Fibro or Parathyroid

Discussion in 'Fibromyalgia Main Forum' started by olivian, Apr 20, 2007.

  1. olivian

    olivian New Member

    hi posted this as both a fibro and cfs topic as I have had or thought I had both of these diseases for over 10 years.

    after discovering a high serum calcium level on a standard blood test I did some investigating and found I could very well have a parathyroid adenoma.(not cancerous)
    I just had the minimally invasive surgery and am Completely Cured!!

    Since the symptoms are so similar if wouldn't hurt to check it out. And if you have a blood calcium level above normal then check out Dr Jim Norman at
  2. olivian

    olivian New Member

    here is the link on high blood calcium
  3. tandy

    tandy New Member

    I'll look into it for sure~
    with hopes that I really don't have this dreaded Fibro/CF.

    I'm glad your on your way to wellness :)
    what a great feeling that must be!!?

  4. olivian

    olivian New Member

    Thank you Tandy. I'm still in a state of awe and shock because I have been miserable for years and had no clue that all my symptoms could be related. Within 12 hours of the mini surgery for removal of the bad parathyroid gland, ALL my pain disappeared. And one thing after another is now improving.
    Although parathyroid disease is rare, Dr Norman feels it is often undiagnosed. And he has patented and invented a nuclear radio-guided technique that makes the operation a piece of cake compared to the old fashioned surgery.
    I just wish I could get everyone with fibro to at least get their calcium levels checked. The symptoms of both are identical and I would bet there are quite a few people with 'fibro', who just like me, had no idea what was really wrong....and that you could be completely cured!
    Bless you.
  5. tandy

    tandy New Member

    I wonder if checking a patients serum calcium level is thought of or done by most drs./Rhuemys?
    I've never heard it mentioned by mine.

    I get your basic CBC and my liver bloodwork done periodically.
    But I'm not sure if this SCL is standard in your basic panel of bloodwork?
    I'm gonna ask if mine has
    ever been checked.

    Thanks again :)
    I'm totally excited for you!!!!
    I bet it almost feels like a second chance!??lol
    Live it up!!
  6. cct

    cct Member

    Just about one year ago, I went to a health fair. I took the basic blood panel test at the fair and waited for the results to show up in the mail.

    The test results arived and my blood calcium score was high (a few other things were out of balance too).

    I took the test info to my primary care doc, and he told me that the high calcium score was not important and that I did not need to worry about it!

    I went to another doctor (a CFS/FM specialist) with the same test results and he ordered more tests. His tests showed that I had hyperparathyroidism!

    Then I went to an endochronologist with all of this information. He ran all the same tests again, plus a couple more.

    The endochronologist told me that he was not sure exactly what was wrong and that I should come back to his office in six months to have all of the tests taken again!

    I have not gone back to that endochronologist.

    Instead, I have been trying to treat myself with Vitamin D3.

    The Health Fair has just come around again (it is an annual event). I did go in for another blood panel test. I am waiting to see if the Vitamin D3 has helped with the high blood calcium.

    I am not a big fan of surgery, so I am trying to find an alternative healing option. I would rather take Vitamin D3 than have my parathyroid glands removed.

  7. JaneSmith

    JaneSmith New Member

    I am so glad we are writing about this condition. I was dx w/it about 5 years ago. However, I probably had it years before. I am under the care of a Endo. I am being watched but unless my numbers change I don't have to have the operation. I do have FM. The question could be is the Para causing it? I won't know unless I have the operation. I had the 24 urine. Not peeing bone. The operation is delicate and I'm very very afraid to have it unless the doc says I must. I was told that there are only a couple of doctors in the Northeast that can do this operation. I never heard of vitamin D3 to help but I'm going to search on the internet in a minute. Thanks everyone for their story. It really helps.
  8. cct

    cct Member

    Hello Everyone,

    I just read (just five minutes ago) that vitamin K and vitamin K2 are crucial to calcium metabolism.

    I had heard of vitamin K, but vitamin K2 is new to me.

    I will continue to read the book that provided this K/K2 information. If I find any additional information about calcium metabolism, I will post it.
  9. olivian

    olivian New Member

    hi cct....97% of the time high calcium is caused by overactive parathyroids (not thyroids)....I ought to know i lived a miserable life with fibro for 10 years until I took a blood calcium test....they are usually part of a standard workup. Check out what dr jim norman the number one parathyroid expert in the world says about it. have your need to go to Tampa and get the tumor out of your the material to your endocrinologist...and good luck!!
    <br>[<i>This Message was Edited on 04/24/2007</i>]
  10. olivian

    olivian New Member me it has been a miracle and an answer to a prayer and I vowed to myself to go to the old support forums and other places I've hovered for years and at least tell others about it on the outside hope that others, like me, could have the same problem and not know it..
  11. olivian

    olivian New Member have a parathryroid tumor and it can be cured with a miraculous new type of outpatient surgery...please investigate dr norman's site...bless you
  12. olivian

    olivian New Member

    Jane...the old fashioned surgery for parathyroid adenomas is very difficult and has many repercussions. Which is why many docs don't push it....they also have the old fashioned idea that you should wait til it (calcium) hits a certain number. The new minimally invasive outpatient procedure is a piece of cake and is done in usually less than 20 minutes. You have some of the most important symptoms....I wouldn't wait...please check it out.
  13. olivian

    olivian New Member

    hi cct...forgot to add this info for you on the surgery.

    cct ..I understand your fear of the surgery. I was too. It used to be an awful operation....but there is a new method invented called MIRP and it can be done on an outpatient basis in less than 20 minutes. Not even most endocrinologists are fully aware yet of the new ways to treat hyperparathyroidism. Here is a link on the new technique.

    This was invented by dr norman who performs more parathyroid surgery than anyone in the world. There is also a page at this site where you can read the stories of some of the thousands who have had it done.

    Good Luck!
  14. JaneSmith

    JaneSmith New Member

    Olivian - I've been dx with Hyperparathyroidism for about 6 years. I believe I've had it since the early 1980's since that is when my calcium started to elevate. I am so frightened about the surgery because it's the neck area, that I'm just being watched right now. I checked out the web site and printed 7 pages. I am going to send to my endo on Monday. I wonder if there are doctors in this part of the US where I live that can perform this surgery as a mini procedure with the radioactive nuclear stuff.Sometimes my blood test is high normal and then sometimes is just a small bit out of whack. Before I was dx I thought I was going to loose it. My regular doctor made me nuts and I thought I was dying. I am so glad to be on this site with all the great info everyone shares. My vit. D 2 is very low and I have just increased the milligrams to 1600 a day per doctor's orders. I'll be retested in 3 months. I have terrible aches and pains and who knows, maybe it's the para that is causing my life to be a living hell. Thank you for sharing your story. Warmest Regards
  15. olivian

    olivian New Member

    jane...good luck to you. I had no luck with my own doc...wouldn't even look at the material. he is now amazed especially after seeing a pic of the big tumor they removed.
    i finally gathered all my labs on my own and history and sent them down to tampa for the docs to evaluate. I also looked elsewhere in the country..but found no where else as good. The procedure for going there and getting it done is like a well-orchestrated play. I still am amazed it all happened.

    the surgery was a piece of cake...much easier than a dental procedure. don't be afraid of that at all. he is an expert who does more of these a year than anyone in the world.

    Please let it know how it all goes for you.
    <br>[<i>This Message was Edited on 05/14/2007</i>]
  16. pamlutey

    pamlutey New Member

    We need to get the word out about this!
  17. Chelz

    Chelz New Member

    Olivian, so gald I read your post. I had a complete metabolic panel done about 6 months ago. All of my test results were within the &quot;normal&quot; range (as they usually are for us FM patients), but I was a little concerned with my Calcium. &lt;BR&gt;
    According to the test reults I am &quot;within the normal&quot; range. My level was 10.3 and the high number was 10.5. I am only 2 numbers away from the &quot;high&quot; I am wondering if I should bring this up to my doctor. On the scale, 8.5 was considered low, but my level is more toward the &quot;high&quot; rather than the low. Because of these findings, there probably won't be a doctor out there who will pay attention to it, or possibly just ignore it. Of course, it is also possible that I am being a little too anxious about this as well. Anxiety is one of my issues, LOL. &lt;BR&gt;
    What were YOUR numbers, if you don't mind me asking. Thanks, Hugs, Chelz.

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