Discussion in 'Fibromyalgia Main Forum' started by street129, Nov 17, 2009.

  1. street129

    street129 New Member

    my last blood work came back with my Ferritin keep going up high, the last read was 442. which should only be around 200, or less, anyone knows what this means, i was told the only way to get it to come down is to gave blood, i did that once, and it came down, but it is high again. would you continue to gave blood to get it down, the first time it was about 900, that was when i gave blood. i have a donor's card. i might make an appointment after getting it check to see if it gets any higher

    i found this meaning of the word, Ferritin is a protein that stores iron and releases it in a controlled fashion, in single cells and multi-celled animals. It is a buffer against iron deficiency and iron overload

    does anyone know any kind of supplements that i can take to reduce this stuff. thanks

    appearently my ferritin is not doing what is suppost to be doing in my body.

    drs. cant answer me. i hate doctors soooooooooo much

    [This Message was Edited on 11/17/2009]
  2. richvank

    richvank New Member

    Hi, street129.

    High ferretin can be caused by hemochromatosis, which is hereditary, and the only treatment for it is to give blood periodically, as you mentioned.

    I hope that your doctors have ruled out other possible causes, though. Inflammatory diseases, liver diseases, some leukemias and lymphomas and other malignancies, hyperthyroidism, some anemias and thalassemia can also be associated with elevated ferritin.

    Best regards,

  3. street129

    street129 New Member

    thanks for your reply, i am so greatful for this, i will have to asked my dr to check for this, hemochromatosis, tomorrow i see her. thanks again, ill have her gave me a blood work up also, i kinda like her, cause shes always ready to do blood work whe you asked her.
    but i also dont find drs. admirable at all.
  4. TigerLilea

    TigerLilea Active Member

    High ferritin levels can lead to heart disease, so you definitely want to get your numbers down. If you have CFS you can't donate blood, however, your doctor can arrange for you to get some blood removed to help bring your numbers into a more acceptable range.
  5. AuntTammie

    AuntTammie New Member

    Yeah, if having blood removed would help, then do that, but please don't try to give blood.....we don't know for sure yet, but it is very likely that giving blood will also give the recipient CFS.
  6. street129

    street129 New Member

    i believed my dr check for this and it came back not hereitary. my sed rate is 56, thats high.
    i have alot of question for my dr. tomorrow, i should see a specialist for this. and if i cannot gave blood through the blood bank, how do i get a pint of blood out of me. good question i hope my dr will answer tomorrow.
    [This Message was Edited on 11/17/2009]
  7. richvank

    richvank New Member

    Hi, street129.

    A sed rate that high suggests infection or inflammation. That can also be a cause of high ferritin, because ferritin is a heat shock protein. The liver produces elevated heat shock proteins under conditions of infection or inflammation. Hopefully your doctor will get to the bottom of this.

  8. gapsych

    gapsych New Member

    I think it is a smart move by the AABB to do this. Better to err on the side of caution.

    Hopefully we will know if the HVs are transmittable and if they are do they affect health?

    I don't think you can give blood without signing something that says you are in good health. Is this true as I can't give blood?

    I would take it the same applies for FM?


  9. victoria

    victoria New Member

    My MIL had hemochromatosis, and did well with having blood taken until her levels were normal. Almost all of her joint pain and fatigue went away, she was a 'normal'.

    However at the time they did not donate the blood taken from people with H., since they couldn't be sure what exactly causes it- not all are heredity. I think this has changed (this was about 20 years ago), but, I really still wonder if it should be included in the blood supply...

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