Fibro and physical therapy

Discussion in 'Fibromyalgia Main Forum' started by sacdp29, Sep 28, 2005.

  1. sacdp29

    sacdp29 New Member

    I have fibro along with osteoarthritis, rls, etc.
    I hurt my knee so my orthopedic doc sent me to have physical therapy. My problem is ever since I've been going my fibro is in a major flare. I can't hardly walk for the pain in my legs (from my lower back). When I asked the therapist that maybe I should take a break from exercising he said that fibro patients need to exercise.
    My question is: I've read about fibro and talked to fibro patients like me. I've heard that exercise makes fibro worse. I want some input so I can know if this therapist doesn't know anything about fibro or I'm wrong.
  2. Sue50

    Sue50 New Member

    is slow walking when I can do it without pain. My pt told me if I hurt don't walk, If I start to hurt while walking, turn around and head for home. I'm curious if your PT has experience working on a fibro patient, my PT gives me ultra sound treatments and very gentle massage and I have never flared after a visit, I always feel better.
  3. sacdp29

    sacdp29 New Member

    I thought the physical therapist knew about fibro but I'm wondering. I called and cancelled my appt. for today. I'm hurting so bad that I can't walk without pain.
    Thanks for your reply.

    Susan
  4. spasco

    spasco New Member

    regime going. No way! PT would surely make me worse, I believe. I walk my dog when I can and do what I feel I can tolerate. It's your body, you know what you can take.
    How about HyroTherapy? Is that an option?

    God bless! Stephanie
  5. sacdp29

    sacdp29 New Member

    I would love to do that but I don't live near anywhere close that I can get it. the closest place is about 45 minutes or so away. Its hard for me to ride back and forth in the car (plus the price of gas, now).
  6. daylilyfan

    daylilyfan New Member

    for physical therapy - there has been a lot of talk lately about it.

    click on my name and view my posts.... it has certainly hurt me - I got my MRI results, and still need more tests, but it seems that just from the evaluation, not the therapy, I have severe tendonitis, a partially torn tendon and a pinched nerve in my left shoulder. Dr. is sending me to shoulder specialist to see about surgery.

    Other than that injury, I went for ONE visit and one month later, my neck still hurts. My neck did not hurt before going. I went for stiffness in my upper back.

    It seems it helps some people a great deal, and hurts some people a great deal. My Rheumy said go for up to 3 visits and you will know.
  7. wickett

    wickett New Member

    My Rhuemy said for me to excersise when I felt strong enough. I walk whenever I can & sometimes I don't go far.
    He told me that his fibros are never happy people. I feel like he would want me to excersize but if I cannot,come to my appt's & get my meds. I don't think anyone should hurt like that. They always say stay w/in your limits. Alot of ppl ask me what is wrong and the only explination I can give is an excellerated pain disorder. I am sure the spelling is wrong on that. But you know what I mean.

    Hope you are feeling better soon.
  8. lovethesun

    lovethesun New Member

    I was getting along OK.Not too much hurting,except for my back and right leg.When I finished(flunked out) of that physical therapy,the sleeplessness came.The therapists did not ask me to do too much either!
  9. jaltair

    jaltair New Member

    Physical therapy has helped my shoulder and neck pain quite a bit. I have osteoarthritis, which is severe in my cervical area. Also, I have osteocytes (spurs). One of the spurs goes inward toward a nerve and pinches the nerve. That causes pain and numbness in my right arm and hand. In addition, my left shoulder is higher than my right.

    When I started physical therapy, I was pleasantly surprised. The therapist that evaluated me and wrote the plan totally understood FMS. The plan was adapted to make allowances for the FMS. To begin the therapy, I had moist heat to both sides of the shoulders and upper back as well as the back of the neck. After 15 minutes of the moist heat, I had ultrasound, then gentle massage of the area. This really relaxed those tense muscles. Then, I was given a regimen of muscle strengthening exercises for the upper back. I can honestly say that I am much better now. The treatments were about 5 months ago. I don't have the really severe pain in the muscles that I had. Still get the numbness, etc. - but will have that unless I have surgery, which I don't want.


    My physical therapist is unique. Others have told me that they have benefited from PT as well. However, there are some PT's that are in business just for the money and run the business with staff that is not at all trained correctly. I'd recommend looking into other physical therapists in your area.

    Another thing that has helped me is massage. However, the exercise is needed to strengthen muscles to hold posture correctly. The exercise doesn't need to be strenuous to help.

    Warm wishes, Jeannette
  10. kathleen1437

    kathleen1437 New Member

    I know that treatment can vary from area to area but my physical therapist told me she could do nothing for me ,it was a waste of an appointment. The only thing she said was try excercise in a pool . She admitted she knew little about FM and claimed there was no guidelines for an excercise plan .I do what i can ,when i can ,i tend to do walking when i'm up for it and other gentle excercise. Trail and error with what works ,some forms of excercise have made me worse and some help a little .
    hugs kathleen
  11. natrlvr2

    natrlvr2 New Member

    I have had it off and on for MANY yrs. and it ALWAYS makes me feel worse.Even though the experts know I have FM.The one thing that would make me feel temp.good would be massage(even thoguh it would hurt) but my insurance would NEVER allow this.
  12. Shananegans

    Shananegans New Member

    My Physical Therapist did more massage therapy then actual exercise with me. That's what Fibro patients need, they need to relax the muscles that are in torment, not make them more tormented.

    The only thing I was allowed to do for physical therapy was stretching and massage. He was very strict about this. So if you're PT is saying otherwise, I'd dump him and get one that knows Fibro. I do the stretching on my own now and haven't been to PT in close to 3 years. I'm better now than I was then. I couldn't even consider touching my toes and now I can get close. So it definitely helped... but exercise is bad. So you are right and he is wrong.

    Soft hugs and good luck,
    Shananegans
    [This Message was Edited on 09/30/2005]
  13. sacdp29

    sacdp29 New Member

    Thank you for all your replies. I knew that I was right. I feel better after reading the posts. My doctor's nurse (pain doctor) is going to have him call me, but she said they usually say "if it hurts, don't do it"!

    Again Thanks
  14. kellygirl

    kellygirl Member

    can exacerbate the symptoms. Yes, it's important to keep using the muscles, but get to know and listen to your body. Also, listen to your instincts. If they tell you that you need to try another PT or another therapy, do so. I am speaking from experience. We all are different in what we need. I can tolerate deep muscle massage, my other FMS friends and family cannot, they need gentle massage. If you are forced to do more than you can tolerate, it can force you into a flare-up.
  15. Yucca13

    Yucca13 Member

    I've had four myofascial release treatments with a physical therapist that knows what she is doing. The treatment is passive (pressing on trigger points firmly for a few minutes). It is painful, but I can tell that it helps later on with the worst of my neck, shoulder and right arm pain. My doctor would like me to have trigger point injections every week and then go for treatment within six hours, but it is an hour and a half trip and exhausting so I'm only going every two weeks for the injections, but twice a week for PT.

    I ride the recumbant bike for ten minutes and do a few guided stretching exercises. My arm (resulting from nerve root compression in my neck) was getting so painful I couldn't lift it. It is improving, so I'm thankful I've found something that helps. I had gone to another physical therapist and they didn't seem to know anything about the myofascial release technique. Guess I lucked out.
  16. sacdp29

    sacdp29 New Member

    Thanks for all the info! I'm not going to PT til I talk to my pain doctor