. - I wanted to fix my pay so that I didn't make over the allowable amount by SSI OR volunteer my time and remain on my full benefits from disability. I also wanted to see if she could hire someone else to share the job with me, so I could have more time off and not do the part of the job that is more difficult for me. I realized and told my boss that it is the job itself, not the pay that I want to maintain. It's the connection with the company. There are many benefits to me and my kids especially. The kids come to work with me, they get to participate, it's outdoors, we really love being there. The problem is that my boss isn't really the boss. It's a non-profit, so though she is the managing director...she answers to the board of directors. Since my job is one of great responsibility and liability (deals with cash...lots of it) she thinks that the board would feel that they need to have a paid person in the position. I'm getting the feeling that I may have to let go of this wonderful job. She told me that the kids and I are welcome to come and volunteer in other ways as often as we want. She said she'll talk to her board about ways to work around my limitations. I wouldn't want to raise an issue about being disabled and having rights cause frankly I have been worried about my being able to do the job as well as before. My brain fog is so bad. I forget things all the time and counting money, adding numbers, reading data on a computer screen for a long time, etc. is very, very difficult for me. I feel so bad. I have felt robbed of my health by this DD, but now I really feel like it's tossing me aside from being a useful person. I guess I should look to volunteering as a good thing, then I can do only as much as I can handle and won't have total responsibility. Still, I feel rejected and really, really blue. A part of my life and something I really enjoy may be over. Another chapter in the book closed. How long before the book of my life ends? That's what worries me!