Discussion in 'Fibromyalgia Main Forum' started by hensue, Oct 30, 2009.
What are your symptoms?
I think mine are right in line with everyone else.
Compare your symptoms to the list of symptoms in both of these. My fibromyalgia was really...
minimum of 22 overlapping conditions with fms
You mean you have minimum of 22 overlapping conditions with fms?
what do you mean you control it well with exercise? You can exercise without hurting?
like 24 or 48 hours later?
I am hypersensitive to noise lights you name it. tinutitis started this year now that is weird??
My hearing was very acute until now with the buzzing in ears.
It is all so bizarre you are perfect or so so one day then two days later laid out flat with pain and so fatigued you cannot move.
My doc wanted me to take armour many years ago but everytime I took it I hurt in pain.
So I gave up.
If I take anything that interferes with my wellbutrin flow in my body I start having pain.
Like everyone else very sensitive to meds.
It is like you are going along fine or pushing yourself and bam in the bed at least 12 to 24 hours to try and rest get rid of pain and fatigue.
Thankfully it has come back everytime but today when I was watching the girl with the video and she could barely speak that scared me.
What if I try and excersize to much?? Is this how I am going to end up?
She was young!!
I am totally terrified about all the children who are going thru H>>> with this chronic fatigue!
It was a real eye opener for me, you can sit back sometime and pity me.
Then I saw how sick soo many people were and young it was devastating! This is a crime not to really research these viruses and come up with something.
Before more people if they are to be infected. I think it is a disease, not a freaking syndrome.
I am more angry today than ever seeing the first webcast about the NIH and if nothing gets done it is really going to p me off!
Can they not see more and more people are not unwell!!! How stupid what a thing to say.
I am from Ga and hate to say it but what is up with the wards of the state?
Are they going to say they were sexually abused, whatever just to see about there fatigue
Here is a copy of the symptom checklist that has been posted before. This list is the BEST thing I've found to take to the doctor. I cut and past into Word, then delete those that don't apply. I add my name, and the date, then hand it to the doctor as soon as he asks what's wrong.
When I don't have a list, the dr always seems to get stuck on the first one or two symptoms that I bring up and we never get beyond them. Bringing a list ensures this doesn't happen.
(I have been told, though, that doctor's only want, and have time to, discuss your 3 most important (important to you, the patient) questions or complaints per visit.)
____ Fatigue, made worse by physical exertion or stress
____ Activity level decreased to less than 50% of pre-illness activity level
____ Recurrent flu-like illness
____ Sore throat
____ Tender or swollen lymph nodes (glands), especially in neck and underarms
____ Shortness of breath (air hunger) with little or no exertion
____ Frequent sighing
____ Tremor or trembling
____ Severe nasal allergies (new allergies or worsening of previous allergies)
____ Night sweats
____ Low-grade fevers
____ Feeling cold often
____ Feeling hot often
____ Cold extremities (hands and feet)
____ Low body temperature (below 97.6)
____ Low blood pressure (below 110/70)
____ Heart palpitations
____ Dryness of eyes and/or mouth
____ Increased thirst
____ Symptoms worsened by temperature changes
____ Symptoms worsened by air travel
____ Symptoms worsened by stress
____ Tender points or trigger points
____ Muscle pain
____ Muscle twitching
____ Muscle weakness
____ Paralysis or severe weakness of an arm or leg
____ Joint pain
____ TMJ syndrome
____ Chest pain
____ Lightheadedness; feeling "spaced out"
____ Inability to think clearly ("brain fog")
____ Seizure-like episodes
____ Syncope (fainting) or blackouts
____ Sensation that you might faint
____ Vertigo or dizziness
____ Numbness or tingling sensations
____ Tinnitus (ringing in one or both ears)
____ Photophobia (sensitivity to light)
____ Noise intolerance
____ Feeling spatially disoriented
____ Dysequilibrium (balance difficulty)
____ Staggering gait (clumsy walking; bumping into things)
____ Dropping things frequently
____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
____ "Not quite seeing" what you are looking at
____ Hypersomnia (excessive sleeping)
____ Sleep disturbance: unrefreshing or non-restorative sleep
____ Sleep disturbance: difficulty falling asleep
____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
____ Sleep disturbance: vivid or disturbing dreams or nightmares
____ Altered sleep/wake schedule (alertness/energy best late at night)
____ Depressed mood
____ Suicidal thoughts
____ Suicide attempts
____ Feeling worthless
____ Frequent crying
____ Feeling helpless and/or hopeless
____ Inability to enjoy previously enjoyed activities
____ Increased appetite
____ Decreased appetite
____ Anxiety or fear when there is no obvious cause
____ Panic attacks
____ Irritability; overreaction
____ Rage attacks: anger outbursts with little or no cause
____ Abrupt, unpredictable mood swings
____ Phobias (irrational fears)
____ Personality changes
EYES AND VISION
____ Eye pain
____ Changes in visual acuity (frequent changes in ability to see well)
____ Difficulty with accommodation (switching focus from one thing to another)
____ Blind spots in vision
____ Sensitivities to medications (unable to tolerate "normal" dosage)
____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
____ Sensitivities to foods
____ Alcohol intolerance
____ Alteration of taste, smell, and/or hearing
____ Frequent urination
____ Painful urination or bladder pain
____ Prostate pain
____ Worsening of premenstrual syndrome (PMS)
____ Decreased libido (sex drive)
____ Stomach ache; abdominal cramps
____ Esophageal reflux (heartburn)
____ Frequent diarrhea
____ Frequent constipation
____ Bloating; intestinal gas
____ Decreased appetite
____ Increased appetite
____ Food cravings
____ Weight gain (____ lbs)
____ Weight loss (____ lbs)
____ Rashes or sores
____ Eczema or psoriasis
____ Hair loss
____ Mitral valve prolapse
____ Dental problems
____ Periodontal (gum) disease
____ Aphthous ulcers (canker sores)
____ Difficulty with simple calculations (e.g., balancing checkbook)
____ Word-finding difficulty
____ Using the wrong word
____ Difficulty expressing ideas in words
____ Difficulty moving your mouth to speak
____ Slowed speech
____ Stuttering; stammering
____ Impaired ability to concentrate
____ Easily distracted during a task
____ Difficulty paying attention
____ Difficulty following a conversation when background noise is present
____ Losing your train of thought in the middle of a sentence
____ Difficulty putting tasks or things in proper sequence
____ Losing track in the middle of a task (remembering what to do next)
____ Difficulty with short-term memory
____ Difficulty with long-term memory
____ Forgetting how to do routine things
____ Difficulty understanding what you read
____ Switching left and right
____ Transposition (reversal) of numbers, words and/or letters when you speak
____ Transposition (reversal) of numbers, words and/or letters when you write
____ Difficulty remembering names of objects
____ Difficulty remembering names of people
____ Difficulty recognizing faces
____ Difficulty following simple written instructions
____ Difficulty following complicated written instructions
____ Difficulty following simple oral (spoken) instructions
____ Difficulty following complicated oral (spoken) instructions
____ Poor judgment
____ Difficulty making decisions
____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
____ Difficulty following directions while driving
____ Becoming lost in familiar locations when driving
____ Feeling too disoriented to drive
There is always something deeper going with us than a mystery syndrome with a psychological label that is reality a collection of symptoms with no known treatment and no known cure. We are told to just "learn to live with these symptoms".
When you feel like you can't live another day in your body because your symptoms are just that overwhelming some idiot doctor hands you yet another antidepressant or even worse says....nothing can be done for people like you. That to me is the very definition of nuts.
6 out of 10 people can't tolerate Lyrica because of side effects yet this is the FIRST medication that is FDA approved for Fibromyalgia.
A diagnosis of FM or CFS is an incomplete diagnosis at best. 8 out of 10 people (ore even 9 out of 10 people -- depending on who is asked) has Lyme or another strain of Borrelia plus other kinds of bacteria that require treatment. Many people get well and recover their previous lives.
Ticks are nasty dirty creatures that are the size of the period at the end of this sentence. Less than 40% have a rash. Most people don't even know they've been bit.
There is clearly something wrong with the immune system in these fatigue causing illnesses. We all have an collection of active and latent infections like EBV, mycoplasma, CPN, CMV, Bartonella, Babesia, Ehrlichia, candida, HHV-6, etc. Cytokines from these untreated or undertreated infections go on to damage the hypothalamus which in turn causes problems with the thryoid, adrenals and pituitary glands.
Symptoms of Lyme Disease:
The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
Rash at site of bite
Rashes on other parts of your body
Rash basically circular, oval and spreading out (more generalized)
Raised rash, disappearing and recurring
Head, Face, Neck:
Unexplained hair loss
Headache, mild or severe, Seizures
Pressure in head, white matter lesions in brain (MRI)
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy, Horner's syndrome)
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness
Dental problems (unexplained)
Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose
Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights/Peripheral waves/phantom images in corner of eyes
Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears
Digestive and Excretory Systems:
Irritable bladder (trouble starting, stopping) or Interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)
Respiratory and Circulatory Systems:
Shortness of breath, can't get full/satisfying breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Endocarditis, Heart blockage
Tremors or unexplained shaking
Burning or stabbing sensations in the body
Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Mood swings, irritability, bi-polar disorder
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Narcolepsy, sleep apnea
Panic attacks, anxiety
Memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Forgetting how to perform simple tasks
Reproduction and Sexuality:
Loss of sex drive
Unexplained menstral pain, irregularity
Unexplained breast pain, discharge
Testicular or pelvic pain
Unexplained weight gain, loss
Swollen glands/lymph nodes
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well.
Low body temperature
Increased effect from alcohol and possible worse hangover
The article is called -- "New ideas about the cause, spread and therapy of Lyme Disease"
Quote from article...
"When Dr. Mattman cultured 25 patients with fibromyalgia all subjects had positive cultures for the CWD Bb. which causes LD."
That is 100% of cases.
If you go to www.AARDA.org American Autoimmune Related Disease Association (all caps) you will find all the associated conditions on this website. This is the posting I had made about the intersting website I came across, just wasn't sure I could.
But I have found it very informative to alot of things, and I could not believe the symptoms I have related to alot of the associated condtions. It's a pretty good site, I can't seem to stay off of it now.
I believe there is a canadian website too that was is all lower caps for anyone in canada.
Hope you find this helpful.
I corrected it it is .org not .com. Sorry about that brain fog, luckily someone else found it the error on another post.
Gina [This Message was Edited on 11/02/2009]
Kina fibro fog, I made the corrections on all my posts. hopefully all of them. Lol.
Separate names with a comma.