Fibromyalgia if you were diagnosed this?

Discussion in 'Fibromyalgia Main Forum' started by hensue, Oct 30, 2009.

  1. hensue

    hensue New Member

    What are your symptoms?

    I think mine are right in line with everyone else.
  2. kermworm

    kermworm New Member

    Compare your symptoms to the list of symptoms in both of these. My fibromyalgia was really...
  3. AdirondackScarlet

    AdirondackScarlet New Member

    minimum of 22 overlapping conditions with fms
  4. hensue

    hensue New Member

    You mean you have minimum of 22 overlapping conditions with fms?
  5. hensue

    hensue New Member

    what do you mean you control it well with exercise? You can exercise without hurting?
    like 24 or 48 hours later?

    I am hypersensitive to noise lights you name it. tinutitis started this year now that is weird??
    My hearing was very acute until now with the buzzing in ears.

    It is all so bizarre you are perfect or so so one day then two days later laid out flat with pain and so fatigued you cannot move.

    My doc wanted me to take armour many years ago but everytime I took it I hurt in pain.
    So I gave up.

    If I take anything that interferes with my wellbutrin flow in my body I start having pain.
    Like everyone else very sensitive to meds.

    It is like you are going along fine or pushing yourself and bam in the bed at least 12 to 24 hours to try and rest get rid of pain and fatigue.

    Thankfully it has come back everytime but today when I was watching the girl with the video and she could barely speak that scared me.

    What if I try and excersize to much?? Is this how I am going to end up?
    She was young!!

    I am totally terrified about all the children who are going thru H>>> with this chronic fatigue!
    It was a real eye opener for me, you can sit back sometime and pity me.

    Then I saw how sick soo many people were and young it was devastating! This is a crime not to really research these viruses and come up with something.

    Before more people if they are to be infected. I think it is a disease, not a freaking syndrome.

    I am more angry today than ever seeing the first webcast about the NIH and if nothing gets done it is really going to p me off!

    Can they not see more and more people are not unwell!!! How stupid what a thing to say.
    I am from Ga and hate to say it but what is up with the wards of the state?
    Are they going to say they were sexually abused, whatever just to see about there fatigue
  6. JLH

    JLH New Member

    Here is a copy of the symptom checklist that has been posted before. This list is the BEST thing I've found to take to the doctor. I cut and past into Word, then delete those that don't apply. I add my name, and the date, then hand it to the doctor as soon as he asks what's wrong.

    When I don't have a list, the dr always seems to get stuck on the first one or two symptoms that I bring up and we never get beyond them. Bringing a list ensures this doesn't happen.

    (I have been told, though, that doctor's only want, and have time to, discuss your 3 most important (important to you, the patient) questions or complaints per visit.)

    ____ Fatigue, made worse by physical exertion or stress
    ____ Activity level decreased to less than 50% of pre-illness activity level
    ____ Recurrent flu-like illness
    ____ Sore throat
    ____ Hoarseness
    ____ Tender or swollen lymph nodes (glands), especially in neck and underarms
    ____ Shortness of breath (air hunger) with little or no exertion
    ____ Frequent sighing
    ____ Tremor or trembling
    ____ Severe nasal allergies (new allergies or worsening of previous allergies)
    ____ Cough
    ____ Night sweats
    ____ Low-grade fevers
    ____ Feeling cold often
    ____ Feeling hot often
    ____ Cold extremities (hands and feet)
    ____ Low body temperature (below 97.6)
    ____ Low blood pressure (below 110/70)
    ____ Heart palpitations
    ____ Dryness of eyes and/or mouth
    ____ Increased thirst
    ____ Symptoms worsened by temperature changes
    ____ Symptoms worsened by air travel
    ____ Symptoms worsened by stress

    ____ Headache
    ____ Tender points or trigger points
    ____ Muscle pain
    ____ Muscle twitching
    ____ Muscle weakness
    ____ Paralysis or severe weakness of an arm or leg
    ____ Joint pain
    ____ TMJ syndrome
    ____ Chest pain

    ____ Lightheadedness; feeling "spaced out"
    ____ Inability to think clearly ("brain fog")
    ____ Seizures
    ____ Seizure-like episodes
    ____ Syncope (fainting) or blackouts
    ____ Sensation that you might faint
    ____ Vertigo or dizziness
    ____ Numbness or tingling sensations
    ____ Tinnitus (ringing in one or both ears)
    ____ Photophobia (sensitivity to light)
    ____ Noise intolerance

    ____ Feeling spatially disoriented
    ____ Dysequilibrium (balance difficulty)
    ____ Staggering gait (clumsy walking; bumping into things)
    ____ Dropping things frequently
    ____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
    ____ "Not quite seeing" what you are looking at

    ____ Hypersomnia (excessive sleeping)
    ____ Sleep disturbance: unrefreshing or non-restorative sleep
    ____ Sleep disturbance: difficulty falling asleep
    ____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
    ____ Sleep disturbance: vivid or disturbing dreams or nightmares
    ____ Altered sleep/wake schedule (alertness/energy best late at night)

    ____ Depressed mood
    ____ Suicidal thoughts
    ____ Suicide attempts
    ____ Feeling worthless
    ____ Frequent crying
    ____ Feeling helpless and/or hopeless
    ____ Inability to enjoy previously enjoyed activities
    ____ Increased appetite
    ____ Decreased appetite
    ____ Anxiety or fear when there is no obvious cause
    ____ Panic attacks
    ____ Irritability; overreaction
    ____ Rage attacks: anger outbursts with little or no cause
    ____ Abrupt, unpredictable mood swings
    ____ Phobias (irrational fears)
    ____ Personality changes

    ____ Eye pain
    ____ Changes in visual acuity (frequent changes in ability to see well)
    ____ Difficulty with accommodation (switching focus from one thing to another)
    ____ Blind spots in vision

    ____ Sensitivities to medications (unable to tolerate "normal" dosage)
    ____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
    ____ Sensitivities to foods
    ____ Alcohol intolerance
    ____ Alteration of taste, smell, and/or hearing

    ____ Frequent urination
    ____ Painful urination or bladder pain
    ____ Prostate pain
    ____ Impotence
    ____ Endometriosis
    ____ Worsening of premenstrual syndrome (PMS)
    ____ Decreased libido (sex drive)

    ____ Stomach ache; abdominal cramps
    ____ Nausea
    ____ Vomiting
    ____ Esophageal reflux (heartburn)
    ____ Frequent diarrhea
    ____ Frequent constipation
    ____ Bloating; intestinal gas
    ____ Decreased appetite
    ____ Increased appetite
    ____ Food cravings
    ____ Weight gain (____ lbs)
    ____ Weight loss (____ lbs)

    ____ Rashes or sores
    ____ Eczema or psoriasis

    ____ Hair loss
    ____ Mitral valve prolapse
    ____ Cancer
    ____ Dental problems
    ____ Periodontal (gum) disease
    ____ Aphthous ulcers (canker sores)

    ____ Difficulty with simple calculations (e.g., balancing checkbook)
    ____ Word-finding difficulty
    ____ Using the wrong word
    ____ Difficulty expressing ideas in words
    ____ Difficulty moving your mouth to speak
    ____ Slowed speech
    ____ Stuttering; stammering
    ____ Impaired ability to concentrate
    ____ Easily distracted during a task
    ____ Difficulty paying attention
    ____ Difficulty following a conversation when background noise is present
    ____ Losing your train of thought in the middle of a sentence
    ____ Difficulty putting tasks or things in proper sequence
    ____ Losing track in the middle of a task (remembering what to do next)
    ____ Difficulty with short-term memory
    ____ Difficulty with long-term memory
    ____ Forgetting how to do routine things
    ____ Difficulty understanding what you read
    ____ Switching left and right
    ____ Transposition (reversal) of numbers, words and/or letters when you speak
    ____ Transposition (reversal) of numbers, words and/or letters when you write
    ____ Difficulty remembering names of objects
    ____ Difficulty remembering names of people
    ____ Difficulty recognizing faces
    ____ Difficulty following simple written instructions
    ____ Difficulty following complicated written instructions
    ____ Difficulty following simple oral (spoken) instructions
    ____ Difficulty following complicated oral (spoken) instructions
    ____ Poor judgment
    ____ Difficulty making decisions
    ____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
    ____ Difficulty following directions while driving
    ____ Becoming lost in familiar locations when driving
    ____ Feeling too disoriented to drive

  7. munch1958

    munch1958 Member

    There is always something deeper going with us than a mystery syndrome with a psychological label that is reality a collection of symptoms with no known treatment and no known cure. We are told to just "learn to live with these symptoms".

    When you feel like you can't live another day in your body because your symptoms are just that overwhelming some idiot doctor hands you yet another antidepressant or even worse says....nothing can be done for people like you. That to me is the very definition of nuts.

    6 out of 10 people can't tolerate Lyrica because of side effects yet this is the FIRST medication that is FDA approved for Fibromyalgia.

    A diagnosis of FM or CFS is an incomplete diagnosis at best. 8 out of 10 people (ore even 9 out of 10 people -- depending on who is asked) has Lyme or another strain of Borrelia plus other kinds of bacteria that require treatment. Many people get well and recover their previous lives.

    Ticks are nasty dirty creatures that are the size of the period at the end of this sentence. Less than 40% have a rash. Most people don't even know they've been bit.

    There is clearly something wrong with the immune system in these fatigue causing illnesses. We all have an collection of active and latent infections like EBV, mycoplasma, CPN, CMV, Bartonella, Babesia, Ehrlichia, candida, HHV-6, etc. Cytokines from these untreated or undertreated infections go on to damage the hypothalamus which in turn causes problems with the thryoid, adrenals and pituitary glands.

    Symptoms of Lyme Disease:

    The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
    Rash at site of bite
    Rashes on other parts of your body
    Rash basically circular, oval and spreading out (more generalized)
    Raised rash, disappearing and recurring

    Head, Face, Neck:

    Unexplained hair loss
    Headache, mild or severe, Seizures
    Pressure in head, white matter lesions in brain (MRI)
    Twitching of facial or other muscles
    Facial paralysis (Bell's Palsy, Horner's syndrome)
    Tingling of nose, (tip of) tongue, cheek or facial flushing
    Stiff or painful neck
    Jaw pain or stiffness
    Dental problems (unexplained)
    Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


    Double or blurry vision
    Increased floating spots
    Pain in eyes, or swelling around eyes
    Oversensitivity to light
    Flashing lights/Peripheral waves/phantom images in corner of eyes


    Decreased hearing in one or both ears, plugged ears
    Buzzing in ears
    Pain in ears, oversensitivity to sounds
    Ringing in one or both ears

    Digestive and Excretory Systems:

    Irritable bladder (trouble starting, stopping) or Interstitial cystitis
    Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

    Musculoskeletal System:

    Bone pain, joint pain or swelling, carpal tunnel syndrome
    Stiffness of joints, back, neck, tennis elbow
    Muscle pain or cramps, (Fibromyalgia)

    Respiratory and Circulatory Systems:

    Shortness of breath, can't get full/satisfying breath, cough
    Chest pain or rib soreness
    Night sweats or unexplained chills
    Heart palpitations or extra beats
    Endocarditis, Heart blockage

    Neurologic System:

    Tremors or unexplained shaking
    Burning or stabbing sensations in the body
    Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
    Pressure in the head
    Numbness in body, tingling, pinpricks
    Poor balance, dizziness, difficulty walking
    Increased motion sickness
    Lightheadedness, wooziness

    Psychological well-being:

    Mood swings, irritability, bi-polar disorder
    Unusual depression
    Disorientation (getting or feeling lost)
    Feeling as if you are losing your mind
    Over-emotional reactions, crying easily
    Too much sleep, or insomnia
    Difficulty falling or staying asleep
    Narcolepsy, sleep apnea
    Panic attacks, anxiety

    Mental Capability:

    Memory loss (short or long term)
    Confusion, difficulty in thinking
    Difficulty with concentration or reading
    Going to the wrong place
    Speech difficulty (slurred or slow)
    Stammering speech
    Forgetting how to perform simple tasks

    Reproduction and Sexuality:

    Loss of sex drive
    Sexual dysfunction
    Unexplained menstral pain, irregularity
    Unexplained breast pain, discharge
    Testicular or pelvic pain

    General Well-being:

    Phantom smells
    Unexplained weight gain, loss
    Extreme fatigue
    Swollen glands/lymph nodes
    Unexplained fevers (high or low grade)
    Continual infections (sinus, kidney, eye, etc.)
    Symptoms seem to change, come and go
    Pain migrates (moves) to different body parts
    Early on, experienced a "flu-like" illness, after which you have not since felt well.
    Low body temperature
    Allergies/Chemical sensitivities
    Increased effect from alcohol and possible worse hangover
  8. munch1958

    munch1958 Member

    The article is called -- "New ideas about the cause, spread and therapy of Lyme Disease"

    Quote from article...

    "When Dr. Mattman cultured 25 patients with fibromyalgia all subjects had positive cultures for the CWD Bb. which causes LD."

    That is 100% of cases.
  9. sportsmom628

    sportsmom628 New Member


    If you go to American Autoimmune Related Disease Association (all caps) you will find all the associated conditions on this website. This is the posting I had made about the intersting website I came across, just wasn't sure I could.

    But I have found it very informative to alot of things, and I could not believe the symptoms I have related to alot of the associated condtions. It's a pretty good site, I can't seem to stay off of it now.

    I believe there is a canadian website too that was is all lower caps for anyone in canada.

    Hope you find this helpful.


    I corrected it it is .org not .com. Sorry about that brain fog, luckily someone else found it the error on another post.
    Gina [This Message was Edited on 11/02/2009]
  10. sportsmom628

    sportsmom628 New Member


    Kina fibro fog, I made the corrections on all my posts. hopefully all of them. Lol.


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