Feeling pretty "rocky" lately ... surgery , carpal tunnel soon!

Discussion in 'Fibromyalgia Main Forum' started by jaltair, Dec 23, 2005.

  1. jaltair

    jaltair New Member

    I had my regular visit with the Rheumatologist today and gave him my list of ailments as my brain was so fuzzy that I had a hard time remembering all of them so made a list.

    We talked quite a bit, and I explained that the extreme fatigue and changes in mental status were really what concerned me (affecting my work).

    A lot of blood work was done and I’ll get reports via FAX to me at work when they are ready. I’m anxious to see what the ANA and other results have to say.

    The doctor was concerned about the lupus factor.

    The doctor increased the Plaquenil back to 200 mg per day. He told me that it may improve the fatigue factor. He didn’t change or and anything else. Just continued me on the Ultracet 2 in AM and 2 in PM, Neurontin 120 mg at bed time, and the Mobic 15 mg for the arthritis pain.

    I’m being referred out to have surgery for the right carpal tunnel. He believes that it will help improve my comfort level. Maybe it will. I think that I’m just so use to pain that most things don’t get really bad until I stop doing! EXPLANATION of last comment: I just keep active and going as much as possible as I feel that if I don’t, I’ll be defeated and relegated to being mostly homebound and feel more depressed. Determination!

    I’m on 12 drugs total.

    Vytorin 10/20 1 tab (high cholesterol)
    Diovan 160 mg (high blood pressure)
    Levothroid 25 MCG 1
    Estradiol 1 mg - 1 tab – planning to go off in a week
    Cymbalta 60 mg (pain)
    Ultracet tab 2 in AM, and 2 @ bedtime (pain)
    Skelaxin 800 mg (muscle pain – use between Ultracet)
    Mobic 15 mg (arthritis pain)
    Neurontin 1200 Mg (pain)
    Plaquenil (Hydroxychloroquine)
    Flonase 0.05% Nasal Spray (allergies)
    Zomig 2.5 mg tablets (migraine)

    I worry about having surgery and what it will do with the FMS/CFS. I've had such miserable fatigue and general "yuk" and pain for so long, doing the carpal tunnel scares me a bit.

    Tiredly yours, Jeannette
  2. grandmasheri

    grandmasheri New Member

    Sorry to hear things are so rough. Hang in there, prayers are flying your way!
  3. jakeg

    jakeg New Member

    Hope you fell better soon and that the surgey helps eliminate the pain. I think you probably should slow down a little though. I to was so determined to keep my life the it was, darn determination, and all I did was succeed in making thing worse for myself. The pain at times is so severe that all I want to do is sleep alday just so I don't have to feel it and that is after taking my pain meds which do help. I do think the determination to do things sometimes plays us like a puppet, it controls you until you succeded at what you are trying to complete and then it just stabs you in the back for trying to be normal again. Maybe if I hadn't pushed so hard in the begining(6 months yesterday),at work and my personal life that I might not be in this severe pain all the time. Please slow down and help yourself for you are your worst enemy. Just do what you can when you can and don't push yourself to do more than you can.
    Sorry if I sound like I'm putting you down but I'm not just telling you that trying to do things the way you used to is probably not a good thing for you.
    Your determination is a good thing it's probably what keeps you going just don't let it push you into that mentallity that I have to get all of this done now attitude, because it could be the down fall that put me where I am today, severe pain all the time.

  4. Mikie

    Mikie Moderator

    I am so sorry you have been in so much pain. Have you investigated any other treatments for the carpal tunnel syndrome? I don't mean to be the voice of doom, but surgery isn't always successful. Different types of physical therapy (I've heard good things about ART), exercises, resting the wrist and not doing repetitive motions, and wearing a splint may help enough to prevent the surgery and allow healing. I always believe the least intrusive procedure, even if it takes longer, is better than surgery.

    In any case, I hope and pray that you will find healing and an end to this pain.

    Love, Mikie
  5. jaltair

    jaltair New Member

    fight4acure, grandmasheri, jakeg, and mikie, thanks to all of your for your kind and uplifting words.

    Jake, you sounded like my rheumatologist! He's always telling me to slow down. One thing that I know about myself is that I seem to have two gears, low and overdrive! LOL! :<) If I’m in low, I just want to sleep and do nothing. I’m afraid to be in that one too long; however on a weekend, that’s the main one I’m in. Problem with that one is that I can’t stay focused or organized.

    Hi Miki. Thank you for the comments. I’ve been using a brace during the night-time, and it does help with the pain of the carpel tunnel. I’ve also been to PT, but for the myofascial pain. The exercises do help with that (when I do them), and the PT gave me some other exercises to do for the carpal tunnel, which help; however, the Rheumatologist isn’t for certain as to whether the pain and numbness are from carpal tunnel or from the c4 and 5 nerve impingement. He feels that the surgery for the carpal tunnel is doing the least harm, and if it helps, that is positive – if I still have the pain and numbness, then I’m looking at neurosurgery (which I’ve avoided like the plague!). I just worry about my poor husband having to do things for me as it’s my right and dominant arm!

    I’m going to put off the surgery until summer sometime as we are just too short at work right now.

    Again, thanks to all, and I appreciate the prayers and the support.

    L, Jeannette
  6. MamaR

    MamaR New Member

    I am so sorry that things are so bad for you...and now the surgery.
    I want you to know I care!

  7. jaltair

    jaltair New Member

    Thanks. I appreciate the response. L, Jeannette
  8. Mikie

    Mikie Moderator

    And I'll keep you in my prayers.

    Love, Mikie
  9. dononagin

    dononagin New Member

    Ugh... Your med list is worse than mine and Joe's!

    ok.. from what I hear the carpal tunnel surgery that they do now days is nothing like the they did ten years ago.. The recovery rate is better and the success rate too.

    I know how you feel about work.. My fibro fog has been affecting mine.. (and you know where I work! Too much to be responsible for to be forgetting stuff!) I'm afaid too though that it is only a matter of time.. but I'm determined as well and not ready to give up.. I'm afraid to if I quit fighting I'll go downhill quick.

    I had a lady that works for one of our entities tell me the other day, I don't know how you can work if you "really" have fibro.. I wanted to laugh! No one around here knows what I go through every morning just to get here!! Or how many times I am in so much pain that none of the pills in my arsenal can give me any relief..

    It's tough I know Jeanette.. and my responsibilities are just getting brides down the isle and planning parties.. I can't imagine being in the medical field like you, where important health decisions could be effected by my lacking brain capasity!

    Jeanette.. now the ana.. they have been testing me for lupus for 10 years now! Have you had a positive ana in the past? (not that you can't have lupus without a positive ana)

    Mine has always been negative.. but my ra comes back positive and last time my esr was elevated too.. The rhumie said I don't have ra.. though I test positive.. and a positive ra can be indicitive of other auto-immune syndromes too.

    The only reason my rhumie finally ruled it out was he thought I would have had developed organ involvement by now.. (heart, kidneys, etc..)

    But the Plaquenil is usually used to treat lupus.. or other auto-immune diseases..So, they must be strongly suspecting something..

    Also the other thing I wanted to mention.. The Vytorin.. The doc had me on the same dose and I took it for 1 1/2 months before saying NO WAY!! I felt so much worse on it.. really increased my muscle and joint pain.

    I had started taking it the same time I started the Cymbalta.. I was feeling horrible and thought it was the Cymbalta till I read a post from someone else on how the Vytorin was effecting them. Have you had any trouble with it?

    Good luck if you do have the Carpal Tunnel surgery.. As far as throwing you in a flare.. I wouldn't let it stop me if I were having pain that could be reduced.. Flares don't last forever, but the carpal tunnel problem may not ever go away with out the procedure..

    I'll be thinking of you neighbor.. (hey clear skys on this side of the valley today.. no fog.. I'm freezing though!!)

    I hope at least some of this makes sence.. I'm a bit foggy this morning!!

  10. dononagin

    dononagin New Member

    I told ya I'm foggy today.. I was going to mention one more thing.. Joe was told he had to have surgery for his shoulder.. torn tendons and rotator cuff.. well after seeing the specialist (and another MRI) the specialist gave him a cortisone shot in his shoulder and.. voila!! all better!! Maybe you will get lucky Jeannette!! Fingers are crossed!!
    love, dona
  11. jaltair

    jaltair New Member

    Mikie, again thank you for your prayers, I appreciate your thoughts and support.

    Doxy, Yes, the Zomig is about all that I've found that helps after a migraine begins. It really knocks it fast. Don't you wish there was something like it for the brain fog! :<) LOL Thanks for your prayers as well Doxy!

    Hi Dona, exactly! I can’t give up or I’m afraid that it’ll be a downhill slide just as you expressed. When I lay down now, I immediately fall to sleep and feel like I’m in a stupor if I wake up. I could just lie like that forever, but then it would mean not living! I’ve also had people tell me that they …“know people who have (FMS/CFS) and can’t work.” Then ask, “How can you work?” It is hard. Getting up feeling like death warmed over and trying to conjure up enough energy that I even think that I have energy! Working and ignoring the pain and trying to appear level headed and be able to make somewhat intelligent conversation with others.

    The Rheumatologist has been testing me for a little over a year (my mind doesn’t remember exactly how long … yuck) for lupus, my ANA has been elevated, as has some other tests. At first the Rheumy was sure it was Lupus, then he changed his mind and said it (ANA elevation) was due to the FMS. He told me “I was too old” to have a systemic Lupus, but that it could be a different type of Lupus and he would keep an eye on it. I have the pleurisy and sores in my mouth. It’ll be interesting to see the results. I’ll post what they are so you can see. My RA has been negative, thank goodness, as I already have osteoarthritis, severe in spots.

    Vytorin has bothered my muscles or the joints and has been really helping the problems with cholesterol and triglycerides. I much prefer the one medication over taking two (one for the cholesterol and one for triglycerides).

    I’m glad that Joe got relief from the cortisone shot, that’s great. My friend suggested that possibility. Maybe I’ll talk with the surgeon about doing that. Thanks for your comments Dona. We went in to Bakersfield today and it was so warm. Not like Christmas season at all. Very muggy, almost like weather back east in late spring! Hope the trees don’t bud …

    It’s so great to have friends like all of you. Getting things down “on paper” so to speak helps a lot. Plus, all the feedback and suggestions are great!

    Love, Jeannette

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