Fibromyalgia and "Night Terrors"

Discussion in 'Fibromyalgia Main Forum' started by tut90, Feb 24, 2009.

  1. tut90

    tut90 Member

    I have experienced this a few times before, I wake up hearing someone calling my name real loud, but this morning I woke up from such a loud noise that sounded like a car had crashed against my house, I jumped up so high, woke up my husband, he told me he had not heard anything. I got up and checked all over the house to see if something had hit it, after that I was not able to go back to sleep.

    Has anyone with FM experienced this? It scared the h--- out of me. Today I'm experiencing tachycardia.

    Thanks, Tut90
  2. hopabout

    hopabout New Member

    Well, my first thought would be what brain altering meds are you on.... they can do a real number on dreams and waking events. I can't take much of anything but melatonin.

    I do believe with the studies I have done on the body and Fibro through the years that we have a tendency to repeat things.... in our minds or in our thoughts... its part of learning disability and trying to remember.

    If you saw that accident or that car hit something in a movie, you might be mimicking it in an awaking event. My Mom had terrors and they adjusted her meds.... also something called Sundown Syndrome. She would awake to something horrible that had happened previously. They fixed it with meds. If you are on Seratonin drugs or any brain altering things, discuss it with your doctor. If the events are too frightening for you.... change the med!

    I have a man that helps with the yard and a lady that helps me on Thursday morning. They both have keys because I can't always get out of bed. The rule is, however, they must ring the door bell before coming in.... sometimes several rings continually. This has happened now for a few years. Subconciously maybe, but I rarely hear them. However, many many days upon waking, I hear the door bell ring. 99.9% of the time, no one rang it. I am just repeating what I have heard that aroused me many times before. Kind of like Pavov and the secretion event he discovered when dogs salivated when they smelled food.

    I get real mad when I get out of bed and no one is at the door!

  3. satchya

    satchya New Member

    I don't know if it's because of Fibromyalgia but I've had night terrors all my life. I either wake up screaming, which scares the hell out of my husband (and I can never remember why I was screaming), or have amazingly vivid nightmares that wake me up with my heart pounding, or see things just as I'm falling asleep (like thinking there's someone in our room, an animal next to the bed, etc.)--which also makes me scream and scares the hell out of my husband. The nightmares happen about every other night, the screaming only once every couple of weeks. I've been married for almost 15 years and it STILL scares the hell out of my poor husband.

    My mother has fibromyalgia and since my Dad worked out of town and was only home a couple of nights a week, I remember her waking me up in the middle of the night because she thought she smelled smoke (and would make me go outside in the middle of the night to check the barn), or thought she heard the horses or other farm animals had gotten out of their pens and were running around the yard (and would make me go outside in the middle of the night to see if that was true). I really hated/resented that. It still bugs me that she made me do it instead of doing it herself, I would never do that to one of my kids. But anyway, I never made that connection before. I see things in the middle of the night, she hears or smells things in the middle of the night, and we both have fibromyalgia.

    Wish you luck with this! Just wanted you to know you're not alone.
  4. tut90

    tut90 Member

    Sometimes I think I'm going crazy, satchya, you mentioned your mother smelling things during the night, I sometimes have smelled smoke, have not mentioned it to anyone in my family.

    I take 30mg of Restoril and 300mg of Gabapentin at bedtime, I have been taking it for about six months now, I don't think that the medications are causing these episodes. I also have diabetes and read that having low blood sugar could cause night terrors. It just scares me at times wondering what else is going to happen to by body.

  5. TeaBisqit

    TeaBisqit Member

    The only time I heard someone call my name was after my mother died. I had one night where I heard her call my name and it woke me up. I totally freaked out after that. I don't think I've ever been the same since. It only happened the once and she sounded panicked. She passed away five months prior to this happening. I believe I really did hear her calling me from the other side.

    I've had horrible vivid dreams since I got sick. I do not take medication other than Pepcid AC and I wasn't taking Pepcid when I got sick. Vivid dreams are often a part of this disease, probably because of our disturbed sleep patterns.

    I will say this, though. My dreams are always horrible. I don't have happy dreams. I have vivid dreams of being in other places with people I've never seen before. And they are so real, I would swear I was there.
  6. satchya

    satchya New Member

    Thank you for saying this TeaBisqit. I thought I was the only one who almost always dreamed I was someone else, somewhere else, etc. I always think if I could wake up and remember everything exactly I could write some amazing novels. I wonder if anyone else here has that experience?
  7. Nanie46

    Nanie46 Moderator


    Just wanted to pass along some info that I read about how Borrelia infection can cause nightmares, fibromyalgia syndromes, chronic fatigue syndromes, smelling unusual smells as mentioned in a post below as well as heart problems and lots of other symptoms....something to consider...

    In this article, scroll about 1/2 way down and read the paragraph beginning with "Incidently, hyperaccusis can be a feature....." Actually the entire essay is astoundingly interesting.

    The next link contains a booklet with a really good symptom checklist in the back...
  8. RockyRaccoon

    RockyRaccoon New Member

    LOL - That's what happened to me! Thought my dad was calling me and woke up with chest pounding and scared the H--- out of me too! Found out after talking to my Primary Doc that I needed to see a Sleep Specialist/Pulmonary Doc. Took that lovely sleep test and found out that I snore like a train (already knew that) and stop breathing over 50 times an hour! No wonder I woke up with pounding chest. Doc said that is one of the tell-tell symptoms of sleep apnea and the hearing someone calling your name is normal. You're body is in distress and the old brain is trying to get you to wake up so you can breathe. Yes, I am now Darth Vader's cousin with the CPAP but I will swear to you and now I sleep all night long without waking up to the sound of someone calling my name and without the pounding chest. Get a referral for a sleep test. This is a serious condition because it can damage your heart and increase your risk for stroke. No, I'm not kidding or trying to be an alarmist. Safety first. Get a sleep test.
  9. tut90

    tut90 Member

    Nanie46 thank you for the links, I will be reading the information you gave me. RockyRaccoon, I have been wondering if it has something to do with snoring, I know for a fact that I do snore, who knows how many times I do stop breathing.

    I read that "night terrors" could be the cause of too much stress and low blood sugar which I have been experiencing alot lately. At the present time I don't have any health insurance and can't afford any expensive tests.

    Thank you all,

  10. MnekoM

    MnekoM New Member

    I've always suffered nightmares and terrors all my life. I don't know if this is due to FM or due to the abuse/molestation/rape,etc that I suffered. Many FM patients have suffered PTSD so it's hard to know what's causing the nightmares/terrors. It seems to happen more often when I am emotionally stressed. It can also be triggered by the sleep aids. When I started taking Lunesta, I was having strange and vivid nightmares. I had a horrible night terror when I tried "Bach Flower Essence" natural sleep aid (trying to replace Lunesta). The sound of my clock ticking was so loud that woke up panicking because I thought it was a bomb ticking!

    I sometimes wake up screaming, too. Those nightmares are usually about being chased by my abusive ex-boyfriend, molester, rapists, or even my mom who tried to kill me in the past. My nightmares feel so real that I get confused where I am and even who I am. I have to turn all the lights on and look around to make sure everything is ok.
  11. Gingareeree

    Gingareeree New Member

    off and on for years.Usually occurs when I am particularly stressed or overtired. Also in the first phase of sleep. Mine usually is someone standing over me. First occurance seemed so real,I was screaming and hitting back(turns out my hubbie was trying to calm me down by grabbing me,which only made my dream feel more real. He said he was about to smack me when I finally woke up!) Very scary...When I have the occasional terror now,I find I am really embarrassed because I scream so loud that it startles my hubbie. A lot of times before bed I will pray for a peaceful nights sleep,because I fear these terrors. Jeanne
  12. gapsych

    gapsych New Member

    Have you had a sleep study?

    If you haven't, I would definitely do this first. Have you ever experienced sleep paralysis? Are you diagnosed with any sleep problems?

    Sleep problems can run in families.

    Good luck.

    [This Message was Edited on 02/26/2009]
  13. Gingareeree

    Gingareeree New Member

    Are night terrors and sleep paralysis connected? I have that from time to time as well. Sleep paralysis for me occurs later into my sleep cycle and whenever I sleep on my back. I feel as tho I'm in a light sleep because I can usually tell myself to "just relax",then I will usually wake up. I really hate that issue as well in so much as I won't allow myself to sleep on my back anymore! Never had a sleep study because I have trouble sleeping outside of my own domain. LOL!!
  14. tut90

    tut90 Member

    Thank you all for the great information given. I have not experienced an abusive situation, but I'm surely going through alot of stress lately due to the FM and other ilnesses. My husband has been out of work since August 2008. He will be 65 this coming August and I will be 62 in September, as of right now if he doesn't find a job he will have to start collecting SS, it will be less money than if he waited until 66, I will also start SS at 62, things will be tight but what can one do. Everyone is going through some rough times these days.

    Searching online I found this site it has alot of good information,, hope it helps.

    [This Message was Edited on 02/27/2009]

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