Feeling so tired

Discussion in 'Fibromyalgia Main Forum' started by skatskat, Sep 26, 2005.

  1. skatskat

    skatskat New Member

    Even after I've had what I call a good night's sleep (5-6 hours)I'm still so fatigued I could cry. I sleep with a C-Pap and have to take Prosom and Trazadone at bedtime in order to get knocked out enough to tolerate wearing it. Most nights I still wake frequently but it's so frustrating when I feel like I've really had a decent sleep yet feel so very, very tired in the morning. My sleep study showed that I have Alpha Wave intrusions during sleep and maybe that's the problem. I'm at my wits end. It's consoling to know that I'm not the Lone Ranger and that many of you are going through this awful condition just like I am with no relief. My sleep specialist just retired due to poor health (he has Fibromyalgia and Chronic Fatigue also) and I think he just wore himself out, so I have to find a new doctor and as most of you know, that's not easy.

    I have tried many of the well known drugs used for Fibro/Chronic Fatigue, but they have a paradoxical affect on me. I'm so sensitive to most drugs and can't tolerate them. I recently tried Lunesta, but it doesn't work. I'm so sick and tired of being sick and tired.

    Thanks for letting me vent! It helps to share with others. I just wish there was a magical cure. "Poof" You're all better!!! I guess we just have to wait until one day when something wonderful comes along.

    Hugs to all,

    SkatSkat
  2. nanna4550

    nanna4550 New Member

    I was taking Trazadone, but recently switched to Ambien. I
    think I go into a way deeper sleep with the Ambien, and I
    am dreaming. I tried Lunesta also (I had several really depressed days before I realized it must be the switch to Lunesta) At first the Ambien didn't keep me asleep but now as long as I don't get any caffeine I'm good.
    Best of luck with getting used to the machine, too. I can't imagine how hard that is.
  3. neldwn2me

    neldwn2me New Member

    SKAT SKAT . I HAVE A CPAP MACHINE AS WELL AND HAVE A HARD TIME SLEEPING WITH IT ON. AND WHEN I DO . I STILL WAKE UP ALL THRU THE NIGHT. BY MORNING IM SO TIRED. MY DOC DOESNT THINK IM TRYING WITH THE MACHINE BUT I AM . IT JUST FEELS LIKE SOMONE IS SMUTHERING ME AND IM UP TAKING THAT MASK OFF. BOY YOUD THINK I WAS DROWING. BUT IMTRYING. YOU HANG ON IN THERE TO. IT'S GOING TO GET BETTER. CPAP AWAY
  4. PVLady

    PVLady New Member

    Are you able to sleep or nap during the day to "catch up" on your sleep. If you are still tired, then 5-6 hours is not enough sleep.

    Perhaps you can experiment by trying to sleep earlier in the evening. Also, have you tried sleeping slightly elevated on your back (using a wedge pillow)? If may help you tolerate the machine.

  5. EllenComstock

    EllenComstock New Member

    5-6 hours of sleep a night isn't enough. I think 8-9 hours is recommended. Keep is mind, too, that even if we sleep all night, those of us with FMS often do not get enough of stage 4 sleep, which is the deepest sleep and the sleep that refreshes and heals.

    It's also important to go to bed and get up at about the same time every day. I am very sensitive to noise so I also have a sound machine.

    Ellen
  6. chp1298

    chp1298 New Member

    I know how you feel and I am sorry you are so tired. It does not matter how much sleep I get I am tired and sleepy all the time. I wake around 4 and cant go back to slepp. I take amben and trazadone and sometimes valium VERY night. SLeep is a terrible issue for me and sounds like for you to.I think my brain fog comes from lack of sleep .... restful sleep.
  7. skatskat

    skatskat New Member

  8. HppeandMe

    HppeandMe New Member

    Sleep is the biggest complaint I have with this disease! I have just started Xyrem though and I am crossing my fingers that this will work.

    I know that I feel almost 100% when I sleep. In fact, for some unknown reason I slept perfectly for 3 weeks. This was about 2 weeks ago. I never felt better while being sick. I am hoping that with the Xyrem I will get the sleep I need and will feel like a did a few weeks ago.
  9. Francey54

    Francey54 New Member

    Dear SkatSkat:

    I am so sorry you can't sleep well. This is one of the most frustrating conditions of FM. There is no miracle cure right now, but we have to hope that there will be one someday.

    I have tried so many things that just didn't work. I finally found a combo of meds and it helps me. I take 2 Flexerils 10mg each, 1 Klonopin and 1 Serax 30mg. I sleep about 7 hours on and off, so I think that is pretty good.

    Ask your doctor about them sweetie, maybe you will have good results as I .

    I hope you sleep better tonight. I will be praying for you.

    Tender hugs,
    Francey