Feels Like Body Flu All Over.

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by joeb7th, Feb 10, 2010.

  1. joeb7th

    joeb7th New Member

    I did some gardening today and now it feels like I have one of the worst body flus all over.

    It's like the pain is even in your bones. But there is also a very weak and effected feeling inside way beyond normal tiredness. In your gloands and organs. Like one or more of these are infected and/or fighting a virus.

    Again, the best way I can describe it is like having an intense body flu virus.

    Thats' what we all have right? A virus?

    Any one feel exactly how I feel after doing some physical labor?
  2. TigerLilea

    TigerLilea Member

    I can't say I feel like I have the flu, but I do get extremely exhausted. After a couple of days of doing gardening, I usually crash for a few days at least. It's worth it though; I love gardening. It's what keeps me sane while going through this illness.
  3. ilovepink4

    ilovepink4 Member

    That is EXACTLY how I feel.....all the time....but if I do too much laundry or leave the house for more than an hour or two, every inch of my body aches JUST like the flu! My skin hurts to just be lightly touched. My hair hurts if I brush it or braid it.....

    the grossest thing is it feels like my lymph nodes in my armpits and neck are bulging and swelling .....that is only temporary and goes away after I rest and take pain meds....and I bet that is what you are describing....almost like when I had mono....

    so, when I am just resting and laying in bed, the aching is manageable but if I try to vacuum or change the sheets, here comes the really bad flu pain....
  4. greatgran

    greatgran Member

    Yes, this is how I feel, the achy pain deep in the bone. I feel I have the flu but no cold symptoms. I do think its some type of infection , not sure if its viral or bacterial. I think mine is bacterial because an antibiotic always seems to help. Do you have problems with sinus issues.. The ENT told me this week I still have some sinus infection and was given another antibiotic..
    It sure is a miserable feeling.. Glad you are able to garden. We have been covered in snow since before Christmas..

    God Bless,
    gg
  5. joeb7th

    joeb7th New Member

    Thanks for the responses.

    I have 24 hour, 7 day-a-week, 52 week pain all through my body "normally."

    That is my normal state!

    One doctor said it was tendonitis.

    From hands through arms and up through shoulders and around rib cage and under arms ( this area is extremely sore when touched ) and down through knees and down side of calves and into the ankles and feet. My feet are so sore upon contact with anything in the evenings.

    Also, the tendons in the bottom of my feet and even in my toes cramp up all the time for seemingly no physical over-use reason to levels like when you were a teenager and you just ran five miles and a calf muscle or foot muscle cramps and it about blinds you and knocks you to the ground it is so intense. Like the calf muscle is going to burst!

    This are my normal body pain symptoms.

    I live with them becuase I have no choice and this soreness generally stays at about a level two to four and I can live with it without it making me moan and totally disfunctional.

    But, for some reason out-of-the-blue and after I do exercise this pain intensifies to moaning level and stays that way until the next day where it usually goes down somewhat...but never away.

    Sometimes I get this much more disabling and scary body flu feeling with it's accompanying dehydrated feeling and everything in your body feeling flu like weak. Your urine strength goes down. Your kidneys appear to feel sore. You lose your appetite. You just feel everything inside of you feeling that flu virus weak and sore.

    The body pain during this time is different than normal tired exhaustion soreness. Just imagine your memories of a body flu. That is the only way I can clearly describe this.

    I have mentioned many times on this board that this body pain and so many other maladies I have all started after taking a 5 day course of the antibiotic Levaquin 4 years ago.

    But no doctor will ever even allow me to discuss my belief that this is what triggered all this immune sytem damage and they just say " move on and deal with it."

    If you do anything but what they say you get a patient reputation and treatment ruining label of "non-compliant" patient or even worse a "psyche" one which is the kiss-of-death for you being taken seriously by too many doctors afterwards.

    In my small community I can't even see half the doctors here anymore for situations like this I have suffered through the last 4 years. We only have one group of specialists like GI and Rhuemotology so get this label with them and that's it.

    So you quit complaining about your true feelings and symptoms and bury your anxiety .. but don't expect me to have a huge grin on my face when you see me doc. And please...do not further hurt me by calling me a psyche case more than a physical one or drop me when I never get better or you think this is a resut of my simply wanting to get sympathy. And after 54 years of local residency and NEVER doing this or seeing doctors more than once a year.

    Anyway...just living day to day with all this stuff. Thanks for responses who say they feel the same "body flu" type symptoms versus simple tiredness and muscle soreness.
  6. TigerLilea

    TigerLilea Member

    Your doctors were very wrong when they claimed that the antibiotic Levaquin couldn't have caused your pain. Levaquin is in the Quinolones class of antibiotics and has a known history of causing tendon damage. I have met other people on the internet who have suffered permanent tendon problems after having used an antibiotic from the Quinolones class. You might want to Google some information to take into your current GP.

    Unfortunately doctors too often tend to prescribe medications without knowing too much about them or their side-effects. I have twice now been put on different antibiotics that screwed up my digestive enzymes. Cipro caused me to become lactose intollerant and Novo Trimel caused me to have a problem digesting fruits and vegetables and for a week I could barely walk due to calf pain. Several doctors don't agree that it was the antibiotics, however, when I started researching, I found I was far from the only person to have these same problems. I don't understand why doctors don't want to know about possible side-effects and why they have such a hard time believing patients when they report side-effects.
  7. jole

    jole Member

    Yes, what you describe is exactly what I go through. The "deep in the bone pain", the severe flu-like pain, trouble urinating, severe exhaustion, feeling of dehydration to the point of shakiness and palpitations, swollen glands and knotted muscles in arms, thighs, upper back, shoulders and neck.

    I'm also freezing cold most of the time, even though our thermostat is set at 74 and I wear flannel pants and sweatshirt with undershirt. If I overdo, in the mornings it's like standing on stubs instead of feet the pain is so severe, and my hands/wrists hurt terribly. But I do not have arthritis.

    Some days just walking from the bed to the recliner is all I can manage, and a shower is out of the question. On my best day, I can vaccuum half a room. People do not understand my life, and I'm to the point that I no longer care. We do the best we can do, and dream of being able to do more. That's just our life, and I wish there were an answer..........Jole
  8. Janalynn

    Janalynn New Member

    I think if I remember correctly, you have CFIDS right - or were you still trying to figure out what you had? I think I'm remembering a post from a while ago.

    My pain (have FM) is DEEP bone pain many times. As a matter of fact, I swore I had something seriously wrong with my bones for many years. I sometimes describe this to people who don't have a clue, as when you do have the flu, the kind where you have to be in bed with double blankets cause you're freezing and to even sit on the toilet hurts like H*LL. You wish you could sleep it away.

    Regarding Levaquin, I will never take it because of my Mom's reaction to it. Everytime she'd be prescribed it, on about the third day, she'd get much sicker than she was, dizzy...just not a sign of getting better at all..the complete and noticable opposite.

    I had read a lot about Levaquin on a site that I love. Ask a Patient dot com Scary stuff! I happened to talk to the pharmacy after that and they said they'd never even heard of any problems with Levaquin. HUH? I found that a bit shocking, since they usually hear even the "controversial" stuff. This was a younger guy and I really think he was just not going to say that any medication could cause any problems in general, that wasn't specific to a certain person/situation.

    Sounds like you need some serious REST. I don't know why our bodies react to things the way they do but it sure doesn't make life easy, does it?

    I hope that you can find some relief and feel better soon!
  9. lynncats

    lynncats New Member

    I complain to my DH everyday, that this flu-like feeling (X1,000) is awful. Know that I'm thinking of you as that is exactly how I feel. Take Care

    LYNN
  10. joeb7th

    joeb7th New Member

    That is a dangeorus pharmacist. Levaquin has been given the FDA's strongest warnung label...the "Black Box" one.

    They resisted this for years until the valid research numbers indicating it's widespread damage to tendons became so overwhelming that they had no choice.

    The floroquinolones antibiotics used to be called " The Big Gun" by health porofessionals.

    And as naturally occurs, the more powerful something is it invariably has more powerful and damaging side effects.

    The credible and well done nationwide studies prove these super powerful anibiotics cause tendon damage and I can tell you...much more damage to other parts of your body than that.
  11. MsE

    MsE New Member

    You described it well. It feels like a major flu with bone-deep aching.
  12. wendysj

    wendysj New Member

    Hey Janalynn and Joey!

    I've been describing the CFS as a flu times 10 since it first hit me after mono in 2004. It's the most God-awful feeling and nothing I've ever tried has lifted that feeling - except time.

    I took Levequin many, many times when I have having bladder, kidney and UTIs at least once a month for nearly a year... I NEVER knew it was so dangerous. I recently had a bladder infection and that same doc prescribed me Microbid (sp?). I asked why the change and he said, "It's easier on your body". ARGH...

    Janalynn, thanks for the website!
    Wendysj