Fibromyaglia and humid weather

Discussion in 'General Health & Wellness' started by LoriGal, Jul 23, 2003.

  1. LoriGal

    LoriGal New Member

    Hi,
    I am new to the chat room. I was finally diagnosed with fibromyalgia in April of this year (I say finally for like most, I went through few years of waxing and waning of symptoms before figured out what was finally going on).
    I found a great, supportive rheumatologist (half the battle right there); who prescribed me Effexor (has helped cut back on the fatigue), Zanaflex (helps me sleep better) and Ultram for those days that the deep, throbbing pain won't go away and can't function at all. I find that the weather effects my 'bad pain' days, which makes sense in terms of abrupt changes in weather patterns (storms, extreme change to hot or cold temperatures). The problem I have is trying to deal with humidity. My walking, Yoga, daily routine of p/t work and housework, etc. does not help at all. I am forced to take an Ultram (and sleep for 2 hours) or face extreme fatigue, leaden feeling in chest, pain in shoulders, back, legs, etc. I feel extremely fortunate that I have means to 'work with' my condition, was just curious if anyone else has dealt with this problem and finding alternatives/added options so that doesn't isn't such a drastic effect (i.e. have to plan to stay indoors and sleep or ache on humid days). Thank you in advance for support/advice.

    Sincerely,

    Lori
  2. aip24

    aip24 New Member

    I live in the deep South,and am convinced that humidity adds to the fm problems...I have been taking an Ultracet on the days that are really bad, and it does give some relief. I have chronic pain in my low back, hips and legs. The worst pain is in my hips, but my legs hurt all the time, too. They feel so heavy all the time, especially my right lower leg. They get really tired quickly, especially going up stairs. Sure wish I could find some better answers.
  3. filley

    filley New Member

    Unfortunately there is weather everywhere. I am from the south and have been in California for 8 yrs. Although we do have sun, we do have overcast days and I can feel it. I don't think staying indoors will make any difference. I take Ultram but it is not helping with the pain as it did initially. I can't believe how much legs can hurt but one has to keep on moving or risk lying down and turning into a blob. The only thing I would say about the pain is, don't wait til it gets too bad before taking the meds. Flexeril at night has helped with the sleep and not being quite so achey when I get up. I wear long pants if I am in airconditioning i.e. like at the movies, otherwise my legs ache if they get cold.
  4. Ipegasus

    Ipegasus New Member

    Hi there,


    I am new too, to the board. Yes, the weather affects how I feel. It affects my asthma too, which I only have during the winter or hiking hills. As far as Ultram, it isn't addictive, sheesh had someone tell me I must be addictted because I need to take it all the time. I am now taking Neurontin+Ultram twice a day and two Ultram the other two hours so am far beyond your scope with FM but I have been taking it for about four years I think ;p. That has helped and may help you Lori. My pharmacist backed that up that the Neurontin will get the Ultram to the pain faster and more efficently, so far it is alright except on bad days. I have Lupus now too, so my Dr. has me taking Predisone during my worse days in the Winter. I mostly hibernate during the Winter, it gets to me because it is the biggest obsticle to my returning to work.
    Well this seems like a nice place and I hope you like it here. I like reading the articles and it is even better to have others who I have something in common.
    I have avoided addictive drugs like the plague. I knew this was a life long problem and I have heard all kinds of bad stories from those who have taken the standard drugs, including my father, thank goodness new stuff keeps coming out. I also take Relefen, that is a muscle relaxant, if I skip Relefen, I get lazy, my muscles just are achy, yet I cannot go more than four hours w/o serious pain, with Ultram/ A day without Ultram and I am in the emergency room getting Morphine shots. After two Morphine shots, I can drive well! The Doc thought I was crazy but I told him, in pain, I am a hazard to the road but without it, I am very capable. He just scratched his head and made me wait an hour than let me go. I did fine, much better than the ride there.
    So if you don't take a muscle relaxant you may mention it. My Doc is a specialist with FM, but he has a full practice and I have to remind him and he respects my opinion regarding addictive drugs. Yes, I know Predisone is addictive, I only take it once in a while when my Doc says it is alright, so I can rest. The worse part is it makes me feel great, it is this way with Codine, I took that for awhile but had to stop because of addictive quaility. I avoid Darvacet, Prozac, sorry brain fog, so glad I started Guai, because I was seriously considering OxyContin, that was a disaster but I try not to take new drugs if possible because nothing comes out perfect.


    Good luck, read as much as you can and believe nothing without research, so much junk out there.

    Pegasus
  5. eyecu

    eyecu New Member

    Lori: How long did it take you to adjust to Effexor? I can not seem to get past three or four days and begin shaking and feeling really "wired". Any information would be helpful.
  6. LoriGal

    LoriGal New Member

    My rheumatologist gave me a 'starter' packet, that contained 3 different dosages (50; 75 and 150 - 150mg is the amount I on now. I know that the general side effects are similar to lot of the antidepressants along with potential for more jitteriness as get to higher doses (the neurephinephrine kicks in at doses of 150mg).
    To be honest, when I started Paxil (10 years ago - for depression and post-traumatic stress disorder) THAT one hit me for a loop (immediate sleepiness, feeling zoned-out etc.). Is this your first anti-depresssant? What dosage are you on? Also usually takes a good 3-4 weeks before side effects 'level off' . . . these things might help explain your reactions. Hang in there! I hope that it will decrease your pain and fatigue like it has me!

    Sincerely,

    Lori
  7. Marcie

    Marcie New Member

    You bet humidity hurts! I used to live in Montreal where the winters are unbelievably cold and dry. I did not suffer from fibro during these excessively cold dry winters. I only suffered during the changing of the seasons when it was damp, wet and cold, and YES the humidity where I live now kills me. We have mild damp winters (I live in Windsor which is near Detroit) and unbearable humid summers. I try to get up early in the morning in summer and get in early in the air-conditiong. For a break I do some mall-walking on some days - again in the air conditions. So, yes, avoiding being out in the humidity really does help. And, if you have a relative or friend who insists on shutting their air off, invite them to your place and supply them with a sweater if they're cold. Hope this helps you solve the mystery. I now keep a daily journal on how I feel, the weather, how I slept the night before, exercise, medication I'm on at the time, etc. and there is clear connection between high humidity and Fibro flares.
    Marci
  8. tackett

    tackett New Member

    hello, sorry you are having a rough time. I was living in Colorado until 2 years ago, thinking the weather was effecting me. I have not noticed any difference. goes to show, no 2 people are alike?