Fibromyalgia and Fatigue Centers

Discussion in 'Fibromyalgia Main Forum' started by campbeck97, May 2, 2007.

  1. campbeck97

    campbeck97 New Member

    Hello everyone, Just wanted to ask if anyone with Fibromyalgia has ever been treated at any of the Fibromyalgia and Fatigue Centers Inc.? They are located throughout the US. I've been thinking about trying them but wanted some feed back from someone thats actually tried them wether its good or bad. Please post if you have information on this.They say their treatment plan increases energy levels up to 80% and gets your life back to almost normal with a few core meds and supplements. Thanks Becky
  2. finfree

    finfree New Member

    Also do a search for the continuation thread called FFCer's Part 2.
  3. wld285

    wld285 New Member

    Hi Becky,
    I have been going to FFC in Philadelphia since last Aug. I have learned more about things that are wrong with me than I ever had before. For me however, it seems to be a real slow progress. Mainly because I have a thyroid problem to deal with first, so he has been very slow to start some treatments.

    I am still glad I found them, and am nnot going to give up yet. Just don't think it will be a quick fix, and can be costly.

    I know some of them seem to be better than others by reading on this board. I have been happy where I am going. For me it is worth a shot.

    Good Luck,

  4. dannybex

    dannybex Member

    ...that they didn't talk to you about the things that can CAUSE thyroid problems. Many bacteria, viruses, candida infections can be the cause of thyroid issues...if these are treated, the thyroid recovers.
  5. Mikie

    Mikie Moderator

    The FFC's do a lot of testing and are very aggressive in addressing chronic infections, which most of us have. This is basically the same regimen my docs and I have been doing for the last six-plus years. It takes time to heal but I can see progress.

    The FFC's are expensive and will not take insurance. You have to pay up front and send in your own claims. Most insurance does not cover the full costs, if anything at all.

    This is not to discourage anyone from going to a specialty clinic. It's just to inject some reality that there are no easy answers. Good luck if you decide to go.

    Love, Mikie
  6. kabelladonna

    kabelladonna New Member

    I didn't find enough of a positive response to warrant travelling from Houston to Dallas and to warrant the $1345 fee.

    There was one in Houston at one time, but it's no longer in business. For me, it was another sign in the direction of no.

  7. Taradonelle

    Taradonelle New Member

    Hi Becky,

    I'm an FCC patient at the clinic in Philly and have been for a little over a year. I think there are definite pro's an con's. On the upside I have found my doctor to be knowledgable, sympathetic, and extremely responsive. They do a lot of testing, and I know a lot more about my what's going on in my body than I did before. I have seen definite improvement, but not a huge amount of improvement. I'm on Valcyte now and have my fingers crossed. On the downside, they do not accept insurance. You'll have to file any claims yourself. And they are big on supplements. I'm spending close to 300$ a month on supplements and I'm not really convinced they're doing much good.

    Hope this helps!

  8. campbeck97

    campbeck97 New Member

    Thanks to all that have replied to the questions on the FCC centers , I don't see enough positives to warrant giving them a try. I guess when your living with a chronic pain diease your always searching for that quick fix or that simple cure that some how all the other Drs. have missed. Thanks again and God Bless all of you suffering people! I pray for you all. Becky
  9. mollystwin

    mollystwin New Member

    I spent about $12,000 at FFC last year and was sicker when I left than before I started. I have lyme disease which they failed to diagnose.

    Also, they were overdosing me on T3. My new doctor did a blood test and found I was way over the top of the range. I was having very rapid heart rate. And loud pounding heart beats that woke me in the night. I was also very hot and lost tons of weight. When I told this to the DR at FFC, she just sold me another supplement for $70 to deal with my heart issues, didn't recheck my levels the entire 9 months I was there. And she increaed the T3 two more times even with those symptoms!!!

    Now I've read that this could have caused a heart attack or stroke!!! And I've read on the Michigan lyme board that FFC has done this to others as well.

    My new doctor has stabilized my levels and I'm on a very small dose. I am much more comfortable.

    My advice to anyone going there is to question what doesn't seem right to you. I know that some centers are better than others, but I wouldnt go to any of them unless there were no other options.

  10. Iamnotmyillness

    Iamnotmyillness New Member

    I would really like to speak with you regarding the Michigan FFC if you are still on the board. If you would be willing to email me directly, I can be reached at Having some issues with them regarding things that werent monitored.
  11. anarowe1

    anarowe1 Member

    Hi I'm new to website and i'm in michigan was trying to get information. I am looking for a great fibromyalgia specialist in michigan and also a lawyer that has experience with fibromyalgia disability cases. Somewhere near Warren or sterling heights michigan. Please I am in constant pain and my current doctor is not compassionate he just writes scripts. He really don't listen. I am in desperate need of help. So anyone with good information about this topic please comment.