Fibromyalgia and fatigue

Discussion in 'Fibromyalgia Main Forum' started by Fransmom, Feb 28, 2007.

  1. Fransmom

    Fransmom New Member

    I am new to FM - still not officially diagnosed, but pretty sure. I have a question about fatigue. I am always tired and often feel like there's part of me that just isn't 'here' - hard time making small talk. This sound alot like what you all describe. But I also have another kind of fatigue that I wonder if anyone has - I often don't have a lot of pain while I'm sitting down, but when I move (like climb stairs, walk a long way, etc) my knee area screams with fatigue and pain. I also often have a hard time holding my blow dryer because I feel muscle fatigue. Is this like FM?

    I was originally diagnosed with RA, then undiagnosed (never knew that could happen!) and am kind of in limbo with my GP, doing my own investigation - so the more I learn about how my symptoms fit FM or not, the more I can push my GP about actually trying to find out what this all is! THANK YOU for responses and for this site - I don't feel quite so alone in all this, knowing other people out there are struggling too.
  2. achesandpains

    achesandpains New Member

    hi
    im new to this website site as well and i have found things very
    interesting, ive only just been diagnosed with fms i to suffer from severe pain in my knees when i walk
    i get weakness and tingling in most of my body i never know what im going to get next, i hope you find this site
    as useful as i have, and find out the things u need to know
    keep smiling
    gina
  3. jlcrafter

    jlcrafter New Member

    to FM that is. I've been diagnosed for about 11 years, but the more I read and research the better I understand about this disease. I know exactly what you mean about your knees screaming, mine do as well as my lower back. Some days I can't hold my blow dryer, so I've gotten my hair cut so that it can handle being air dried as well as when I have energy then I can blow it or curl it.

    I'm in the middle of an investigation trying to figure out what else is wrong with me. All the 'ologists' agree I have fibro but they also agree that I have 'something' else wrong, they just don't know what. I'm leaning towards chronic fatigue, but the 'specialists' have to go through all kinds of things first. So, it's a learning process. I'm beginning to think that everything that I deal with is connected in some way to FM. Makes it much easier.

    Hang in there, and keep coming back, I know I have found a lot of support here.

    jl
  4. MtnDews

    MtnDews New Member

    Well, pain does make us tired beyond words. And joints definately do scream at times. I was diagnosed with FM and was treated for a year by a rheumatologist without much improvement. I made a list of anything medical I'd ever had in my entire life and showed it to the Dr. Immediately, he diagnosed me with Ehlers Danlos. Few doctors would recognise Ehlers Danlos Syndrome, but I think many with FM have EDS. A genetic doctor is the best to make that diagnosis. You may want to go to go to a geneticist, they are a wonderful resource and when I went, it was covered by insurance. Of course you may want to check that out first. Hope this helps and that your knee eases up some.
    H
  5. HeartsinOhio

    HeartsinOhio New Member

    You sound like me. I was originally dx with RA, then Fibro, who knows. I have been searching for answers since January 2000! Still dont know for sure. The more I read here tho I think I have RA and Fibro and OA. Is the only pain you have in your knees? I wish you the best. It is so hard not knowing for sure what is happening. I fretted for the first year or two, but now after 7 years, I am not so intent on a DX. I just know I hurt. Take care.
  6. Fransmom

    Fransmom New Member

    Thank you so much for your answers! For me, it all started with hand and foot/toe pain that persisted last summer, moved into the knees in the fall and in the last two months or so the pain in shoulders, elbows, wrists and neck are growing - it's feeling less and less like 'in' my joint pain and more and more like around the joints pain. Ever since the rheumatologist undiagnosed me with RA and implied that this was all in my head (I validate your pain, but we can't find anything wrong with you to cause it), I've been mainly struggling to keep the pain at bay, take care of my children (5 and 3) and keep up with my job. Hubby is supportive, but his focus is on 'getting it fixed' which I'm starting to think isn't going to happen. I just so HATE this pain, pain, pain that never lets you go...argh.