fibro how long have we had it

Discussion in 'Fibromyalgia Main Forum' started by hagardreams, Nov 22, 2006.

  1. hagardreams

    hagardreams New Member

    Does anyone know how long we have had fibro. My doctor that I have now says that even if we werent diagnosed with it until we were older, we really were born with it, and had it all along.
    If anyone knows the answer to this question, please advise.
    I was diganosed in 99, when I was 38, after many tests ruling out other causes. I remember being a young child and having some of the same symptoms that I have now, just not the pain like it is now.
    God bless, Julie
  2. jillian44

    jillian44 New Member

    I have had it since I was 18 and I am 47 now. I always thought I had the flu.
  3. Redwillow

    Redwillow New Member

    This is a good question Julie. I was diagnosed at age 45 after years of complaining that I wasn't well.

    Now that I have been diagnosed with FM the doctors feel that the serious car accident I was in at age 17 probably started it. I am 47 now so I would say I have had had FM for 30 years and maybe more.

    Makes me wonder if the theory that we were born with it might not be true.

    hugs Redwillow
  4. Hawkeye

    Hawkeye New Member

    I know I have had fibromyalgia my entire life. I remember being a little girl in grade school in the 60's, if we broght a sack lunch we had to go to a room called the playroom and sit "indian style" on the floor to eat. I remember crying to my Mom if she made me eat sack lunch because my legs would hurt so badly when I first stood up from sitting like that. I never have been able to sit like that. I was first diagnosed when I was 20 years old with RA but this was through my family DR and I don't think they even knew about fibromyalgia back then...I am sure that was my first experience with severe symptoms....so I have had it my entire life and been diagnosed for 46 years.
  5. Bambi

    Bambi New Member

    symptoms since I was five years old. I had Polio at about 3 and wore a brace on my lower left leg until I was 6. I worried about Post Polio when they first started talking about it years ago, but I don't have it.

    I have no muscle wasting among other things they suffer with. But I wasn't severe with the FM syptoms either until about a year before my mother died in '97, I was 47. It got even worse after she died.

    I didn't have adequate pain control until she had been gone for about 2 years and life was beyond terrible.

    My daughter developed symptoms about five years ago and wouldn't admit to how bad it was until about 3 years ago. She went from pretty bad right away to severe with the pain, migraines and IBS that fast. She had "growing" pains like I did, but never complained of actual pain until the 3 years ago when she started trying to find pain control.

    Her pain specialist has her on decent
    pain medication but has not increased it regularly as she's needed adjustments. It's very hard for her as she has to work, but I think it's because she's in her mid 30's that he doesn't want to raise it. I don't know but pain is pain and if it's undertreated it doesn't matter how old you are, you suffer! I had to raise my medication every few months for awhile but not since May of 2003 now.
  6. hermitlady

    hermitlady Member

    I think back to my high school and college days and remember being exhausted a lot. I always remember taking a lot of naps and being achy especially in college.

    Then when I got into the working world, I was sooo tired all the time. Always had to go to bed very early and still could barely get out of bed in the morning.

    After having 2 kids is when it really kicked in strong....too much stress on my body and mind I think. Who knows? I was about 35 when I was diagnosed...now I'm 45.


    Hermit
  7. angellwolffe

    angellwolffe New Member

    I think I've had it all my life. I was in a car accident when i was 4 and had compound fractures and my head cracked open from corner to corner. All of my life i was complaining bout hurting. they chalked it up to growing pains.

    i was diagnosed with scoliosis at 10 and they took me out of pe and gave me darvocet and ultrasound therapy, at that time the ultrasound machines were these huge monsters that took up a whole room.

    when i was 14 i got chic pox from my brother's kids, i was down for 6 weeks with it literally in bed. That's when some sympoms, such at light sensitivety, started. I don't think i ever fully recovered from that.

    Then when i was 20 (1991) i was hit head on and i think shortly after that was when it came full blown. I went to many doctors and they gave me pill after pill. Nothing worked. their answer was then just lose weight.

    I went into remission for awhile, not sure how, then went to a major low again about a year ago after getting a bout of the flu.

    I checked with my sibs. My one sister has some of the same symptoms that i have and she is bipolar and severely depressed. My other sister (and her 17 yr old daugter) have migraines and horrible periods. One of my brothers have the same symptoms, i told him about guaifenesen and he's started it, one became a diabetic, and 0ne is a crazed drug addict, so who knows.

    My mom had similar bouts but nothing like we have. and no one knows about any further back than that.

    I do know weight problems are dominant, several aunts,uncles and my maternal grand mother were severely over weight.

    so i think we are probly born with it and some how it gets triggered.

    Angell
  8. chloeuk

    chloeuk New Member

    I have had it for about 4 years based on neuro symptoms...but I have always suffered with poor health, very sickly as a child, suffered with migraines since a young age and one of the worst things from my childhood into my teens was horendous aching legs, everyone said it was growing pains, I used to cry so much because of the pain...and I knew no one else with the same thing..I look back and wonder why my parents didnt have it checked out because I know if my kids now were in that sort of pain I would want answers...it isnt normal for children to be in so much pain.
  9. PVLady

    PVLady New Member

    I can believe I always had it. My mother has it also. I really started having symptoms in my late teens. It began in college when I had to take a gym class.

    The very next day after my first gym class, I could not stand up straight and was really sick for a couple of days.

    I just don't have the stamina that others seem to have.

  10. Sandyz

    Sandyz New Member

    I am 49 now and think I had it ever since I was a kid. I had lots of symptoms especially horrible growing pains. It was all dismissed back then so I just tried to ignore it as much as I could. It could worse in my teens and finally in my twenties I was sure there was something really wrong but didn`t know what. Finally when I was in my early 30`s I got diagnosed and it was a relief.

    Sandy