Discussion in 'Fibromyalgia Main Forum' started by moonchild1970, Mar 30, 2006.
Someone mentioned this to me? Anyone heard this? Do you think that there is any truth to it?
What were the credentials of the person who told you that and where did they hear it? (medical journal etc)
Was it a doctor? I have never heard that and hate to have others here begin thinking they will develop MS.
Fibro is "trashcan disease" - you get the diagnosis after everything else is ruled out.
If someone was going to have MS then probably that was what was wrong all along - not fibro.
i've worked as a nurse for 11 years now and i have never heard that fibro is a precursor to ms. the two are completely separate conditions. i would hate to think that you have spent even one moment worrying about this. but if you have i hope i have helped to put your mind at ease.
never heard that Fibro is a precursor to MS. I know people who have MS AND FM but they always had MS.
I would also be curious as to the credentials of the person who told you this.
I've not heard of it although some people who where diagnosed many years ago (before MRI) now have a lot of brain lesions????????????? We also have lesions so it's really hard to say why.
Well I've had CFIDS and FIBRO for twenty years....the MS has sure been slow in coming....how many years before you can tell? LOL
No, I do not believe it. Even if I got MS, I would not beleive it, as many of us has various illnesses.....
You can have arthritis and Fibro.....but Fibro is not part of arthritis...My mind is dancing around....sorry
Many with Lupus, MS, and CFIDS also suffer from FMS. The FMS often follows the other condition and appears to be secondary to them.
So many worry that our illnesses will lead to autoimmune illness, AIDS, or cancer. I do think because we are run down, we are suseptible to other illnesses, but I don't think we should worry too much. I do think we should be aware of what is going on in our bodies and not assume new symptoms are related to our illnesses. New symptoms should be checked out.
Immune/autoimmune illnesses do seem to travel together. We are more suseptible to some forms of cancer. Unless we are in an intimate relationship with someone with HIV, abuse injectible drugs, or work in the health field and accidently get exposed through working with AIDS patients, there is little to no risk of developing AIDS. There are some overlapping symptoms between CFIDS and AIDS but those are likely from an HHV-6 infection which is prevalent in both illnesses.
Yeah I heard it on an MS board that Dr's are looking into the link between the two and that they think they are connected, and that fibro is a mild form of Ms or something. I too have also hear that we are more susceptable to brain cancer...
[This Message was Edited on 03/31/2006]
Moon, I also do not wish to scare you...you asked a question..I will give you the info from research I have done..along with my doc's.
Many of the chronic ills we deal with have similar symtoms. Then there are specific symtoms unique to specific ills.
I have to say I take offense to any illness being called a "trashcan" illnes. Usually the only ones I have ever heard use that terminology are ones who don't really understand it or believe in it. It implies that there is nothing that can be found wrong......so we will call it fibro or cfs.
When in fact, there is something very wrong.....cfs and fibro. Yes, other things have to be ruled out...because they may cause similar symtoms.You can have other ills and still have cfs/fibro.
There are studies that are putting cfs,fibro,ms,lupus,and parkinsons together as possibly one illness.The difference is they present unique symtoms to each specific disease....along with a ton of sililar symtoms.
Think of it as symtoms a-z. --- If you have a-g...you have cfs, add h-m...also fibro,....n-q..ms,...r-v....lupus,..w-z...parkinsons
Again, this is just a theory being investigated.
I myself have cfs, fibro and all that go with it
probable ms...possible lupus....also exhibit some parkinsons symtoms
I do not believe cfs/fibro is a precursor to ms. Many people never develop ms who have cfs/fibro. Although that was your question...I really feel it needs to be known that it is possible to have cfs/fibro....and ms,lupus, thyrois problems.....etc.
One of the saddest things i have also learned is that many people who are dx with any chronic illness...naturally assume that all symtoms old and new are due to that dx.
I have been dx with cfs/fibro...and as I said probable ms.
I would much rather have ms only.
Educating yourself is the best thing you can do. I have learned alot from this message board and the chat room. I also am always reading new studies..books...etc.
I have had several people say...I NEED a proper dx...so i can get proper treatment. To, that i say...chronic ills
are so mysterious and hard to understand....each person has to do what works for them. A proper dx..will not always mean proper treatment...it may set you down the right path....but it also may keep you from taking needed and beneficial detours to something that will help.
I apologize for this long post...I do tend to go on on on on on... all well meaning, of course.
Don't spend energy worrying about what you may have or develop,but also do not ignore new symtoms...and throw it onto the fibro/cfs pile.....that pile is big enough.
thanks. I too was dx with ms by an ER dr but the MS specialist said no, then he said maybe in the beginning stages, so i dont know...how frustrating. I was also dx with fibro back in '98.
When I first developed this DD, I was told I had myastenia.
As an Advanced Nurse Practitioner, I did not believe that.
I had seen myastenic patients, and I just didn't believe it.
Then, the neurologist told me I had atypical MS, although my MRI did not show it.
Subsequent MRI's have never demonstrated MS.
Some people who develop MS after FM may have doctors who believe that the FM diagnosis was just early MS, but I have never read or seen any connection between the two.
There have been previous posts on this board suggesting an FM/MS connection.
A neurologist did just a simple examination of me ten years ago (walking up and down, using a tuning fork etc.), and told me then that I did not have MS. I now know that I have cervical damage, vestibular damage, and am also diagnosed with FM. I have no lesions, and no sign of MS.
Going by what I have read on MS, there are some key symptoms, which may point to a MS diagnosis. Firstly, about a third of MS will have optical symptoms early on (eg blind spots). Also, I believe that with MS your skin will become less sensitive. In FM the skin becomes more sensitive.
Although I guess that there are some people that are hard to diagnose, I think that a good Neuro really should be able recognise most MS cases.
However, I must say, that it took me 25 years to get the diagnosis of damaged disks in my cervical spine, plus the vestibular damage. Sometimes I think that a lot of doctors are REALLY, REALLY, clueless.
As I said, I don't believe in the FM/MS connection theory. If it were true, then I think we would know by now.
Likely occur in those with a genetic predisposition plus a trigger or triggers. If a person develops MS or Lupus and has the FMS predisposition, FMS will likely develop. I don't think it's a connection, per se. It's just that some of us have several genetic predispositions and if there are strong enough triggers, these illnesses will develop.
No one right now knows for sure but researchers are leaning in this direction and I think they are right.
I've heard this too!!!!!!!!! All I can say is get tested especially if you have new symptoms. I think there will be a cure for MS far before a cure for these DD's.
Must remember for a very long time they thought this was
1. all in you head
2 ok so it is not in your head maybe its an arthritis..
well now they are finding ok wait this is much more serious then we thought and it is Neurologicaly related.
They are researching the connection between parkinson/ms/and fibro. I live right here in good ol Oregon where up at Oregon Health Science University Dr Robert BEnnet is doing just that.
I wanted to be in his studies but frankly I am not well and am homebound.
This is serious ladies. I too was a nurse before this DD knocked me down. SO for those of saying there is no connection there really is they are actively finding it right now. I have the phone number of a lady who is in his study right now.
It just takes time.
Mahx.. I would be interested in chatting with you about your sx nd your research.
Cromwell's post: MS and FM/CFS so ALIKE
I just sat all those no way no connection and had to post here...
I have all the sx of MS and no lesion. Every symptom of ms.. and many Parkinson sx... coincidence? I don't think so..
are the credentials of the person who told you this?
Ive been a nurse for 2 years & i have never heard it said that people with fibro get ms.
I feel sad if you know you have fibro & you thought you were going to get ms rest easy because you wont get it.
You have to be really careful what you say on here because you could be causing people on here unessasary worry.
She asked the question if anyone heard this.
Someone mentioned this to me? Anyone heard this? Do you think that there is any truth to it?
We all answered what we thought.
I too was a nurse and live in a state where the research on FMs and CFS surpasses many states. ANd yes they are researching a possible connection. I have a friend in the study right now.
She is looking for answers too.[This Message was Edited on 04/13/2006]
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