Fibro is NOT a disease

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by jaminhealth, Oct 20, 2012.

  1. IanH

    IanH Active Member

    This is how it should be done. Not giving a diagnosis of FM when there are so many underlying conditions which could be investigated and which will explain the symptoms.
  2. jaminhealth

    jaminhealth Well-Known Member

    left me with a bad taste in my mouth and mind, as he was so quick to say "you have FM"...after touching around my neck area, saying your thyroid is fine, then going to these so called "points".....I never trusted his dx....

    Thyroid was major as I finally found 3 yrs later when I got on Armour by my osteopath....geeeeeeeeezzzz, grrrrrrrrrrr
  3. happycfs

    happycfs Member

    The definition of the word "Disease": (Dis-ease)

    a disorder of structure or function in a human, animal, or plant, esp. one thatproduces specific signs or symptoms or that affects a specific location and is not simply a direct result of physical injury: bacterial meningitis is a rare disease| a possible cause of heart disease.
    • a particular quality, habit, or disposition regarded as adversely affecting aperson or group of people: departmental administration has often led to the dread disease of departmentalitis.ORIGIN Middle English (in the sense ‘lack of ease; inconvenience’): fromOld French desaise ‘lack of ease,’ from des- (expressing reversal) + aise‘ease.’


    ~~~To me, without a moment of question or hesitation, I live with the severe diseases of Fibromyalgia. It has taken my life away from me in so many aspects. I still work very hard to be positive and look on the brighter side of the clouds, but living like this, for decades now, the majority of my life, I very confidently say that I have a major disease.
    Just a side-note; the World Health Organization, Whittemore Peterson Institute, Stanford Medical, InvisibleDiseases.com, Dr Teitelbaum and many many many others classify CFS/ME (chronic fatigue syndrome) and Fibromyalgia as serious neuro-immune diseases....Call it whatever you want. I am sticking to what I know in my body to be a very real and debilitating disease. No question. No hesitation. This, that has robbed me of my dreams, my family, friends, and so much more, is a ...disease.
    TigerLilea likes this.
  4. IanH

    IanH Active Member

    happycfs
    The point about saying that FM "is not a disease" is just to say that the diagnosis is insufficient and that there lies a disease beneath the concept of FM . Since there appear to be many correlates of FM it is highly likely that there are clear underlying pathologies and that a diagnosis of FM is missing those diseases. In our clinic all 7 people with a diagnosis of FM (not with ME) have spinal stenosis which we took the time and expense to discover. Hence in these cases FM ie widespread pain is a consequence of the stenosis which we think, when combined with genetic predisposition causes the FM. In all likelihood this combination of gene+spinal compression acts to cause several disturbances in the neuro-immune interface in turn also affecting vascular function.

    No one is trying to dismiss the severe symptoms one experiences for many many years.
  5. IanH

    IanH Active Member

    gb66
    Your signature says:
    CFS/ME, FM, OA, High BP
    Hypothyroidism, Diabetes 2

    Surely that should be a corroboration of what I am saying.