Fibro from sleeping disorder?

Discussion in 'Fibromyalgia Main Forum' started by Chermione, Feb 5, 2006.

  1. Chermione

    Chermione New Member

    I have read recently, a dr. believes Fibro stems from a sleeping disorder. I'm now realizing I've had a sleeping disorder all my life. I plan to go to a sleep clinic when we have insurance again. I'll be taking my oldest child with me, b/c he is the same way I am! It's scary, I don't want this to affect his life like it did mine. It ruined my school years. My son is an awesome student in the 2nd grade but if I let this go he'll soon be too tired to do school work and get labled just like I was.
    It does seem to me that I've just gotten worse the older I've gotten and it just makes sense that it all stems from not getting the right amount and the right kind of sleep.
  2. jennypee

    jennypee New Member

    This would make sense for me. From the time I was a baby I refused to sleep. Some of my earliest memories are of waiting hours for my younger siblings and parents to pass out so that I could get up and not have to lie in bed NOT SLEEPING.

    Also, when my Fibro really became serious I believe it was because I was working nights and sleeping even weirder than normal.

    It's always seemed like my body had no internal clock to tell me when to sleep... I'm forced to just go until my body quits working.
  3. laspis1

    laspis1 New Member

    I was the same way. My parent used to tell me how much I would fight sleep. But I think that there maybe another explanation. Maybe the sleep disorder is a symptom of a possible predisposition to FM and a sign that there are some other neurological abnormalities that can be set off by a trauma or disease. Just a thought.

    I get a bit annoyed by the commercial that says depression can cause physical pain. I believe that the imbalance can trigger many symptoms, one of which is depression, other is pain or anxiety or even heart problems. It all depends how you look at it. We need to try to understand the chain reactions because not everyone with depression gets pain and not everyone with pain gets depression and not everyone with FM has depression.
  4. jennypee

    jennypee New Member

    I hate that commercial too... makes me so mad!

    I saw a psychiatrist after my first doctor suggested this pain was all in my head. He explained to me that the depression I was experiencing was secondary to the pain and said he thought it would be strange if someone was experiencing that much pain on a regular basis and WASN'T depressed.

    He also said that he'd been practicing for 15 years and hadn't ever seen depression CAUSE pain like this yet. I still don't know if he was just humoring me because I wanted so badly to be believed or not, but it was reassuring nonetheless.
  5. Bambi

    Bambi New Member

    sleep problems are more a symptom and just "part" of the cause. Those who are testing positive for viruses and bacterias would probably find a lot of their cause there. But the rest of us..who the heck knows. We know that certain things we do like eating better, exercise etc helps us, but so far I have heard a few (very few) say they have beat these dd's. I hope it's true and not just that they were wrongly diagnosed to begin with. Most of the big shots say there IS no cure and that's where all my doctors are with it.

    My pain specialist says that he thinks some part of our genes is involved because people can have ALL the problems we have and don't get FM or CFIDS. Are their immune systems better or do they have something in their DNA that keeps it from developing? Again who knows. I hope they find out though!
  6. WoodstocksMusic

    WoodstocksMusic New Member

    I had a sleep study done and they did find I had sleep apnea....but I only stopped breathing 10 times during the 8 hour period so that is very mild apnea...

    Like you I always had trouble turning my brain off so I could sleep... and I seemed to spiral in a fast freefall after I worked a second (3:00 to 11:30pm) shift for about a year... I never did figure out how to sleep after that (and I got the best sleep I could ever remember while on that shift...I think it was because when I came home I would patter around the house until 3 or 4 winding down from my shift then crawl into bed about an hour before hubby got up to leave for work. Hubby would take our then 5 year old to school on his way to work and I slept in a completely quiet listening for my 5 year old in case he needed me while I was asleep....

    Still to this day I sleep best during the morning hours after the kids go to school and the hubby leaves for work...that is 4 hours of sleep that I treasure. I get more done in the afternoons by getting that "quiet house" sleep instead of trying to sleep with a snoring hubby.

    I too seemed to always run at the normal's sleep wake cycle only I would stay up later and later each night (still getting up at the same time so I could be at work on time with my smiling face) until Saturday rolled around and I would then crash and sleep all day getting ready for my next week of that same horrible cycle...

    It is like my body wants to be on a 27 hours cycle...I need my 8 hours of sleep and that is not a big just does not fit into the 24 hour day that we are forced to live in... I want a 27 hour day..or even a 28 hour day! That is my best cycle.

    [This Message was Edited on 02/06/2006]
  7. jennypee

    jennypee New Member

    Woodstock, have you tried earplugs? They have been a lifesaver for me, along with some sort of white noise in the room to help cover the snoring.

    My hubby is a loudmouth when he sleeps! I shouldn't make fun though-- I snore really loud when I have a stuffy nose... I can wake myself up!

    Anyway, I found some really good ones called "Quiet Please!" at Walmart. They're cotton with a really soft plastic coating, so they don't hurt your ears with repeated use, and they block out noise really well.

    Good luck!

  8. redtex

    redtex New Member

    the whole country is sleep deprived. mothers with young children,college students,shift workers,doctors and nurses, and the list goes on. i know i feel better if i get a good nights sleep, but i do not think it is the cause of my problems. i have friends that work so much that they only get about 4 or 5 hours of sleep per nite and they feel good. some will say that it is alpha intrusion or stage 4 deprivation and this may be true for some people but i can't find anyone that says they have been cured buy taking drugs that increase sleep. many will say they feel better,i know i do,but i think it is just a piece of the puzzle.i think the term fibromyalgia covers a wide variety of possible causes that perplex doctors as well as those of us who suffer. i think that having the diagnosis may be a disservice because it stops the doctor from searching for the real cause of the problem. i made a list of more than 20 causes and cures. either there is more than one cause or we are being ripped of by these people. just my opinion and i hope we can all have our lives back so keep trying and let us know what helps. redtex
  9. JQP

    JQP New Member

    Interesting. I have always had a sleep problem and have been had sleeping tablets at different times since aged 16. I semi-resolved it in my twenties by not going to bed until 2am and getting up at 6am. I worked full time plus extra at the weekends, and child, and a cricket club to run and I functioned really well.
    These days reliant on Zolpidem...
    But anyway, my mother was in hospital for some week before she had me and she was continually fighting to stay awake. It turned out that they had been giving her sleeping tablets (without telling her) and they told her when she left that they were amazed that the tablets weren't working. My mother says 'if only they had told me, I would have happily gone to sleep!'...What do you reckon this to be the start of my problems??? Pre-programmed to fight sleep.
    These days I have to be on my last legs before going to bed, just so that I can fall straight asleep. Even on my worst fatigued days, I would rest and would only fall asleep occasionally during the day.
  10. Firstgoslin

    Firstgoslin New Member

    I was doing internet research yesterday saying that they were sure if the sleep disorder comes from fibro or vice versa. It said that with fibro, you don't ever get into the 4th relm of sleep where most of the molecular repair is done.

    I am going through a sleep study this coming Monday. I do have sleep apnea, we just don't know how bad. I have never had to fight going to sleep. I can sleep like a champ, I just don't wake up rested. I always feel like someone has beat me. There are times that I don't sleep well as far as sleeping for a little while then waking and not being able to go back to sleep. Actually, it runs in cycles. I think related to my hormones.

    After reading some of the posts today, I realize why I do better taking my antidepressant at night.
  11. janieb

    janieb New Member


    I've had fibro for about 15 years and 8 years ago was diagnosed with sleep apnea. I wasn't aware of it, but my husband complained that I would stop breathing and then gasp. When tested, I stopped breathing several times a minute, for up to 38 seconds at a time. The machine didn't work for me since I kept taking it off in my sleep. After surgery I've slept much better, however, the fibro has gotten worse. I still wake up many times a night and wander, read, etc. Yes, I do take meds to sleep.

    Just another piece of information.


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