FFC : Chlamydia Pneumoniae test results help

Discussion in 'Fibromyalgia Main Forum' started by GarnetSecure, Oct 8, 2005.

  1. GarnetSecure

    GarnetSecure New Member

    Hi Everyone,
    My first post here as my wife usually posts and checks the boards. She has Fibro and I have Chronic Fatigue, we are quite a pair!

    Been going to the Philly FFC for 3 months now. Am making some progress but recently have rising blood pressure and just had an abnormal EKG. Was reviewing my CFS bloodwork and saw the Chlamydia Pneumoniae test results. I can't tell if the results were good or bad. Dr at the Philly FFC center said I do not have it but want to make sure it was not overlooked.

    So if anyone can compare my results vs theirs, I'd really appreciate it.

    Chlamydia Pneumoniae IGM <1:16 ref range <1:16
    Chlamydia Pneumoniae IGG >=1:1024 ref range <1:32
    Chlamydia Pneumoniae IGA >=1:1024 ref range <1:16

    I think my IGG and IGA numbers show I have a nasty current infection going on. Any help?

    Thanks, John
    [This Message was Edited on 10/09/2005]
  2. elsa

    elsa New Member

    Giving you a bump back up. You might want to add in your title that you are looking for FFC patient's input on this so they'll know you need them.

    I wish I could be of more help .....

    Elsa
  3. GarnetSecure

    GarnetSecure New Member

    Just got back from a sleep study so I'll be getting those results in a week or two.

    Like my wife and I say - We've got it all going on!

    Thanks, John
  4. onedaymagpie

    onedaymagpie New Member

    I go to FFC in LA.

    This stuff is so, so confusing. I don't know if this helps, but my test results were:

    C. Pneumoniae IGA <1:16 refer <1:16
    C. Pneumoniae IGG 1:128 H refer <1:32
    C. Pneumoniae IGA 1:32 H refer <1:16

    Obviously, the "H" is where it was highlighted as being high. The doctor did not really seem to make too much of these numbers, but I was also high in EBV and am taking anti-virals for that.

    I think you should call the doctor back on Monday and ask for further information. From my experience in calling with lots of questions and always getting a call back, usually from the doctor himself, and from other posts here, they are really good about getting back to you on the phone. I have done that, where the doctor discussed something with me, but I was still concerned to call back and say, I know that we went throught this, but I am just not understanding it. Like here, you could say that in reviewing these results, it is really confusing, because it looks like it is showing an infection and ask for an explanation. Be ready with lots of follow-up questions.

    Good luck and hopefully others can be of more help . . .
    Maggy
    [This Message was Edited on 10/09/2005]
  5. pumpkinpatch

    pumpkinpatch New Member

    I agree with Maggie ask lots of questions and explanations. What I do is write short-form lists in big letters and as I go down the list with the FFC doctor I cross them out! That way I remember everything.

    Anyway my CHLAMYDIA PNEUMONIA RESULTS WERE

    IgG 2.05 (1.11 OR GREATER: Positive) which suggests current or past infection. As you can see my 2.05 is high

    IgM 1.20 (1.39 or LESS: Negative)

    I don't know the different between the two but we are treating with antibiotics since July 25/05. Also had IND(slightly positive) for Lymes so both infections are treated with the same abxs. Doxycycline and biaxin. Apparently takes 6 months to see a difference (ab) with chlamydia maybe sooner.

    Hope this helps

    Cindy





    [This Message was Edited on 10/09/2005]
  6. GarnetSecure

    GarnetSecure New Member

    I have my weekly appt at the FFC on Monday morning so I'll take my results back in (they have their copy too) and see what is what.

    Then I'll post the results. Main question is: Is it good or bad to have the higher number like a 1:1024 or is a 1:16 better.

    Thanks, John
  7. Sandyz

    Sandyz New Member

    I go to the Dallas, FFC John. My results were:

    chlamydia pneumonia AGM 116(normal)
    chlamydia pneumoniaIGG: 1:64(high)
    chlamydia pneumonia IGA: 1:16(normal)

    I only had one that was high that they are treating.
  8. onedaymagpie

    onedaymagpie New Member

    I don't know if your lab report states this below the results, but in mine it reads:

    ------------------

    IGM titers of 1:16 or greater are indicative of recent infection. However, anti-chlamydia; IGM is very cross--reactive and may demonstrate titers to more than one species.

    IGG titers of 1:32 or greater may indicate past exposure to a particular species. Titers of 1:128 or less may be do to the cross-reactive antibody or a non-specific stimulation; of chlamydia antibody. Infection with a particular species usually yields antibodies of a higher titer than with non-infecting species. IGG titers in recently infected individuals are usually greater than 1:512.

    IGA titers may be evaluated in recurrent or chronic infections and may be very helpful in identifying the infecting species of Chlamydia when cross-reactive IGG is present.

    a four-fold rise in titer is still the best indicator of a specific infection, demonstrating by acute and convalescent samples drawn 2-3 weeks apart.
    (From Quest Lab)
    -----------------------------

    I think this stuff is really confusing, especially trying to wad through it with brain fog. By it seems like (just a guess) that the higher the number, the more likely that there is an infection, such as their comment about how recently infected individuals have high titers at a 512 rating


    Anyway, I am glad you will get to see the doctor in person. Like Cindy, I always bring a sheet that lists all my questions and mark them off as I go. He always ends by saying - Do you have any questions? I hope it goes well for you and that you are satisfied with the responses.
    sending good luck to you
    Maggy
  9. pumpkinpatch

    pumpkinpatch New Member

    Let us know what the doctor has to say about your chlamydia numbers. This is interesting. I do know that long-term treatment with antibiotics is what is recommended.

    There is a chapter in "Fatigue to Fantastic" book on chlamydia pneumoniae. It can wreck havoc and really depresses the immune system.

    Cindy
  10. jake123

    jake123 New Member

    This is very interesting to me and reminds me of something about six years ago when I went to a neighborhood doctor with a nasty, painful case of strep throat after a trip to the Gulf.
    He did a culture of my throat. I had to go back because I was still sick after a week and he told me that there was C. pneumoniae in the throat culture.
    I was not as informed then as I am now. And I was feeling so bad then that I hardly listened to him. I remember that he gave me some liquid Lortab!! so I could swallow.
    Is this one more reason I should go to the FFC?
  11. Wasabi

    Wasabi New Member

    I can't help you with analyzing the numbers of your test results, but I do go to a FM/CFS specialist who treats for Chlamydia Pneumoniae. Here's what I've learned:

    Chlamydia Pneumoniae infection has 4 stages of existence, going from the acute to chronic to cryptic. Many people are exposed to and fight off the acute infection--Chlamydia Pneumoniae is what causes bronchitis. However, if your immune system is unable to fight it off, it can become a chronic form that continues to live in your body.

    In the cryptic form of Chlamydia Pneumoniae, the infection is actually harbored in your white blood cells. It doesn't reduce your white blood cell count (so it won't show up on your blood tests), but it causes your white blood cells to be unhealthy.

    Thus, if you have this chronic/cryptic form of Chlamydia Pneumoniae, your body then becomes extremely susceptible to other infections, allergies, and general dysfunction, such as what FM/CFS sufferers have.

    My doctor's protocol involves long-term antibiotic treatment + mega-supplements + activated charcoal:

    The antibiotics are taken for up to a year and several months after you have no symptoms. I started out taking Amoxicillin, Doxycycline, Rifampin, and Flagyl. (Incidentally, this is also basically the protocol for Lyme Disease.) Recently, they switched me from the Doxy and Rifampin to a new medication called INH, which was recently patented. INH will completely eradicate Chlamydia Pneumoniae, whereas previously, it was thought that they could only suppress the infection in your body.

    The mega-supplements are to aid your body as it eliminates toxins. Essentially, Chlamydia Pneumoniae will release endotoxins as it gets killed off. These toxins pass through your liver, and the supplements help reduce the level of toxins passing through your liver. (You can look at my bio to see what supplements I'm taking.)

    Finally, the activated charcoal is important, because it binds toxins as it passes through your system. Activated charcoal is powerful stuff. Some veterinarians use it for animals that have swallowed poison. In the case of Chlamydia Pneumoniae, it significantly reduces the ill effects of herxing.

    In summary, if a person has Chlamydia Pneumoniae, it's important to treat it. Otherwise, it will continue to wreak havoc in the body and perpetuate many of the symptoms of FM/CFS. It's also important to have long-term treatment. If you are on an antibiotic protocol for Chlamydia Pneumoniae, it must be continued for several months and possibly up to a year. Otherwise, it will just push the infection into a cryptic form that will come back later on.

    I've been on this protocol since May of this year, and I am significantly better already. I haven't felt this good in several years.

    Anyway, I hope this helps. I wish you the best!
  12. pumpkinpatch

    pumpkinpatch New Member

    Sounds like you are on the right protocol for this chlamydia pneumoniae. You are a few months ahead of me. Thanks for the detailed description.

    My question is how do you space out all your supplements, hormones, and antibiotics. I've been herxing, increased pain and hard to get through this but will perseverse and will continue the meds. Never heard of the charcoal.

    I must have an active infection with the high IgG levels 2.05.
    Are you on the Dr. t. daily enzyme drink with the B caps?

    Cindy



  13. Wasabi

    Wasabi New Member

    Regarding your questions:

    I wasn't able to take Dr. T's powder drink, because it has whey in it, and I'm lactose intolerant. That means that I'm having to take the individual supplements in pill form, which is kind of a hassle. Here's an overview of my schedule:

    Wake up: T3 and INH

    With breakfast (1 hour after T3 and INH): Antibiotics, Quercetin + C, Thisilyn, Selenium

    Before lunch (10-20 minutes before): Digestive Enzymes, Nizoral

    With lunch: Multi-vitamin, Magnesium, Acetyl-L-Carnitine,

    2 hours after lunch: charcoal powder mixed in water

    Late afternoon (at least 30 min before dinner): T3, Acetyl-L-Carnitine

    Before dinner (10-20 minutes before): Digestive Enzymes, Nizoral

    With dinner: Antibiotics, Quercetin + C, Thisilyn, Zinc, Selenium

    Before sleep: Magnesium, Probiotics, Melatonin

    Plus, I take Fluconozole 2x/week and Flagyl periodically (5 days on, two weeks off, repeat). I will be starting Nystatin in a few weeks.

    Hope this helps. I've been able to be pretty consistent about sticking to the schedule, which seems to help. I think the benefit from this treatment is somewhat cumulative, so even though it's a hassle, I'm trying to be patient and persistent.
  14. GarnetSecure

    GarnetSecure New Member

    Yup, I got it bad, the doctor verified it. It was not marked on the blood test result sheets as active or high but she said that because I also have Mycoplasma Pneumoniae, the treatment is the same and I would be going through that antibiotic treatment either way.

    I am still in the early stages of treatment getting my hormones up to snuff and taking the supplements. In 2 weeks I meet again with the FFC doctor and start attacking the Epstein Barr and Chlamydia Pneumoniae and Mycoplasma Pneumonia. I may try to go after all 3 during the same time with antibiotics and antivirals plus a combined weekly IV. My blood pressure has been rising and just had a funky EKG so I need to hit the pneumoniaes hard. Also will be getting a CPAP as a result of the sleep study. All combined it will be a hard attack on the bad guys and I really hope to get through this and get back to a real life.

    Thanks for your help - thanks for the daily medicine and supplement schedule too - that really helps as there is so much that has to be taken with food, or with an empty stomach, or completely on its own. I now have a 7 day pill holder with 4 different bins per day. Yup, yup, yup...

    John