Fibro and TMJ

Discussion in 'Fibromyalgia Main Forum' started by Sunshyne1027, Sep 27, 2002.

  1. Sunshyne1027

    Sunshyne1027 New Member

    I was wondering if anyone else here suffers from TMJ pain?

    I recently have been having this severe earache, along with migraine type headaches. I went to my family doctor today, and he has advised me to go to a dentist,or one that specialized in TMJ, to get help. My doc also prescibed antibiotics. Which I really dont think will even help.

    I didnt even realize it could be that. I searched some sites found some interesting things. That it is common among people with Fibro, and CFS. I also learned that the symptoms, the problems with TMJ can also happen after a whiplash accident. That some of the sympptoms are pain in the neck and shoulders, earache, jawache, migrraine like headaches. And all these symptoms that started with my ear, headaches, etc. After a car accident, when I suffered a whiplash injury. That was in April.

    The symptoms came on gradually though. Now they are really hard to even cope with. I have a constant headache, neck and shoulders hurt most of the time. My jaw hurts, I hear buzzing and ringing, which is another symptom of it. I have done the chiro route, he says there is nothing more he can do for me.

    Anyone else also have anything similair going on,and what helps. What sorts of test does a dentist do to see if I do have it? Should I bring this to my lawyers attention for the car accident? To see if it will be picked up by the other guys insurance, that crashed into me?

    Sunshyne
  2. Sunshyne1027

    Sunshyne1027 New Member

    I was wondering if anyone else here suffers from TMJ pain?

    I recently have been having this severe earache, along with migraine type headaches. I went to my family doctor today, and he has advised me to go to a dentist,or one that specialized in TMJ, to get help. My doc also prescibed antibiotics. Which I really dont think will even help.

    I didnt even realize it could be that. I searched some sites found some interesting things. That it is common among people with Fibro, and CFS. I also learned that the symptoms, the problems with TMJ can also happen after a whiplash accident. That some of the sympptoms are pain in the neck and shoulders, earache, jawache, migrraine like headaches. And all these symptoms that started with my ear, headaches, etc. After a car accident, when I suffered a whiplash injury. That was in April.

    The symptoms came on gradually though. Now they are really hard to even cope with. I have a constant headache, neck and shoulders hurt most of the time. My jaw hurts, I hear buzzing and ringing, which is another symptom of it. I have done the chiro route, he says there is nothing more he can do for me.

    Anyone else also have anything similair going on,and what helps. What sorts of test does a dentist do to see if I do have it? Should I bring this to my lawyers attention for the car accident? To see if it will be picked up by the other guys insurance, that crashed into me?

    Sunshyne
  3. victoria

    victoria New Member

    I had TMJ for long before I got cfs - fibromyalgia is a small part of my complaint . Anyway, mine came from having braces at 13, at which point my jaw would go "out" and I'd have to massage it back into place. Pain didn't start 'til 10 yrs later when jaw was dislocated by surgeon to remove 3 wisdom teeth. Then it was all downhill as my job was in sales, and talking made it worse. Quitting that job helped, but even so, pain gradually got worse and worse. Started treatment with the first dentist to ever treat it - using a mouth splint - which helped, but then he retired. Finally found a dentist who was able to not only make a good splint but able to do the orthodontics - "only" took 5 years and about $5,000, but most of that 5 years was pain free and have been ever since - unless I have a really bad sinus headache. Most or all of the patients seemed to be result of some type of trauma - accident, etc. Tell your lawyer and find a good dentist/orthodontist who can think on his own and apply what is needed to your case individually. X-rays can help to show, plus how far your mouth can open etc (my jaw swung in a zig-zag as I opened and shut it). Again, someone who knows what s/he's doing will be able to document it. If you live in Georgia, I know who to refer you to.
  4. dhcpolwnk

    dhcpolwnk New Member

    I've had TMJ problems for many years, though my fibromyalgia was diagnosed only weeks ago. The problem may have started with a fall I had as a child, or it could be related to what used to be called a Type-A personality, complete with nightly bruxism. But for whatever reason, I've had headaches, jaw aches, pains in and around the ear, pain in my neck and shoulders, etc. My dentist, whom I've know since high school, is a TMJ specialist, as it turns out, and has the condition himself. So he keeps up on the latest research. If you live in the Los Angeles area, let me know, and I'll give you his name and contact information. He's also on the board of directors for the TMJ Society of California. (You can find their web site by doing a Google search for TMJ Society.)

    One thing I found out is that the original splint my dentist gave me, which goes over the bottom teeth, actually *increases* the amount of pressure put on the teeth when a person clenches. This is *not* what was intended or expected!. My dentist now uses something called an NTI device, which goes over just the two upper front teeth at night. It doesn't always work for me, but overall, I'd say that for the most part, I now have fewer jaw-related headaches, and the ones I do get are less severe than they used to be. However, now with the fibromyalgia, I guess there's a new ingredient in the mix. So unless I wake up with a headache, it's hard to tell whether the headaches I still get are related to TMJ problems or something else.

    Anyway, just a word of caution about the splints for the lower teeth. Be sure your dentist knows about the latest research on TMJ treatment.

    Good luck.

    --Laura


  5. klutzo

    klutzo New Member

    My TMJ is also from whiplash in the accident that triggered my FMS. I have a hard splint that goes over my upper teeth that I wear at night. Without it the pain is so bad I can't sleep. It does seem to make the clenching in my sleep hurt worse though, and I wonder now if that accounts for my waking up with headaches around the very bottom of my head. I had a head injury also, and was told that clenching and grinding teeth is a common permanent after-effect of that. I went to an Orthodontist for this. Good luck,
    Klutzo
  6. Sunshyne1027

    Sunshyne1027 New Member

    Read all the replys and it helped so much. Thanks for replying,I dont feel so alone now, it feels good to read about others too, in similair situations.