Fibro clinics

Discussion in 'Fibromyalgia Main Forum' started by pattigaul, Mar 15, 2006.

  1. pattigaul

    pattigaul New Member

    I have spent a total of $2700.00 seeing the fibromyalgia doctor, who was in Houston and is now in Fort Worth. We have no doctor now in Houston and my followups are by phone. Has anyone had success with any of the clinics? Why is my health insurance not covering this expense. I am disperate to get better but I don't want to be in the poor house afterwards. Any feedback would be appreciated. Patti
  2. LISALOO

    LISALOO New Member

    Is your insurance really not covering it. Have you submitted your claims to them? If not, go through the process of appealing. You can let them know that there's no one else who can provide these services.

    Several people have gotten better. Use the search bar.
  3. marilynb

    marilynb New Member

    I just went to the Dallas clinic last night to get some information. They told me they do not take insurance for the Dr. Visits but they do file your insurance for the labs. They said if you have a PPO, it is usually covered under Out of Network Benifits. They also said on the other part (IVs & other meds) that they will give you a receipt & you can submit a claim to your insurance co.

    I really hope this is correct, because I am at the end of my rope & really was excited about trying this out.

    Has anyone had any sucess with feeling much better, going through their program?? I sure don't want to spend a lot of money & be right where I am now. (still in pain)

    Thanks,
    Marilyn
  4. ldbgcoleman

    ldbgcoleman New Member

    Not sure about your insurance issues but if you are going to an FFC They tell you up front it takes 4 months and possibly a year until you will start feeling better. I have spent around $7000 but it has been worth every penny because I am a whole lot better. I stuck to the protocols pretty closely and did everything they have told me to do. I have been retested and the testing shows great improvement so I have it in black and white. I hope you stick with it and don't give up! Lynn
  5. mollystwin

    mollystwin New Member

    Lynne,
    Did you spend 7,000 because insurance did not cover? Or was that with insurance? I have an HMO that will not pay for anything.
    Dar
  6. ldbgcoleman

    ldbgcoleman New Member

    Well My insurance payed for some of the tesing and 60% of the visits. I paid the rest. I did everything they asked. I took all the supplements and did Iv's every week. I started at the end of last April. Now I am off alot of what I was taking and no longer getting the Ivs. My appts are every 3 months. So after the first 5 months my costs went down. I will stay on some things forever like the thyroid and some of the supplements. Omega 3 fish oil, Fastigued to Fantastic (vitimins) and a few others. IT seems like alot of money but again I am so much better so it has been worth every penny.

    Alot of the treatments they do are off use and experimental so insurance won't pay for them. My insurance is BCBS or Georgia. We self insure and it is $$$ so it kinda stinks when they don't cover. Lynn
  7. Bambi

    Bambi New Member

    and don't plan to go. I have however watched the posts fairly closely of those who are going. I think a lot of what they do can be done with a regular PCP or pain doctor if you look at the program closely. There are a couple of labs that do PCR testing for the stealth viruses etc also.

    Many of the things they say they take I already take. I know I have felt better since I added some of the stuff, like the Fish Oil and various vitamins I have added, which I had already done before I saw the posts on these clinics.

    I am going in to see the doctor in a few days to ask for the double strand ANA test because I had a test that came back suggesting some auto immune
    possibility. Cromwell suggested getting the double strand ANA test so
    I'm going to. It can just be a fluke in the first test and nothing could be wrong, worth double checking though.

    I just can't pay out of pocket for the price of things these clinics charge. We are TOO close to retirement to get into ANY spending that "might" or "might not" reap any big benefits. I haven't yet heard of
    anyone "cured", just much better, and I am already that.
  8. elsa

    elsa New Member

    Why do you always say that ... "cured" in connection with fibro and fatigue clinics? Neither clinics, nor our members who are patients there have ever said they can be / will be "cured".

    I have read time and time again that there IS NO CURE and where these clinics specifically state that ... I just don't understand why it is you slip that incorrect comment in.

    Manwithfibro does it as well .... I wonder if I missed something.

    I was about to back you up in that yes indeed one can follow these treatment plans closely through their own MD (s), ND, etc because I have done the same.

    I didn't have an option because the centers where not open when I started down my treatment path .... Had I had to do it again now I believe I would try to find away to attend these clinics ....

    It was very, very hard to plan my treatment, select the best docs, make sure of the dose and balance of the supplements and keep everything straight ... researching this all the way as I didn't have anyone to tell me what to do. Stepping into a clinic to make some decisions for me when I was so sick would have been a welcome relief.

    I was with you right up to the point where you mentioned "cured" .... then it sounded alittle like sour grapes 'cause I know you know the FFC does not advertise their ability to "cure" their patients ....

    I am hopeful you well help me to understand ... it is quite possible that I have missed something that you know and I need to know ..... cure-wise ....

    Just for FYI ... I have spent in excess of Lynn's 7000.00 on my treatment following the same basic protocol but going to four different health care professionals to get it done.

    It was worth it to me .... just like Lynn said previously, because it has brought about remission, but sadly, not a cure.

    Elsa

  9. srobins

    srobins New Member

    I have been going to the FFC in Philadelphia for over a year. I have spent over $10,000.00. Is it worth it? Yes, because I am finally going somewhere that I am not being dismissed, made to feel like a hypochondriac. I feel that there cannot be a price put on health and as hard as it is and as much struggling as we have had to do is just what has to be done at this time.

    The IV's are treatment that cannot be done at a regular physician's office - they wouldn't have the formulations - I believe that this is the most effective treatment.

  10. ldbgcoleman

    ldbgcoleman New Member

    Bambi,

    So happy you are doing better. Yes Elsa is right there is no cure and they never tell you there is. I have posted lots of times to many on this board stressing the need to find a Dr who will look for the underlying causes and not just treat the symptoms whether it's the FFC or someone else.

    I am trying to help others by sharing my experience. I feel so fortunate to be able to afford to do what I have to do to get better. I also think it is possible that it would have taken quite a while to find a Dr who would be open to trying some of things the FFC did with me. They educated me in a lot quicker time than I ever could have figured out on my own.

    If you have found another less expensive way to get better how wonderful! Why don't you share what you did. Lynn
  11. mollystwin

    mollystwin New Member

    You are very fortunate that you have found a dr that will work with you. Mine will not. She agreed to run only some of the lab tests and then said they were all normal. I had to pay for these tests out of my pocket because my HMO will not cover any tests for CF or Fibro patients. I have called many other physicians who say they treat CF and fibro but they all seem to focus on only one or two things like only EB virus or only hormone imbalance. I would have to go to four different drs to be treated and then it would not be covered because they do not participate with my insurance. I really feel I do not have any choice but to go to the FFC. They are helping my sister. I went to the seminar. They do not promise a cure, and actually said that if anyone ever promises cure that we should run from them as fast as we can. They gave their statistics of making their patients better which was over 90% but stressed that many were only maybe 50% better. Right now I would love 50% improvement. I am doing things on my own, with about 5% improvement. Not enough for me.
    I am called FFC on Monday.
    Hope you continue to feel good.
    Dar
  12. LISALOO

    LISALOO New Member

    I also had a difficult time finding a doctor who would test for these things that FFC did. They told me, oh, it's chronic fatigue, can't help you.

    I also went to a specialist who does talks on Chronic Fatigue, all he wanted me to do was go on blood pressure medicine, when that didn't work, no help.
  13. rinaldo

    rinaldo New Member

    this message is to lovingheart. I am currently going to the fibro clinic in pittsburgh. I live about 25 min away i am detox and the fungal med. Feel tired sick naseau and gassy and bloated. I havent gotten my results yet.im glad its helphing you.
  14. intrigue

    intrigue New Member

    Patti,

    I am feeling much better after several months of treatment at the Dallas FFC. I go back in April to test and see how my lab values have increased.

    I have blue cross and blue shield texas and they have helped out quite a bit with the expenses but it has been a little bit of a battle.

    It took me about 4 months of treatment before I even started to feel better. Now I am looking forward to getting OFF some of these meds and getting on with my life!

    - Ellen