Fibro question..... is yours a flu ache or pain?

Discussion in 'Fibromyalgia Main Forum' started by fibrobutterfly, Mar 10, 2009.

  1. This was a discussion I had with my dr. yesterday. I told him alot of people with fibro say they have flu like body aches but mine is NOT it is intense pain . I feel he doesn't take me seriously. He doesn't believe in pain meds. He is a good dr. BUT I am in pain and it wears me down. Mine feels like a nerve pain in so many places. My family dr gives me vicodin but that even doesn't help alot of the time. When rheum. found out I took vicodin he asked me to swear I would only take it once or twice a wk. HELLO! My family dr. believes in pool therapy. Drs who treat fibro or rheum. drs. are getting smaller and smaller.

    My question is how is yours, a achyness, or pain? I keep thinking these drs are missing something. and on a scale of 1-10 mine is almost always a 9 or 10 . whats yours? How would you describe yours?
  2. loto

    loto Member

    mine is usually pain, however some days i do have just plain achiness and an all over "feel like i've been run over by a truck" feeling. It's just strange when pain comes and goes (mostly comes!) and you haven't done anything differently and can't figure out why it is so much worse some times! Fortunately I have a doctor who does prescribe me vicodin and assures me that it won't harm my body if i take it properly. Sometimes it doesn't help much, but most of the time it does. Have you ever tried a pain management facility? I haven't, but i've heard that different options there have helped some people. Maybe that would be something you could check into. I only know that physical therapy didn't help me. Maybe some kind of injections would help you? But I don't know, if you have all over pain, who knows where they could give you one!!! This FM is still just a mystery to me, and probably will be forever. Hope you can get some relief soon, and find a doctor who will help you.I also thought of something else. Have you ever tried massages? that always gives me temporary relief. And next week I think I'm going to go to a tanning bed to see if that will help.
    best wishes
    [This Message was Edited on 03/11/2009]
  3. msnova74

    msnova74 New Member

    It depends on the day. The last few weeks mine has been horrible pain. It is the most horrible bone and muscle pain. I literally feel as if i have been in an accident. It is achy, and burning, and throbbing.

    I tend to cycle back and forth. Thus my doc gives me tramadol for the achy fluish pain and lortab for the monster pain.

  4. vivian53

    vivian53 Member

    Hi Fibrobutterfly. I have wondered the same thing. I would describe my pain for the most part as an all over achyness. I feel like loto described "like I'd been run over by a Mac truck" or put in tote sack and beat with a stick. I only have sharp, intense pain in the parts of my body that have other things going on, shoulder and spine. I think they are exacerbated by FM or the other way around.

    I think that the meds I take make the pain more widespread and dull, rather that localized and sharp (if that makes any sense). I take Lyrica and Norco. They both help. On a scale from 1 to 10 I am usually a 5, that's pretty good. I've given up the notion of being pain free.

    I have gone through many doctors to find good ones. I think you might have to do the same and I wish you the best of luck. I am currently waiting for my appt with a Rhumey recommended to me here on this board. I find this very helpful.

  5. Rockismom

    Rockismom New Member


    The pain I experience is "all of the above". Most of the time and on a "good day" it is achy flu type pain. Maybe a "# 6"

    Some days I too feel like it's "the weight of the world is on my shoulders" type pain. "# 8"

    Also, my shoulders especially my left one, hurts and at times feels like a hot poker is sticking in my shoulder.

    Other days or "very bad days", I feel as if the pain is "to the bone". Like my body is a giant toothache. That would be a "#10 day"

    Also, I have sharp zaps of pain from time to time and these are usually in my hands, wrists and feet, near the arch.

    Of course there is the pain in connection with the costocondritis that a lot of us experience in our chest and I think most of us have this pain on the left side...not all.
  6. Pansygirl

    Pansygirl New Member

    My pain is different day to day. Some days its flu like all over my body and some
    days I just have pain. The pain ranges from achy , burning , numbness to sharp pains.
    I also get the chest pain and that is an achy feeling.

    On a good day my pain level is a 5 on a scale and I can handle without pain meds.
    But when my pain goes to a 7/8 I take tramadol and that gives me relief, so I can
    function at least a little.

    A good day can turn into a bad day very fast with fibro.

    In the last week things have been worse pain wise for me , not sure if it's the weather,
    time change , or stress , but I've been having more pain.
  7. gapsych

    gapsych New Member

    I have always had the deep, down to the bone aches which absolutely drain me. The tramadol really helps but I would say I am still at a 3 or a 4. Sometimes if forget my Tramadol or did not need it earlier the achiness can go up to a 7+ to the point it even hurts to breath. I also have costochronditis.

    I have taken narcotics and they do not seem to touch the pain but the tramadol really works well.

    But even on the days where I do not feel a lot of pain, I still have that drained feeling though not quite as much.

    Every once in a while I might get a burning pain in my legs but that is not very often.

  8. AuntTammie

    AuntTammie New Member

    My pain varies a lot, but I have Fibro, ME/CFS and chronic myofacial pain, and pirifromis/sciatic nerve pain, and some other issues from past injuries, oh and TMJ.....I get the all over flu like pain, nerve pain, tender spots, trigger spots (major knots), painful swollen glands, headache pain, sore throat pain, pins and needles type pain, electric shock like pain, and sometimes a sensation like my skin is crawling which is not exactly painful, but really, really uncomfortable....some of this pain is constant and some of it comes and goes....all of it varies in intensity.....currently I cannot turn my head very far at all to the rt bc of muscle knots and pain....and I don't really know how to describe the TMJ's different from the rest of the pain....most of the time I can tolerate all the types of pain, but sometimes the knots and nerve pain go beyond what I can deal with...and occasionally the flu like pain gets incredibly bad, too...unfortunately nothing I have tried really makes much difference....there are several things that sometimes help a little, though, and if I do all of them at the same time, it can get me thru....stretching, icy-hot, heating pads and/or ice, homeopathic gel, homeopathic pain pellets, using the theracane on trigger points, warm (not hot) bath or shower, massage, half a glass of wine (not with meds, though - bad combo), boswellia (an herb)...the only meds I can even begin to tolerate are Flexeril, Darvocet, and Tylenol #3....and none of them make a big difference, but they are better than nothign when the pain is really bad
  9. nixon

    nixon New Member

    And it IS Pain......not a flu like feeling! I have currently been on Morphine Sulf. ER 15mg. for about 9 mths. now, and for the past month and a just isn't working for me.

    Mine also feels like a nerve pain alot of times, although the last few wks. my muscle pain in my legs is just about killing me- it is NON-STOP, you know it's bad when you DON'T even feel WELL ENOUGH to go to the Dr....Anyone not suffering with Fibro/CFS just would not understand that comment that I just made!! If I didn't know better, I'd think that's CRAZY!! (smiling) I hate to admit it, but last week I didn't feel well enough to shower for 5 days- the pain was that bad! I'm usually at worst an everyother day kinda girl.....if not everyday!! Warm water just seems to soothe my soul. Andrea
  10. Thanks for the replies. Interesting 122 read this and 10 reply.
    This fibro is so utterly exhausting, luckily knock wood for the last couple days, I sleep like a rock and that helps immensely.
    Interesting the tramadol, I have to ck that out.
    nixon/andrea I totally understand about not even feeling up to go to the dr. Many times , actually most times it rough just to get dressed etc. sigh..
  11. ilovepink4

    ilovepink4 Member

    Hi everyone! I have flu-like pain, fire pain in my back, hand pain in my finger joints.....muscle burning when i have done too my muscles are too short and are being stretched.....and before I got the fentenal pain patches the "standing on two bloody stumps" pain.....( it felt like my feet had been ripped off and I was standing on the jagged stumps of my leg bones...i don't get that anymore due to the steady flow of pain medicine....thank G*d!!)....neck and shoulder muscle pain, too....

    i also take percocet...the two types of pain meds help me deal with the pain....i am still bed/housebound but at least I can stand myself.....

    i hope you get more replies...this was interesting to read!
  12. Shananegans

    Shananegans New Member

    Mine is Pain, not a flu like ache, although I do get that sometimes too. Usually an 8 to a 10 on the pain scale. You really need to find a doctor that is willing to treat your pain. Mine is so bad that after 4 years of trying everything else, my neurologist put me on Avinza. She believed me. She's a CFS/FMS specialist and also deals with MS/Lupus, etc. I switched to MS Contin CR for financial reasons because I lost my insurance but I was on the MS Contin for 5 years and I am now weening off of it as I am hoping my pain isn't as bad as it was.

    The thing with Morphine is if you are on the right dose, you no longer feel the actual pain, just a dull ache. So now I'm wondering, Am I better? Because I can move around and do more than ever? (More even then when I first started the morphine) Or is it just the morphine? I have to know the answer and the only way to find out is to go off of it.

    I know Drs are hard to find, but any good doctor will agree it's not any more healthy to be in pain all the time then it is to be on pain meds for said pain. Pain is bad for your health and needs to be treated.

    Hope this helps!
    [This Message was Edited on 03/18/2009]
  13. munch1958

    munch1958 Member

    Thankfully, I got rid of the flu-like feelings AND the pain with proper treatment of multiple tick borne iillnesses. Borrelia and other pathogens knock down the immune system by activating latent infections. See Pam3Cys. This sets up a non-fatal AIDS type situation where infections are not kept undercontrol by the immune system.

    Once I was treated with heparin for hypercoagulation, hormones to replace those I was deficient in, Abx for bacterial infections, AFs like Probiotics, Diflucan & Nystatin, and AVs (Famvir & Valtrex), I recovered from having CFS and FM.
  14. Empower

    Empower New Member

    Good question

    My pain (like alot of people here) is different every day

    Most days it is the flu like achiness, other days it is deep intense dull pain

    Other times, it feels like there is a steel bar resting on my shoulders

    The last two days, (weather changing every minute, arrrgghhh) the pain has been on a 9-10 scale, and my doc doesn't want to give me pain pills
  15. sweetbeatlvr

    sweetbeatlvr New Member

    so sorry that your doctor won't give you anything for pain. you should definately keep trying to find a new one. there are ones out there that will help. you shouldn't have to suffer!

    most days my pain stems from the intense muscle stiffness, burning, grapping, like being stuck w/ a a hot poker, in spots.

    the really bad days, i have an ache that feels like it comes from deep in my bones. on those days i feel like i weigh a million pounds, and i feel like the life is being crushed out of me.

    the pain changes so much, never know how i'm gonna feel from day to day!

    i wish so much we didn't have to suffer like this!
  16. greatgran

    greatgran Member

    I have aches to the bone especially in my legs the aches come and go but if I am very active then I can expect to ache for days. That is one reason I doubt my dx of fm because I don't have the pain others describe. Whatever I have I don't like.

    God Bless,
  17. shari1677

    shari1677 New Member

    Mine waxes and wanes. Sometimes it is a flu-like pain, sometimes intense. Have you tried Lyrica or Topamax? Those two meds have worked wonders for my nerve pain, though I still have to use Vicodin - 6 times a day to boot (obviously I don't agree with your rheumatologist either).
  18. I am on lyrica but it helped at first, now not so much, I probably need a higher dose. Is topamax for pain or? Thats what my pain is a NERVE pain in different spots. I think the idiot drs are thinking fibro and not looking at the big picture. My mother and brother both have RA.
  19. italiano

    italiano New Member

    Mine is both. Severe everyday pain in spine and tailbone that is not relieved by anything. Hard to sit in a chair for more than 15 minutes. Then on some days which I personally call flares it feels like having the flu to the point of having to curl up in a fetal position and stay in bed. It's different from week to week. month to month. that's why it's so hard to have a life or plan anything. it's bizarro world.

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