Fibro and Hyperflexible (Ehler's)

Discussion in 'Fibromyalgia Main Forum' started by janieb, May 9, 2006.

  1. janieb

    janieb New Member

    Is there anyone else out there with both conditions? This has created some special problems, since muscles that are bent too far, tend to tear, and isn't that just what we need?

    Just wondering if this is common or only in my family.
  2. msmac

    msmac New Member

    and at least one of my sisters is hyperflexible, none so far have had fibro, though.
  3. janieb

    janieb New Member

    boy, I don't have an answer for you. I've never heard of nypermobile. I have, at least 3 neices who are hyperflexible and one of them has fibro. Just wondered if there is a tie-in there.

    Thanks for responding.

  4. Strawberry94

    Strawberry94 New Member

    The same rheum. who told me it was my fault for getting "deconditoned" also was amazed by how hyperflexiable he said my joints are. He acted like a scientist who had dicovered some wonderful new creature or something. He didn't mention Ehlers.

    When I was a child and teenager I could put my leg behind my head.

    I dislocated my knees often as a preteen and had to have one fixed because of it.[This Message was Edited on 05/09/2006]
  5. cindye

    cindye New Member

    My daughter is hyperflexible and she has fibro. When there were tornado drills, she could fold up under a desk much easier than most little skinny girls twice as small as she was

  6. ephemera

    ephemera New Member

    I was diagnosed with benign hypermobility syndrome (fall 2001)before I was diagnosed with FM (2002) or CFS (2004).

    I saw a specialist & the another. Everyone has conflicting advice on what to do in terms of exercise & just daily life. I'm constantly subluxing & have lots of pain.

    You can find lots of info on hypermobility on the internet. I found several local groups, the national EDS group & one for Canada, & a great source for Britain. Just do a search for hypermobility which is not the same as being overly flexible. The various levels of EDS are also much worse than hypermobility in terms of complications.
  7. Cromwell

    Cromwell New Member

    Me too and my son. Not Ehlers though in which the joints will actually pop in and out. Though I do have dilated aorta associated with that. My neck is awful although that has never been described as hyperflex, I am sure I must over stretch it. I have a very long neck too.

    Love Anne C
  8. claudiaw

    claudiaw New Member

    I am too!

  9. janieb

    janieb New Member

    My doctor has suggested a trainer and machine. In our rural area it will be at least a one-way 40 minute drive 3 times a week. I also have a very long neck, as does my neice and I'm 5-9 and she's 6 foot. It seems there may be some connection from what you're writing. I mention this to the specialist.

    I had foot surgery a few years ago, but one look and the specialist said is was caused by the hyperflexability.
    I have knee caps that pop out of joint all the time, since the age of 6.

    Will report our conversations to my doctor. Maybe we're on to something.


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